I love Christmas. The focus on giving and spending time with loved ones is special. I like the way it makes strangers wish each other merry. It warms my heart to see little ones really believing in the magic of Santa Claus. Tis the season, right?
Well, yes and also a little bit no. The last few weeks have been a whirl of wrapping gifts, singing carols with excited little people, twinkly lights & festive fun. I have adored every minute of it. However, now that all the presents are delivered and prep is completed I feel a tad blue. This always happens. I needed a rest day before the main event, but as soon as I slow down it hits.
My siblings and friends are having cosy days at home with their families. My Christmas nest is empty. I can’t help but think of what could have been. All traditions I wanted to pass on; opening just one present on Xmas eve, fuzzy red stockings with their names in gold, snuggling with Santa hyped darlings as we read a new festive bed time story. Then the frantic readying of gifts whilst my babies sleep. Santa presents wouldn’t be wrapped in my house; just lain out beautifully in the living room. Ready to be enjoyed the second they wake. There wouldn’t be any Christmas morning rules. Rising before dawn, chocolate for breakfast, all out Christmas chaos would be just fine. There’s an unsung seasonal opera in my head.
I know I’m very lucky. Tomorrow I will be with family. Exchanging gifts and clinking glasses. I’ll watch my nephew tear open his gifts and be loaded with big loving squeezes. I’m safe, warm & loved. That is a lot to be grateful for. There’s still hint of sorrow for the dreams that didn’t come to pass.
I know I’m not alone in being touched by sadness at this time of year. If you’re struggling this year, I’m sending love. If joy is out reach I hope you can find some peace.
Today would be your 23rd birthday. I can’t imagine that I would be top of your party list. Mothers tend to cramp one’s style. Still, I think about how you would celebrate.
Would you feel too old for cake with candles? I wonder if a family dinner would be on the agenda. I picture your Gran fussing over you. Your Aunts & Uncles buying you drinks & taking the piss. I see you surrendered to your little cousin’s nonsense entreaties. It’s all perfect. Of course I know life wouldn’t always be that way, but this is what I hoped to give you.
Recently I’ve been wondering what would come next. When I kissed you goodbye, where would you be headed off to? I was self sufficient by 23. I graduated that year, I was living alone in a flat I hated & working a crappy job to get by. My mental health was a mess & adulting was a learning curve. It wasn’t all bad. I was young & answerable only to myself. I had good friends and we made the most of our youth. I partied as many nights a week as I could afford. I felt such satisfaction; paying the bills, managing a home. Living life on my terms. Always, though, you were missing.
I thought of how my life would be with you then as much as I do now. The younger years were easier to imagine. I don’t know what decisions you would have made. I’d have wanted you to go to University. I’m sure I’d be happy to still have you at home. Perhaps you’d have a partner. You could be just like me. A new graduate balancing a job & the clubs. Or maybe you’d have taken an entirely different route. I’d support anything that made you happy. I’d be proud of the man you would be becoming.
I only write today, but you’re in my thoughts every day. I’d have done whatever it took to give you everything you needed.
We’re all familiar with the reminder letters and campaigns urging us not to miss our cervical smear test. We are rightly told how important they are in detecting cancers early. I’m glad these tests are available. I am also happy that we are educated on why these tests are so necessary. However, I find myself increasingly frustrated with the messaging.
So often when a person or organisation wants to encourage people to attend cervical screenings they focus on how easy it is. We’re told it is silly to be embarrassed and it will be over in a flash. Don’t risk your life over 5 mins of feeling awkward is repeated. Smear tests are confidently declared to be not painful. Just a little discomfort, nothing to worry about. While that might be true for lots, it is not full the picture. The patronising assumption that people miss smear tests because they’re self-conscious is harmful. Many people have valid reasons for their reticence. Addressing those issues would be a more effective way of increasing uptake numbers.
Research from Jo’s Cervical Cancer Trust and Rape crisis revealed that 72% of women who have experienced sexual violence have skipped or delayed a smear test. When you consider that at least 1 in 5 women have been sexually assaulted you can begin to understand the scale of the issue.
Birth trauma & pregnancy loss also impact a significant portion of those who require smear tests. Gynae exams & cervical screening require being in vulnerable positions that can trigger a trauma response. Recent research is finding that baby loss & birth trauma often results in PTSD. So, it’s easy to see why a smear test would be not a easy exam for those who are affected.
There are also medical conditions/physicalitys that can make a smear test very difficult. Conditions like ,vaginisimus, endometriosis, cervical ectropion and more can make smear tests painful or difficult. Cervical position, vaginal dryness, menopausal changes and FGM can also impact how a smear test feels.
Trans men may find smear tests hard for all obvious reason. Dysphoria, stigma, discrimination and more. I’m sure everyone can understand how having to deal with any or all of those things is a frightening prospect. It can also be difficult to access information; trans men may not be invited for cervical screening, there is confusion about who requires the test etc. Of course this may be combined with any of the other issues on this list.
This is by no means an exhaustive list. I just want to be clear that there are many real reason for a person to avoid cervical screening. That being said, how can we make it easier? Well, there are actually a lot of accommodations you can ask for. I don’t see this talked about enough, so I wanted to share that information.
Before I get into the details, I want to be clear that you do not have to disclose anything you are not ready to discuss. You can ask for accommodations without revealing your trauma.
Before the Test
You can ask you GP to take your name off the automatic reminder list if those letters are distressing.
Ask for the test to be performed by a person of your preferred gender.
If you have an established relationship with a Dr/Nurse you can ask to have them do your smear test.
Make an appointment to talk about the smear test. Discuss anything you need to talk about. Be that how the test is done, why is it done, your fears, worries etc.
Request a double appointment to allow time breaks, extra time.
Plan what you will do after the test. You may not feel up to returning to work or you might not want to be alone.
The Test
Take an emotional support person to the appointment.
Request a chaperone be present for the test.
Ask to talk through the ‘mechanics’ of the test before you start. Have the Dr/Nurse show you the instruments used.
Tell the person performing the test any words or phrases that could be triggering for you. If there are words of comfort that are helpful for you ask them to use those.
Explain how heavy/light a touch you are comfortable. If there are areas you would like them to avoid touching if possible, tell the Dr/Nurse.
Ask to insert the speculum yourself.
If you are concerned about specific trauma/pain response discuss that with the Dr/Nurse. For example tell them this part of the exam is usually painful for me or I might be unable to chat/answer questions.
Agree a plan of action beforehand; what would you like to happen if you are triggered/pain is too much. You can decide on a word or sign to use if you are in distress.
Combatting Pain/Distress
Mindfulness Techniques – Exercises like naming three things you can see, smell, hear can help route you in the now.
Distraction – Play music, make small talk with Dr/Nurse, your support person.
Squared Breathing – This sometimes helps me get through acute pain/the onset of panic. Breath in for 4, hold for 4, breath out for 4, hold for 4. Repeat.
Take a comforting object. Fidget object. Scent that invokes calming feeling. Hold support person’s hand.
Discuss having medication prescribed. Things like benzodiazepines can help with anxiety, allow your body to be less tense. Maybe you need a stronger pain medication to deal with the test/after effects.
Know Your Limits
It is ok to stop at any point. If any part of the process becomes too much, stop. You can reschedule the appointment. It is ok to try as many times as you need. This test is for you. You are not obligated to fit into anyone else’s timeline or expectations.
Smear test are an important part of early cancer detection, but your whole health & well being are equally important. Shaming people or dismissing the reason for their reluctance does not help. If we are to increase the uptake rates we need to acknowledge what is actually preventing people from attending. We also need to facilitate ways to address those concerns.
Today came around very fast this year. It frightens me how much time has past. You’d be older than I was when I carried you now. That feels incomprehensible. All those missed years. A grown man’s worth of memories. I can picture you at every age. Yet, I still call you baby.
We’re trapped together in this restless limbo. I hope it’s easier on your side. I dream of you kicking. Always the same sensation. Never the same place. We’ve travelled my emotional map together. You have been everywhere that ever really mattered. I wish I could give you more than words & dreams. I’m sorry I couldn’t save you.
It’s another gloomy Sunday afternoon. It’s drizzling outside & the day’s main occupation is emptying my over stuffed washing basket. It’s not a terrible day. Just routinely tedious.
It would merely be one more underwhelming day if it weren’t for the lightening crack in my pelvis. The shock that spreads to my back and sinks into my thighs. A monthly reminder. A living memory who’s intensity at times pushes the familiar into trigger territory. What rushes in full colour into my brain? Blood
Blood in my pants
Blood on the floor
Blood on my thighs
Blood in the bath
Blood on surgical gloves
Blood on a hospital chair
A supercut of blood. Staining an array of places I’ve called home, polluting clothing & towels. I can feel the rush of blood in my ears as various medical professionals tell me things I never want to hear. The heat, the rhythmic contractions, the fear rush me from yesteryears.
I know all the tricks. I breathe. I describe my surroundings in detail. I repeat ‘I’m ok’ over & over & over. I pet my cat; hear his purrs, feel his super soft fur. I plant my feet firmly & watch my toes wriggle on solid ground. I’m here. I’m safe. I’m in this room. And I am. For long enough to switch reels.
I’ve clicked over to a different familiar. My heart is pounding & adrenaline crackles. My body gets there a fraction before the idea fully forms. It’s too late to call halt. The only thing that ever stopped the bloody horror is more blood. Controlled, purposeful blood. I can almost smell the metallic rapids.
No matter how many days, weeks, months go by without splitting my skin the connections remain. My broken brain leaps from trauma to maladaptive solution with confidence. I must convince myself all over again that blood isn’t the answer.
Don’t find that box
Don’t open it
Don’t slip a fresh blade on the handle
Don’t find the perfect spot
Don’t drive the scalpel in
Don’t let blood trickle & flow.
I know this trick too. Sheer force of will. I will not. I can not. I do not.
I have not for so long. I’m ‘recovered’. No one told the deep dark core of me. That fucker still yearns for it. Not every day. Maybe even not all that often, but I know it’s there. I know how fast the urge can rise. And, oh, I know how hard it is to continue saying no.
I can’t say with any certainty that these thoughts will ever completely leave. I’m like an alcoholic who remembers the relief of the first hurried gulp. Knowing that carnage follows is enough to stop me raising the glass. I just don’t think it’ll ever kill impulse.
I’m good. My life goes on. Tomorrow could be wonderful. I’m tired, though. It would be nice not to have to fight so hard.
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It recently came to my attention that Joni Mitchell’s masterpiece, Blue is 50 years old. I find it incredible that words written half a century ago still cut right to the heart of me. I discovered Joni when I was around 12 and 28 years later I still love slipping into the blue. This week I have found myself listening to one song in particular on repeat. It’s Baby Loss Awareness week, as I see others share their own losses I find comfort in Little Green.
Little Green is perhaps the most perfect song ever written. I didn’t know precisely what it was about on first listen but I still got it. It still wrapped me in its magical sadness & hope. Green immediately struck me as a beautiful name for a girl. I decided there & then that should I birth a girl, I would indeed call her Green.
I’ve been listening to that song since my teens. Dreaming of the tiny bud who would be my Green. In the passing years I have learned the true meaning of the song, talked to the Green nestled inside me & discovered the reality of loss. Joni was writing about a different, but similar grief. Her words remain entwined with my experiences.
When I dream of a daughter she is a gypsy dancer. All tangled red hair & high spirits. She likes the scent of pine trees & bracing herself against a strong, cold wind. She’s quieter than me, but chatters when excited. I read her everything I loved as a child. Take her to the places that made me feel big things. Her childhood is filled with standing stones & patterned tights & Joan Lingard books & seaside air & empowering women & red liquorice. She is exhausting, exhilarating & exquisite.
When I wake she is a girl in a song. A fantasy my mind summoned; fuelled by 70’s folk poetry and my deepest longing. Listening now is a sweet agony. Pressing my sorest spot because I can’t resist the beauty of it all. The intro wrapping me in the blanket my babies never had. The lyrics bringing the sketches in my head to life.
I’m glad we’re beginning to open up about pregnancy & baby loss. I hope others won’t have to spend so much time alone in their heads with their babies. It helps to talk about losses. To give solidity to those tiny unlived lives. It is such an enormous relief to have the world acknowledge our children.
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It’s been another insane blur of year. The pandemic has given me lots of time & motivation to do big picture thinking. There’s been so much talk of the impact on parents & kids. The decisions to be made about keeping children safe, healthy & happy get trickier in times like this. You’re not here. Neither are your siblings. Being forced to stay home alone for extended periods really rams that fact home. I still think about what I would do. How I would make sure my children would be ok. I don’t think that will ever stop. I’ve thought through how I’d handle every stage of your lives; agonised over choices that are entirely theoretical. I can’t help it. I’m always going to be your Mum on the inside.
This year I will be spending your day doing something joyful. It came about purely by chance. Pandemic rescheduling dropped an activity unexpectedly. It feels strange. It’s not a thing I would have planned, but I think it is good. I’m trying to see it as a celebration of you. Of the tiny amount of time we had & all the wonderful that could have been. I know you would have given me so much to rejoice in.
This month’s insomnia has been sponsored by infertility. My inability to reproduce occupies far to much space in my head & life. A big problem with healing from pregnancy loss is how taboo the topic remains. Things have improved a little, but on the whole I still feel like most people do not want to hear about it. Some have very valid reasons to shy away from those conversations. Others merely feel uncomfortable. Rightly or wrongly that leads me (& others) to feel we must keep it to ourselves.
Obviously I have attempted to combat the silence both in my writing & my life. I know it helps those who have lost & those around us to be more open. My own attempts to get on with it quietly were incredibly harmful to me. Still, there is so much that I have not shared. There are important people in my life that I’ve never spoken about my miscarriages or infertility with. It’s not a secret, but many things have prevented me from feeling able to discuss how I have felt.
Beyond emotion there are so many details that aren’t revealed. Common place aspects of miscarriage that are only ever referred to in hushed tones by those who have been there. There are various behaviours that I kept to myself because I feared they veered towards crazy. I’ve subsequently discovered they’re common rituals. Humans find comfort where they can, it would have been less frightening to know I was normal.
Most of all, the secrets are weighty. I feel laden with the obligation to keep the unmentionables shrouded. I don’t want to feel this way anymore. I definitely don’t want others strapping on this load. I need to let some of it go.
I say some, because, there are people & realities I cannot change. Crashing against solid stone will bring me no comfort. Thus, I want to reveal the parts that I can with this kind & ultimately faceless audience. Hopefully it can help others who feel burdened by conventional decorum. At the very least I may finally feel lighter.
I fear you’ll judge the box I’ve kept for 20 years. Adding items that others have hinted should not have been saved. Very few know it exists, the suggestion that it shouldn’t have has always hurt. I don’t think the positive tests from each pregnancy are gross. I’ve still felt the needed to hide them. Saving hospital bands & paperwork makes sense to me. I don’t understand why wanting to hold onto something (anything) connected to my children is morbid. I’ve been assured it is.
I’m embarrassed of the few new born pieces I dared to purchase. So often I’ve seen childless women with tiny socks stashed in a drawer portrayed as lunatics. Dangerous, even. The type who might steal your baby. I hide the pregnancy, early years & baby names book. They’re packed away with the baby grow I saved from my niece’s early days. I thought one day I could frame pictures of them both as identically clothed babies. Yes, the frame that would have housed those photos remains box fresh alongside. I have no need for this paraphernalia, I just can’t bear to throw them away. I worry this will be viewed as pathetic. Another crazy lady whose biological clock went bang. They were logical purchases when I made them. I was pregnant. When those pregnancies failed I was certain the next one wouldn’t.
I’ve never shared the pictures I took when my stomach started to change shape during my last pregnancy. I wanted to show off that development, but I didn’t think I was allowed. At the time it would have been tempting fate. Afterwards, there is instant unease if the subject is approached.
Then there are the memories that will never leave and are never uttered. Unpleasant shards of the mess no one wants to witness. The exact tone a nurse used when she told me it was for the best because I was so young. Or the ice cold that runs through me everytime I see an examination table with stirrups. The fact that a miscarriage is more than blood and that more must be dealt with. I don’t talk about sitting alone in my bathroom trying to decide what to do with the bloody fragments of the child that will never be. Or the torture of bleeding a little & then having to wait. Clinging to hope through blood tests and scans. Only to be told you’re technically still pregnant, but it’s no longer viable.
Risk of infection, prolonged bleeding, the extent of the pain are all things I only became aware of through experience or via other women in private groups. We’re all so squeamish about the reality of pregnancy loss. I think it’s entwined with the patriarchal disgust of ‘female’ bodily functions. The same whiff of shame hangs over the process. I have felt I must not reveal anything too corporeal. Almost as though declaring the facts of my physical condition is gratuitous. Likewise, I have restrained aspects of emotional responses for the comfort others. It simply isn’t sensible to treat such a traumatic event with polite moderation. The inhibition has damaged me.
The older I get the more I seek clarity. Much of the pressure that society brings to bear obscures my view. I don’t want to submit to it anymore.
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Today would be your 20th birthday. I’ve had the time it would have taken for you to become a man & still the wound is raw. It seems that a certain amount of pain will always be part of being an invisible Mum. I miss you and all your siblings. Even though I never got to make real memories, I hold our phantom family in my imagination.
My life will always be less for your absence, but I’d never forgo the time that I carried you. You will forever be the very best part of me.
Autumn has always been my favourite season. The drawing in of the nights & cooling of the air used to be welcome. These days this time of year is more complicated.
All of my babies were due in August or September. As the weather changes I am beset with anniversaries and reminders. People who were pregnant with me throw birthday parties. I quietly mark dates I had hoped to celebrate.
This year my orbit is congested with pregnancy announcements creating a perfect storm of emotion. All are depressingly familiar. I’m sad and lost. I don’t know how to find a purpose big enough to fill up my life. Each time I begin to believe I’m approaching acceptance I’m overtaken with this stale grief.
It’s so heavy and I’m so tired of dragging it around. I want to be able to move past this, but there are too many ghosts. A million tiny pricks. Triggers lurk everywhere; always something to yearn for. Even in my happiest moments I’m aware of what’s missing.
I can’t comprehend ever making this ok. Yet, I don’t wan’t to be this tragic old bitch. I’d like to stick all my consolation prizes together & collage myself a happy enough ending. I’m scared I’m not sufficiently good/strong/grateful to make do & mend.
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Something in the way she moves... 
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