Are you respectful? Do you try not to hurt other people’s feelings? How often do you reassure friends that they have done a great job, tell them not to be so hard on themselves? Almost everyone manages these things & more. Most of us know how treat others kindly. We’re all delighted to be our loved one’s cheer leaders. So why do we find it so hard to be in our own corners?
For a long time I thought my negative self talk was a rare thing. I was battling severe mental illness & I assumed the cruel way I addressed myself was justified. I didn’t really speak about that abusive voice in my head outside of therapy. I did CBT, compassionate mind training, EMDR and a variety of other therapy techniques. Regardless, I still talk to myself in a manner that I would not dream of confronting others. Yes, this is part of my mental health problems, but I’m realising it’s also really common.
I am not alone in berating myself. In fact, I think to some degree or another, we all do it. My problem is keeping it under control. I can spiral from ‘that was daft’ to ‘I’m utterly useless’ in a flash. I am aware that haranguing myself in this way is damaging. I know it plays into other aspects of my poor mental health; it lowers my self esteem, leads to second guessing & most dangerously makes me feel like I should punish my incompetence.
Lately, I have noticed a lot of public discussion on this topic. It has become clear that women in particular fall prey to negative self talk. We undermine ourselves. We judge ourselves not good enough. I’m wondering why.
Is it a side effect of our culture? There’s a constant onslaught of just keep grinding messages. Everyone has a side gig. Many women are trying to juggle careers & motherhood. We’re all trying to fulfil multiple roles. All the while being bombarded by media images of perfection. Is this why we fall short in our own estimations?
I’m not superwoman. None of us are. I have learned to cope with lots of aspects of mental & physical illness. This one I cannot seem to conquer. My first thought in the face of almost every problem is ‘this is my fault’. Although not in such polite terms. I can take a part the situation logically and prove that I am not always to blame. Intellectually I can believe that I’m not the cause of every misfortune, but I can’t feel it.
As I’ve said I have received significant psychological intervention. I know all theory behind the skills that are supposed to combat these thoughts. Somehow, I remain immune to the entirety of it. So, I ask you, what do you do when that horrid internal voice pipes up? I’m really asking & I am absolutely open to suggestions.
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It’s been a rough couple of weeks. Extra illness, extra stress & very little sleep have taken a toll. My mood has taken a nose dive. I’m battling a fairly substantial wave of anxiety & the urge to just hole up at home.
I am fighting, though. One of the things keeping me going is how far I’ve come. These lows will probably always hit, but it helps to know things are not as bad as they once were. On days like this reading my own dark words shine a tiny light through today’s depressive fog.
I’m hoping some sleep & resolving some of the stress inducers will alleviate this bout of blue. In the mean time I’ll be digging deep in my chest of resources to keep myself focused on the light.
Trying (& failing) to get some sleep. I’m really fecking tired. Once I’ve done all the yoga, watched all the relaxing tv, had baths with bombs, face masked myself into oblivion, finished the housework & whatever book I’m reading & sprayed every calming scent known to man there is just one thing left to do. Lie still in a dark room & turn up the music.
I require only a couple of things from my insomnia tunes; they must be deep enough to flood the room & gentle enough to let me float away. Wonderful by Lianne La Havas complies. Her thick sweet voice coats me in wistfulness. I feel this song’s warmth in my chest. Its steady pace a comforting secondary pulse. The lyrics tempting & bittersweet. This is perfect middle of the night music.
Every now & then I stumble across music from my past and it opens a door to another time. David Gray’s White Ladder is just a such a time capsule. The intro of Please Forgive Me was enough to shoot me back to the year 2000. Despite that being a fairly mixed year for me this song holds only uncomplicated feels. It has connected itself to chilled after parties; the smell of dope & DKNY. To falling asleep in beds shared with a bunch of friends & waking up to 5 girls talking at once. It feels less like lightening & more like friendship running through my veins. I know it’s a love song, but for me it’s an ode to student flats & almost adulthood.
A Star is Born almost killed me. Seriously, I weeped myself raw, but Shallow saved me. Man, it is hard keeping it hardcore. I’m so relieved to have found softer ways. This is one of those songs that rouses every bloody emotion. I seems like I’ve been far from the shallows for a very long time. It feels good to sing it out loud.
Which brings me to my brand new discovery, Yoko Pwno. I heard them play at the last Yellow Sunday & was utterly captivated. A unique & totally bewitching band; they are comprised of violins, drums & techno synth type sounds. They’re hard to quantity, but oh so easy to fall in love with. Currently blasting in my late late playlist is It could always be worse. Mainly because when played at volume it washes over me & allows my mind to drift. Also, though, because that title’s a good reminder not to despair when I find myself still awake a 5am. It can always be worse, but it’s likely to feel better if you stick Yoko Pwno on.
How did it get to be Monday again so quickly? These weeks just keep pounding on. Mondays are usually filled with drudge for me. Errands, nurse for bloods, housework & remembering to put the bins out. It’s not exactly an inspiring day. So, this week I thought I’d break up the tedium with some exuberant art. Enter @creatively.caring & their wonderful self love project.
The project is the brainchild of the very talented Alexandra. They create body positive sketches of participants & share them via the creatively.caring Instagram account. They also offer participants an opportunity to share their thoughts on body positivity and/or their own self love journey. I adore this project. Not only does Alexandra produce beautiful portraits of fat bodies, they also give the owners of those bodies a voice. I believe an important factor in fighting fat phobia is normalising fat bodies. Representation matters. Seeing positive images of more than one kind of physique helps to destroy the notion that some bodies are not ok. Furthermore, seeing yourself & others with body types outside the accepted norms portrayed as worthy & attractive is hugely powerful. It is, in my opinion one of the first steps to accepting yourself as you are.
I can’t thank Alexandra enough for this amazing work. Anyone can take part by completing the form linked on the Instagram page. Giving people the opportunity to see themselves as a wonderful piece of art is a true gift.
As any creative knows, making your art sustainable is no easy task. Which is why you should also check out Alexandra’s cool colour portraits. Done in the same sketch style, they’re perfect for business cards or bold headers. They’d also make a really nice gift. I can vouch for a great price & super quick turn around time. It’s so important to support independent talent. So please, click that follow button & think about snapping up some original work.
Miscarriage is lonely. When it happens you’re on your own. No matter how much support you have it’s still your body failing. Your dream dying. Even if you have a loving partner who shared that dream, they’re not bleeding. Their body isn’t an empty husk. Yes, I know this isn’t necessarily true, but believe me, it’s how it feels.
That sensation continues. The loss is isolating. For all the reasons we’re starting to talk about and for others that will surprise you when you thought you were ok. It is an uncomfortable topic. No one really wants to talk about your unsuccessful pregnancies. Often most people in your life don’t even know about them. Those that do will forget the dates & details. That’s not a complaint, just fact. Your baby wasn’t real to them. It’s hard to feel anything about a life that never tangibly existed; your baby only really lived in your world. That’s not to say your people don’t care, they do. Perhaps they just don’t want to upset you. Or they genuinely don’t have the words. Time goes by. Life is lived. The only evidence of your loss is an absence. But the missing party was never there to anyone other than you. It’s a crime without a witness, but it isn’t victimless.
To a certain extent you adapt. You carry that lonelines. It’s occasionally acknowledged that once upon a time your life was almost something else. You quietly carry your grief and you carry on. Along the way you find new challenges. You discover that there are a bunch of seminal moments & experiences that you have to put away. You aren’t really allowed to tell those stories like other mothers do. You aren’t even allowed to call yourself a Mum out loud. The title doesn’t make sense to the world when you have no flesh & blood children to show.
So, you learn to smile & say nothing. Just nod and ask questions when others share the tale of how they discovered they were pregnant. You can’t join in with a silly story about peeing on a dozen sticks. You can never say how you somehow knew before it was ever possible to do any test at all. Your stories aren’t cute. That’s someone else’s lot. You won’t be thanked for ruining the mood. Likewise you mustn’t share pregnancy tales. No friendly bonding over how tired you were or sick you felt. Cravings & aversions will remain unknown because, again, you have no happy endings. The tone of your reminiscing isn’t light. You can never empathise with a pregnant friend. To do so would be to draw attention to tragic realities. There isn’t a guilty party. You aren’t being maliciously excluded. It’s just life. Your child didn’t make it. Reminding everyone of that turns warm-hearted conversations into sad, awkward exchanges. You can’t broach the subject because you don’t want to spoil other people’s nice time. They won’t include you because they don’t want to hurt you or because they forget (or never knew) that you are part of that gang. You’re missing the vital component required for membership.
That hurts. The silence is painful. Biting your tongue & standing on the perimeter takes effort. Not letting any of it show can be torture. Not fatal though. You’ll find yourself in these situations repeatedly. You’ll realise you can survive them. You will nod along & take your sadness home. Unpack it when you’re alone. Go over your own pregnancy chronicles in the privacy of your head. Then you’ll have to take a deep breath & face the new hush.
You have nothing to add to the next part. The trimester you didn’t reach. The birth. The nights the baby didn’t sleep. The trials & triumphs of breastfeeding. Words and steps and sobs and kisses. You’ll have nothing to share. All you have is second hand information. When you help your experience isn’t really yours. Just borrowed. Never actually a mother’s wisdom. It’s still no one’s fault. You don’t wish they wouldn’t share. Don’t want to stop being a part of the whole wonderful process.
It’s lonely.
To feel like a mother & never have anyone call you mummy.
To shake your head no when you mean yes.
I know other people understand, but I’m still on my own.
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I’ve had a pretty blue day. There’s proper storm blowing around outside & I am incredibly tired, which definitely hasn’t helped. Mostly though, I feel shit because too many people have been horrible to me this week.
I had a very small day surgery on Monday, which went smoothly & really wasn’t a huge deal. It was on my dodgy leg & in a spot when stitches are very easy to burst, so I was told to be careful. With that in mind I got a taxi to the train station early on Tuesday morning (I watch my nephew on Tuesdays). The station has a little car park at one side, but that is not the platform I get the train from, so I need the taxi to stop on the main road. I say need because I mean need. If I get out in the car park I have to go out up a big flight of stairs to street level over the tracks & then down a smaller staircase to the platform. Getting out on the street means navigating one smaller set of stairs (which is hard & sore & slow enough). The taxi driver of course did not want to stop on the main road. He was annoyed that he’d have to go a little further down the road to turn at a roundabout & he didn’t want to pull over on a busy road. He argued that it made no sense when the station had a car park. Now, maybe I’m a bitch, but in my mind part of the convenience of paying a taxi to take me somewhere is that I don’t have to explain myself & I get to go where I want to go. I don’t relish having to explain my disabilities & why I can’t do certain things. Especially when I walk with a stick & it’s bloody obvious that stairs are not my friend. I did however tell the driver why I wanted to be dropped in that specific spot, but he still wanted to argue. Thus I had to say either drop me where I say or take me home and don’t get paid. With much muttering under his breath he did as I asked, which probably took less than 5 minutes more & was basically zero hassle to him. This, my day is off to a crap start & I’m already tired of just trying to move around in the world.
I struggle down the steps just in time to heave myself on to a packed train. The train is headed into town & it’s 7.45am, of course there are no seats left. I make my way to the seats that are reserved for the disabled, elderly etc and everyone sitting there avoids eye contact. I don’t know why people do this because not looking at me does nothing to reduce my need to sit down. All it achieves is putting me in the horrible position of having to ask for seat. This, I duly do. I politely ask the women in the closet seat if I can have her seat if she is able to stand. I am met with huffing & puffing as puts her jacket back on and a glare as she vacates the seat. I thank her anyway because I have some bloody manners & sit whilst others who previously avoided looking in my direction now recover their ability to see me. They now make full use of this rediscovered function to gawk at me for most of the journey. I’m sore & tired & anxious & very conspicuous. It isn’t even 8am. I arrive at central station & have to buy a ticket. There was no ticket inspector on the first train & I have to get a second to complete my journey. The ticket office on the platform has the barriers set up to control the queue. I have to walk around it to get into the queuing area & follow the barriers to actually reach the end of the line. I’m slow, i’m conscious of not messing with the wound on my dodgy leg & I am worried about this queue because I’m really not sure I can stand that long. Roll on more rude people. As I follow the path made by the barriers people just barge right past me. One women even does a little run just as I near the end of queue so she can get in front of me. What kind of dickhead rushes to skip a disabled person who is clearly having difficulty? I don’t know, but I can tell you there are too many of them & I don’t always have it in me to let them know that they’re a knob.
Anyway, I get my ticket. I locate the platform of my next train. I find a seat because I can’t go any further until I’ve had a rest. I eat a lovely banana, check my messages & listen to some tunes whilst I gather myself. When it’s time to to head to the train I have recovered some equilibrium. I’m thinking today can be saved. One train journey & I can cuddle my gorgeous wee monkey. This is what I’m thinking as make my way along the platform & a large man barges right into me. He took me completely by surprise, I had nothing to steady myself on & went flying. Mr ‘catching my train is life’ didn’t even stop. No apology, no let me help you up. Kept marching right on & boarded his train. Incidentally his train was my train & it wasn’t leaving for 9 minutes. Whilst he presumably found a good seat I was lying on the platform bleeding. A nice ticket guy helped me up & onto the train. He even radioed someone the description of the guy who knocked me over, but to what end I have no idea. I’m not sure what anyone could really do other than tell him he was a prick. That surgical wound I was being oh so careful with is now bleeding furiously. I didn’t want to remove the dressing on the train, but I’m sure the stitches have burst (they had). So, I’m applying pressure & being watched by other travellers (again) as I try to put myself back together. I was pissed off, but focusing on gathering myself & getting where I needed to go.
Mr nephew was, as always, a delightful little bundle & I got through the day. I arrived home last night utterly exhausted & dropped into bed almost immediately. After a fitful night of sleep I awoke feeling just as tired. My leg is swollen & the wound can’t be restitched (it’s been open over night & restitching would be an infection risk). It will heal, but slower & messier. I had things to do today, but I didn’t do them. Partly because I was in a fair bit of pain and exhausted. Mostly, though, because there was a strong wind & yesterday shook my confidence. The accumulation of the rudeness, arguing, staring & knocking me to the ground was that today I was acutely aware of my disabilities. I didn’t feel up to dealing with the world & perhaps ending up worse for wear again. That realisation made me feel like shit.
Cheeky monkey trying to steal my stick.
I don’t like to think of myself as fragile or incapable. I know my limitations & I try really hard to work around them. I have to think ahead. I do things a bit at a time & I sometimes have tackle things in ways that might not make sense to others. I know I can be awkward. I know that the accommodations I need can be a pest to others. All disabled people know this. We aren’t asking for seats or giving specific instructions for a laugh; it’s the only way we can live in the world. I already feel stressed & anxious about needing these things. I am certain I’m not alone in it that. So, when you force me(us) to explain ourselves it’s horrible. When you make a fuss about being stuck behind me as I move at glacial pace, you are making my life a nightmare. Your stares & sighs can ruin my day. Limping along with a stick at 37 is not my ideal life situation. Fainting on public transport is not a thing I relish. I did not choose to hurt all the live long day. I do not want to have to ask you for anything, but I can assure if I was in your shoes I’d offer my seat with good grace.
I’ll heal. I’ll give myself a shake & force myself back out the door again. I will hold my tongue (most of the time) as you push past me & roll your eyes. I shouldn’t have to, though. Living with my disabilities is hard enough. I don’t want to manage your arsehole tendencies too.
You’re not a baby anymore. Or you wouldn’t be. Today would have been your 18th birthday. I’ve been thinking a lot about all the things you could have been. I’ll never know what your talents are. What you loved & hated will always be a mystery. Our life together will forever be unknown. I’ve watched so many others mark the milestones in their children’s lives & my thoughts invariably turn to you. I’m not sure I’ll ever get over the blanks.
I have dreamt of every minute of your life. Waking from those beautiful fantasies feels like a stab in the heart. Every single time. I hope those dreams are snippets of how our life would have been. I don’t want to think of us as anything other than happy.
So, today you’d be a man. I’m sure you would be wonderful. The kind of person I’d be proud to have raised. I’ll always be proud regardless. Proud that my blood ran in your veins, thankful that your heart beat in me & grateful that we had any time at all.
Today is World Suicide Prevention Day. It’s a wet, grey day & my mood is bleak, so it seems like an apt day to talk about suicide. Although, to be honest I want you to do more than talk about it.
Suicidal ideation impacts the lives of more people than you would imagine (1 in 5). It’s not rare for a person to reach a point where they are so desperate that they just don’t want to continue. In my experience those thoughts are insidious. Once you have seriously considered ending your life, it enters the sphere of available options. So, whilst I absolutely do not want to die; I can’t deny that occasionally at really bad times ‘kill myself’ would be the last entry on my list of possibilities. What makes it a remote last resort rather than an actual risk is a combination of factors. People love me, I love them, there is joy & purpose in my life. The only reason I can recognise & enjoy those factors is years of intensive support from mental health professionals. I am grateful for the people who stood by & helped me access the treatment I needed because without that professional intervention, I would certainly be dead.
So, yes, I do want to us all to talk about this. I want to break the taboo. I want people suffering to not be silenced by shame. It is important that you listen to loved ones in trouble. It matters that you care, but what is even more important is that there are effective mental health services to seek help from. Talking & listening isn’t going to save anyone unless it’s backed up by solid treatment. In short, we need better mental health services.
There is no point in asking people to reach out for help when none is available. A cup of tea & chat with a friend is nice, but it will not solve the underlying issues that lead to suicide. We need to be able to offer people more than a 6 month waiting list for a hand full of CBT sessions. When your loved ones tells you they want to die, you should be able to take them to a dr & get them immediate help. Instead the current response is often no beds & here’s a crisis team number.
I want you talk about suicide. I want you talk about mental illness. I also want you to do more. Don’t vote for people who will continue to decimate the NHS. Find out how the mental health services are performing in your area. Write to your Mp/Msp about provision of those mental health services. Sign petitions. Write to newspapers. Share your experiences. Do everything within your power to raise the profile of mental health services. We are failing really vulnerable people everyday. We beg them to ask for help & then tell them none is available. If you really want to help those struggling with suicidal thoughts, you have to do more than talk. We have to fight to give them another credible way to end their pain.
I’ve had another really bad week pain wise. It feels like I’m been having a lot of bad weeks recently and I’m tired. So very tired.
Life goes on, though. Nothing stops because I’m in pain. So, I try to keep on going too. It’s exhausting. Pain wears you out. Even before you attempt to do anything, just being in pain is tiring. I’m not sure that many people know that. You start the day fatigued. Every single task you perform from that point takes enormous effort. You’re fighting the pain and the growing exhaustion.
Drs will tell you to rest, but complete rest isn’t feasible for very many people. I can’t rely on or expect other people to take care of my life for me. My house will stay dirty if I don’t clean it, my fridge will stay empty if I don’t fill it, my bills won’t pay themselves, medical treatment doesn’t come to my house, my cat needs fed and my teeth, hair, body won’t clean themselves. Those are just the very basics of life, but they can be overwhelming when every move you make is agony. It’s a no win situation. If I neglect these basics my quality of life is seriously impacted. My stress levels soar & mood plummets. Trying to keep up with daily life saps all my energy. Pain is exhausting & exhaustion lowers your ability to cope with pain. It’s a vicious circle with no obvious escape.
Plus living is more than one’s basic responsibilities. There has to be human contact & stimulation. Unfortunately those can be just as tiring as the daily dirge. I love writing. I love swimming. Both are good for me, body & mind. Doing either involves a string of wearying steps. I have to wear myself down in the hope of benefits that are never guaranteed. I have a wonderful friends & family. Excellent relationships I don’t want to lose or neglect. However, just making myself fit to be in company is sometimes a mammoth task. I don’t even mean appearance wise. My people will accept me with no make up & greasy hair. They can handle the days that I can’t walk very far or do very much. For which I am grateful. What I can’t ask of them is to soak up my ill temper. Pain makes you snappy & negative & frankly unpleasant. No one wants to be around that. Also, no one wants to treat the people they love that way.
What do I do? I monitor myself. I constantly keep a tight grip on that grump. Take a deep breath & swallow it down. Let me tell you, maintaining that front, is exhausting. Also, essential. I don’t want to be a nasty bitch. I want to treat people with respect. Of course I gain from this; my life is immeasurably better for having date nights & sister time & lunch with my bestie & joyous mini people in it. Pain is absolutely not an excuse for being a fuckwit. It’s right that I censor myself into being nice. It’s just that it’s incredibly draining. It is the same catch 22, don’t push myself to do these things and my life would be empty. Do them & I pay the price.
None of this is anyone’s fault. There isn’t really anything anyone can do to change these things. This is just my life. Oh & a lot of other people’s too. I have this idea that maybe if we understand each other’s experience we might understand each other a little better. I think that would probably be a good thing. Further more, I’ve been trying to hold in all my grump & I am very tired.
** Apologies. I know this is not my best writing. I’m really sore & really tired.
It’s been a while, but a truly incredible woman inspired me to bring back the honour roll . This week’s epic woman is the fearless Hannah Gadsby
I had picked up on a little social media buzz about her latest stand up show, Nanette & headed onto Netflix to give it a watch. I expected some laughs. What I got was the most raw & uncompromising show I have ever seen. Hannah Gadbsy is a feminist hero. She begins by mixing jokes about her trauma with humour & explains how she balances tension to create relief with a punchline. Then, she bravely recounts her stories without relief. She gives us her reality.
Hannah Gadsby
She rails against violent misogyny & homophobia. She describes unflinchingly how being raised in an environment that teaches you to hate who you are cripples a child. She throws in the quips, but she never let’s the audience off the hook. She forces us to recognise her truth and her anger. She exposes her (& all our) need to honestly tell our stories. Her pain is palpable. Her courage is beautiful.
I beseech you all to watch Nanette. It is a masterpiece
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