September is a bumper birthday month around here. My own slips in right at the end, so I am now 44yrs old. How did that happen?
Anyway, I think I’m doing ok for an old bird. On Sunday we had a big lunch with cake, presents and the whole shebang. Obviously I had to smash it with my outfit and I did! Perhaps you’re not supposed to blow your on trumpet, I do not care. I looked gooooood. You’d never guess I’m middle aged.
I’m feeling pretty strange about this whole mid 40’s thing. I don’t know how I got here so fast. I need someone to catch up the ly in my head. She still feels like her twenties were five minutes ago. Except they also feel a lifetime ago too. It’s very confusing in here. Reckoning with mortality and all the things that are behind me is tough. It’s just as well I’m such a hottie; takes the sting out of it.
If you like what I do you can support me here or on Patreon.
The summer holidays are drawing to close in Scotland. Thus, the last few weeks have been filled with nibling adventures. It’s been tricky balancing ebullient days with enough rest, which has caused a few problems. All entirely worth it.
In the biggest and most exciting news, I have a new nibling. My sister had another boy a few weeks ago and he is of course, perfect. Everyone is doing great & my big boy is absolutely loving being a brother. I had my first adventure out with the tiny little man last week. My sis & I plus both boys checked out Beyond Van Gogh. It’s an immersive art exhibit and we loved it. The little man was captivated by all the colour and light. Big boy fascinated by the whole ear thing. I did really enjoy the experience, but I would have liked some smaller rooms for a more immersive feel. I think it would have felt more like stepping into the art in smaller spaces.
I felt like wearing something exuberant to delve into Van Gogh. I plumped for a retro vibe, with this floral dress and petticoat. I always feel very femme & pretty in this shape.
Dress & Petticoat – Lindy Bop
Summer wouldn’t be complete without a trip to the Glasgow Science Centre (GSC). The kids love being able touch and investigate everything. The twins especially enjoyed a big safe space that they can have free run of. Their big sister really took to the floor that explores the human body. Her sprint time & jump height were extraordinary. The naked body & skeletons also garnered some attention. I met my manager from when I worked at the science centre and was surprised to discover he remembered me. In fact colleagues had recently been talking me. Considering it’s been twenty years, I’m a little concerned about what made me stick in their heads. Past idiosyncrasies aside, we had a fabulous day. Special shout out to gift shop, which bucks the trend of insanely expensive price tags. They have a great range of fun & affordable treats.
GSC is always insanely hot. I suppose that’s bound to happen in building made from concrete and glass. To mitigate this I went for my new little vesty dress. Ten out of ten, so comfortable and light. It is definitely going to be a staple.
Dress – Nobody’s Child. Kimono – Simply Be
On the less fun side the heat has been playing havoc with my Pots. There has been so much dizziness and a few fainting disasters. Air hunger has also been a huge problem. I have upped my water intake, doing electrolyte drinks, lots of sitting down, breathing excerises, fans & so on. All to now avail. I’m really hoping symptoms might diminish as the temperature cools. The new problem is Cubital Tunnel Syndrome. It’s caused by compression of a nerve in the elbow and results in numbness, pain and weakness in the hand. My right pinky & ring finger started getting pins & needles a few months ago and it never went away. Half of my hand is now constantly numb and the remaining half is very weak. I don’t have a lot of pain, but not having full use of my dominant hand is a significant challenge. I’ve had my elbow x rayed & it has mild degenerative changes, which may be the source of the problem. Again I’m doing everything I can and so far no improvement. I have excercises, wear a splint at night, changed my arm position when typing. I’m waiting to see physio. This condition can be reversed, but it frustrating to be stuck with another limitation in the mean time. Fingers crossed that physio helps. Spoonie life is kicking my arse.
If you like what I do you can support me here or on Patreon.
Yesterday was one of those ugh days. I had a couple of medical appointments and a few errands to run. I was tired and sore, but it was a sunny day, so off I set.
My mood took the first knock when my taxi driver has a rant about how short my journey was. Granted I wasn’t going far, but I can’t get about on foot. If I want to go somewhere, I need a taxi. Next up was a rude & unhelpful woman in the chemist. She made it very clear that finding my prescription was an inconvenience. Much huffing, puffing and snarky comments ensued, which drew stares from other customers. The final nail in the coffin of my day was the hospital receptionist who would not source a chair for me, but also got angry when I sat on the floor. Sitting on the floor is hazard, but passing out because I cannot stand apparently is not.
Rubbish day, but not the end of the world, right? If these were isolated incidents I would probably just brush them off. The problem is, it happens all the time. Being a disabled person out in the world can be a challenge. Accessibility is a problem, but even requests for basic accommodations can be met with irritation. On some level, I understand that. Work can be exhausting, maybe you’re having a bad day and being asked for something extra could just tip you over. However, most of my life is exhausting. I don’t make these requests to be awkward, I need them.
The result is I get apologetic. I begin my request with ‘I’m sorry, but’ or ‘I don’t want to be pest, but’. I feel like an inconvenience for asking. I anticipate that my accessibility request may not be well received. Listen, inside I often feel like getting arsey. My natural demeanour is not push over. I just know it won’t help. I also rarely have the energy for the fight. Thus, I find myself simultaneously pissed off at being made to feel bothersome & apologising for the perceived trouble.
I don’t need any help on the guilt front. I already feel like a burden to people that matter. Is it too much to ask that strangers don’t make me feel like shit? My needs are very straightforward; a seat mainly. I dread to think how anyone with a more complex requirement fares. All I’d ask is that before you roll your eyes or have a moan consider that this a moment of inconvenience for you is a lifetime of fuckery for us. Maybe you could just zip your lips and grab a chair after all?
If you like what I do you can support me here or on Patreon .
It’s another Bank Holiday weekend. The kids had a few days off school and the weather looked promising. Obviously we had to go on some adventures.
On Friday I hit the Museum of Rural Life with my bestie and niblings. They loved checking out the giant vintage machinery and learning all about the local wildlife. My highlight was the tractor ride and baby cows. The kids seemed to enjoy everything. It was a warm dry day when he set out, so I braved a summery outfit. It did start to rain about ten mins before home time, but we managed not to get too soaked.
Top – Taking Shape Skort – Simply Be Kimono – Simply Be
Saturday was sister & the boy time. We headed to the Riverside Museum. We hadn’t been here for a few years and there have been loads of changes. All positive. The boy loved it. Like me, he was a fan of the old street. I was also happy to discover that the museum had those cool little portable chairs; allowing me to sit whenever I needed to. Two days in a row is a lot for me, so I attempted to put a little pep in my step with an excellent outfit. I think this one was a winner.
Dress – M&S Petticoat – Lindy Bop
I had an amazing time with the little ones, but unfortunately my body rebelled on Sunday. Along with the usual pain & fatigue there was much vomiting. I had a seriously rough night and today I am utterly wiped out. Bronan & I are having rest. Hope your holiday weekend was just as fun with fewer negative repercussions.
If you like what I do you can support me here or on Patreon
It’s been a mixed few weeks. The Easter holidays presented lots of opportunities for auntie time. Unfortunately, my body has seized every opportunity to mess with me.
My first Easter adventure was a trip to The Burrell Collection. I spent a lot of time here as a kid and always enjoyed it. It is so nice to share it with the next generation. The boy absolutely loved all the swords and armour. I loved watching him explore.
The Burrell is really good on the accessibility front. Wide flat spaces that are easy to manoeuvre. Plenty of places to sit throughout, plus light weight stools you can carry around with you. Spacious lifts to all floors. It is a stunning buildings, with exhibits to entertain all ages.
As you know, I’m big into my glasses. I can never have enough. Thus, I was delighted to collab with Firmoo. These blue beauties have been on my face since the moment they arrived.
Glasses – Firmoo *
Next up was a little dip with my bestie & her brood. Swimming is my favourite, not least because I can properly carry on with kids. In the water I can move with ease. It feels so good not to be in pain every second. It’s even better to play a shark, spin the kids, help them ‘swim’. Much fun was had even if my littlest niece was frustrated that she needed to hold on to me. She was determined that she could do it herself and was not convinced when I explained that she couldn’t swim. Swimming with littles requires clothes that can be easily pulled on whilst squeezed into a tiny changing room with a wiggly child. These wide legs were perfect.
Trousers – Pockets and Sedition Cardigan – Monsoon
A few days later I was back with the treesome for the twin’s birthday. I can’t believe they are three already. It’s a cliche, but kids really do grow too fast! I still call these two babies, which is wishful thinking. They are so smart & funny & full of love. It is an honour to be part of their lives. We had a classic children’s party; balloons, cake & pass the parcel. It was a joy.
On the flip side my insomnia is in full force. Tossing & turning for hours every night is torture. I lie there exhausted, but feeling this horrendous unsettled sensation all over. The more I dwell on this physical embodiment of anxiety, the further away sleep gets. Every day feels like wading through mud. Surviving on minuscule amounts of sleep is the absolute worst.
When my body isn’t refusing to sleep, it’s passing out. Pots is kicking my arse. My latest fainting disaster resulted in two small fractures of my hand. The good news is that the bones are fast healing. The bad is that it is my walking stick hand and weight bearing is not easy. I’m feeling overwhelmed about how this is going to impact my mobility. Fingers crossed the predicted 3 weeks healing time is correct.
I might have to wear an ugly splint, but my nails look great.
Thankfully Bronan is always around for snuggles. A purring cat is a great stress reducer.
* Use my code Kerr50 for up to 80% off.
If you like what I do you can support me here or on Patreon.
Yesterday I was doing a little insta scrolling when I came across a really strange post. It’s from Michelle Ogundehin an interior designer who is on that design competition show on BBC. I followed her for pictures of pretty rooms. Thus, I was shocked by this abrupt change in content.
I have a problem with these kind of alarmist statements. Exercise is good for us. Everyone knows that. Encouraging people to try new things, enjoy moving their body, take a nice walk is great. Scaring the bejesus out of folk with you’re going to die, is not. Life is complicated. Not everyone has time, money or the physical ability to partake in the 30mins/5 times a week suggested in this post. The comments were flooded with people pointing this out. Many said the tone was all wrong & the content ableist. Michelle’s replies ranged from patronising to snarky. Then she turned off commenting. As a disabled person who has very few exercise options I tire of this exclusionary narrative. I also believe it is counter productive; fear & shame are not effective long term motivators.
On a wider point I’m throughly sick of how many unqualified people stray into the ‘health & well being’ sphere. Even in my carefully curated timelines I find it hard to escape grifters spewing pseudo science. The scope appears to be continually growing, manifestion, fad diets, alpha males, mlms, alternative cures… the list goes on. All making unsubstantiated claims & usually making buck. Ten minutes on google is all it takes to see that almost all of these people are unqualified. Some may be well meaning, most are shameless charlatans.
Curious as to what inspired this shift in content I took a look at Ogundehin’s substack. Amongst the expected design tips there are a lot of posts about ‘health’. She covers topics I honestly don’t think she is qualified to offer advice on. She does mention that she’s not a medical professional. She also confidently declares things fact that I am not certain stand up to much investigation. Her sources are suspect, her tone is off. She uses phrases like ‘food be thy medicine’ and writes overblown articles on the dangers of gluten. To me, it seems like another person who has realised there is money to be made in the wellness world.
Before I wrote this I did a little research. I wanted to check I wasn’t mistaken about her qualifications. Michelle appears very qualified for roles related to design. She has held impressive positions in editing, journalism and design. However, I can’t find any evidence of training that would make her a go to on food or health. She does mention in her substuck that she has started studying nutrition, but by her own admission is on the first module of what sounds like an introductory course. Health is a serious topic. I’m all for sharing our experiences and what worked for us. However, I truly fear the idea of people making impactful changes in their lives based on the pronouncements of unqualified people.
Please be careful out there. Dig a little a deeper before taking things you find online as fact. That includes me! I research topics before writing about them, but that does not make me an expert. I want readers to check things out for themselves. I always provide resources and caveat my opinions. In the case of anything related to your health, my advice is always consult a Dr.
If you like what I do you can support me here or on Patreon.
I’ve had a whirlwind of flares of late. As soon as one issue eases another gears up. I’ve been chipping away at some projects very slowly. However, when unable to function these are some of the things that have helped me pass the time.
I got a free trial of Apple TV with my new phone whilst having a scroll and decided to give Ted Lasso a try. I knew that it was about an American coming to manage a football team. I thought it was funny. Other than that I was going in blind. Oh my god! What a show, I’m a wreck. It’s the most emotional thing I have watched in a long time. It is laugh out loud funny, but it also has the most heart wrenching moments. I fell in love with almost all of the characters. It managed to be truly hopeful without swimming in cheese. If you haven’t seen it, you must. Bittersweet and beautiful with a little crazy thrown in for good measure.
Talking of Lasso, the soundtrack is goooood. One of the gems I discovered is Strange by Celeste. It’s one of those songs I can feel. Celeste’s voice is haunting. She perfectly captures the weirdness of human relationships. We go from not knowing someone exists, to being the most important person in their life and sometimes, back to strangers again. It’s painful, but also inevitable. We all change, we grow, not always towards each other. It’s not an original thought, but it is uniquely expressed.
Yoko By Maisie Peters was a Tik Tok find. Someone used the music in a video and I was hooked. I love the idea of miscommunication described this way. I think as a woman we’ve also all met those men who loudly proclaim Yoko is to blame for the breakup of The Beatles. They’re usually of a type. I’m never surprised when more casual misogyny spills forth. Anyway, it’s a song about people misunderstanding each other and ultimately one party not making the effort. All encapsulated in the lines,
You know Yoko never broke up that band, You misunderstood The Beatles…
I’m not ashamed to admit I’d like to have written that couplet.
On a completely different bent, we have the H3 Podcast. As usual I am years slow in the uptake, but I have been enjoying it for the last few weeks. I believe it has been a controversial like. I care not. It’s a free form live podcast. Very funny, the team have a genuine camaraderie & I tend agree with most of their takes. There’s loads of nonsense plus coverage of current events. I love that Ethan is willing to admit his mistakes. Of course you know I’m a sucker for a real family man; which he seems to be. Love me some wife guy vibes.
Finally, my latest read was a winner. This Family by Kate Sawyer takes place at a wedding. The family members and their history are slowly introduced as the day unfolds. Sawyer correctly portrays how complicated family relationships can be. All the little betrayals, annoyances & differing opinions between a group of people bound together for life. I really loved it.
If you enjoy what I do you can support me here or on Patreon.
Last week was hectic. I packed in way more than was sensible. So, of course I’m entirely out of spoons now. It was worth it, though. I had some productive meetings and lovely time with people I care about.
First there was the little matter of tests and seeing some consultants. Unfortunately this involved pretty much an entire day in hospital, mostly waiting. Listen, I am very grateful for our NHS, I doubt I’d still be here without it. However, watching the impact of Tory cuts over the last decade is deeply frightening. Sickness, ageing accidents will touch all of our lives. We need a functioning NHS, it is a miraculous institution. Please keep that in mind when you are casting your votes.
Tuesday involved meetings about an exciting opportunity, which I feel good about. I long ago abandoned cosplaying as a suit. I feel fake & uncomfortable in that get up. I don’t present my best self that way. Thus, I turn up as me and I find that gets the best results.
Skirt – Gift
The following day was all Bronan. We went for his bloods & then a had bit of a wild goose chase for his insulin. Fridge malfunctions caused some problems, but we got there in the end. Bronan was very grumpy about his extended time in his carrier, but once home he got thoroughly pampered.
By Thursday it was time for a reward. I put on a pretty dress and had a catch up with my very favourite man. We went to Brutti Compadres. I love it there because the have the best tapas and Rosè sangria. Plus amazing lighting that makes it feel like you’re bathed in sun. It was so nice to forget about the miserable Scottish winter. Even nicer to bask in the company of someone delightful.
Dress – Forever 21 Shrug – H&M Tights – Snag
I finished the week in the best way possible; surrounded by niblings. I spent the day playing with Batman and baby bunnies, looking up cheeky animals on my phone and finding out about the latest happenings at school. I also had a good gab with their Mamma. Friday done right.
Trousers – Glamour @ Asos Cardigan – Handmade
If you like what I do you can support me here or on Patreon.
The close of 2023 is fast approaching. Like many people, year end has me in a reflective mood. I’ve read a couple of year in reviews, both personal & global. I even had a look at my own from last year. All of which left me less than cheery.
I realised it has been a year of horror for the world. A year of underwhelming achievement for me. Neither elevates my mood. Given just how brutal & cruel events have been my own struggles pale. I still can’t quite shake the societal pressure to produce.
My health has been a shit show this year. That has greatly impacted my professional output. It has in fact resulted in subpar scores across the board. My house is a mess, my social life is decimated & my very ability to stay upright has been comprised. I don’t feel like a ‘productive member of society’. I’ve had to lean on friends & family more than I like and my ‘23 goals mostly remain unattained. I haven’t been able to attend protests or pull my weight on issues that desperately matter. There hasn’t been much to feel proud of.
I’m sure I am not alone in this feeling. It’s a tough time for many people. Maybe it is ok if we’re just getting by. Worth is not measured in such narrow parameters. Not giving up has value. Engaging and caring about the world matters. It can be difficult to really believe that when bombarded by hustle culture.
I get it. Intellectually I know that human merit isn’t about hours worked or pounds made. There is though, a part of me that feels inadequate when I can’t work. I feel ashamed of the overflowing washing basket and unwashed dishes. These feelings aren’t doing me or anyone else any good. I didn’t choose to be chronically ill and I am trying my best.
All of this to say, if you’re toting up your year and feel the total wanting; think again. You got up every day and did what you could. You’ve made a difference in lots of ways that you might not even realise. Small kindnesses, commiserations & making friends laugh. Perhaps even a smile you gave to a stranger in the street. People love you. You are appreciated. You made it through whatever struggles weighed you down. I did too. Maybe that is enough.
If you enjoy my content you can support me here or on Patreon.
The government has launched yet another useless campaign. This time they claim the aim is empowering & dispelling myths about disabled people.
In my opinion Ask Don’t Assume is a big fail. I don’t seem to be alone in that opinion. Many disabled people agree that encouraging the public at large to ask us whatever questions into pop their heads is a terrible idea. The government claim to have done extensive research. According to Minister for Disabled People, Health & Work, Tom Pursglove that ‘extensive research was with 500+ people with lived experience of disability. To be honest I’m surprised they found 500 people who thought this was a good campaign. However, with 6.3 million people currently entitled to disability benefits*, consulting 500 does not qualify as extensive.
One of the problems I encounter as a disabled/chronically ill person is maintaining boundaries. So many strangers don’t think twice of asking personal & invasive questions. Almost every time I leave the house someone will ask ‘what’s wrong with you’. In recent years Tory policies regarding disability benefits have led to more people holding hostile views. Disabled people are often viewed with suspicion, which leads to strangers demanding information from me. People who know nothing about me or my circumstances feel entitled to my private medical information just incase I am somehow ‘scrounging’ benefits. A government campaign with the tagline, Ask Don’t Assume, legitimatises this behaviour.
Further, a lot of the campaign materials include toxic positivity/inspiration porn content. I watched a video with a woman describing her disability as a strength and as something that ‘can give back’. Everyone is of course able to decide what disability means to them, but none of this resonates with me. My disabilities make my life much harder. There are lots of thing I simply can not do. Even the most mundane of daily tasks are negatively impacted by my conditions. That doesn’t feel like a strength to me. I also cannot comprehend how a disability ‘gives back’. Do my defective knees perform acts of service? Or is my daily fainting somehow contributing to a greater good? If so, I haven’t seen the evidence or benefit.
I do not believe that this narrative is advantageous to the disabled community. Our value is not tied up in how well we overcome our disabilities. Disabled & sick people require accommodations. There will always be things we cannot do without assistance or at all. Our bodies do not function like the average person. There is no amount of determination or strength that can change that. The onus should not be on us to make abled bodied people feel comfortable with that. Disabled people should not have to be grateful, inspirational or make themselves ill trying to prove their worth.
There have also been calls for our government to address their obvious failings with regards to disability rights. The Tories have spent over a decade attacking disabled people. Their continued battle to deprive people of vital benefits has done untold harm. Purposely making it incredibly difficult for those with mental illness to qualify for support is intolerable. Their persistent refusal to acknowledge UN reports on the circumstances of disabled people in the UK. Along with long-standing inequalities such as disabled people being unable to live with a partner or marry without losing disability benefits. There are many urgent issues this government could address if they truly wanted to empower disabled people. This is very poorly executed lip service.
If someone wants to share about themselves, they will do so. If a person requires your assistance, they will request it. There are very few instances in which is imperative to know the details of someone’s disability. The exceptions, health & safety in the workplace, safely accessing facilities and so on can all be handled discretely & professionally. There is never a reason to intrude on a disabled person’s privacy. This campaign does the opposite of its stated objectives. Considering it is a Conservative initiative, no one is surprised.
* UK Disability Statistics Feb 2023.
If you like what I do you can support me here or on Patreon.
Something in the way she moves... 
You must be logged in to post a comment.