I give up…

The universe is determined to give me opportunities to discover social faux pas. The events of the last weeks have revealed to me a host of new things that lots of people say when one talks about miscarriage. The vast majority of these comments are very well meant, but nonetheless, have considerably missed the mark.

Being open about having had multiple miscarriages seems to unfurl two main threads of conversation. The most prolific being enquiries as to why it keeps happening and what I have done about it. I think I know why people ask these questions. Partly fear, no one wants this to happen to them. I suppose people think if they know the whys they can avoid it or fix the problem. The other side being an assumption that everything can be fixed. I understand that, we are so used to living in a world where things can be cured or treated. I know from having chronic conditions that people are often confused to learn that some things can not be corrected. In the case or recurrent miscarriage this enquiry is unhelpful for variety of reasons. Firstly miscarriage, recurrent miscarriage and infertility often fall into the category of ‘don’t know’. About half of those who suffer recurrent miscarriage are unable to find a reason after testing. I am one of those people. I have had all the standard tests and investigations to little avail. I did have some adhesions that were successfully removed and I have PCOS, but no Dr I have consulted believes that to be the cause. The short answer is, no one knows. Asking this question isn’t helpful. If a person doesn’t know, you’re just underling that difficult fact by making them explain it again. If they do, they may not want to discuss such private and sensitive information with you or anyone else.

Offshoots of this such as, Have you seen a Dr about this? You should get another opinion, My friend did such & such or surely there must be something they can do, are unwelcome. I have had four miscarriages. I have lost four children that I desperately wanted. Of course I have done everything within my power to find out why and prevent it from happening again. The suggestion that I haven’t offends me. It indicates that you think I am either stupid or careless. I understand that wasn’t the intention, but please, think before you speak. It’s also important to be aware that the NHS usually won’t begin these investigations until after a third miscarriage. Not everyone has the resources to seek private medical treatment. Anyone in that situation doesn’t need nosey salt in their wounds.

The other comments this loss has garnered are of the don’t give up variety. A lot of people have reached out to tell me there’s always hope. The have shared their own experiences of loss or struggles to conceive and assured me that miracles happens. That they eventually had their baby and it was all worth it. I know you think you are helping. I know you are trying to be kind. Let me just say this, not everyone gets a miracle. We are not all able to try again. There are limits to what the body can do, physically & emotionally. There are time constraints. Relationship constraints. Financial constraints. At this moment I don’t feel like I have another try in me. Losing another baby would destroy me. Maybe I will feel differently in the future (it would have to be the fairly near future), but I don’t think so. Facing the reality of my limitations is not weak. Recognising that I can not square this circle is not giving up.

I don’t intend this as an attack. I realise these aren’t purposeful attempts to hurt. I just want to have an open discourse. I think these confusions arise because we don’t talk about this topic enough. If you want to offer support to someone who has suffered this kind of loss it will be appreciated. Simply offering your condolences and assurances that you are available is enough. Respect that everyone grieves differently and your kindness will cherished.

 

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Look back in anger…

I’m angry. So angry that it’s hard to contain. The problem is there’s no specific target for my rage. It’s a generalised, tear everything down kind of fury. There’s no release. I can’t spew my anger over unsuspecting bystanders. Keeping it in doesn’t feel like a viable solution either. Where does one put all the free floating resentment that no one is actually to blame for?

Life isn’t fair. I came to terms with that fact a long time ago. I’ve accepted a lot of bullshit. Fought crazy & illness & disability & mistreatment & loss to build some sort of something. I’ve struggled, but I’ve rolled with the punches as best I could. There’s only ever been one thing that I’ve felt I couldn’t do without. One single imperative. When you’re willing to get by without so many things, it feels so desperately unfair to be denied the thing that would make it all ok.

I watch everyone around me do the thing I cannot. Some with such ease it leaves me breathless. For others it’s a harder journey, but they reach their destination. I love those people and I love their babies, but it’s so hard to be the only one stranded.

I’m angry that I have to do this again. I’ve been tricked into hoping. Now I have to deal with the fall out. I am mad at myself for being stupid enough to believe. I resent having to submit to medical interventions. I didn’t ever want to hear someone say they can’t find a heartbeat again or look at another bloody speculum. I’m furious that I’m still bleeding and that I have to cope with all that triggers. It’s agony to be constantly reminded that my body has failed again. It’s exhausting to face the nightmares and flashbacks of all other blood. I don’t want to relive each of the worst moments of my life whilst trying to get through this one. I’m sick of blood tests and transfusions and putting on a brave face. I hate that I don’t get to opt out. I’m not strong, I just don’t have option of walking away because it’s too hard.

I don’t understand why it has to be me. Why my babies keep dying when I want them so much. Why does the universe give life to those who can’t or won’t love their children? Every time I read a horror story of abuse it feels like a personal attack. I think of all those terrified pregnant teens, the adult women who can’t feed another mouth or just never wanted to parent and I wonder why it couldn’t be me instead. I’m not angry at the individuals; everyone should have the right to choose. I’m furious at whoever or whatever makes decisions. What could I possibly have done that disqualifies me?

I see people smoking as they hold their child and I have to restrain my scream. Each impatient, inappropriate or lazy exchange between a parent & child kills me. Even the standard complaints about bring tired and tantrums make me feel like punching someone. I know I’m not being fair, but it’s like bitching about your diet to the starving. Don’t they know what a miracle they’ve created? How can they forget how much that little person needs them to do the right thing. I know it isn’t easy. Kids are exhausting and all consuming, but they’re worth it. The joy outweighs the sacrifice.

I’ve had enough therapy to know that burying your feelings is never helpful. I know I can’t dig a deep enough hole for this much emotion, but I have no idea where else to put it. I can’t lose it with every person who is rude or mildly inconveniences me. I have no desire or intention of venting on the people I love. I used to work this shit out with a scalpel. That’s no longer an option. What do I do?

Make it easy on yourself…

2019 has barely gotten going & it’s been rough already. In a matter of weeks I have lost my baby & my boyfriend, which is less than an auspicious beginning. If I sound flippant, I’m not, I’m just trying very hard to put one foot in front of the other.

The demise of my pregnancy is devastating. My relationship’s end is sad, but the right decision and that’s about all I have to say on the topic. I find myself approaching the year (and my life) alone again. Being single hasn’t ever worried me all that much. I’m definitely not scared to be that kind of alone. Childlessness on the other hand, terrifies me. What do you when you’re facing your biggest fear? I haven’t a fucking a clue.

#projectpostit

For the time being I have taken the clichéd approach of one day at a time. I’m trying not to spend every day at home in my jammies (there is however a lot of crying on the sofa). Functioning is a struggle for a multitude of reasons. Primarily, I am exhausted. I’m always tired. Add even less sleep, the effort it takes to contain my anger at life itself, the fact that I will not stop bleeding, so despite the blood transfusion my haemoglobin level continues to flag and you get extreme fatigue. Having a different emotion every 5 seconds is tiring. Battling (& often failing) to contain the tears is wearing. Breathing & washing & conversing & not screaming is all taking gargantuan effort. The truth is I’m not managing very much. I’m practising being ok with that.

Blood transfusion, Rose wine, snuggling cat, reading baby

I recommend spending time with people who don’t expect too much of you. I’m giving priority to anything that give me comfort; my little people & potatoes pretty much have that covered. Hot baths have featured heavily as has ‘fake it ’til you make it’ make up. There was one afternoon of day drinking with a lovely friend that actually helped a lot, but not something it would be wise to make a habit of. My purring cat is a godsend. I’m reading, sleeping whenever I can and endeavouring to be gentle with myself.

ly h Kerr

I have no clue how to tackle the overwhelming sense of guilt. Chipping away at how ‘not fair’ this is may well take the rest of my life. I’m focusing on the small stuff. Giving myself a pass on the growing mountain of washing, the ideas that go unpitched and being awfully rude to the person who called about my non-existent road traffic accident. I find it harder than you’d imagine to let that stuff go. Being hard on myself comes easy. i have learned that when life gets you on the ground it’s worth tackling the instinct to kick oneself whilst already down.

Sunset

Lonely hearts club band…

Miscarriage is lonely. When it happens you’re on your own. No matter how much support you have it’s still just your body failing. Your dream dying. Even if you have a loving partner who shared that dream, they’re not bleeding. Their body isn’t an empty husk. Yes, I know this isn’t necessarily true, but believe me, it’s how it feels.

That sensation continues. The loss is isolating. For all the reasons we’re starting to talk about and for others that will surprise you when you thought you were ok. It is an uncomfortable topic. No one really wants to talk about your unsuccessful pregnancies. Often most people in your life don’t even know about them. Those that do will forget the dates & details. That’s not a complaint, just fact. Your baby wasn’t real to them. It’s hard to feel anything about a life that never tangibly existed; your baby only really lived in your world. That’s not to say your people don’t care, they do. Perhaps they just don’t want to upset you. Or they genuinely don’t have the words. Time goes by. Life is lived. The only evidence of your loss is an absence. But the missing party was never there to anyone other than you. It’s a crime without a witness, but it isn’t victimless.

To a certain extent you adapt. You carry that lonelines. It’s occasionally acknowledged that once upon a time your life was almost something else. You quietly carry your grief and you carry on. Along the way you find new challenges. You discover that there are a bunch of seminal moments & experiences that you have to put away. You aren’t really allowed to tell those stories like other mothers do. You aren’t even allowed to call yourself a Mum out loud. The title doesn’t make sense to the world when you have no flesh & blood children to show.

So, you learn to smile & say nothing. Just nod and ask questions when others share the tale of how they discovered they were pregnant. You can’t join in with a silly story about peeing on a dozen sticks. You can never say how you somehow knew before it was ever possible to do any test at all. Your stories aren’t cute. That’s someone else’s lot. You won’t be thanked for ruining the mood. Likewise you mustn’t share pregnancy tales. No friendly bonding over how tired you were or sick you felt. Cravings & aversions will remain unknown because, again, you have no happy endings. The tone of your reminiscing isn’t light. You can never empathise with a pregnant friend. To do so would be to draw attention to tragic realities. There isn’t a guilty party. You aren’t being maliciously excluded. It’s just life. Your child didn’t make it. Reminding everyone of that turns warm-hearted conversations into sad, awkward exchanges. You can’t broach the subject because you don’t want to spoil other people’s nice time. They won’t include you because they don’t want to hurt you or because they forget (or never knew) that you are part of that gang. You’re missing the vital component required for membership.

That hurts. The silence is painful. Biting your tongue & standing on the perimeter takes effort. Not letting any of it show can be torture. Not fatal though. You’ll find yourself in these situations repeatedly. You’ll realise you can survive them. You will nod along & take your sadness home. Unpack it when you’re alone. Go over your own pregnancy chronicles in the privacy of your head. Then you’ll have to take a deep breath & face the new hush.

You have nothing to add to the next part. The trimester you didn’t reach. The birth. The nights the baby didn’t sleep. The trials & triumphs of breastfeeding. Words and steps and sobs and kisses. You’ll have nothing to share. All you have is second hand information. When you help your experience isn’t really yours. Just borrowed. Never actually a mother’s wisdom. It’s still no one’s fault. You don’t wish they wouldn’t share. Don’t want to stop being a part of the whole wonderful process.

It’s lonely.

To feel like a mother & never have anyone call you mummy.

To shake your head no when you mean yes.

I know other people understand, but I’m still on my own.

Dear Baby…

Dear Baby,

You’re not a baby anymore. Or you wouldn’t be. Today would have been your 18th birthday. I’ve been thinking a lot about all the things you could have been. I’ll never know what your talents are. What you loved & hated will always be a mystery. Our life together will forever be unknown. I’ve watched so many others mark the milestones in their children’s lives & my thoughts invariably turn to you. I’m not sure I’ll ever get over the blanks.

I have dreamt of every minute of your life. Waking from those beautiful fantasies feels like a stab in the heart. Every single time. I hope those dreams are snippets of how our life would have been. I don’t want to think of us as anything other than happy.

So, today you’d be a man. I’m sure you would be wonderful. The kind of person I’d be proud to have raised. I’ll always be proud regardless. Proud that my blood ran in your veins, thankful that your heart beat in me & grateful that we had any time at all.

Big love,

Always,

Mum.

Xx

Things I can’t believe I have to say again… Part 2

I’m not sure if everyone got the same extensive instruction on manners, but my parents, grandparents etc were very clear that being polite was important. School further instilled in me the concept that there are things that are rude to comment or enquire upon. I feel like even if no one took the time to teach you social etiquette (for want of a better phrase) as a child, there are more than enough opportunities to pick up the basics as you go through life. It seems as though this is in fact an incorrect assumption on my part because tonnes of folk still have zero clue about what is appropriate.

So, let’s try & clear up another area of life on which you really should not broach. Babies. Specifically, when, if, how someone may have them. Unless someone opens this conversation with you, zip it. Wether or not someone wants to procreate is a private matter. When they might do so is none of your business. Why they haven’t already done so is not a topic that’s up for public consumption. Seriously, don’t ask.

Mainly don’t ask because that is private information & prying into other people’s lives is rude. I’ll say that one more time for anyone in doubt,

IT IS RUDE TO ASK ANYONE INTRUSIVE QUESTIONS.

Further to that don’t ask because this a sensitive subject. Regardless of a person’s circumstances there isn’t really a way to reply that isn’t awkward. People (especially women) who do not want children are sick of being judged & interrogated on that decision. If people do want children & don’t have them, there’s a reason. Trust me, they don’t want to discuss whatever that reason is with a random person. For someone people the topic of having children is so emotionally charged that talking about it can be distressing. It’s not ok to hijack a person’s privacy.

I want to have children. I love little ones, but I don’t want to explain that I’ve had multiple miscarriages. Thus far haven’t been able to get pregnant & stay that way. Hence, I don’t feel able to simply say yes I plan to have kids. Part of me dreads occasions centred around children because as much as I love celebrating little people & the wonderful people who made them, I know someone will ask that question. I’m sure I’m not the only person who feels this way. No matter how inconspicuously I shrug off the question, inside, I want to cry. Do you hear that? Your nosey questions are spoiling otherwise joyous occasions for people. I (we) don’t want your pity, we want you to exercise good manners.

Next time you consider asking someone if they’re broody or winking and saying you’re next.

STOP

No one likes that rude bitch who makes things awkward. Please try not be that person.

Trigger bang bang…

Anyone who spends any time on social media will have become familiar with the term triggered. Over the last few years it has entered the public lexicon. Unfortunately, it’s meaning has been incorrectly implanted in the public consciousness.

Triggered is actually a psychological term usually related to PTSD. A trigger is an external stimuli that produces a very uncomfortable emotional response; most often panic attacks or flashbacks. However, varied symptoms can result from the triggering of a traumatic memory. It absolutely does not mean offended or hurt. I’m sure most people will have come across the correct explanation of the term. I have certainly witnessed many try to explain why using the term as an insult or a vehicle for mockery is not ok. Yet, the misuse continues. It occurred to me that perhaps what is needed is an accurate representation of what happens when a person with PTSD is triggered. Maybe if people understood the reality they wouldn’t throw the word around so carelessly. So, I thought I would share what triggered means to me.

Whenever I have been pregnant I have been unable to wear my regular perfume. I wear the same scent everyday in life, but some weird olfactory sensitivity means during pregnancy it makes me nauseous. Thus, I change it & the scent I wore I during my first pregnancy is a major trigger for me. Triggers can be anything & no one has any control over what might become one. I experienced a million sights, sounds & sensations during that time, most of them hold little power over me. That scent, though, is potent.

Snow patrol, blue sky

Formidable enough to render me a sobbing wreck. Being taken off guard by that scent whilst shopping forced me to run shaking from a book shop to vomit in the street. All the while struggling to breath & bring myself to the present. A nurse who had too liberally applied the fragrance sent me shuddering back 15 years. Leaving me so panicked I crawled behind a chair & hid. I stayed crouched on the floor desperately trying to claw my way out of the worst day of my life. Completely trapped in my own personal horror film until some kind soul got me some diazepam & did me the kindness of handing it over without questions. That heady aroma has caused nightmares so vivid that I’ve woken myself with my own screams. Dreams so painfully real that I’ve had to keep myself awake for days. Sitting in the company of someone wearing that perfume once contaminated me. On returning home I could not rid myself of the smell. Real or imaginary it lingered until I smashed my hand with a marble pestle. So tortured was I by the memories the scent brought to life that I ploughed that pestle into my hand until I broke two fingers. The cracking of bones a welcome jolt back to the here now.

Diazepam 10mg

Triggers are uncontrollable. It is not within the power of a traumatised person to select what reactivates their trauma. Nor can they choose not respond. Our minds shelter dark territories & they’re all one way roads. Once you’ve slipped in, you have to press on through. Being triggered isn’t a foolish over reaction. Nor is it the hurt feelings of the overly sensitive. It is the raw & brutal reality of those who have dealt with the unimaginable. It’s a battle scar on the brain.

I can’t stop anyone from misappropriating a word. Ignorance abounds. The only tool I have to fight with is honesty. The truth is that trivialising a serious symptom of illness hurts. It stifles the conversation & prevents people seeking help. It makes vulnerable people feel weak & ashamed & stupid.

So, no, I’m not triggered by your cheap dig. I’m just tired of the stigma. Very, very tired.