Watching the wheels go round & round…

I’m almost a year into lockdown. There were a few fun outings last year, but for the most part I’ve been home. Man alive, I’m fed up! I’ve reached the take comfort wherever you find it stage. Turns out that’s some random locations.

Old crime shows. Not flashy American ones. They’re too full of hero talk & ridiculously good looking people. They offer no comfort. What I like is late 90’s gritty UK stuff. Proper dark crimes with complicated twisted characters and very few happy endings. It probably speaks to my craziness that these are the tales I seek solace in, but hey ho.

Posters for waking the dead, wire in the blood and cracker

Tic Tacs. I’ve no idea why. A pack of cherry cola ones came free with something I ordered and now I am hooked. I’m not usually big sweetie eater, but sucking on these seems to really help my concentration. Is this some kind of regression to infantile soothing? Who knows. They’re damn tasty, so I’ll carry on.

Candles with fresh outdoorsy scents. Perhaps because I never go anywhere & I miss the world. Probably also because my cat won’t stop farting. Either way I’m obsessed with anything with a whiff of the sea or a refreshing mountain breeze.

White roses in a vase, candles, photo frames on decorative table

Lists. If it isn’t on my to do list I will definitely forget all about it. Lockdown has made this habit rather more frenzied. Every minute activity must be noted & crossed off. I think it might be a reaction to living such a restricted life. I suspect breathing will be included very soon.

Fleecy bed sheets. I’m obsessed. Bought one set on a whim and now want nothing else on my bed. They’re so unbelievably soft and warm. I’ve purchased another complete set and loads of fitted sheets. This way I can have some fleecy goodness with ever duvet set. It’s the closet thing I can get to a snuggle mid pandemic.

Grey fleecy bedsheets

John Oliver. The man is a marvel; smart, funny & genuinely decent. I’ve been rewatching old episodes of Last Week Tonight and finding interviews on YouTube. It boosts my sense of well being to know good people exist in the world. If they can make me laugh out loud all the better.

John Oliver laughing

The hurting time…

Chronic illness becomes a way of life. You don’t stop feeling bad, but you do get used to it. Humans adapt. Pain becomes the new normal.

Most days spoonies deal with symptoms that would send healthy folk to the Dr. On bad days many would be considering 999. Chronic peeps, however, muddle through. Sometimes flare ups floor me. There are days when brushing my teeth is an epic feat. Others I function to varying degrees. I work & play & everything in between. Always, though, I hurt.

I pay the price if I over do it. I carefully plan routes & venues around how many steps will be required, if there is seating, stairs & so on. I pre check menus for items that won’t make me sick. Plan meals around when meds need to be taken. I do everything tired. It’s so hard to sleep & even when I do crash I wake feeling little difference.

Selfie of women’s sad face.

I found a way to work around my illness. Squeeze pleasure out of any socialising I can manage. I have become accustomed to cancelling things I really wanted to do. The list of things my body is no longer capable of grows. It’s ridiculous how sad felt upon realising I won’t jump on trampoline or turn a cartwheel again. Especially when I don’t even have much desire to do either. It’s just another limit. Another no.

I persevere. I follow Drs orders. I try all manner of suggested remedies. Acupuncture, cbd, floatation tanks, tens, yoga, the works. Some treatments help. There are medications that work wonders. Others that I need, but that cause problems. I take drugs to counteract the side effects of other drugs. It’s exhausting, but it’s my life.

Hand holding 5 pills of various shapes & colours

It is not all bad. I have privileges that many do not. My home is warm & safe. I have access to excellent care. I am gifted with skills & talents that allow me to pursue work I love. I have safety nets. I had years of being fit & well. I went to uni, got stuck into the partying & had the chance to travel a little. I’m loved. Pleasures great & small find me. My cat is the cutest. Life could be worse. I can handle this.

Cute black and white lying on back fluffy belly exposed

Except when I really, really can’t. There are days when chronic life overwhelms me. Days like today, when every inch of me is sore. Keeping a brave face when you’re throwing up for fifth time in as many hours is a challenge. Every day my first sensation is agony. Aching joints. Throbbing head. Burning skin. Churning stomach. Each little movement hurts. Remaining sedentary isn’t an option either. My arthritic parts seize up. Leading to, yup, more pain.

Food refuses to stay in my stomach. Don’t eat & the acid bubbles up my throat. Attempt to line my raw stomach and the vomiting makes everything worse. I can’t concentrate enough to distract myself. Sleep is illusive. There’s no escape.

Burdening others with my misery triggers my guilt. Keeping it all in is horribly lonely. Pain relief doesn’t work. Positive thinking is way out of reach. Some days are hard. It is too hard be grateful. Impossible to hang onto hope of easier times. Today I’m just thoroughly sick & tired of always being sick & tired.

Plus size women in green leopard print maxi dress  with walking stick