Don’t Ask, Don’t Assume…

The government has launched yet another useless campaign. This time they claim the aim is empowering & dispelling myths about disabled people.

In my opinion Ask Don’t Assume is a big fail. I don’t seem to be alone in that opinion. Many disabled people agree that encouraging the public at large to ask us whatever questions into pop their heads is a terrible idea. The government claim to have done extensive research. According to Minister for Disabled People, Health & Work, Tom Pursglove that ‘extensive research was with 500+ people with lived experience of disability. To be honest I’m surprised they found 500 people who thought this was a good campaign. However, with 6.3 million people currently entitled to disability benefits*, consulting 500 does not qualify as extensive.

One of the problems I encounter as a disabled/chronically ill person is maintaining boundaries. So many strangers don’t think twice of asking personal & invasive questions. Almost every time I leave the house someone will ask ‘what’s wrong with you’. In recent years Tory policies regarding disability benefits have led to more people holding hostile views. Disabled people are often viewed with suspicion, which leads to strangers demanding information from me. People who know nothing about me or my circumstances feel entitled to my private medical information just incase I am somehow ‘scrounging’ benefits. A government campaign with the tagline, Ask Don’t Assume, legitimatises this behaviour.

Further, a lot of the campaign materials include toxic positivity/inspiration porn content. I watched a video with a woman describing her disability as a strength and as something that ‘can give back’. Everyone is of course able to decide what disability means to them, but none of this resonates with me. My disabilities make my life much harder. There are lots of thing I simply can not do. Even the most mundane of daily tasks are negatively impacted by my conditions. That doesn’t feel like a strength to me. I also cannot comprehend how a disability ‘gives back’. Do my defective knees perform acts of service? Or is my daily fainting somehow contributing to a greater good? If so, I haven’t seen the evidence or benefit.

I do not believe that this narrative is advantageous to the disabled community. Our value is not tied up in how well we overcome our disabilities. Disabled & sick people require accommodations. There will always be things we cannot do without assistance or at all. Our bodies do not function like the average person. There is no amount of determination or strength that can change that. The onus should not be on us to make abled bodied people feel comfortable with that. Disabled people should not have to be grateful, inspirational or make themselves ill trying to prove their worth.

There have also been calls for our government to address their obvious failings with regards to disability rights. The Tories have spent over a decade attacking disabled people. Their continued battle to deprive people of vital benefits has done untold harm. Purposely making it incredibly difficult for those with mental illness to qualify for support is intolerable. Their persistent refusal to acknowledge UN reports on the circumstances of disabled people in the UK. Along with long-standing inequalities such as disabled people being unable to live with a partner or marry without losing disability benefits. There are many urgent issues this government could address if they truly wanted to empower disabled people. This is very poorly executed lip service.

If someone wants to share about themselves, they will do so. If a person requires your assistance, they will request it. There are very few instances in which is imperative to know the details of someone’s disability. The exceptions, health & safety in the workplace, safely accessing facilities and so on can all be handled discretely & professionally. There is never a reason to intrude on a disabled person’s privacy. This campaign does the opposite of its stated objectives. Considering it is a Conservative initiative, no one is surprised.

* UK Disability Statistics Feb 2023.

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Things I can’t believe I have to say again… Part 2

I’m not sure if everyone got the same extensive instruction on manners, but my parents, grandparents etc were very clear that being polite was important. School further instilled in me the concept that there are things that are rude to comment or enquire upon. I feel like even if no one took the time to teach you social etiquette (for want of a better phrase) as a child, there are more than enough opportunities to pick up the basics as you go through life. It seems as though this is in fact an incorrect assumption on my part because tonnes of folk still have zero clue about what is appropriate.

So, let’s try & clear up another area of life on which you really should not broach. Babies. Specifically, when, if, how someone may have them. Unless someone opens this conversation with you, zip it. Wether or not someone wants to procreate is a private matter. When they might do so is none of your business. Why they haven’t already done so is not a topic that’s up for public consumption. Seriously, don’t ask.

Mainly don’t ask because that is private information & prying into other people’s lives is rude. I’ll say that one more time for anyone in doubt,

IT IS RUDE TO ASK ANYONE INTRUSIVE QUESTIONS.

Further to that don’t ask because this a sensitive subject. Regardless of a person’s circumstances there isn’t really a way to reply that isn’t awkward. People (especially women) who do not want children are sick of being judged & interrogated on that decision. If people do want children & don’t have them, there’s a reason. Trust me, they don’t want to discuss whatever that reason is with a random person. For someone people the topic of having children is so emotionally charged that talking about it can be distressing. It’s not ok to hijack a person’s privacy.

I want to have children. I love little ones, but I don’t want to explain that I’ve had multiple miscarriages. Thus far haven’t been able to get pregnant & stay that way. Hence, I don’t feel able to simply say yes I plan to have kids. Part of me dreads occasions centred around children because as much as I love celebrating little people & the wonderful people who made them, I know someone will ask that question. I’m sure I’m not the only person who feels this way. No matter how inconspicuously I shrug off the question, inside, I want to cry. Do you hear that? Your nosey questions are spoiling otherwise joyous occasions for people. I (we) don’t want your pity, we want you to exercise good manners.

Next time you consider asking someone if they’re broody or winking and saying you’re next.

STOP

No one likes that rude bitch who makes things awkward. Please try not be that person.