I love Christmas. The focus on giving and spending time with loved ones is special. I like the way it makes strangers wish each other merry. It warms my heart to see little ones really believing in the magic of Santa Claus. Tis the season, right?
Well, yes and also a little bit no. The last few weeks have been a whirl of wrapping gifts, singing carols with excited little people, twinkly lights & festive fun. I have adored every minute of it. However, now that all the presents are delivered and prep is completed I feel a tad blue. This always happens. I needed a rest day before the main event, but as soon as I slow down it hits.
My siblings and friends are having cosy days at home with their families. My Christmas nest is empty. I can’t help but think of what could have been. All traditions I wanted to pass on; opening just one present on Xmas eve, fuzzy red stockings with their names in gold, snuggling with Santa hyped darlings as we read a new festive bed time story. Then the frantic readying of gifts whilst my babies sleep. Santa presents wouldn’t be wrapped in my house; just lain out beautifully in the living room. Ready to be enjoyed the second they wake. There wouldn’t be any Christmas morning rules. Rising before dawn, chocolate for breakfast, all out Christmas chaos would be just fine. There’s an unsung seasonal opera in my head.
I know I’m very lucky. Tomorrow I will be with family. Exchanging gifts and clinking glasses. I’ll watch my nephew tear open his gifts and be loaded with big loving squeezes. I’m safe, warm & loved. That is a lot to be grateful for. There’s still hint of sorrow for the dreams that didn’t come to pass.
I know I’m not alone in being touched by sadness at this time of year. If you’re struggling this year, I’m sending love. If joy is out reach I hope you can find some peace.
Today would be your 23rd birthday. I can’t imagine that I would be top of your party list. Mothers tend to cramp one’s style. Still, I think about how you would celebrate.
Would you feel too old for cake with candles? I wonder if a family dinner would be on the agenda. I picture your Gran fussing over you. Your Aunts & Uncles buying you drinks & taking the piss. I see you surrendered to your little cousin’s nonsense entreaties. It’s all perfect. Of course I know life wouldn’t always be that way, but this is what I hoped to give you.
Recently I’ve been wondering what would come next. When I kissed you goodbye, where would you be headed off to? I was self sufficient by 23. I graduated that year, I was living alone in a flat I hated & working a crappy job to get by. My mental health was a mess & adulting was a learning curve. It wasn’t all bad. I was young & answerable only to myself. I had good friends and we made the most of our youth. I partied as many nights a week as I could afford. I felt such satisfaction; paying the bills, managing a home. Living life on my terms. Always, though, you were missing.
I thought of how my life would be with you then as much as I do now. The younger years were easier to imagine. I don’t know what decisions you would have made. I’d have wanted you to go to University. I’m sure I’d be happy to still have you at home. Perhaps you’d have a partner. You could be just like me. A new graduate balancing a job & the clubs. Or maybe you’d have taken an entirely different route. I’d support anything that made you happy. I’d be proud of the man you would be becoming.
I only write today, but you’re in my thoughts every day. I’d have done whatever it took to give you everything you needed.
We’re all familiar with the reminder letters and campaigns urging us not to miss our cervical smear test. We are rightly told how important they are in detecting cancers early. I’m glad these tests are available. I am also happy that we are educated on why these tests are so necessary. However, I find myself increasingly frustrated with the messaging.
So often when a person or organisation wants to encourage people to attend cervical screenings they focus on how easy it is. We’re told it is silly to be embarrassed and it will be over in a flash. Don’t risk your life over 5 mins of feeling awkward is repeated. Smear tests are confidently declared to be not painful. Just a little discomfort, nothing to worry about. While that might be true for lots, it is not full the picture. The patronising assumption that people miss smear tests because they’re self-conscious is harmful. Many people have valid reasons for their reticence. Addressing those issues would be a more effective way of increasing uptake numbers.
Research from Jo’s Cervical Cancer Trust and Rape crisis revealed that 72% of women who have experienced sexual violence have skipped or delayed a smear test. When you consider that at least 1 in 5 women have been sexually assaulted you can begin to understand the scale of the issue.
Birth trauma & pregnancy loss also impact a significant portion of those who require smear tests. Gynae exams & cervical screening require being in vulnerable positions that can trigger a trauma response. Recent research is finding that baby loss & birth trauma often results in PTSD. So, it’s easy to see why a smear test would be not a easy exam for those who are affected.
There are also medical conditions/physicalitys that can make a smear test very difficult. Conditions like ,vaginisimus, endometriosis, cervical ectropion and more can make smear tests painful or difficult. Cervical position, vaginal dryness, menopausal changes and FGM can also impact how a smear test feels.
Trans men may find smear tests hard for all obvious reason. Dysphoria, stigma, discrimination and more. I’m sure everyone can understand how having to deal with any or all of those things is a frightening prospect. It can also be difficult to access information; trans men may not be invited for cervical screening, there is confusion about who requires the test etc. Of course this may be combined with any of the other issues on this list.
This is by no means an exhaustive list. I just want to be clear that there are many real reason for a person to avoid cervical screening. That being said, how can we make it easier? Well, there are actually a lot of accommodations you can ask for. I don’t see this talked about enough, so I wanted to share that information.
Before I get into the details, I want to be clear that you do not have to disclose anything you are not ready to discuss. You can ask for accommodations without revealing your trauma.
Before the Test
You can ask you GP to take your name off the automatic reminder list if those letters are distressing.
Ask for the test to be performed by a person of your preferred gender.
If you have an established relationship with a Dr/Nurse you can ask to have them do your smear test.
Make an appointment to talk about the smear test. Discuss anything you need to talk about. Be that how the test is done, why is it done, your fears, worries etc.
Request a double appointment to allow time breaks, extra time.
Plan what you will do after the test. You may not feel up to returning to work or you might not want to be alone.
The Test
Take an emotional support person to the appointment.
Request a chaperone be present for the test.
Ask to talk through the ‘mechanics’ of the test before you start. Have the Dr/Nurse show you the instruments used.
Tell the person performing the test any words or phrases that could be triggering for you. If there are words of comfort that are helpful for you ask them to use those.
Explain how heavy/light a touch you are comfortable. If there are areas you would like them to avoid touching if possible, tell the Dr/Nurse.
Ask to insert the speculum yourself.
If you are concerned about specific trauma/pain response discuss that with the Dr/Nurse. For example tell them this part of the exam is usually painful for me or I might be unable to chat/answer questions.
Agree a plan of action beforehand; what would you like to happen if you are triggered/pain is too much. You can decide on a word or sign to use if you are in distress.
Combatting Pain/Distress
Mindfulness Techniques – Exercises like naming three things you can see, smell, hear can help route you in the now.
Distraction – Play music, make small talk with Dr/Nurse, your support person.
Squared Breathing – This sometimes helps me get through acute pain/the onset of panic. Breath in for 4, hold for 4, breath out for 4, hold for 4. Repeat.
Take a comforting object. Fidget object. Scent that invokes calming feeling. Hold support person’s hand.
Discuss having medication prescribed. Things like benzodiazepines can help with anxiety, allow your body to be less tense. Maybe you need a stronger pain medication to deal with the test/after effects.
Know Your Limits
It is ok to stop at any point. If any part of the process becomes too much, stop. You can reschedule the appointment. It is ok to try as many times as you need. This test is for you. You are not obligated to fit into anyone else’s timeline or expectations.
Smear test are an important part of early cancer detection, but your whole health & well being are equally important. Shaming people or dismissing the reason for their reluctance does not help. If we are to increase the uptake rates we need to acknowledge what is actually preventing people from attending. We also need to facilitate ways to address those concerns.
Today came around very fast this year. It frightens me how much time has past. You’d be older than I was when I carried you now. That feels incomprehensible. All those missed years. A grown man’s worth of memories. I can picture you at every age. Yet, I still call you baby.
We’re trapped together in this restless limbo. I hope it’s easier on your side. I dream of you kicking. Always the same sensation. Never the same place. We’ve travelled my emotional map together. You have been everywhere that ever really mattered. I wish I could give you more than words & dreams. I’m sorry I couldn’t save you.
Several weeks ago I came across a word I’d never previously encountered. I haven’t been able to stop thinking about. It encapsulates a feeling that lives with me, but has eluded succinct definition. The word is Hiraeth.
It’s Welsh and doesn’t directly translate to English, but it means a homesicknesses for a home to which you cannot return or perhaps never was. It was in an article and I didn’t understand. I had to look it up. When I read that definition it felt like I breathed it in and it found a spot inside me where it fitted perfectly. It explained something I already knew.
It is exactly what I feel in those moments that I’m not sure what I am doing or who I am. The thing caught in my throat when I hear children shout for their Mummy. It’s the longing for a world that only ever comes to life in my head. Except I can feel it. I know the intricacies. I have plans for every eventuality (& even strategies for the inevitable unknowables). Pet names, values & handed down treasures thump in my chest. The sensation of heavy sleeping breath and hot ‘it’s not fair’ tears. The music I play, the books I read them. Dancing in the living room for no reason just like I did with my Mum. I close my eyes and conjure how crushing the responsibility can be. Losing my patience, the swamp of guilt that follows. The days I am certain I said absolutely the right thing. The pain of knowing I missed the mark. I’m not imagining it; I can recall the emotions. They’re fizzing under my skin. The flick of hair from a face or a tut of exasperation are as decernable as memories. I long to go home.
Homesick for the home I couldn’t build. That’s the feeling that perpetually lurks. Now I know it’s name.
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It’s another gloomy Sunday afternoon. It’s drizzling outside & the day’s main occupation is emptying my over stuffed washing basket. It’s not a terrible day. Just routinely tedious.
It would merely be one more underwhelming day if it weren’t for the lightening crack in my pelvis. The shock that spreads to my back and sinks into my thighs. A monthly reminder. A living memory who’s intensity at times pushes the familiar into trigger territory. What rushes in full colour into my brain? Blood
Blood in my pants
Blood on the floor
Blood on my thighs
Blood in the bath
Blood on surgical gloves
Blood on a hospital chair
A supercut of blood. Staining an array of places I’ve called home, polluting clothing & towels. I can feel the rush of blood in my ears as various medical professionals tell me things I never want to hear. The heat, the rhythmic contractions, the fear rush me from yesteryears.
I know all the tricks. I breathe. I describe my surroundings in detail. I repeat ‘I’m ok’ over & over & over. I pet my cat; hear his purrs, feel his super soft fur. I plant my feet firmly & watch my toes wriggle on solid ground. I’m here. I’m safe. I’m in this room. And I am. For long enough to switch reels.
I’ve clicked over to a different familiar. My heart is pounding & adrenaline crackles. My body gets there a fraction before the idea fully forms. It’s too late to call halt. The only thing that ever stopped the bloody horror is more blood. Controlled, purposeful blood. I can almost smell the metallic rapids.
No matter how many days, weeks, months go by without splitting my skin the connections remain. My broken brain leaps from trauma to maladaptive solution with confidence. I must convince myself all over again that blood isn’t the answer.
Don’t find that box
Don’t open it
Don’t slip a fresh blade on the handle
Don’t find the perfect spot
Don’t drive the scalpel in
Don’t let blood trickle & flow.
I know this trick too. Sheer force of will. I will not. I can not. I do not.
I have not for so long. I’m ‘recovered’. No one told the deep dark core of me. That fucker still yearns for it. Not every day. Maybe even not all that often, but I know it’s there. I know how fast the urge can rise. And, oh, I know how hard it is to continue saying no.
I can’t say with any certainty that these thoughts will ever completely leave. I’m like an alcoholic who remembers the relief of the first hurried gulp. Knowing that carnage follows is enough to stop me raising the glass. I just don’t think it’ll ever kill impulse.
I’m good. My life goes on. Tomorrow could be wonderful. I’m tired, though. It would be nice not to have to fight so hard.
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It recently came to my attention that Joni Mitchell’s masterpiece, Blue is 50 years old. I find it incredible that words written half a century ago still cut right to the heart of me. I discovered Joni when I was around 12 and 28 years later I still love slipping into the blue. This week I have found myself listening to one song in particular on repeat. It’s Baby Loss Awareness week, as I see others share their own losses I find comfort in Little Green.
Little Green is perhaps the most perfect song ever written. I didn’t know precisely what it was about on first listen but I still got it. It still wrapped me in its magical sadness & hope. Green immediately struck me as a beautiful name for a girl. I decided there & then that should I birth a girl, I would indeed call her Green.
I’ve been listening to that song since my teens. Dreaming of the tiny bud who would be my Green. In the passing years I have learned the true meaning of the song, talked to the Green nestled inside me & discovered the reality of loss. Joni was writing about a different, but similar grief. Her words remain entwined with my experiences.
When I dream of a daughter she is a gypsy dancer. All tangled red hair & high spirits. She likes the scent of pine trees & bracing herself against a strong, cold wind. She’s quieter than me, but chatters when excited. I read her everything I loved as a child. Take her to the places that made me feel big things. Her childhood is filled with standing stones & patterned tights & Joan Lingard books & seaside air & empowering women & red liquorice. She is exhausting, exhilarating & exquisite.
When I wake she is a girl in a song. A fantasy my mind summoned; fuelled by 70’s folk poetry and my deepest longing. Listening now is a sweet agony. Pressing my sorest spot because I can’t resist the beauty of it all. The intro wrapping me in the blanket my babies never had. The lyrics bringing the sketches in my head to life.
I’m glad we’re beginning to open up about pregnancy & baby loss. I hope others won’t have to spend so much time alone in their heads with their babies. It helps to talk about losses. To give solidity to those tiny unlived lives. It is such an enormous relief to have the world acknowledge our children.
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It’s been another insane blur of year. The pandemic has given me lots of time & motivation to do big picture thinking. There’s been so much talk of the impact on parents & kids. The decisions to be made about keeping children safe, healthy & happy get trickier in times like this. You’re not here. Neither are your siblings. Being forced to stay home alone for extended periods really rams that fact home. I still think about what I would do. How I would make sure my children would be ok. I don’t think that will ever stop. I’ve thought through how I’d handle every stage of your lives; agonised over choices that are entirely theoretical. I can’t help it. I’m always going to be your Mum on the inside.
This year I will be spending your day doing something joyful. It came about purely by chance. Pandemic rescheduling dropped an activity unexpectedly. It feels strange. It’s not a thing I would have planned, but I think it is good. I’m trying to see it as a celebration of you. Of the tiny amount of time we had & all the wonderful that could have been. I know you would have given me so much to rejoice in.
I’ve been fairly quiet on the blog front. Clearly we’re all under some pressure, but I’ve also been dealing with some bonus pain. I’ve had episodes of awful symptoms which signal that my pancreas may be acting up again. It’s been a while since I’ve had to deal with pancreatitis and I am scared of a comeback.
The pain triggered some really desperate memories. It also gave me lots of time to ruminate on how PTSD never stops giving me unpleasant surprises. The nature, frequency & severity of my reaction to trauma stimuli is forever changing. In my (also unending) quest to de stigmatise mental illness I thought some recent triggers might be worth sharing.
Waking up in the middle of the night to pee is not a thing that I do except during pregnancy. I’m a hold ‘til morning girl. The frustrating sensation of leaving a comfy bed & stumbling to the toilet in the dark is one I associate with pregnancy. Sitting on the toilet half awake looking at my painted toes I had the trauma version of de javu. My body remembers this. The exact emotion. The precise thoughts. I’m ok, but I know I won’t be getting anymore sleep. I’ll be distracting my head from going back there. Lying still in the dark would be asking to feel things I don’t want to feel.
Sometimes to occupy my mind through those sleepless hours I watch crap tv. Ideally something I don’t have to concentrate on. Mildly entertaining 90’s sitcoms work a treat. That is until the wife in King of Queens is unexpectedly pregnant & then just as they’re getting happy about it, not pregnant anymore. Numb viewing to uncontrollable sobbing in 20mins or less.
A fun park adventure with the rascal is momentarily derailed when someone calls me his Mummy. I smile, correct them & return to my role of bad octopus pirate. I feel the impact, but I look steady. Until much later when the memory of all the babies who’ll never call me Mummy knocks me flat.
I wake up bloody because my period has started in the night. I’m not inconvenienced I’m terrified. Those cramps ripping through my pelvic region signal disaster. It takes a bit of time to centre myself in the now. Repeat, ‘I’m ok’ over and over as I drag myself through a shower. Tampon, comfy clothes, paracetamol. I’m almost calm by the time I return to tackle the bedding. I’m genuinely shocked when the sight of blood on sheets sets me trembling. I was devoting all my attention to not getting sucked into one trauma hole that I forgot about another. I have to sit on the floor but I’m still watching an old iteration of myself. Younger, sicker me is ripping bloody sheets from an entirely different bed. More than the sheets are stained. My body is raw & dripping. I feel as exhausted now, in my healed, safe body as I did then in that recklessly butchered one.
My stupid period tracker with its stupid unwanted alerts. High chance of pregnancy. Such a simple sentence triggers such complex crazy. The stress and hope of trying. The heartbreak of failing. The unwanted reminder of how few of these high chance days may be left. Fleeting recollections of disappointing perfunctory sex and an even more disappointing man. Wearily buying tests. Angrily buying tampons. Wanting the monthly reminder to be over and fearing that end. Wrap it all up in a hollow ache in my middle that never leaves, but echoes as I read those words and you have my condition.
My ridiculous cat managed to injure his paw and now I must try to keep dressings on until it is healed. If you know anything about cats, you’ll know what a challenge this is. I have experimented with various ideas none of which preserved his dressings for long. I started thinking he needs a sock & then remembered I had some baby socks. They must have belonged to one of my nieces or nephews. Baby bits and pieces will end up in your hand bag/pocket after a day of auntying. I seized upon the long lost sock as the solution. I didn’t feel sad or even link the tiny item to anything painful until I started trying to put it on my cat. Then from nowhere I was flooded with too many feelings. I love my boy, he’s wonderful. Still, I couldn’t avoid the fact that he’s the sole recipient of my mothering.
A character in the book I’m reading is trying, with difficulty, to explain why she feels guilty for various past events. I feel as though I have taken a deep breath & inhaled fictional strife. My own twisted guilt is equally hard to comprehend. For me, self reproach is as essential as oxygen. The chord of perplexing guilt could catapult me into a multitude of memories. This time I land flailing in the aftermath of standing up for myself. I can feel the certainty that so recently fizzed go flat. That overwhelming sense of this must somehow be my fault returns. I feel angry about all the shit I put up with, but I still can’t fully convince myself I’m not to blame. Now I’m full of guilt for events long passed. Today is ruined as I attempt to untangle things that never made sense to begin with.
Triggers lurk. Sometimes entirely unexpected things stir up pain. It can be fleeting or set off a chain reaction. I have adapted to a life with booby traps. I often appear untouched, but only because I work so incredibly hard at hiding the mess.
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Something in the way she moves... 
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