23

Dear Son,

Today would be your 23rd birthday. I can’t imagine that I would be top of your party list. Mothers tend to cramp one’s style. Still, I think about how you would celebrate.

Would you feel too old for cake with candles? I wonder if a family dinner would be on the agenda. I picture your Gran fussing over you. Your Aunts & Uncles buying you drinks & taking the piss. I see you surrendered to your little cousin’s nonsense entreaties. It’s all perfect. Of course I know life wouldn’t always be that way, but this is what I hoped to give you.

Recently I’ve been wondering what would come next. When I kissed you goodbye, where would you be headed off to? I was self sufficient by 23. I graduated that year, I was living alone in a flat I hated & working a crappy job to get by. My mental health was a mess & adulting was a learning curve. It wasn’t all bad. I was young & answerable only to myself. I had good friends and we made the most of our youth. I partied as many nights a week as I could afford. I felt such satisfaction; paying the bills, managing a home. Living life on my terms. Always, though, you were missing.

I thought of how my life would be with you then as much as I do now. The younger years were easier to imagine. I don’t know what decisions you would have made. I’d have wanted you to go to University. I’m sure I’d be happy to still have you at home. Perhaps you’d have a partner. You could be just like me. A new graduate balancing a job & the clubs. Or maybe you’d have taken an entirely different route. I’d support anything that made you happy. I’d be proud of the man you would be becoming.

I only write today, but you’re in my thoughts every day. I’d have done whatever it took to give you everything you needed.

Love always,

Mum.

Sweet Little Mystery…

Regular readers might have noticed the downturn in my long form content. There’s a very simple reason for that, chronic illness.

This year has been one thing after another. The last few months in particular have been gruelling. The problem with having chronic conditions is you often find yourself fire fighting. There are so many symptoms, it is impossible to properly deal with everything. You end up addressing the most problematic at any one time. Plus of course it can be hard to get Drs to really investigate many issues. Often they’ll just chalk up to an already diagnosed illness. Sometimes they’ll try to mitigate that symptom & others you are basically told you’ll have to live with it. I always have questions that aren’t answered. Unfortunately I run out of steam to pursue them. When you are always tired & in pain you must pick your battles.

Of course being fat complicates matters. The first response more is usually something about losing weight or questioning my diet. When I fight against that there will be what I call ‘subterfuge tests’. I’ve had more fasting bloods & cholesterol tests than anyone ever needs. After years of Drs refusing to believe anything I tell them, I find it is easier to just go for the bloods & prove myself right.

The last few months have been relentlessly hard. Pain has been consistently more severe. Digestive tract refuses to behave. I’m fainting daily. I’ve had the worst bout of insomnia of recent years, but even when my body eventually gives into the exhaustion; I awake feeling just as tired. Brain fog has punctured my old articulacy. I struggle for words in everyday conversation. I have lists & notes for every little thing. If it isn’t written down, it will never happen. My skin itches, my head hurts, alarming bunches of hair are falling out, I’m breathless, nauseous & anxious. ALL THE TIME.

I have suspected that something was going for a while. I can’t explain except to say that my body didn’t feel like it belonged to me. These ailments have been breaching my outer limits. So, I had some blood tests that revealed elevated numbers. My Gp wanted to test again a few weeks later to rule out a random blip. They came back slightly higher. A new medical mystery was born.

Three blood test bottles

The high numbers are related to my liver function. There isn’t an obvious reason for my liver to be pissed off. I hardly ever drink alcohol, I don’t eat meat or dairy, no signs of diabetes. It doesn’t make much sense. Possible culprits include my missing gallbladder & bile duct complications, covid & no doubt my weight will become a factor too. I await scans & next steps.

All this to say, I am currently operating on a wing & prayer. And I’m not even religious.

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My head is spinning…

It has been a week. Sometimes this chronic illness business is depressingly predictable. Others it throws you a delightfully new problem. The past week has combined both. Lucky me.

Let’s start with the spoonie admin. Apparently because I have Pots the airline requires proof from a Dr that I am fit to fly. I am fit to fly. I flew last year with no issues. I don’t require oxygen and I can follow the safety instructions should the worst happen. None of which makes any difference to the airline people. This letter has to be signed no more than 30 days before departure. Months ago I made an appointment and explained what it was for. So, imagine my surprise when I turned up at the prearranged time only to be told that their policies have changed; my GP surgery can no longer provide this service. They suggested I contact a private clinic. Since I would dearly like to go on my long awaited holiday, I did just that. After quite a few no can dos, I found a practice who could help. Huge sigh of relief. Right up until they emailed the cost. Oh, what I would give for a body that behaves.

The week then steered into familiar territory. A night of unmanageable pain culminating in a disastrous faint. My glasses were knocked off & one lens shattered in the fall. I of course landed face first in the mess, then proceeded to repeat the passing out & smash my head. Cue a day of blood tests, butterfly stitches and feeling appalling. Oh and obviously more cancelled plans.

I tire of discovering new hurdles and stumbling over the old ones. The week ahead will be mostly conducted from the safety of home. I intend to sit still, get some writing done and try very hard not to be so much trouble. Health is wealth in more ways than one. Bronan is relying on me to keep him in the luxury he is accustomed to.

If you enjoy what I do you can support me here or on Patreon.

All those chandeliers of hope…

Christmas is a funny old time. We’re all feeling sentimental and emotions are heightened. I struggled a little this year, but still had a beautiful Christmas Day.

I got all dressed up for Christmas with family & friends. We had lots of food, presents & excited children. I feel loved & grateful for having such wonderful people in my life. Especially that I am blessed with so many niblings to adore. I’m equally thankful that I can spend the post festivity stretch ensconced in jammies & cosy socks.

I know this time of year can be hard for a multitude of reasons. Xmas is all about children and I find myself dwelling on how different my life could be. There are so many reminders of what I have lost. If these past weeks have been arduous, I hope you were able to have as merry a time as possible. If merry is a stretch, then I wish you peace & a better new year.

Here’s to 2023!

A Star is Born…

One of my nephew’s made his debut in The Nativity last week. It was a good excuse to put something pretty on. There’s been a lot of feeling rotten & looking worse. It was time turn it up.

Christmas time always mean velvet to me. Obviously, singing children called for double velvet. Throw a little leopard print in the mix and you have the ultimate festive auntie outfit.

Trousers – Elvi Blazer – Monsoon

Blur primer & concealer worked miracles on my face. It has sustained a few bashes amidst my fainting escapades. Big glasses & lashes of mascara saved the day.

Glasses – Where Light

The nativity was amazing. My nephew’s Joseph was superb & I was a very proud auntie. We rounded off the occasion with a some Xmas operation & classic Disney cartoons. Good day!

Give Your Best…

Christmas is a time for giving. However, given the current economic state it’s understandable that more people than ever are unable to be as charitable as they’d like. Thus, I thought I’d offer some easy (& free) ways to help

Give Your Best is a tech for good enterprise that allows people to donate quality clothes. Clothes are shown on their website and can be shopped by those in need. The organisation supports people in the UK who are seeking asylum, refuge, have been victims of trafficking, destitute with no recourse to public funds or have precarious immigration status. The platform accepts donation of clothes, shoes & accessories and allows people to pick the items they want at no charge. It’s a simple system that engenders choice. If you have items that would be of use to someone please sign up in the website.

Smalls for All accepts donations of new pants and new or gently used underwear. They work with various organisations who disturb the items throughout the UK & Africa. Pants can be picked up so cheaply & if you’re anything like me you will have bras that you wore once and found it didn’t fit properly or didn’t give you the shape you wanted. Small for All facilitates getting those garments to people who need them.

Many charities can raise funds by recycling used stamps. All you have to do is cut them from the envelopes they arrive in and send to any of the following organisations.

RNIB

Amnesty

Oxfam

Retired Greyhound Trust

Parkinson’s UK

The Lullaby Trust

Children’s Heart Federation

Finally is you are able giving blood is an amazing way to help others. As a recipient I am eternally grateful to the people who donated the blood I needed. Uk blood stocks have been alarmingly low this year. Although they are now recovering, blood donors are always needed. You can find out if your are eligible & how to donate here.

Charity of the Month…

October is Breast Cancer Awareness Month. I know there are lots of campaigns at the moment, but I want to suggest a less discussed group. METUPUK are a patient advocacy group who push to promote issues related to secondary/metastatic cancer.

In the UK 31 women a day die from secondary breast cancer. Despite this secondary cancers are often less visible. People living with secondary cancer need better drug access, more drug trials and more awareness.

I was shocked when I learned that figure. I discovered it through an Instagram friend, who is living with secondary cancer. The lack of knowledge about a disease that effects so many people is appalling. Please consider making a donation if you can.

Pink cancer ribbon with the met up uk

This week I have mostly…

doing not much. It’s been mostly sedentary activities and background music has been essential. These have been my most played.

Obviously Lewis Capaldi’s new song has been on repeat. Like the rest of the sane population I have been dying for him to release new music. Forget Me doesn’t disappoint. Poignant lyrics and epic remake of a wham video clearly add up to a hit. I even bought the single. The first single I have purchased since the 90’s. It must be good. Factor in the bonus of having him back of social media and the world is a better place.

Forget Me vinyl single

Reflecting Light wormed it’s way into my play list via Gilmore Girls. I’m currently very annoyed at that stupid show. I started it in a fit of insomnia because a friend told me it was great (you know who you are!). Gilmore Girls is not amazing. It is a sort of ok sitcom with a few really annoying characters and main folk doing occasionally hideous things. I couldn’t stop watching, though because they suckered me in with Lorelai & Luke. I can resist a meant for each other but keep fucking couple. Thus, I had to press on to ensure they ended up together. Amongst my tears & frustration came Sam Phillips singing Reflecting Light.

I rode the pain down, got off and looked up Looked into your eyes The lost open windows, all around My dark heart lit up the skies’

The waltzing and those lines got me. I’ve been humming it all week.

Another Love by Tom Odell is the song you hear in the videos of Iranian protests. An uprising prompted by the death of Mahsa Amini, a 22 yr old woman beaten to death by morality police for not wearing a hijab. The courage of women refusing to submit to these laws is immense. It is incredible to watch people stand up to this totalitarian regime. Their bravery is awe inspiring. I get shivers every time I get this song.

Protester holding up photo of Mahsa Amini

Last but not least we have Harry Styles’ Matilda. It’s just such a beautifully sad song. I can’t relate, my family are wonderful, it’s still making me cry. Something about that reassuring voice saying it’s ok to let go just gets me. Poor Matilda.

Bronan approves of both the tunes and the sitting still.

Black and white cat sleeping on his paw

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If only I could hold you…

Dear Baby,

Today came around very fast this year. It frightens me how much time has past. You’d be older than I was when I carried you now. That feels incomprehensible. All those missed years. A grown man’s worth of memories. I can picture you at every age. Yet, I still call you baby.

We’re trapped together in this restless limbo. I hope it’s easier on your side. I dream of you kicking. Always the same sensation. Never the same place. We’ve travelled my emotional map together. You have been everywhere that ever really mattered. I wish I could give you more than words & dreams. I’m sorry I couldn’t save you.

Love always,

Mum

Xxx

Charity of the Month

This month I decided to support Animals Asia. As the name suggests the work to improve the life of abused animals in Asia.

Animas Asia logo, white graphic bear and the words animals Asia in white on black background

I’m a life long animal lover. I have always been involved in animal rights activism in whatever capacity I am able. When I read about the plight of bears in bile farms I was simultaneously heartbroken & enraged. After further reading I discovered that Animals Asia also fight for the welfare of cats & dogs in China and captive animals across Asia.

No animal should spend their life in a cage. Be ripped from their mother at birth. Endure pain & suffering for their entire existence. Animals are intelligent, sensitive creatures who deserve so much more than they are subjected to for human profit.

A bear with sad eyes looking through bars

You can help them run their sanctuaries and ensure the welfare of countless animals. If you can, please consider making a donate.

Black and white cat sitting in a  sofa
Bronan approves this message.