Why do you have to be a heartbreaker…

I have an app that is designed to monitor symptoms of chronic illness. I wear a monitor on my wrist to check my heart rate, oxygen level, quality of sleep etc. It’s helpful. It warns me when my vital stats are out of sink. It records my heart rate variation, which is a big indicator of how well my body is coping. It has also been good to have an accurate idea of how much sleep I am getting (not much). You can rate symptoms every day and compare over time how various issues are affecting you. Overall, would recommend the app.

There’s just one thing that gets me down. The final thing that is recorded daily is ‘crash’. Basically, did I run out steam that day. Sadly, the answer is yes. Sometimes my energy tank is empty before reaching the dat’s destination. Other times pain takes me out. Others, still,I get too dizzy to continue. Lucky me, some days it’s a combination of all three. Of course this means that I rarely accomplish what I wanted (or needed) to. It frustrating and depressing and often really destructive. Constantly saying ‘I can’t’ wreaks havoc with every aspect of life. Be it personal or professional, I’m letting people down and it kills me. The guilt is enormous. As is the disappointment. I’m ambitious; my head is crammed with ideas and I had a very different life planned. Not being able to execute my plans in a grand or minute way is heartbreaking. 

That’s the thing about chronic illness, it breaks your heart and you just have to carry on. I’m continually having to find a different way to operate. My lists of can’ts is forever growing and changing, thus I must be flexible. I’m working with a different set of tools and I try to remember that. However, always ticking that box is a daily downer, which happens to be another intrinsic part of being chronically ill. It’s not often that the big things floor me. The huge issues pull all your focus into jus getting through it. It’s an hour by hour what needs to happen to come out the other side of this. There’s no time for dissecting. It’s the drip drip of daily symptoms that really torture me. The dreaded realisation that this thing is here to stay, that’s what fucks me up.

If you like what I do you can support me on Patreon.

Yellow Days…

I’m in the midst of mega bout of insomnia. I don’t love it. My brain is extra foggy and my productivity is questionable. However my ability to make many outfits from a few items of clothes remains stellar.

I like my clothes and I like having fun with them. It also makes my life easier if I just switch out a few bits rather than do a whole new outfit every day. January is cold and dark, so it needs an injection of colour. Enter bright yellow.

Dress – Simply Be Top – Taking Shape

I wanted to wear this sheer yellow top. I also wanted to comfy and cosy. I just layered it up. I started with this stretchy maxi. For me, leopard in a neutral, so I wear it with everything

Skirt – Lindy Bop Vest – M&S Cardi – Asos

When I needed to look a bit more put together I went for this graphic swing skirt. I love this skirt because it always makes me feel nice. It has a lovely swish to it. You can’t feel bad when you’re swishing around.

Dress – Pink Clove

Finally I combatted my insanely swollen Pcos tum with this bronze slip dress. It doesn’t put any pressure on my stomach. Comfort box ticked. I also love the clash of the metallic with the brights. Probably not for everyone, but a big yes for me.

I am a prolific outfit repeater. Clothes aren’t meant to be disposable. Doing a little mix & match is fun. It helps me get the most out of my wardrobe & saves me some spoons along the way. It’s win, win, win.

If you like what I do you can support me on Patreon.

New Year, No Bullshit…

In January I usually write something in answer to all the ‘New Year, New Me’ noise. This year I find myself exhausted that it’s still so loud. I genuinely don’t understand how the diet industry, fitness hacks & self help scammers still have such a hold on people.

I’m pretty sure almost everyone is aware that New Year’s resolutions are ineffective. January 1st is just an arbitrary line in the sand. You aren’t more likely to break a habit or change behaviour because it’s a new year. In fact, given how meh January is we’re probably less likely to manage big changes. That’s before we even start on the things folk are dying for us change. Lose weight, tone it up, don’t eat that, hustle harder, conform! The only thing that changes is the spin the charlatans put on it. I just don’t understand why so many people are still falling for it. Shrinking your body won’t shrink your problems. There are no good or bad foods. Your value is not measured by your productivity. No arsehole in a sports bra or with the a podcast can fix your life.

The frustrating part is, deep down, I believe people know that. Which to me, means that everyone hawking their miracle cure are exploiting the vulnerable. They purposely target this shit at people who are grasping for answers. It’s a scam. The diet industry, the fitness bros & self help gurus don’t have the answer. And they know it.

If you like what I do you can support me on Patreon.