Ordinary pain…

I have shared some of my pain management techniques in the past. Recently I’ve been experimenting with some new methods and I thought I would share how I have been getting on.

First is a product I have mentioned before, but have only recently been able to properly try. Lidocaine Patches are hard to come by in the UK. They’re expensive and so can only be prescribed by the NHS for a very limited number of conditions. They’re mainly used inpatient and for short periods. I had been able to try them for an incredibly short period of time a few years ago. I found them helpful, but wasn’t able to get a longer term supply. The surge in my pain levels this year sent me into research overdrive. Time and again I read articles & personal accounts of how amazing lidocaine patches were for arthritis & fibromyalgia. I discussed it with my GP who agreed that they would be a good option for me, but she wasn’t permitted to prescribe them. After much searching I found a way to source the patches and bought them myself. They are not cheap. I had mine sent from Canada, 10 patches were approx £60. For me, they are proving worth it. The patches offer excellent relief for my joints. They don’t eliminate pain altogether, but they do vastly reduce it. Patches can be applied directly to the skin and remain on for 12hrs. They offer pain relief for that entire period (the last few hours you can feel their effect lessening). I have also found the patches ease my more extreme period cramps. My approach is to use the patches on my very worst or most active days. I wish I could afford to apply them everyday, but with head to toe pain, that’s just not possible right now. I’m not happy that NHS treats chronically ill & disabled patients this way. Tying a Dr’s hands & leaving then to prescribe treatment that they know is ineffective is utter bullshit. I am however crazy happy that I can now access the patches. I know that not everyone has the means to buy things like this themselves (I won’t always). There is much to be done in the fight for disability rights. In the meantime I am doing what I can to get by.

I’m late to the simple concept of squared breathing. In all the therapy, meditation, pain management sessions etc I have done it’s strange that I didn’t learn about before. I’ve tried umpteen breathing exercises. All touted as a wonder cure, none ever succeeded in doing anything but annoy me. Imagine my surprise when the simple act of breathing in for four, hold for four, out for four, hold for four and repeat actually worked. Squared breathing doesn’t reduce pain, it reduces the panic I feel when my pain starts climbing out of control. Holding off that panic is game changer. All the tension that comes with freaking out increases pain. The whirring fear severely impacts my ability to make clear decisions. In short, the panic makes a horrible situation worse. Carving myself a little bit of time to think with this exercise actually makes a big difference in those unbearable moments.

Diagram explaining squared breathing

Finally, we have CBD. Not a new or unknown thing. This is another one I tried before, but only recently perfected. In the past I tried cbd gummies & oil. I didn’t have much success with either. I found the huge array of products overwhelming. I couldn’t quite work out what strength & how much I needed to find relief from my symptoms. The gummies had no impact. The oil was a little better, but the taste made me gag (& sometimes throw up). The after taste contaminated my mouth the whole day. Every site I looked at seemed to offer different advice. I became confused and favs up. A couple of months ago I tried some disposable CBD vapes. A very knowledgable member of staff in a local shop helped me. In no time at all I had finally worked out the right strength for me. I have now invested in a refillable vape & stocked up on oil. I’m using 10% organic vision cbd oil with a minty fresh flavour, which is very palatable. It’s helping with headaches, muscle pain & stiffness.

Multi coloured vape pen on wooden background

As always, I want to remind everyone that I am not a medical professional. I am only describing what has worked for me. Please consult your Dr before making changes.

S.O.S

For August my charity of the month donation was a no brainer. Priti Patel’s deranged plans to criminalise asylum seekers entering the UK by crossing the channel has highlighted the amazing work done by the RNLI.

If you aren’t aware of their work. Lifeboats provide a 24hr rescue service for ANYONE who gets in trouble at sea. They also provide lots of excellent sea safety education, flood rescue & international work with people most as risk of drowning. They are voluntary charity organisation who risk their own safety to save others.

Lifeboat at sea with information about priti patels planned legislation

The Tories quest to criminalise rescuing asylum seekers at sea is abhorrent. It also has significant implications for RNLI volunteers who’s policy is to rescue any person in trouble without judgement. The organisations has received harassment from right wing anti immigrant groups. The idea that we should ask questions before saving someone from drowning is repugnant. Lifeboat stations need our support now more than ever. If you can please make a donation here.

If you would like to make a donation & stand a chance of winning a unique piece of art l have a tip for you. The lovely & talented roseylivesonaboat is running a raffle in aid of RNLI. You can win lifeboat themed needle point art. Full detail are in her latest post.

Lifeboat themed mini needle point art
RNLI ‘Tiny Bullshit’ by roseylivesonaboat

Blue skinned beast…

I’ve never been a shrinking violet. If I feel strongly about something, you’ll know it. I’m not scared of being noticed or to look different. All of which makes Fuck the Tories one my favourite brands.

Jewellery box with glittery fuck the tories business card

If you haven’t checked them out yet, hop to it. Not only do they make fabulous radical accessories, they also support great causes. It feels like we are living in some kind of alternate political reality at the moment. I rush from disbelief, to rage, to despair on a daily basis. The ascendence of Boris to PM has only made matters worse. So, the new range of Fuck Boris necklaces are a very glittery outlet for my frustrations.

Red glittery fuck Boris necklace in jewellery box

I know wearing a necklace won’t change anything by itself. It does make me feel a little better to express my disgust and connect with like minded people. I will continue to do everything else in my power to affect change. I hope you will too. Protest, contact your MP, sign the petitions, vote! In the mean time you can enjoy the satisfaction of supporting an amazing small business & voicing your opinionated loud and clear.