mental illness

This week I have been mostly…

~ somethinginthewayshemoves ~ 2 Comments

Been having too many feelings. It’s been a busy old time on the emotional front. There have been a bunch of triggers that I’m not going to go into, but the result has been a pretty messy me. I’ve done what I always do when I don’t think I can trust what I feel; retreat whilst I decode. I’ve spent a lot of time with myself listening to music that either comforts or acts as a conduit for those emotions. Thus I present, all the tunes that I’ve been hitting repeat on.

Teenage Talk by St Vincent is simultaneously sweet & deep. It’s wistful sound is definitely aided by the harpsichord & the fluid tone of St Vincent’s voice. The song pours over you like tequila smoothly warming your insides. The lyrics capture the both the nostalgic way we view the past & the reality of why our youth is so alluring. As the song says, our teenage years were before we made any terrible mistakes, but our golden days are also probably much more mundane than we remember. I like the hope that realisation brings. Simpler isn’t always better.

I first heard Strangers on Graham Norton, which is probably a sign that I am very old, but the nevertheless I instantly loved it. I just really like the sound of Sigrid’s voice, so I suspect I’ll like anything she releases. The changing tempo of this one is very pleasing. The sort of ‘anti romance propaganda’ of the lyrics paired with heartbeat like bass is incredibly appealing. I’m loving it.

I’m mostly loving this next song because if I close my eyes when I listening it transports me to warm blue waters & floating peacefully. After a few listens of Lana Del Rey’s, Get Free the lyrics sunk in & spoke to me. Being ‘crazy’ can feel like being stuck on a ride that you can’t get off. Even in recovery I often need to remind myself that sometimes I can press stop. I like the imagery of stepping out of the black & into the blue. I also very much enjoy sinking into depths of its instrumentation.

You know sometimes you hear a song & it feels like it was written just for you? That’s how I felt when the first time I listened to Lorde’s Liability. In fact, it took me quite a few plays not to cry. In describing her own very different situation she perfectly summed up how I feel about by interactions with other people. Through a combination of mental illness, physical illness & just being a pretty weird person I have learned to feel that I’m difficult to love. The lyrics of this song sum up my internal thought process perfectly. I’m the kind of person who can be exciting & different. My weirdness seems fun, my crazy a little wild, but the novelty always wears off. In the end the whole package is trouble. I’m too hard & my charm wears off. In short,

‘I’m a liability. A little too much for everyone’

For a long time I was completely convinced that summation was 100% correct. Then as I got stronger I began to believe that maybe it wasn’t true at all. Man, that negative voice in my head is strong, though. So, honestly sometimes I still feel like liability is a spot on description. Sometimes I think it’s only half true. Other times I just can’t decide what’s true at all. Regardless, it’s a beautiful song. Soft piano based sections spelling out sadness. Extended phrases that almost make you run out of breath as you rush to complete them; just like the panic you feel when you realise someone is leaving you. It’s a stunningly painful song. That leaves you hurting in all the right ways.

The Guillemots are incredibly underrated. Their songs invariably hit all my spots & I don’t feel amazing now is no exception. From the second the song starts the music & lyrics are expertly entwined. The slowly rising chords are the perfect aural interpretation of the lyrical plea for help. The beautiful honesty of just admitting, I do not feel good is refreshing. The combination of wanting to be left alone, but also really needing someone to take your hand and make it ok is too familiar. The surprisingly hopeful note in such a despondent song is again emulated in the introduction of steel dreams to the orchestration. It lifts the song onto another level & has me hitting that repeat button time & again.

‘Just take my hand & stop the moonlight fading

Just take my hand & lead me up the stairs

Just take my hand & make me feel amazing,

‘Cos I don’t feel amazing now…’

Friday favourites…

~ somethinginthewayshemoves ~ 4 Comments

Wow, it has been a big week. I’ve felt all the feelings & did all the things. I will catch you up on my goings on soonish. In the meantime please content yourself with a variety of my current favourite things. You know the deal, all the wee bits that get me through the good & bad days.

First up is appropriately named First Aid Kit . I am rather in love with their new album Ruins . It has just enough melancholy to nurture my ‘ i just need a small cry’ moments whilst also containing sufficient uplifting ditties. It’s folksy & soothing, but also pleasantly raw in places. It is an added bonus that the band wear the most divine clothes. Their hard hippie aesthetic wets my whistle. In short, three cheers for the Swedish sisters charming my senses.

First aid kit, ruins Album cover

Next is a yummy little treat that pleases my tum. Yes, I take comfort in food, sue me. I have always been a lover of jelly, but obviously not all jelly is vegan friendly & some vegan brands lacked a satisfactory wobble. I am chick who likes some wibble. This winter my cupboards have been packed with Hartley’s 10 cal jelly pots. I first discovered these years ago during an insane starvation diet, but they are utterly delicious. These days I couldn’t care less about the calorie count, but do love their variety of fruity flavours. Everything from classic strawberry & orange to elderflower lemonade and Black Forest gateau. Every single variety is packed full of fruity flavour and not a single non vegan ingredient. They are also exceptionally easy going on the stomach meaning I have something tasty to eat even when mine is at it’s most uncooperative. Yeah!

Vegan jelly

No fav list of mine would be complete without some reading material. My current book just happens to be one of my all time favourite writers, Alan Bennett. I absolutely adore everything he does, but in particular I love his diaries & memoirs. I find his writing as comforting as a cup of mint tea. Even when he tackles heavy subjects he does so with such a light hand that it soothes me to read his words. I love that I can trust his politics, his wit & his decency. He writes about complex, sensitive issues with an honesty & compassion missing from so much of modern life. His most recent collection of prose, Keeping on Keeping on is as enchanting as ever. His daily doings & opinions on the world at large have been getting me through a tricky start to the year. If you need your faith in humanity (& beautiful writing) restored, Bennett is the man for the job.

Cat poking his head over a book

Bronan doesn’t enjoy Alan Bennett as much as I do. He’s a less reading, more ear rubbing kind of cat.

Another small item bringing joy to my life this week is badges. I am a longtime fan of the humble pin badge & am rejoicing in their revival. Not so long ago I had to search for badges that pleased me. Now pins with messages that delight are everywhere I look. There’s nothing better than wearing your heart (& your politics) on your sleeve or in my case chest. I have taken to expressing my mood with a collection of badges each day. They are a darling embellishment to every outfit. Plus, no one can say they haven’t been warned; they tell you what to expect before I even open my mouth.

Feminist badges

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You’re clouding my mind…

~ somethinginthewayshemoves ~ 3 Comments

Nothing bad happened this week. No extra stressful event. No triggering sights or scents. In fact, it was quite nice. Easy weekend with my man. Luxuriously relaxing day with my sister. Words were flowing. I had nothing more taxing than baby shopping & light housework scheduled. All should have been well, but no one told my brain.

At some point on Monday night my head switched from calm to high alert. Try as I might I can not decipher why. I was one minute thinking about what colours to paint my nails & the next desperately trying to pinpoint my panic. It happens that fast. Like a storm cloud darkening the sky, my mood stiffens. Suddenly my only thought is why do I feel like something very, very bad is about to happen? All I can do is run through every aspect of my life & weigh up how likely disaster is. It doesn’t matter that my checks come up empty. That only makes the anxiety worse. Even If I can’t locate a likely impending crisis, I still feel on the verge of one. The disparity between my thought & feeling drives me crazy.

My body betrays me. It takes its queues from my beleaguered brain. Thus every gust of wind or car in the street sends my heart racing. I can’t relax. I can’t sit still. I can’t get anything done either. My head is too busy with the millions of terrible possibilities it has to discount. I can’t concentrate properly, so every task takes twice as long as it should. Or just doesn’t get done at all because you know, the post man came & I had to hide in my bedroom. What I was hiding from, I don’t know. I can’t think of a single scenario in which someone knocking on my door could realistically lead to a catastrophe. Nevertheless, I cower.

It’s exhausting and it is maddening. Free floating anxiety. I’m basically just fighting with my own stupid head. There is nothing to fear except fear itself. I think that phrase is supposed to comforting; not for me. Illogical, inexplicable fear itself is a formidable opponent. I’ll be ok. Can someone just please tell my brain.

I don’t know where I stand…

~ somethinginthewayshemoves ~ 10 Comments

About 7 months ago, after years many years of knee pain & a limp that had become almost permanent I had an X-ray that revealed arthritis. After even more pain & increasingly frequent falls my Dr recommend a walking stick. 

I had been experiencing pain in my right knee for years. When I first mentioned it to a Gp he put it down to a small accident I had whilst playing with my niece. I had plenty going on health wise & at the time it wasn’t a constant or severe pain, so I left it at that. The knee got progressively worse & I mentioned it a few times to various gp’s but no one was worried & it got sidelined by more immediately pressing health issues. By the time I really couldn’t ignore it anymore I had been diagnosed with fibromyalgia. The knee pain was attributed to fibro & that was pretty much that. The pain however continued to get worse. It hurt all the time, standing or sitting. It even  woke me in the night. Then came the swelling, then the limp shortly followed by the knee giving way & me falling on my arse more than once. Back to my Gp I went, but only to seek advice on what might help my knee; I believed it was fibro related. Finally, over four years later I was sent for an x-ray, which revealed significant erosion in my knee joint. I didn’t expect to have a condition like arthritis at 37 & I certainly never envisioned myself with a walking stick, but here I am.

Foot & walking stick

There are so many things I could say about the difficulties of getting a diagnosis or even investigations when you have chronic conditions. So often when medical professionals see things like fibro in your notes they will just link everything to that. When you have multiple chronic conditions  multiply the difficulty. Add to that mental health issues, being a woman, being fat, the drs who think everyone with chronic pain is drug seeking & honestly, I’m just exhausted. Yes, it could have been spotted sooner. Yes, I would probably have a better prognosis if it had, but at this stage I’m just too tired to even think about that. There isn’t anything that can done about it anyway. It is what it is. 

Unfortunately what it is is pretty shit. On a number of levels. I hate to admit it, but there’s been a real mental adjustment along with the physical. I find it really hard when people see me with the stick for the first time. I worry that they’re thinking, oh god, she has another thing wrong with her. I worry that they’re embarrassed. I worry that I’m just too much of an inconvenience. 

I hate it, but a walking stick is a blow to the self esteem. I don’t feel particularly sexy as I hobble along, so obviously I question if others will view me differently. Intellectually I know there is no weakness in disability, but emotionally I feel weaker. I feel less useful.

Less fun.

Less appealing. 

All the while I’m telling myself what nonsense that is. That I know better than to indulge in such ableist thinking. Then I think if I, a disabled person am having these thoughts, then others certainly are & that’s not a productive thought process. I’ve already experienced how ignorant the world can be. How many people will still push past me or not offer me a seat. I’ve learned that places who bill themselves as accessible, just aren’t (and my mobility is still so much better than a lot of people’s). The weird thing is, I think the kind folk are almost harder to take. Every time someone offers to let me skip them in a long queue or asks if I need help, I feel utterly exposed. I’m grateful for the seats & the consideration, but I still feel very vulnerable about needing them. I’ve put so much stock in the power of being independent & capable that another level of disability is a struggle to accept. Yet, writing those words feel very indulgent. How dare I ‘woe is me’ when things could be a millions times harder, as I know they are for millions more if people. I know some of this linked to my mental health issues. There are familiar themes here; shame, guilt & a big helping of get over it. I suspect though, that maybe these feelings are pretty common for those dealing with disability. Thoughts & feelings aside, life is just a bit harder. For me & I’m sure for those around me. I’m slower & more limited. I can’t go anywhere without checking a dozen things beforehand. I’m grumpier & less reliable. Spontaneity is out, relentless checking is in. I hurt more. I need more rest & assistance. I find everything exhausting. I sound like an absolute joy to be around, right?


Finally, there is the stress. All of the above is stressful. Everyday tasks, trying to do something fun, the future are stressful. Attempting to manage all the stress, is stressful! 

I realise this is all sounding very negative & I don’t want to be that person, but I do want to talk about it. I’d like there to more of a conversation about chronic illness & disability. I’m sure some of this will get easier. Some of it won’t & I’ll have to adjust. Spoonie life is nothing if not challenging. The opportunity to spill my guts definitely makes it a little bit easier. 

A time for giving…

~ somethinginthewayshemoves ~ 1 Comment

According to Cliff Richards, king of the xmas tune, this is a time for giving. Whilst Cliff is wrong about most things, I think he’s right about this. I love Christmas. I am fortunate enough to have wonderful people to share it with. We always have more than enough food to fill our tums & plenty presents under our tree. If like me, your festive cup runeth over, please consider making a donation to one of these excellent organisations.


Simon Community helps homeless people in Scotland. They provide a number of wonderful services. From teaching life skills to providing accommodation to help people get on their feet, they support homeless people in a multitude of ways. This year they also launched a new initiative to provide both period products & education for people experiencing homelessness. You can help Simon Community by donating your time, money and a number of essentials items. You can find more information here.

Luisa Omielan is my favourite stand up comedian. Her material is not only hilarious, but covers incredibly important issues. She talks about mental illness, body positivity & female empowerment in her hysterical routines. This year she lost her Mum suddenly & horribly to cancer. She has now not only incorporated the difficult topics of palliative care, NHS under funding & death into her routines, but has also started a foundation, in her mum’s name, to raise money to provide comfort items to hospices. My own family was also touched by cancer this year & I became aware of just how important good hospice care is. Until now I was not aware that hospices are charities that do not receive government funding. People at the end of their lives, often suffering, should have access to the best possible care. Luisa is trying to make that happen. Please give whatever you can to Helena’s Hospice Foundation.

Save the Children work around world with children in desperate need. Their mission is to keep children safe and healthy, whether that means battling poverty or exploitation. They fight to create and enforce legal rights for children as well as providing food, clothing and other essentials for those in need. There are too many frightened children in too many places tonight. If you can help give them a better tomorrow, please do.

Tribe is a Scottish animal sanctuary providing a loving home for animals who have been victims of abuse, neglect or who have been saved from slaughter. Their aim is to keep animals safe, but also to encourage compassion for animals not normally considered pets. The sanctuary was founded by John and Morag, animal advocates who wanted to truly live their beliefs. They currently house cats, dogs, cows and chickens. You can get to know their growing family & find out how to donate here.

Please dig as deep as you can and have a very Merry Christmas and a fun filled Hogmanay.

You can’t change the way she feels, but you could put your arms around her…

~ somethinginthewayshemoves ~ 4 Comments

I dreamt about an old friend last night. A friend who is no longer living. It was a lovely dream that I was sad to wake from. As I tried to commit the dream to memory I realised that whilst I thought of her often, I hadn’t spoken out loud about my dear friend in a long time. Too long a time, which is something I need to rectify. I need to talk about her. Tell her story. Share how she changed me. And that is exactly what I am going to do.

Let’s start by saying I met J because we were both ill. I was in my early twenties & struggling to deal with undiagnosed PTSD. I was trying to hold together a life that was increasingly unsatisfying with a self harm habit that was spiralling out control. J was dealing with similarly unhappy circumstances and a self harm problem that becoming, frankly terrifying. We both found some comfort in a community of sick people who didn’t know where else to turn. We were people who couldn’t ask for help or had asked without receiving the sort of assistance the we needed. No one talked about self harm then. Except maybe in the odd film where it was usually portrayed as something a trouble teen might do or a suicide attempt. Even the mental health professionals treated us like shit (sadly, some still so). If our attempts to hide the problem had failed, our families & friends were frightened ( & in some cases cruel). We were dealing with real problems; rape, abusive relationships, miscarriage, escaping from cults, drug dealing parents & a multitude of other big, scary problems. We were of course also living with mental illness. Some of us had a laundry list of labels and others had not a single clue what the fuck was wrong. But there was absolutely something going very wrong for all of us. This is where I met J. Amongst this this group of desperate people I also found a salvation of sorts. These broken people offered each other a kind of support that we couldn’t find anywhere else. We dragged each other through the kind of darkness that most will never understand. And J was kind of our leader.
J was living with pain beyond what would be considered durable. Her mental anguish was compounded by the physical horror she was compelled to inflict upon herself. J was not ok. Every solitary moment of life was a battle hard fought. And, yet, she always had time for us. She had love and support and encouragement for her damaged flock. J lived in a different time zone, but she still called day & night to remind me to keep breathing. She wrote letters and sent care parcels. She compiled lists of all the things that just might offer one us a couple minutes respite from our own fucked up heads. She replied to every ‘ I can’t do this anymore’ with such kind & convincing entreaties to keep trying, that we did. Her words worked because we knew, that she knew. We were all able to help each other because we shared a world that most people didn’t know existed. For me, j was the ultimate inspiration. If she could do this with such grace, I owed it to her and all the others who loved me to at least not give up.

Kelvingrove park

It’s such a cliché, but this goodness expanded beyond our group. She was studying to be a nurse because she wanted to help people. Everyone in her life adored her. J was that person who offered succour, but she wasn’t a martyr or a goody goody. She was fun. Her sense of humour could be wicked. Most of all she was strong. J fought to live. She engaged with mental health services that let her down over and over and over. She was still working and studying at the peak of her illness. She endured the brutality of her self harm and the callousness of those supposed to treat them. She did it all with dignity. Life beat J black and blue. This world committed an almost constant vicious assault on her. She fought back hard. She battled with and blood and heart and care and tears and wonder. She did not win.
J succeeded in taking her own life in a sad and awful way that left no doubt that she meant it. I wish with everything in my being that I could have changed how her story ended. Both the circumstances & the prematurity of her passing, but I don’t blame her. I understand that life was no longer a viable prospect for J. I hate that, but I do not begrudge her some peace. I am still angry at the professionals who failed her and the people who’s actions caused her so much pain. I will never be angry at J. She gave life her very best shot. Her suicide was neither selfish nor weak. It was just the only option she had left. It kills me that someone so beautiful was left with a choice so ugly. I understand it, though. Whilst I know it may be an unpopular opinion I can accept it. I can respect that it was her decision to make.


So, why I am writing this? What am I left with? Actually what remains is so much more positive than I could have ever imagined. Losing J was soul destroying, but life does go on. I go on and so do those other sad people that she cared for. I don’t want to disrespect those wonderful people by not acknowledging that they too saved me. We all helped save each other. In hundreds of big and small ways. After J’s death we continued to care for each other. We laughed and cried and screamed and swore together. We stayed up nights and called ambulances. We sent Xmas cards and made hospital visits.
From that group I maintain friendships with some incredible people. Some of us are entirely recovered, some still walk the tight rope; we are all still alive. We have partners, careers, babies, hobbies & passions. We all do our bit for mental health awareness. Whether that’s through writing, organising, working in the field, donating to MH charities or just supporting loved ones with their difficulties. I will spend the rest of my life doing everything I can to prevent others falling through the cracks. I will fight for everyone to have more choices than J. I know I am not alone. That is her legacy. She lives on through the people she touched. We endured. We succeeded. We survived.
WE LIVE

1 in 4 adult in UK will experience mental illness at some point in their lives. It is incredibly likely that you or someone you love will have to fight this battle. You can help improve the lives of suffering in a number of ways. Please do what you can to make sure more people survive.

Add mental health education to the national curriculum

Donate to Samaritans

Donate to SAMH

You an also make a massive difference by writing to your elected representatives an telling them mental health is major issue for you. Let them know that how they vote on mental health related issues matters to you. You can find your representatives here.
Find my MP
Find my MSP

 

Make it up as we go along…

~ somethinginthewayshemoves ~ 2 Comments

Historically, relationships have been a fairly fraught affair for me. I have found myself involved with various types of difficult men. I never quite managed to align my expectations with theirs. Someone always felt short changed or infuriated or plain hurt. 

I’ve had men who wanted to control or tame me. Guys who loved my weirdness until they realised it was permanent & the novelty wore off. There have been proposals; both accepted & rejected, but I never did make it down the aisle. I’ve fallen hard for those who could not make me a priority & struggled to breathe with those who couldn’t focus on anything else. 

I’ve dumped so many men for so many reasons. The tiniest of infractions & the hugest of betrayals.   I’ve disappointed by being too ill or too strident or too independent or too me. Their lack of strangeness or loyalty or compassion has disappointed me right back. To be honest I had given up on the idea of finding someone & just being happy. I watched everyone I know meet someone & like them & build a life & make it work. 

I thought, maybe, I just wasn’t built that way. All my love songs were heart wrenching. And so very complicated. 

Then I took a chance on a cheeky smile with a social conscience. This time, romance is easy. For once we might be on the same page. After all this time, I met someone I liked & I want to see where it can go.  So far it’s taken me to fun & comfort & excitement & care & trust. Oh & access to a really sweet arse. 

Sure, we bicker. He is full of nonsense. He never picks up his socks. He always wants to debate my veganism. I have tell him to suck my dick way too much, but I feel like we’re on the same team. I don’t feel pressured to be anything other than I am. We’re just taking life as it comes & it feels good. 

A day in the life…

~ somethinginthewayshemoves ~ 3 Comments

This morning I was rudely awakened at about 3am. The ill mannered culprit was pain. This time it was intense & centred in my stomach. So, i got up, took my stomach meds, some painkillers & hoped for relief.

Relief was not to come. I lay in the dark for half an hour waiting for the medication to work it’s magic. My body was having none of it, a wave of nausea washed over me & I knew I was going to be sick. I ‘rushed’ to the bathroom where I proceeded to vomit repeatedly. Each violent wretch sent pain shooting down my back. An hour later I’m sweating, dizzy, sore & unable to get off the bathroom floor.

All the throwing up had triggered some hefty heartburn & reflux, but meds weren’t  an option for fear of kicking off more vomiting. I slowly picked myself off the floor & retreated to the living room. Once situated on the sofa, I turned out the lights & put Joni Mitchell on low.  Over the next several hours,

I tried breathing exercises,

put on my tens, 

paced, 

drank mint tea,

curled into ball,

took more medication, 

vommed more medication 

watched the sun come up

& resigned myself to having a rough day. 

That’s exactly what happened. Today was a riot of pain. My stomach continued to be a nightmare. My back ache progressed into agony. I was intermittently sick throughout the day. Thus I had to cancel appointments. Most of the writing scheduled for today wasn’t even attempted. More housework piled up as I struggled to control my pain & rising panic. An acute flare like is this stressful because I never have any idea how long it might last. I could be in better shape tomorrow or I could be in hospital. I live alone & I work freelance; if I don’t do it, it doesn’t get done. I worry. A lot. I grow concerned about 

staying solvent, 

my professional reputation,

keeping my home presentable,

keeping myself presentable,

how I will keep important appointments,

letting my loved ones down, 

losing control of my mental health, 

Basically, I worry about everything, from the state of my kitchen floor to the state of my relationship. Of course all this stress is detrimental to my health. Especially with regards my to stomach problems, stress is the enemy. Likewise, stress is an anathema to sleep. Lack of sleep makes illness more difficult to cope with, but of course pain & illness also make it harder to sleep. If I can’t manage my anxiety it will spiral into panic attacks & depression. Any decline in my mental health reduces my productivity, my ability to leave the house & my chances at engaging with the world positively. Around & around I go. Symptoms exacerbate symptoms all adding up to an almost permanantly exhausted, scared, sick & sore me. 

And this is my life. This level of illness is not rare. My good days are not pain free. I don’t know when the bad times will hit. I wake up every morning with no idea if I’ll be able to get out of bed. Chronic illness is fucking nightmare. It forces you let people down, to miss huge chunks of your own life & to live that life always walking on broken glass.  

Go gentle…

~ somethinginthewayshemoves ~ 8 Comments

This year World Mental Health Day has intersected with Baby Loss Awareness week resulting in lots of media/online talk about both subjects. Obviously, this presses pretty much all of my buttons as my mental health has historically (& currently) been so interconnected with my losses.

I believe society’s discomfort of miscarriage increases the distress experienced by those who live it. Feeling that I could not talk about my loss certainly compounded the trauma of my first miscarriage. There is a massive crossover between mental illness & baby loss, I believe part of that is how we treat people who have to deal with either issue. I also believe that making really simple changes in attitudes would allieviate so much pain. Miscarriage & infant loss will always be horrific, but if we allow people to openly explore & process those losses long term mental illness can be avoided. Or at the very least recognised & treated. 


Miscarriage  & other types of baby loss affect many people. We can all help make their lives easier by following these straight forward suggestions.

1. Acknowledge the loss.

Many people feel so uncomfortable about this kind of loss that they simply don’t acknowledge it. I know that this often comes from a good place, one might fear upsetting a grieving parent or intruding on their privacy.  I get that, but trust me, the silence is worse. If you know that someone has miscarried a simple ‘I am sorry for your loss’ goes a long way. Having people recognise that you have suffered a loss is massive. Too often those of us who have experienced miscarriage are  left feeling that our child only existed for us. Having people in your life affirm that the life you carried was real & had worth is extremely valuable. 

2. Really listen. 

Asking someone how they are, sending love etc is a good gesture, but if you really want help, listen to their response. When I lost my first baby what I really needed was to talk about it. I desperately needed to express how I felt & what I was struggling with, but never felt it was ok to do so. Burying those emotions compounded my trauma & led to a complete breakdown. If someone needs to talk about their experiences, please let them. 

3. Respect the grief.

When you have a miscarriage you grieve. Your grief is not only for the baby you have lost, but also for the life you have been planning. Grief is a very personal thing, everyone does it in their own way & on their own timetable. Wether that involves a memorial service, commemorating an anniversary, a tattoo or even never speaking of it again, please respect that. Don’t judge or rush.  Be supportive of whatever your grieving friend needs . There are no right or wrong ways to heal, even if you feel uncomfortable with someone’s chosen expression of grief. Just be kind & remember it is not your journey.


4. Don’t hide baby news.

I understand the urge to shield loved ones from pain. Certainly be sensitive, but share & celebrate your baby news. I can guarantee that although it may sometimes be painful I never want to dampen anyone’s joy. Losing a baby is hard, but it does not prevent me from being thrilled for other people. Any tears I have to shed will be done in private & are only my concern. I want all good things for everyone that I love. I absolutely adore the beautiful little people my siblings & have friends have been blessed with. I have never met a person who had suffered a loss who felt any differently. 

There you have it. Four straightforward pieces of advice that may lighten the load of someone who is suffering. All you have to do is swallow your discomfort, listen & be respectful. Surely, that’s not too much to ask? 

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Try to comprehend that which you’ll never comprehend…

~ somethinginthewayshemoves ~ 4 Comments

In the midst of a wonderful weekend at the Edinburgh Fringe I had two really inspiring experiences. Both of which fuelled in me a desire to share some writing that hasn’t seen the light in quite some time. On Sunday I saw Neil Holborn perform his stunning poetry. He is very open about his struggles with mental illness & includes his own experiences in much of his work. The power of his honesty & the emotional response he received to some of his pieces really struck me. He reminded me of the power of sharing the dark reality of mental illness. Later that day I was introduced to a friend of my boyfriend who also talked openly about his past mental health struggles. This led to a discussion of how helpful it is to talk about these issues; how more often than not other people will then share their own experiences of mental illness. We talked a little about how that realisation that mental illness is actually really common relieved so much shame. It reminded me how important it is to talk frankly about my experiences, so that those in the depths of illness can see that they are not alone. Equally important is to reach those who have never been touched by mental health problems. Letting people see that this can happen to anyone, that the pain is intense, debilitating & uncontrollable lifts stigma. I really believe that the way to fight ignorance is information. Not just statistics, but brutal insights into conditions often misunderstood. It is so much harder to dismiss mental illness when you have been confronted with it’s reality. 

With this in mind I decided to review work I produced in my darker days. For those unaware I have battled with PTSD, depression & self harm for most of my adult life. Although my mental health is much improved from the time of this piece, it remains a daily struggle. One is never cured. The best I can do is learn to live with what I cannot change & fight for what makes my life beautiful. I am profoundly grateful to no longer be actively self harming. I am also aware that urges still exist. It takes work to maintain my current life. I make a daily decision to keep fighting & I am far from alone. 

I know these words may be disturbing to some, but I ask you to read them anyway. I share this because I passionately believe that a deeper understanding defeats stigma & grows compassion. 

i had another little crisis

despite a transfusion in late december,

my haemoglobin had again dropped to 6.6

causing doctor’s to get jumpy

&

prompting talk of another transfusion.

this fuelled  a panic in me

i do not like having blood transfusions

i feel incredible guilt.

other people are more deserving of this blood

someone selflessly gave of themselves.

i will waste it

i know it will feel horrendous inside me

i do not want it.

i don’t really have the option of

saying

no

they will call in a psych consult

which could lead down a road

i can’t

even

think about

my first stupid reaction

is

i must cut

whilst the dr’s decide

i will blood let

i know it doesn’t make sense

to most

but

there is method in the madness

my hb is already low

i may as well be hung for sheep as a lamb

i will hate myself less for shedding my own blood

if i lose enough blood

do enough damage

i may feel sated for a while

with this in mind i set to work

after two disappointing nights

of

slicing

&

producing inadequate wounds

i got angry.

on the third day,

the gp called to say they had decided to go with an iron infusion the following week.

i considered myself free

to

paint the town RED

i felt it couldn’t be that bad

if i didn’t need a transfusion

i had still better fit in as much damage

before treatment

&

truthfully

after two pitiful nights

i needed it

so,

feeling enraged with myself

i set to work

i chose a spot on my slightly less scarred right forearm

i cut vertically

downwards

towards my wrist

everytime i reached a depth i could live with

i elongated the cut

&

started to work down into it again

i got into the most dangerous mindset

where

i just can’t resist

a little

bit

more

i ploughed through the layers of my flesh

fascinated

with what lay beneath

i watched three distinct fountains of blood

flow into one

sticky

hot

pool

i pulled the wound apart to make the blood spurt higher

i sawed through

some

tough,unknown inner material

and

thrilled

as the spray soared out

and hit my face

when i was finished

i watched

for

i don’t know how long

long enough to become dazed

i had created a gaping trench

the entire length of my foream

that continuosly filled with blood

and

spilled over, flooding the floor.

i could not stop the blood

nor, could i think straight

i wrapped a towel around my arm

put a huge jumper on top

and

took the bus.

yes,

the bus

to a&e

i trailed blood into reception

& collapsed in the triage room

i was so ashamed

dreaded trying to explain myself

lay in a cubicle

crying

i had done this many times before

but somehow

i couldn’t control my fear or self loathing.

i received 21 stitches

a transfusion

and

was hospitlised again for three days the following week with chest pains & breathing difficulty 

requiring

another

two units

&

suffering from severe pain

i spent those 3 days in & out of a morphine

induced altered reality

Junior dr’s were too scared to take blood from my arms

apparently experience is required

to find a vein in this network of scar tissue

the consultant was overly kind

fellow patients

stared & whispered

i lay there in

shame

pain

fear

all of which added up to

another attempt

to stop.

11 days

and counting……

20/03/2012