The smallest man who ever lived…

I’m feeling like I shouldn’t have titled my last post Crazy Little World since it just got a whole lot crazier. The US election results hit me hard. I really struggle to reconcile the fact that so many people actively support that dangerous, hateful man.

I feel scared for the world. I am terrified for the many real people who will be hurt by another Trump presidency. The trend of politics sliding to right horrifies me. I don’t understand why people are so easily conned into hating groups who have done them no harm.

I despair at the inadequacy of our own government. Keir Starmer’s refusal to take action to protect Palestinians, but eagerness to congratulate Trump is cowardly. Under his leadership Labour have become unrecognisable. Their failure to protect the vulnerable in our society is unforgivable. I fear that inaction will lead to a loss at the next general election and throw us back under Tory rule. So far Labour have not done much to offer me hope.

It’s a frightening landscape that I want to improve. The scale of our situation feels overwhelming. Just telling people to vote feels far from sufficient. The truth is I don’t have the answers, I don’t know who does. The best I can do is stay engaged; I will continue to vote at every level, I will protest, sign petitions, get my hands dirty where possible. Right now I feel like supporting organisations who can help those in jeopardy is paramount.

Reproductive rights are under threat. People are dying because they cannot access the medical care they require during pregnancy. Extremist groups based in the US are trying to make inroads into other countries. If you want to keep access to abortion legal/decriminalise it and help people get pregnant people the care they need you can support one of these organisations.

The National Network of Abortion Funds

BPAS

Abortion Rights Scotland

The situation in Palestine continues to grow worse. Israeli aggression remains unrestrained. Cities have been destroyed. People are fighting warfare, starvation & disease to stay alive. A genocide is taking place, if you can please support one of these fundraisers.

Get Haitham’s family to safety.

Hands for Humanity

Medical Aid for Palestine

Although the UK is a relatively rich country, people will suffer this winter. Shelter, food and heat will be a scarcity for many. Please consider giving your support to one of these organisations.

Shelter Scotland

Trussel Trust

Refuweegee

Reading, listening, watching…

After a hopeful beginning we have been plunged back into bitter winter. I for one am not enjoying the snow. It is freezing and has made quite the dent in my galavanting plans. In the absence of exciting carry on I thought I would share what has been entertaining me through the cold dark nights.

I just finished The Keeper by Graham Norton, which was surprising. I actually bought it and read the first chapter on a bus years ago. I then put it in my handbag, put the handbag in one of my wardrobes and promptly forgot where the book was residing. Last week I stumbled across it whilst looking for something else and dived in. It’s an intriguing tale that kept me gripped. Norton has deft style that is very engaging. The perfect bus/bath read.

In my typically late to the party fashion I have only this month watched Misommer. It’s the kind of film that freaks me out, hence the delay. In the end it was nowhere near as horrifying as I feared. It is bizarre and disturbing, but overall I could handle it. That last scene nearly had me, though.

More amusing, but still disturbing was Ian Hislop & Jon Stewart’s conversation on the latter’s podcast. If you know me at all you are aware that I adore Hislop. As much as enjoy the sparkling wit and insight. It is always unnerving to examine the state of our world through such an expert lens.

I also found a very cool taping of Bernie Sanders and Frankie Boyle discussing the essentials of the moment. It‘s refreshing to hear an American politician talking in leftist terms. It’s available on YouTube(How to Academ) and I think you would enjoy it.

I was on a horror kick this month when I came across Bodies, Bodies, Bodies. Nothing groundbreaking, but a thoroughly enjoyable way to spend 90 minutes. With a hurricane, a bunch of attractive young folk and a big pinch of toxic suspicion you’ve got yourself a movie.

Finally, I have this very morning started on Alan Bennet’s Pandemic Diaries. Alan Bennett is my literary comfort. His words soothe me no matter the topic. He has this incredible talent of tackling any topic with heart without blurring what’s real. This one will be read way more than once.

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If I had a little a money…

In recent weeks the cost of disability debate seems to be all over the place again. Mainly able bodied folk rudely telling disabled folk what we do & do not need. It is of course offensive and exceptionally annoying to be on the receiving end of this. Debating your reality us never fun. Hence, I thought I’d do a little run down of the day to day expenses that my disabilities incur. I am far from the worst case scenario, so bare that in mind when you’re processing this.

It feels important to make it clear that sick & disabled people are rarely just given the things they require. There is a myth that equipment, money, human support & treatments are just handed out to anyone asking. They absolutely are not. Any help we do receive is procured through humiliating assessments, long waiting lists & much general fuckwittery. At the end of which our requests are often denied. It’s a special kind of torture to lay yourself bare to unfeeling beaurocrats only to be gaslit & told you’re fine. Or, sometimes even more frustrating, It’s accepted that you need help & such help exists, but it is not available to you for ‘reasons’. We are screwed over time & again, left with the option of paying for the thing ourselves or never getting it. When the thing that must be paid for is essential, that’s not really a choice.

So, bearing in mind that many disabled people’s ability to work full time (or at it all) is impacted by their conditions, how do you think your pocket would deal with this.

Travel

I can’t get around much on my own as I can’t walk very far. During Covid public transport has been even less of an option for me. I have to take taxis everywhere. Using last week as an example, this costs:

  • Hospital App – £11.80
  • Visit Bestie – £11.30
  • Vet – £8.60
  • Pick up Bronan’s Prescription- £8.80
  • Post Office – £8.60
  • Work Meeting – £22
  • Weekly Total – £71.10

Pain Relief

Lots of really effective pain relief options are simply not available via the NHS. These are pain management related items I have had to buy.

  • Heat Pads – £5 per 3 pack.
  • Tens Machine – £65
  • Tens Pads – £5 per 10.
  • Long Hot Water Bottle – £20
  • Microwaveable Heat Pouch – £15
  • Dragon Balm – £2.50 a jar.
  • Lidocaine Patches – £60 per 10 pack.
  • Vape – £35
  • Cbd Oil – £15 per 50ml.
  • Freeze Spray – £1
  • Paracetamol – 56p per 12
  • Massage – £70 per 60 mins.
  • Kinesiology Tape – £5.50
  • Yoga Mat – £20
  • Foam Roller – £12

Disability Aids

I believe some local councils will fit disability aids in social housing or if people meet certain criteria. Unfortunately I do not live in social housing nor meet those criteria. Thus, I had had to purchase any device I require.

  • Walking Stick Ferrule – £5
  • Easi Reach – £10.99
  • Easy Open Food Containers – £25
  • Jar Opener – £5.50
  • Easy Veg Chopper – £20
  • Multi Bottle Opener – £5
  • Auto Can Opener – £15
  • Lotion Aplicator – £8
  • Walking Stick Seat – £25
  • Sock/Tights Aid – £8
  • Bra Angel – £17
  • Hook/Zipper Assist – £6
  • Suction Grab Handles – £28
  • Shower Seat – £35
  • Wearable Tens Holder – £20
  • Press on Lights – £10 per 3 pack.

Services

There are jobs that must be done regularly that I am incapable of doing. There is no support for such things, so I must pay people to do them.

  • Grass Cutting – £45
  • Hedge Cutting – £60
  • Weeding & Garden Tidying – £100
  • Wheelie Bin Cleaning – £8
  • Window Cleanimg – £8
  • Bathroom & Kitchen Deep Clean – £175

On top of the costs outlined most disabled people also report spending more on bills. My gas bill tends to be high as I have a greater need & more difficulty keeping warm. My electricity bill soars with the need to charge various essential aids & technology. My food shopping is increased by the need to purchase lots of pre prepared fruit & veg, free from items to accommodate my dodgy stomach, plus the cost of food waste when I am unable to cook/eat. Having everything delivered incurs a cost as does working from home, which both add to my outgoings. In fact, Scope reports that on average disabled people face extra costs of £583 per month. That’s only accounting for necessary day to day living.

Should a disabled person attempt to do anything beyond the basic there will of course also be additional costs. Try going on holiday, trying a new hobby, undertaking to study a new discipline and you will find that there are always extras/different apparatus to enable a disabled person to take part. Almost every aspect life presents a bigger bill.

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Power to the people…

I’m utterly disgusted at the election results. Beyond that I am saddened & scared. English & Welsh working class voters supporting Tories is incomprehensible. To sell out hungry children, homeless & disabled people for Brexit is vile. The future looks terrifyingly bleak. Our NHS is in real danger & the most vulnerable people in our society are likely to persecuted further. I am grateful for the limited protection being in Scotland offers me. It has never been more clear that we need to be free of this rotten union. My heart goes out to all those who fear what the future brings under another Conservative government. More than ever we have to do what we can for those who will be left in need.

Please let me get what I want this time…

I know lots of you have election fatigue. Our political landscape seems desolate. Truth & right & consequences appear to have become blurred. I understand if you are sick of it. I get it if you feel like you can’t make a difference. However, this election is literally life or death for many people. Your vote matters. Please use it.

I’m making a genuine plea for myself and for societal good. I beg you, don’t vote Tory. Brexit is and can only ever be a disaster. The NHS is on its knees, food bank usage has soared, homeless people are dying on our streets, child poverty continues to rise. The most vulnerable members of our society are being crushed by the conservative government. The savaging of our welfare system is purposeful & ideological. It is not possible to opt out of sickness, unemployment or ageing. Even if you vote purely for your own well being, the Tories are not in your corner. You never know when you may need the services & rights they are systematically destroying.

Please don’t vote Tory in white letters in green background

You have to look beyond the headlines & media smears. Corbyn is not an extreme left maniac. He has a fully costed manifesto of common sense labour policies. He wants to create a fairer society for all. He’s fighting for wages you can live on, a roof over everyone’s head & food in our bellies. He wants the incredibly wealthy to pay their share (at a rate that will not make any significant difference to their lives). The labour manifesto will secure our health service. Corbyn is not perfect. Frankly, I have major issues with his views on Scotland, but he is our best bet. He is principled man who has been consistently on the right side of the fight. He is trying to improve life for everyone.

I ask you to approach this election like a bus journey. If there isn’t a direct bus to your exact destination you find the next best option. You get the bus that takes you as close as you can get. A vote for the conservatives will only drive us into a ditch. Liberal Democrats have already shown us what they do with power. We have to be tactical. Vote for Labour or whoever can beat the Tories in your constituency. Only opt for other parties in areas where it can not benefit the conservatives.

We have a chance for real change. Please don’t let it slip away.

Blue skinned beast…

I’ve never been a shrinking violet. If I feel strongly about something, you’ll know it. I’m not scared of being noticed or to look different. All of which makes Fuck the Tories one my favourite brands.

Jewellery box with glittery fuck the tories business card

If you haven’t checked them out yet, hop to it. Not only do they make fabulous radical accessories, they also support great causes. It feels like we are living in some kind of alternate political reality at the moment. I rush from disbelief, to rage, to despair on a daily basis. The ascendence of Boris to PM has only made matters worse. So, the new range of Fuck Boris necklaces are a very glittery outlet for my frustrations.

Red glittery fuck Boris necklace in jewellery box

I know wearing a necklace won’t change anything by itself. It does make me feel a little better to express my disgust and connect with like minded people. I will continue to do everything else in my power to affect change. I hope you will too. Protest, contact your MP, sign the petitions, vote! In the mean time you can enjoy the satisfaction of supporting an amazing small business & voicing your opinionated loud and clear.

There is a crack in everything….

So, here I am apologising for my absence again. I’ve had an iffy few weeks. To begin with there was bad health news, which left me struggling to keep my mood boyant. Then there was a new medication that makes me nauseous 24/7 & vom almost everything I eat. Finally, there is the Trump debacle & that’s hit me even harder than I thought it would. 

For a bleeding heart leftie like me the current political climate is an anathma. I don’t want to write another horrified how did this happen piece, but I don’t feel able to say nothing. I perhaps sounds naive, but I really do believe in governing for the greater good. Sometimes that involves sacrifices & I am happy to make some to ensure the basic well being of everyone. I am utterly disgusted by the rise of the politic of fear & hate. I have watched with growing dismay as we slip further to the right & minds slide closed. I’m tired of hearing about downtrodden people voting against the establishment. There is no excuse for supporting racism, misogyny, homophobia & all manner of vile prejudice. Raising the privileged & corrupt is not only wrong, it’s incredibly stupid. As already witnessed in the UK, those who already have the least lose the most. 

With far right parties gaining popularity across Europe; I fear the worst is yet to come. Marine Le Pen is already talking about creating a new world. That world is not one that I care to live in. For the first time in my life I am scared of the direction society is being pushed. I say that in the full knowledge that I live in a progressive country & hold privileges many don’t. I cannot even begin to imagine the terror others must be feeling. 

So, forgive me if I am lack inspiration & my words are ineloquent. It feels as though decent people have received a damaging blow. I know we must stay in the fight & I intend to keep my fists up.  I hope you will be with me.