I miss you like sleep…

Too much time in my head is distinctly bad for me. Not getting stuck amongst all the crap i’ve crammed up there is an ongoing project. It is not an endeavour that is aided by inaction.

Staying home alone all day, everyday is not ideal. I require distraction. I need people who make me feel swell and to do things that help me feel worthy. I like knowing that I could jump in a taxi and go anywhere. Having a sense of control is massively important.

Being entirely reliant on others for almost everything makes my insides jitter. I feel more of a burden than ever. Which activates my guilt & anxiety. I’m obviously also worried about myself or someone I love getting ill. Plus the horror of all the people who are suffering & dying every day. I’m basically a big ball of negative emotions.

I’m struggling with pain. I miss my little ones. I miss all my people. I can hardly sleep. There’s very little work. There’s too much time to think. All this on my own time thinking about what I miss inevitably highlights the major omission.

When left to its own devices my is brain predictable. It clings to trauma. If not occupied with the business of living, I regress. Slip back into dreams of the births I’ll never labour through. Flashbacks of the blood & pain I did. Haunted by the over used phrase that always signaled it was over.

There are so many what ifs. Too many of my own actions to question. Huge & tiny alterations that could have changed the outcome. Things I never said. Words others can never unsay. Blame to place. Regret to carry. Penance to complete.

I feel trapped with all I’ve lost and every little thing I can’t share. The good memories are as painful as the bad. The selfies I took when my belly began to change shape. That magical second line on the test. Marking midwife appointments on my calendar. Blood tests with the right numbers. Making lists. Checking what ridiculous object the app tells me my baby is now the size of. Plans & scans & the bam bam of heartbeats.

Rainbow reflection on pale either arm

My body remembers it all in such intricate detail. I recall the fractionally altered taste of mint tea. Sex felt different and the smell of everything intensified. I was heavy with fear. Dulled by fatigue. Yet still floating on hope and entirely delighted to experience whatever this new life threw at me.

It never goes away. I can never take my foot off the pedal. I’m always close to skidding off the road. Lockdown is like a battle not to drift to sleep at the wheel. Spending too long contemplating my past or the what might have been is dangerous. Finding ways to keep my eyes open is getting harder.

Two lines to indicate positive result on pregnancy test

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My quarantine in pictures…

It probably won’t come as a surprise to learn that I haven’t been developing new skills in lockdown. My novel remains unfinished & my sour dough never got started. I’ve mostly been entertaining myself with much less useful activities.

Internet nonsense has been a fairly good diversion. I’ve killed some time with insta challenges and silly filters. I alarmed my mother with candy floss hair (I’m almost 40 & she still doesn’t want me to touch my ginger locks). I’m a little bit tempted.

Hair day filter candy floss colours

The cosmetics procedure filter was less enticing. This is not a good look. Neither was the art work I produced when. I joined in on one of those Instagram tags. It was rather pleasing to do, though.

Pencil sketch of house plants

The pillow challenge was a bit more successful & even more fun.

Plus size women  naked apart from teal pillow

I’ve done a fair bit of online shopping. Mostly treats for little ones, but the odd random item for myself too. I seem to be more easily influenced during lockdown. I baked more biscuits than I could eat. Got this gorgeous digital portrait oh my niece & I to add to my wall art.

Digital portrait and photographs on wall

I’ve made a million video calls. Tonnes of Hi jinks with the the kids. Cocktails & gabbing with adults. I’ve done foot peels & face masks. Organised sock drawers, finally arranged my photos into albums & listened to podcasts galore. I even had socially distanced picnic lunch in the driveway.

FaceTime of toddler in ball tunnel
Video  call with two faces in lemonade filter
Video call with dragon filter

Basically I’m trying to defeat cabin fever & stay sane. The fact my darling sister talked me into learning a tik tok dance questions if I’ve managed it.

Two women doing tik tok dance on summer dresses

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The hurting time…

Chronic illness becomes a way of life. You don’t stop feeling bad, but you do get used to it. Humans adapt. Pain becomes the new normal.

Most days spoonies deal with symptoms that would send healthy folk to the Dr. On bad days many would be considering 999. Chronic peeps, however, muddle through. Sometimes flare ups floor me. There are days when brushing my teeth is an epic feat. Others I function to varying degrees. I work & play & everything in between. Always, though, I hurt.

I pay the price if I over do it. I carefully plan routes & venues around how many steps will be required, if there is seating, stairs & so on. I pre check menus for items that won’t make me sick. Plan meals around when meds need to be taken. I do everything tired. It’s so hard to sleep & even when I do crash I wake feeling little difference.

Selfie of women’s sad face.

I found a way to work around my illness. Squeeze pleasure out of any socialising I can manage. I have become accustomed to cancelling things I really wanted to do. The list of things my body is no longer capable of grows. It’s ridiculous how sad felt upon realising I won’t jump on trampoline or turn a cartwheel again. Especially when I don’t even have much desire to do either. It’s just another limit. Another no.

I persevere. I follow Drs orders. I try all manner of suggested remedies. Acupuncture, cbd, floatation tanks, tens, yoga, the works. Some treatments help. There are medications that work wonders. Others that I need, but that cause problems. I take drugs to counteract the side effects of other drugs. It’s exhausting, but it’s my life.

Hand holding 5 pills of various shapes & colours

It is not all bad. I have privileges that many do not. My home is warm & safe. I have access to excellent care. I am gifted with skills & talents that allow me to pursue work I love. I have safety nets. I had years of being fit & well. I went to uni, got stuck into the partying & had the chance to travel a little. I’m loved. Pleasures great & small find me. My cat is the cutest. Life could be worse. I can handle this.

Cute black and white lying on back fluffy belly exposed

Except when I really, really can’t. There are days when chronic life overwhelms me. Days like today, when every inch of me is sore. Keeping a brave face when you’re throwing up for fifth time in as many hours is a challenge. Every day my first sensation is agony. Aching joints. Throbbing head. Burning skin. Churning stomach. Each little movement hurts. Remaining sedentary isn’t an option either. My arthritic parts seize up. Leading to, yup, more pain.

Food refuses to stay in my stomach. Don’t eat & the acid bubbles up my throat. Attempt to line my raw stomach and the vomiting makes everything worse. I can’t concentrate enough to distract myself. Sleep is illusive. There’s no escape.

Burdening others with my misery triggers my guilt. Keeping it all in is horribly lonely. Pain relief doesn’t work. Positive thinking is way out of reach. Some days are hard. It is too hard be grateful. Impossible to hang onto hope of easier times. Today I’m just thoroughly sick & tired of always being sick & tired.

Plus size women in green leopard print maxi dress  with walking stick

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It’s just the way I’m feeling…

There’s nothing like a nation wide quarantine to really hammer home the fact that you’re childless. All anyone can talks about is their kids. How the silver lining of all this chaos is extra time with their cherubs. How being stuck in the house with them is driving folk crazy or all the creative ideas for activities to keep them occupied. It’s a non stop child frenzy. Unless you’re barren.

I hate that word. It feels accusatory & cold. It is, however the descriptor that keeps pushing itself into my head. Being alone in my house for over a month has contracted my world. There’s nowhere to hide. I’m content in my own company, but I’m accustomed to regular interruptions. Being unable to see friends, family or get involved in any outside work projects is tough. Those are my escapes. Adventures with little people. Laughs with big ones. Putting my skills towards something worthwhile. When you take all that away the only bit that’s left is empty.

Lilac & pink sunset over houses

There’s too much opportunity to be in my head. I’m not sleeping well, which facilitates bonus peak anxiety hours. Plus all this stress & uncertainty has opened the door to nightmares. Mostly relating to being pregnant & threatened by various dangers. With little snippets of real flashbacks thrown in for extra distress. When I’m not feeling powerless, I have a sense of being robbed. This strange, crazy time has necessitated hunkering down in family units. I don’t have one.

I have plenty of amazing people. I’m grateful, believe me. Lockdown has reinforced my belief that a husband is so not for me. With a little help from folks who are allowed outside I can manage my life just fine. If anything, it’s people to care for I want. I can’t stop myself from thinking how old my children would be now. I unintentionally look out for age appropriate lockdown activities. I imagine baking my Gran’s fruit loaf with tiny helpers. I caught myself constructing a home school lesson plan in my head. Fantasising about passing on one’s insights of the works of Lewis Grassic Gibbon is a lonely pursuit.

I have this sensation that I spend my life trying to squash. Hollow and raw. It’s as though someone scraped out all the essential parts of me with a dirty, jagged instrument. I occupy my time trying to keep the chasm sufficiently full. Packing in as many beautiful moments as I can find to prevent an inward collapse. Now my world is on hold, that void is ever present.

I know I am fortunate in many ways. I am able to stay safely at home. My housing is secure. I can video call the people I love. I will have access to healthcare if I need it. Life will resume. I do know that. I’m just struggling with the realisation that I’ll never fully heal this. Every time I think I have accepted my situation the wound is reopened & it feels fresh all over again.

Silouhette of toddler on sunny day

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I can’t get no…

Sunrise is rather pretty this morning. I’m trying to revel in the beauty of nature, but I’d happily skip it for some sleep. I’ve not had more than 3 consecutive hours slumber in an age. I’m tired & sore & grumpy, damn it. I want to do the whole gratitude thing, but I think a big old moan would serve me better. Indulge me.

Pink sunrise through bedroom window

For starters, it’s Sunday. The sabbath has always been my least favourite day. I think it’s probably a remnant from childhood. That weekend’s almost over & I have to go to mass vibe was not a winner. The dreaded Sunday feeling clung on past horribly hungover Monday morning uni lectures & into the days of 9-5 grind. Even now when I can structure my week however I want, the downer remains. Sundays make me blue.

Circular mirror with blue backlighting

The next item on my pointless gripe list is scents that aren’t scents. This one has been getting on my wick this week. Probably because I have too much time on my hands & am seeing tv ads. If you’re naming a product & its smell is a selling point, pick something that actually has an aroma. Diamonds don’t smell. Bright copper kettles do not have recognised scent. Silk is not an olfactory delight and no one wants their bedsheets to smell of secrets. Please stop it.

Another whinge stemming from lack of a stimulating life is my hatred of bangs. Too much social media has resulted in over exposure. Americans are all desperate to cut their own ‘bangs’. Fringes are cool upon many a forehead, calling them bangs is not. It makes no sense. A fringe describes exactly what it is. It’s a wee fringe of hair for your face. Perfect. What the fuck does the word bang have to do with it? And why is it plural? I could almost get over the nonsensical name, but not the pluralisation. One fringe per head! What are you playing at Americans?

I return to you after dealing with the bane of my life; the dishes. I hate washing dishes. It is such a con. Dirty dishes are basically a microcosm of adult life. No matter how many or how quickly you wash them, there will always be more. Fuck those filthy little bastards.

All of which brings me to the biggie, sex. How the hell am I supposed do without a shag for months on end? Sex would mitigate so many of the problems corona has created. Bored, stressed lacking exercise, a vigorous shag is just the trick. An orgasm will defeat your insomnia & improve your immune system. Scared and angry distract yourself with a nice bit of cock (or whatever takes your fancy). Getting it on would take the sting right out of this isolation. Alas quarantine doesn’t permit ‘conjugal’ visits and I would most certainly throttle any man I had to be locked down with. So, in conclusion I definitely won’t be getting any for the foreseeable & I’m a whingeing nightmare as a result.

Plus size arse in black knickers with text,  no sex please, we’re quarantined

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Underwater love…

I suspect we’re going to be adjusting to major life changes for a while yet. One of the ways I like to ease my way through trouble is the lure of a reward. In other words when this all over we are going to need some treats!

These are some cute wallet friendly bits that I’ve put on my buy list. I’m aiming for proper little treats; things I see & like, but hardly ever pick up for myself. Here are some lovely shiny things that you don’t need, but sometimes wanting is a good enough reason.

These delicate fancies have been popping up on my timelines for ages. I am very attracted to the tulle sock concept. I have thus far resisted the urge for fanciful socks for practical reasons. Since I now know all hell an break loose at any given moment, I’m thinking sod it. I’m having all the fripperies even if I don’t know how or when I will wear them.

Three pairs of feet in tulle socks with metallic stars

Tulle Socks

I’m not a fan of the mindfulness craze. Mostly because it seems to encompass a lot of bullshit masquerading as being somehow good for one’s mental well being. However, these little guys feel genuinely mindful. It is often hard to remind yourself to take a little time out to breathe. My head is always too busy & it does actually help me to stop. I love the idea of these candles measuring out that pause.

Mindful Moments

The benefits of a hot bath have long been touted. Lying back in a deep tub soothes the body & mind. Bath bombs are great, but this gadget takes a soak up a notch. I am very into the idea of psychedelic baths.

Bath Light

I’m not a tv in the bedroom person, but occasionally it would be lovely to chill in my comfy bed and watch a film. This cool doodah makes that possible.

Smartphone Projector

If you’re setting up your own cinema you’re going to need snacks. These personalised letterbox sweets are ideal. I’ve sent these as gifts & they’re always well received. It might be time to give myself some yummies.

Sweets in the Post

I’m holding off ordering for the time being. Obviously people have to facilitate delivery and I don’t want to encourage business to make people attend non essential work. Whilst I wait I’ve got my feel good hit by donating to Shelter to help with the influx of emergency calls they a fielding. It would be amazing if you could spare a little too.

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All that fear and all that pressure…

I’m thinking we probably have some newcomers to the world of overwhelming anxiety. Panic is a no win kind of game, but there a few cheat codes. Since I’m an old pro and a real darling, I’m going to clue you in.

Full disclosure, none of these are a cure. Anxiety is a fucker and you should definitely seek professional advice if you are worried about your mental health. However, none of these calming hacks will do you any harm & so you can totally give them a bash. They might buy you a little temporary peace or even just knock the steam off your panic attack.

Gratitude Lists

I know that sounds wanky, but bear with me. Sometimes when I’m dealing with that grinding, slow burn type of anxiety this can be helpful. I go through things I’m grateful for in my head. It can be anything. Often I’ll do the simple I have a warm house, comfy bed, not being pursued by the mob type of thanks giving. Other times I’ll get specific about factors that mitigate whatever I’m worrying about. Either way it switches my head away from catastrophising for a minute & lets me catch a breath.

Slow Sips

If you’re wholesale panicking, slowly taking small sips from a bottle can help. It forces you to regulate your breathing, which can ease the physical symptoms of a panic attack. Thus giving you an opportunity to stave off a really bad episode.

Waves of Sound

Get yourself a sound machine app. Lying awake all night feeling scared is awful. Waves, thunder storms, pouring rain are all rather soothing. This can also be helpful via earphones if you’re feeling freaked out in a public space.

Play it Out

On a similar note I like to prepare playlists of songs that I know will be good for certain situations. For instance I have calming bedtime tunes, waiting somewhere stressful songs, help me do these things that need to be done lists and so on.

Child’s Pose

I know yoga isn’t everyone’s cup of tea, but it does work for me. Child’s pose in particular is very helpful for chilling my body out and making my brain stop for a minute. You can access loads of good yoga vids on YouTube. It’s worth a try to see if anything helps you feel more ok.

Repeat Yourself

This probably sounds a little dumb, but it can be surprisingly effective. In moments of panic/fear simply repeating a reassuring phrase can help. I usually go for ‘you’re ok’. The repetition and saying the words out loud has an impact.

Text ‘you’re ok’ repeated on pink & green swirly background

Hide

This probably sounds even more daft. Again, it can work. Taking yourself to a small, safe space can reduce your body’s desire to flip out. I’ve taken myself into my tiny home office & given myself a minute many a time. Being somewhere that I know no one can see me or even know I am there is great for combatting rising panic.

Dark & Loud

When the world is really too much, blocking it out is the way to go. Find yourself a dark room, get comfortable and turn some beloved music up really loud. Assaulting the senses like this aids a positive disconnect from whatever is distressing you.

Write

This one obviously works for me. Getting the terror out of your head and onto the paper/screen is a lifesaver. Something about making those words concrete rather ever growing worries is hugely cathartic. Give it a try.

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I’ll be your mirror…

I’ve been thinking a lot about relationships lately. I’m preoccupied by the dynamics of my own romantic history, but also the societal norms. The things we tell ourselves, the advice we give and believe.

There are tropes I find easy to dismiss. I know you don’t need to love yourself to have others love you. Lots of warm, kind, excellent folk don’t like themselves all the time. Self doubt doesn’t make good qualities any less appealing. Obviously loving yourself is beneficial in countless ways. Whilst you’re working on it, you aren’t exempt from third party estimation.

I’ve never bought into ‘you’ll find them when you’re not looking’ thing. I found a few lovely people by actively looking. They might not have been forever, but they were good experiences. A couple I’ve kept around on a platonic basis. It’s always struck me as daft advice. The exact opposite of the accepted wisdom on goal achievement. We tell each other to put the work in when seeking career advancement, not to buy the first thing we like when making big purchases, practise hard to develop new skills and so on. If every other life enhancement requires careful consideration & applying ourselves why should we leave finding a life partner to chance. Sure, a meet cute is romantic; it’s just not all that realistic for most people. Very few things of value fall into one’s lap. Putting yourself out there appears sensible.

There are many more obviously problematic cliches. I’d love to bin that ‘if you can’t handle me at my worst’ nonsense. It lends itself way too easily to toxic situations. Everything happens for a reason is similarly flawed. You’ll drive yourself crazy with that one. Sometimes life is random & people are fuckwits, you cannot base decisions on chaos. Trust your gut is 50/50, lots of us have less than stellar instincts. Plenty of fish in sea, tonnes of utter garbage too. Love at first sight is usually just desire. We each have more than one soulmate and karma rarely gets involved in romantic entanglements. I’m sure you get my point. I’ve had my share of passion & I’m not buying the prosaic instruction.

Or am I? I do find myself stuck on some well worn pearls. I can’t completely rid myself of the notion that how we feel about ourselves inform the partners we choose and how they treat us. Nor can I discount, we get the love life we believe we deserve. Perhaps these speak to my own experiences & mental struggles. I can see how that would make sense. I often think of myself as difficult. I’m uncompromising on many points, strident, damaged. I recognise I also have more endearing characteristics. Still, you could summarise most of my amorous affairs as complicated. Kind souls with simpler offerings rarely hold my attention for long. Out & out baddies are likewise swiftly disguarded. I learned early not to let anyone smash my heart to pieces. However, I will absolutely keep coming back if you make a riddle of slowly dismantling the pieces.

I think loving me is laborious, so I choose relationships with challenging dynamics. Can it really be that simple? I know my penchant for the fickle isn’t unique & many other unhelpful patterns exist. Believe me, taking all the blame isn’t a huge leap for me. On the other hand, wouldn’t establishing that as fact encourage the beliefs that started this? Confirming that one’s perceived maladjustment is the cause of failed romance seems to solidify those negative beliefs. That strikes me as sticky little trap.

I feel there has been a shift in the focus of romantic guidance we consume. These seemingly deeper insights are definitely well intended. I think we offer this advice because we want to protect people we care for & we believe it for self preservation. Having control is comforting. Thus it’s tempting to internalise blame. If you’re at fault, you can fix it. I’m just wondering if it all becomes a self fulfilling prophecy. When think we pick the wrong people and we accept the wrong behaviour, don’t we just lower our opinion of ourselves? I worry that just leaves a person open to more manipulation & ill treatment.

We accept the love we think we deserve in black lettering on pink background

It especially gives me pause because I see it most often aimed at women & people with mental health issues. It’s perplexing. On one hand introspection totally makes sense. On the other it plays into really unhealthy existing thought patterns. Basically I’m wondering if in the guise of taking responsibility we’re actually setting ourselves up to fail.

I’m in danger of going full Carrie Bradshaw with all the relationship pondering, but what do you think? Are there any wise (or not so wise) words that have had an impact on you?Carrie Bradshaw from s&tc with text ‘when it comes to life & love, do we accept our worst reviews’

Still after all this time…

It’s Friday night. I’m watching Bridget Jones’s baby (again) after which I shall go to bed & continue re reading Persuasion. Probably a pretty nice cosy night in, but Bridget & Austen are red flags for me.

I always read Austen when I feel wobbly. I find the manners & gentle wit soothing. Whenever I read about Elliots or Dashwoods they seep into my dreams. Georgian heroines winning happy endings is a definite upgrade on what’s usually swilling around my subconscious. Bridget Jones offers a similar, but slightly more bittersweet comfort. Echoes of Austen, shadows of my own experience. Sadly, sans the fairy tale ending. They amount to my mixed media version of a junk food binge.

I love some good old fashioned romance, but my own Mr Darcy is not what I’m longing for. I don’t know that I’m actually cut out for the conventional vision of love. I’ve given it some good tries; satisfaction never abounds. Perhaps what I miss is just more innocent times. Younger me believed in things I can’t muster the faith for anymore. That is both freeing and, well, sad.

I feel like I’m standing on the edge. I can’t see what lies beneath. The uncertainty scares me. I’m grinding through the days. Fighting the urge to stay in bed. Backing thoughts of blood into corners. I’m teetering on the brink of that big blank something.

Maybe this is how you feel when you’re prone to crazy and about to turn 40. Or perhaps this is just always going to happen. Remission & Relapse. Almost sounds like a novel a 21st century Jane Austen would write. She’d probably find a way to lighten to the mood. Alas, I lack her talent.

Instead I’ll borrow some well-being from her work. Mansfield Park can follow Persuasion. I might even dig out the Bridget books too. I’ll take light relief where I can get. Hold my nerve. I’ve survived steeper falls than this. There’s always safe ground waiting.

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When it feels like this…

January was a rough ride. Between norovirus, ear, throat, kidney infections and good old depression I haven’t had much fun recently. Out of the longest month I had about 5 good days & I only managed to look half decent on 3 of those. As ridiculous as it sounds, i’m quite pleased with myself for pulling it together & getting out the door that much.

What do spoonies wear when they are struck with regular person illness, but still want to look cute? A new found love of wide leg trousers has been my saviour. I still prefer a flirty dress, but I’ll be seeking out more of this style. My keep warm & comfortable whilst still looking cute uniform has been a combination of the wide legs, vests & my slouchiest cardigan.

Plus size women in black wide leg trs & stripey cardi

Trousers – Elvi

T- Shirt – Pretty Little Thing

Crop Top – Asos Curve

Cardi – Daisy Street via Asos

The first iteration of this look was for lunch with my fav man. I paired my beautiful velvet trousers from Xmas with the softest crop top & sheer tee.

Plus size woman in shark vest & velvet trs

Vest – Primark

Next up was a Tuesday adventure with the boy. I swapped out the t shirt for this sharky vest. The big toothy beast with the caption harmless amuses me. The boy is also a fan of anything with a shark.

Plus size woman in leopard print trs & stripey vest

Trousers – Asos Design x La Quan Smith

Vest – Primark

Last week I made it out to see my littlest niece & all my nephews before the infections really took hold. I was feeling rough & so grateful that I’d ordered these leopard print babies. Lovely warm fabric, gentle elasticated waist & big pockets make them a spoonie dream.

And in the interest of transparency, this is what I look like the rest of the time.

Plus size woman in jammies with walking stick

Glamorous, eh?