You keep making me ill…

It gives me zero pleasure to say, but my concerns about the current government have proved to be correct. In the last few weeks I have watched aghast as Labour MPs have announced plans to gut disability benefits. Watching Wes Streeting boast about enacting Tory policies was a sickening confirmation of how far his party has fallen.

It is exhausting to repeatedly repudiate the narrative politicians spin about disabled people. However, it seems it is again necessary. I’d like to give you a simple run down on why Labour’s proposed cuts are wrong. Hopefully I can also dispel the lies they are telling to defend them.

Let’s start with what Personal Independence Payment (PIP) actually is. It is a benefit payable to those with a severe disability. It is not an out of work benefit. Nor is it means tested. The purpose of PIP is to mitigate the extra costs that come with disability and/or longterm illness. The latest stats show that the average extra cost for a disabled person is £975 p/m. Compare that to the maximum PIP payment of £737 p/m and it becomes clear that no one is living the high life via disability benefits. There are many people in receipt of PIP who do work. Those who don’t are unable to.

Labour plans are to freeze the payment (stop increases to keep up with inflation) and tighten the qualifying criteria. Their contention being that too many people receive PIP due it being too easy to qualify. They also push the idea that there are many people receiving benefit who do not need it. Labour is continuing where the Tories left off with targeting one of our most vulnerable populations. Welfare recipients and disabled people in particular are an easy target.

The assertion that it’s too easy to qualify for PIP is ridiculous. Let me be clear, no one without an official diagnosis is receiving disability benefits. Successfully applying for PIP is an incredibly onerous endeavour. The process requires extensive disclosures, evidence and the support of medical professionals. The system already purposely discriminates against those with mental illness. Alarmingly, Labour MPs are making a lot of noise about the rise in those out of work due to mental illness; giving a big hint as to who they may go after. Expert medical opinion is already ignored when it comes to work capability assessments. Our previous government destroyed lives with denials and unnecessary reassessments. Many of which were over turned by appeal. The problem for disabled people is the toll this process takes. Applying or appealing a decision is exhaustive and intrusive. The process strips applicants of dignity, applies incredible stress and often makes people sicker. The DWP routinely reject applications from people they know qualify. What Labour mean when they say they want to make us harder to qualify is that they knowingly want to deny essential help to people who absolutely need it. The DWP’s own findings assess the fraud rate for PIP at 0%. There is no evidence to suggest that anyone is taking advantage of disability benefits. Removing PIP will not encourage people back into work. Those who are unable to work will not be cured. Those awaiting treatment will not magically jump to the head of NHS queues. Those who would like to work, but cannot find an employer to meet their accommodation needs will be in the same position. The sick and disabled are not the cause of the UK’s financial problems. Nor is it within their power to alter their situation in life. Our government know this and still choose to make cuts to a life saving benefit.

What Labour have become under Keir Starmer is shameful. The PR campaign for their benefit cuts will further stigmatise a group merely trying to survive. Starmer & friends are too cowardly to tackle the rich with tax increases, closing tax loopholes and similar policies. Thus they turn the might of the government and sections of the media against the group least able to fight back. They do this fully aware of the consequences. Disabled people will die.

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Lies and Distractions…

Just when I thought Keir Starmer was the most rage inducing Labour politician, Tony Blair popped his head out of whatever luxury hole he currently resides in. He decided that we all needed to hear his ableist and stigmatising opinions.

This statement is vile in a number of ways. Blair’s wilful ignorance will contribute to rising disability hate. There is no excuse for someone in his position to feed the right wing ‘scrounger’ narrative. I feel compelled to clear some things up.

Self Diagnosis

There is one reason and one reason only that there has been a rise in ‘self diagnosis’. That is inability to access mental health services. NHS waiting lists are long and actually getting a referral in the first place is laborious. Many people are instead directed to online resources and/or NHS helplines. Those who make it onto a waiting list may still have battles ahead. Most patients are offered a short course of CBT*, a modality that is not suitable for everyone and is often counterproductive. Those struggling to deal with mental illness are not researching symptoms and looking for a diagnosis for the hell of it. They do so because they are desperate. They are not adequately supported by professionals and are driven to find their own answers.

Disability Benefits Bill

Let me be clear, no one without an official diagnosis is receiving disability benefits. Successfully applying for these benefits (PIP, DLA, ESA or ADP**) is an incredibly onerous endeavour. The process requires extensive disclosures, evidence and the support of medical professionals. The system already purposely discriminates against those with mental illness. The criteria are designed to exclude symptoms and difficulties experienced by those with common mental illness like depression or anxiety. Many people with a professional diagnosis and treatment input from psychiatric services are denied these benefits. There is zero chance of someone just saying they have a condition and being approved.

Gaming the System

Implying that large numbers of people are illegitimately claiming benefits is dangerous and inaccurate. Fraud rates for disability benefits are very low. In fact, there is a higher percentage of claimants being underpaid. The application process is exhaustive. It is intentionally stressful and intimidating. Assessors frequently over ride expert medical opinion despite being unqualified to evaluate the conditions claimants have. Vast numbers of claims are rejected only to be overturned on appeal. Contrary to the current narrative, disabled people are often denied support they are entitled to.

***

Scapegoats

Disabled people make great scapegoats. We are one of the most vulnerable demographics. Often with little emotional or physical resources to fight the bureaucracy. We have been subject to harsh conditions since the beginning of austerity. Research from the University of York found that the impact of cuts to social & healthcare were linked to over 57,000 more deaths than expected between 2010 – 2014 alone. The perception that disability benefits are easily scammed and so costly as to damage the economy further endangers us. In 2023/2004 multiple regions in the UK recorded their highest number of disability hate crimes. Being scapegoated by those in positions of power is nothing new. The Tories have been using us as a distraction from their disastrous policies and corruption for years. To have Labour join in is a tough blow. I didn’t have high hopes for this government, but this page from the Conservative playbook is still alarming. Yes, I know that Blair is not a member of our government, but he does still hold sway within the party. His comments will absolutely be associated with Labour.

Disabled people are not to blame for the crisis in our health service. The UK has been experiencing a swell in both physical and mental illness for a number of years. This is as a result of deteriorating public services and a drop in quality of life. The pandemic played a part, but the biggest culprits are our political leaders. It disgusting that the trend of pointing the finger at a vulnerable group to distract from the reality of governmental failures is set to continue.

* Cognitive Behaviour Therapy

** Personal Independence Payment. Disability Living Allowance. Employment and Support Allowance. Adult Disability Payment.

*** Department of Works & Pensions

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The smallest man who ever lived…

I’m feeling like I shouldn’t have titled my last post Crazy Little World since it just got a whole lot crazier. The US election results hit me hard. I really struggle to reconcile the fact that so many people actively support that dangerous, hateful man.

I feel scared for the world. I am terrified for the many real people who will be hurt by another Trump presidency. The trend of politics sliding to right horrifies me. I don’t understand why people are so easily conned into hating groups who have done them no harm.

I despair at the inadequacy of our own government. Keir Starmer’s refusal to take action to protect Palestinians, but eagerness to congratulate Trump is cowardly. Under his leadership Labour have become unrecognisable. Their failure to protect the vulnerable in our society is unforgivable. I fear that inaction will lead to a loss at the next general election and throw us back under Tory rule. So far Labour have not done much to offer me hope.

It’s a frightening landscape that I want to improve. The scale of our situation feels overwhelming. Just telling people to vote feels far from sufficient. The truth is I don’t have the answers, I don’t know who does. The best I can do is stay engaged; I will continue to vote at every level, I will protest, sign petitions, get my hands dirty where possible. Right now I feel like supporting organisations who can help those in jeopardy is paramount.

Reproductive rights are under threat. People are dying because they cannot access the medical care they require during pregnancy. Extremist groups based in the US are trying to make inroads into other countries. If you want to keep access to abortion legal/decriminalise it and help people get pregnant people the care they need you can support one of these organisations.

The National Network of Abortion Funds

BPAS

Abortion Rights Scotland

The situation in Palestine continues to grow worse. Israeli aggression remains unrestrained. Cities have been destroyed. People are fighting warfare, starvation & disease to stay alive. A genocide is taking place, if you can please support one of these fundraisers.

Get Haitham’s family to safety.

Hands for Humanity

Medical Aid for Palestine

Although the UK is a relatively rich country, people will suffer this winter. Shelter, food and heat will be a scarcity for many. Please consider giving your support to one of these organisations.

Shelter Scotland

Trussel Trust

Refuweegee

Isn’t it strange…

I had some bad news recently that is taking me a little time to process. I’m fine, it’s not related to my health. The last few weeks have felt somewhat surreal, life goes on, but I am caught in my own head. I hate to be so mysterious, I will share more when I’m ready.

In the meantime, I feel somewhat contained in my own bubble. A little trip up north with family was lovely. Lots of peace, fresh air and of course carry on with the boy. We absolutely adored the outdoor infinity pool at Portavadie. Warm as a bath, but surrounded by the wildness of the loch. It was beautiful.

This boy loves to torture me with seaweed.

In keeping with this air of strangeness are the election results. I don’t know entirely how to feel about the situation we find ourselves in. I am of course delighted to witness the Tories decimated. However, it is hard to rejoice in a Labour landslide when they are a mere hair’s breadth away for being Conservatives. The rise of Reform is terrifying. I despair at the ignorance & hate that drives their increased popularity. SNP losses are incredibly disheartening and I hope in part due to an anti Tory rather than pro Labour vote in Scotland. I don’t feel hopeful of real change under Starmer. I would love to be proven wrong.

If you like what I do you can support me here or on Patreon.

No one wants your opinion…

The internet is wonderful. It provides so many opportunities to learn, connect, help. It’s entertaining. I use it every damn day, but there’s always a catch.

Join me as I let off a little steam about that catch. Let’s begin with the old foe; men. There are so many men with oh so many opinions online. There’s the reply guy who must say something. The sleazy guys who just have to objectify every female presenting person they scroll upon. The scammers who think every woman becomes an idiot when contacted by surgeon, soldier or pilot. The obsequious guys & the ‘I want to be your sugar daddy’ guys. Last but not least annoying are the gotta throw inane insults at fat women guys. They’re all tedious. I don’t want creepy compliments or offers. I couldn’t care less what some random man thinks about my body or anything else. Stop assuming that you can impose your thoughts on strangers. I am not flattered by your compliments or interested in your preferences. What I am is disgusted, tired and sometimes fucking angry.

Less toxic, but the irritation factor remains high with the tarot, spiritualist, astrology charlatans. Every one of my social media inboxes are jammed with ‘offers’. Just send my DOB, mother’s maiden name & first pet’s name for a free expert reading. Even if I were stupid enough to fall for that con I still wouldn’t believe in any of the tripe they are preaching. I’m also smart enough not to use any of the requested info as security questions. I’d bet most of the population are equally savvy. Stop bothering me. I resent the minutes and finger taps I exert to block you.

Given our fast approaching election, politics loom large. That’s fine with me, I’ve always been political and the Tories need to go. My complaint is two fold. Firstly, the gammon. The folk who get all their information from GB News & use that propaganda to legitimise their hateful beliefs. As hard as I try I can’t not be angry when I see comments spouting vile and untrue hyperbole. I despise how many people have so eagerly adopted the most hateful far right rhetoric. I could not be more sick of seeing it every day. Secondly, I despair that the parliamentary Labour Party has abandoned its soul. Keir Starmer is barely discernible from the incumbents. We deserve better. 13yrs of Conservative rule has ravaged this country. People are suffering and they should have a real alternative.

If you like what I do you can support me here or on Patreon.

Side with the child over the gun…

This month I continue to support the people of Palestine with my charitable donations. I still find it extremely difficult to believe that we are witnessing a genocide happen in real time, ignored by most of our leaders.

Watching the videos coming out of Palestine is unbearable. Palestinians are forced to live this horror, so we cannot turn away. This week I have been inspired by the amazing Robyn Boyle and her work with Gaza Genocide Emergency Committee promoting boycotts. To quote Robyn, a boycott is an easy thing to ask of people because in a sense, you’re only asking that they do nothing. Boycotts are a free and simple way to take action. BDS (Boycott, Divestment & Sanctions) are a great resource on who to boycott, with location specific information. Money talks, where you choose to spend yours can have a huge impact.

We must of course also keep pressure on our politicians. They work for us, public opinion is overwhelmingly in support of a ceasefire. It is incumbent upon us to make that clear.

Photo Credit GGECScot

For my part I have also chosen to donate to UNFPA’s ‘Mama Kit’ campaign. A Mama Kit provides essentials for women with newborns in areas affected by natural disasters and conflicts. Gaza is currently severely lacking in food, clean water and medical supplies. One of these kits really could mean the difference between life and death.

Something to talk about…

Time to talk day has just be crept across my timeline. I’m hoping it’s a testament to how attitudes have changed towards what is needed in the mental health sphere that I’m only being alerted to it at 9.30pm. Despite my cynicism I clicked and perused the website.

Sadly, it’s the same old story. Like most other mainstream advocacy for mental illness, Time to talk fails in tackling the real barriers people with mental illness face. Of course it is important to dispel stigma around mental health problems. It is also great to encourage people to support friends, colleagues etc. The tips on how to approach such conversations are fairly helpful. My issue with this model is that I don’t believe it acknowledges the depth & breath of the problem. In fact, I would go further in saying that the offering a listening ear platitudes can even diminish the experience of many with mental illness.

I’m 43yrs old and I have managed various levels of mental Illness almost entire and life. In all of that time the NHS has been under resourced in the mental health sector. As the years have gone by funding has been slashed and the problem has grown. We have been at crisis status for a very long time. There has been an uptake in mental health awareness. Campaign after campaign successfully identified warning signs and urged us to seek help. Unfortunately, the help requested is most often not forthcoming.

At the moment just getting a Gp appointment can be an enormous struggle. From there referral to primary mental health services always results in landing in a very long waiting list. If you can survive that wait, the treatment available can be limited. The first line is usually a limited course of CBT (cognitive behavioural therapy). CBT can of course be effective for some issues. It is not an answer for more complex mental illness. Alongside CBT there are a variety of helplines and websites, which can offer valuable information, but do not constitute treatment. There are of course psychiatric medications. These can be life saving and do improve the lives of millions. However, they are not magic, most often they must be used in conjunction with other therapies.

A referral beyond the intial interventions already mentioned is difficult to obtain. Infuriatingly, not everyone merits a place on their waiting lists. Those who do make it are in for another privilege wait. The quality, duration & efficacy of what is available at the end of that line is unknown. There are excellent professionals, treatments & resources, but they are stretched beyond thin. There simply aren’t beds, funding or staffing to provide the appropriate treatment & support for everyone who needs it. The result is, most people are shirt changed. Problems that could be caught early are allowed to progress. Serious problems become emergencies. In short, our population suffers more mental illness and become trapped in illness for longer. Some, forever.

Beyond the personal tragedy, the social and economic toll this takes is clear. People become unable to work, care for their families, participate in their communities, they then are laden with whole new set of problems. This of course negatively impacts their mental health and round they go. More people end up in crisis with no where to turn but emergency services, which are not equipped to render proper treatment. Again worsening the situation of the individual and eroding resources available overall. Apply this cycle across the board and it becomes obvious how vicious it is. It is an enormous widespread problem that can not be solved without massive funding, recruitment and a re evaluation of government policy.

Atop those failings is the fundamental shortcomings of the message itself. Breaking down stigma is vital. However, I think the focus of these campaigns, asking how people are feeling, actually is listening to the answer and so on, don’t go nearly far enough. It gives the impression that all mental illness can be easily solved. The adverts and literature are always about depression or anxiety. They show the palatable side of these conditions; someone who has a difficult period and with a little help from their friends gets better. Images of people crying or holding their head in their hands distort the reality of living with such conditions. When someone can’t get out of bed or in the shower for days on end, when they can’t function or find relief despite those caring chats it’s a shock. A check in with the Gp & some anti depressants won’t cure everything. Mental illness encompasses a myriad of conditions. Symptoms can be extraordinarily distressing and debilitating. Some are enduring illnesses that require complex and specialised treatment. Conditions like schizophrenia, Ptsd or Bpd are rarely discussed. Instead they’re sensationalised & misrepresented in the media. Perpetuating dangerous ideas about those living with certain conditions. The fear and shame have not been dispelled. We’ve merely carved out a tiny category of ‘acceptable’ mental illness.

The recovery narrative presented in mainstream mental health advocacy is too simple. Not everyone gets better. Lots of people instead learn to manage their mental illness. Others have recurring episodes. They are still smart, loving, valuable human beings. When all society is presented with is neat stories of struggle, seek help, return to health forever expectations are unrealistic . Those who don’t follow that template become doubted. Compassion turns to thinking they’re not trying hard enough or maybe they’re exaggerating. Stigma persists. We need an informed public. Not only on the broader experience of mental illness, but on ways to bring about change. People should know why our services are failing. The power of our voices and votes must be understood. We also need education around navigating the systems that exist. Everyone should be aware of how best to advocate for themselves and loved ones. We do need to talk, it’s just a much bigger conversation.

If you like what I do you can support me here or on Patreon.

Humanitarian Crisis

January’s charity contribution was sadly a very obvious choice. The assault on the Palestinian people has continued despite even the intervention of the ICJ. The resulting humanitarian crisis is overwhelming.

Health care & residential infrastructure have been decimated. Most of the population are starving. Malnourished mothers are giving birth to babies who can survive only a few days. The scale of suffering is hard to comprehend. If you can please consider donating to one of these amazing organisations.

Unicef provide essential aid to combat disease, malnutrition & injury. They are focused on caring for the millions of children impacted in Gaza.

Medical Aid Palestine works for the health & dignity of Palestinians living under occupation. They desperately need help in providing urgent medical care and developing local capacity to ensure long term medical services.

Hakini is working to set up an emergency hotline for people in psychological distress. They provide specialised training for volunteers to support civilians & aid workers.

Not Sorry…

Every now again I use the blog to vent my anger. Well, it’s that time again. The world is brimming over with things to be mad & sad about. These are just a few that I need to get off my chest.

One of my biggest pet peeves is when brands jump on the fat positivity train for their own benefit without actually incorporating real size diversity. The most recent culprit being Marc Jacobs. The advert for the perfume, Perfect is an ode to diversity. It features a wide variety of models including a couple of plus size women. Great right? Well it would be if the Marc Jacobs ready to wear line didn’t stop at a UK16. I doubt either of the models featured in the ad would be able to shop the line.

Also on my mind at the moment is when celebs reveal themselves to be shits & ruin one’s favourites. Brought to mind when I couldn’t sleep & was searching for something soothing to watch. Lewis popped up in one of my streaming apps. I loved Inspector Morse & was delighted when his sergeant returned. However, a once comforting programme is now spoiled by Laurence Fox’s gammon exploits. No matter how lovely Lewis & Hathaway are, I can’t enjoy them without thinking about Fox’s racism, misogyny & all out far right vileness. Other notable examples include anything with Tom Cruise, Mel Gibson’s presence in the Lethal Weapons & of course Gary Barlow destroying my love of Take That.

Finally & most rage inducing is Keir Starmer. From his refusal to support Trade Unions to his abandonment of Palestine, Starmer is a spineless wannabe Tory. Under his leadership Labour is no longer the party of working people. Who thought we would see an ex human rights lawyer turned Labour leader cowardly defend war crimes on national television? Not me. The man is disgusting.

If you like what I do you can support me here or on Patreon

Come to the Cabaret…

This month I am flinging my financial support behind a group that have long had all my other support. Cabaret Against Hate are an LGBTQ+ & ally group who organise counter protests to stand against hate speech in Scotland.

They combat hate with live music, song & dance. Their presence at anti abortion & anti trans protests has had incredibly positive effect. It is essential to provide an opposition to intolerance. It’s equally vital to show support to those impacted by these hideous protests. I would love to be on the front lines with Cabaret, but my disabilities prevent me. Thus I have been sharing & supporting in whatever ways I can.

The group are currently fundraising for a new PA System. Please donate here if you can.