Since the emergence of omicron I have been increasingly relieved that I have had acesss to two vaccines & a booster. As a chronically ill person I can’t afford to be blasé about any variant. It also leads to me think about those who don’t have free access to these life saving jabs.
As a result this month I have decided to support Care International’s campaign to fund the cost of covid vaccines for the world’s poorest & most vulnerable families. Care put the cost at £22, but you can donate more or less. It is disgusting that the most vulnerable people do not have access to these vital vaccinations. If we are in a position to make a donation I really feel we have a responsibility to do so.
It occurred to me recently that had I ever followed through with my invention I may be rolling in it by now. I know I don’t seem like high powered entrepreneur, but I’ve actually had a few amazing ideas that turned into real money spinners. Join me as trawl through the ideas I should have got a patent for!
Yes. Really. Way back in 1999 I came up with that idea. I welcomed a boyfriend back from a trip at Xmas time with a glittery festive shape instead of a landing strip. It was a hit. A mere decade later those damn Essex girls stole my idea and made a mint.
You know those clever little ballet flats that fold into a tiny pouch? My best friend and I had that idea in the 90’s too. Sick of walking around barefoot holding our heels after a night out we drunkenly came up with fold away shoes. As with most 4am ideas we did no follow through. A few years later some other more committed bugger actually made them. Another money making opportunity missed.
Oh I know, this seems unlikely. It’s still true. I’ve been painting designs on my finger nails since my early teens. Granted, I wasn’t always good at it, but I was absolutely doing it before it was a thing. My little sister even got in on the act way before any professional salons started offering it. We were trailblazers. These days we both pull off amazing nails, but other folks are raking in the cash.
In the early 2010’s Mary Portas Lauched her Armery collab with Charnos (many brands have had similar designs since). She claimed it was her revolutionary idea, sleeves that could be worn under anything for women who didn’t want bare arms. Well, once again, I beg to differ. Portas was not the first to think this up. Myself & many other self harmers had been taking scissors to tights to fashion an identical product forever. Necessity is the mother of invention. Hiding the tell tale signs of our terrible secret had us innovating long before Mary. It’s pity some of us didn’t get together and launch the idea.
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Since we seem to be heading full steam into SUCK IT territory for the disabled & chronically ill I wanted to talk about my experience of covid. There has been an overarching theme of those with existing health conditions being dispensable from the start, but now it’s pretty much being explicitly stated by our leaders. I want everyone to know how frightening this is for those of us that so many are happy to sacrifice.
As a person with chronic health issues (arthritis, fibromyalgia, stomach disease, anaemia, PCOS) I took covid seriously from the beginning. Lockdown was a complete lockdown for me. I stayed at home. I had no visitors. All my essentials were delivered. The only contact I had with anyone was the occasional driveway visit. My sister or bestie would stand in my drive and I’d sit in my open from door. I didn’t touch another human being or leave my house for months. I had hospital stays without visitors, didn’t celebrate my 40th birthday and spent Xmas 2020 at home on my own. My lockdown stretched on further than the official stay at home orders. Since early 2020 I have spent the majority of my time at home and I have been scared since the beginning. I had no idea what covid might do to me. I’ve experienced catching bugs or viruses that were no biggie for others, but sent me to the hospital. Every time I heard of someone dying being caveated with they had existing health problems, I knew that could be me. This pandemic has always been an emergency situation for me & those like me.
I now regularly see family & one close friend. I wear a mask, sanitise, stay outside as much possible. If I must be inside I go to places that follow all covid precautions and I exercise extreme caution. Doctor appointments aside I leave my home about once a week. I still have everything delivered and avoid contact with those outside my immediate circle. I do home tests before and after I go anywhere. With a couple of exceptions a restricted life has become my normality.
I contracted covid 19 in oct 2020. At that point I was spending 99% of my time alone at home. I was seeing only my sister, mum & nephew and wasn’t visiting anyone indoors. I still managed to catch the virus despite none of the family I was in contact becoming infected. The acute illness was not severe. It lasted about ten days & felt like having a stomach flu. I had more gastric than cold/flu like symptoms. My cough was very mild. I lost my sense of smell & taste. I felt terrible, but I didn’t require any medical attention. In the following weeks I really struggled with breathlessness & racing heart but assumed this would pass. It did not.
15 months later I am still dealing with long covid. My already limited mobility has been massively impacted. I become breathless even moving around my own home. I have to sit even to brush my teeth, make a cup of tea etc. I have overwhelming fatigue, brain fog and widespread pain have markedly intensified since having covid. I experience palpitations and chest pains on the slightest exertion. My heart rate regularly climbs to heights whilst trying to complete the most basic of tasks. I have been hospitalised on 4 occasions because my heart rate would not slow down to an acceptable level. Drs can monitor and treat symptoms, but they know almost nothing about long covid. They can’t tell my why these symptoms persist or if they will ever go away. My chest x rays are clear, my heart is not damaged. The tachycardia & breathlessness are a covid mystery.
A frightening and very real mystery. It is scary to feel as though your heart is going to burst out of your body. Or to be so out of breath that your head spins and chest burns. It’s a million times more terrifying to be told that the experts have no idea why it is happening or how they can make it better. Fear has been common thread. 2021 has been a really hard year for my health. All of my existing symptoms have worsened. The added problems have caused me serious problems and I think I have picked up every cold, stomach bug & infection going. All of which has been alarming. I’m worried that the next illness or flare might be the big one. I’m stressed about all the work I can’t do and the financial repercussions of that. I am chilled at just how little I am now able to do before becoming too exhausted/sore/dizzy/breathless to continue. Most of all I am terrified of what could happen if I get another variant of covid.
I am fully vaccinated (& boosted). I have masks galore, anti bac in every bag & pocket. I still leave parcels & deliveries by the door for an hour before I touch them. I bought a device to sanitise my phone. I’m never in crowds. I rarely go out. I’m acutely aware that I was being even more careful when I caught covid the first time. Every single aspect of my life has been affected by this pandemic. I know I am not alone. Most people have sacrificed. Many are in the same boat as me & others in far more treacherous vessels. I understand that this has been a collective trauma that everyone is eager to put behind them. I just wish more people would understand that this isn’t over yet.
When you justify the need to ‘live with covid’ by saying that most healthy people only experience mild symptoms I am the exception in that sentence. People like me will die or be permanently disabled if we ignore how dangerous covid still is. I understand that you want your life back. You want to stop worrying and missing out. I do too, but if we throw caution to wind now it’s not without consequence. If we pretend that covid is just another part of life we are throwing the sick, disabled, old & vulnerable to the wolves. I believe that those lives are worth as much as any other. Our needs are already ignored in so many ways, please don’t abandon us altogether.
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I’m not a fan of New Year’s Resolutions. It’s so arbitrary to decide we have to change at this specific time. I feel like folk put too much yucky pressure on themselves. Not to mention resolutions often revolve around unhelpful things like losing weight or forcing yourself to the gym everyday. Thus, I give resolutions a wide berth.
I do have some things I’d like to achieve this year. You will no doubt hear about those as I tackle them. Or as I grumble about how wrong things are going. Things do go wrong and that’s ok!
Which brings me to my main goal this year; be a little nicer to myself. The voice in my head can get harsh. I very much doubt that my inner bitch is helpful. 2022 will hopefully be the year that I give me a tiny little break occasionally. Not so much a physical break as my body pretty much demands them. What I really need to work on is not beating myself up for needing those breaks or getting things wrong. It would be nice not to call myself a useless fuck every time I so much a drop my pen. Work in progress, right?
Anyway, Happy New Year to you all. I hope this year treats you well!
What better way to start the year than in some gorgeous new knickers?
I can never have enough lingerie , so I’m always excited to get some for Xmas. I’m loving all the lace detail especially since the fabric is super soft. I adore the shape the bra is giving me. The whimsy of the French knickeresque pants is delightful.
You know your knickers are making you feeling yourself when you have the urge to snap a booty mirror selfie.