ptsd

A central part of your mind’s landscape…

~ somethinginthewayshemoves ~ 2 Comments

Are you respectful? Do you try not to hurt other people’s feelings? How often do you reassure friends that they have done a great job, tell them not to be so hard on themselves? Almost everyone manages these things & more. Most of us know how treat others kindly. We’re all delighted to be our loved one’s cheer leaders. So why do we find it so hard to be in our own corners?

For a long time I thought my negative self talk was a rare thing. I was battling severe mental illness & I assumed the cruel way I addressed myself was justified. I didn’t really speak about that abusive voice in my head outside of therapy. I did CBT, compassionate mind training, EMDR and a variety of other therapy techniques. Regardless, I still talk to myself in a manner that I would not dream of confronting others. Yes, this is part of my mental health problems, but I’m realising it’s also really common.

I am not alone in berating myself. In fact, I think to some degree or another, we all do it. My problem is keeping it under control. I can spiral from ‘that was daft’ to ‘I’m utterly useless’ in a flash. I am aware that haranguing myself in this way is damaging. I know it plays into other aspects of my poor mental health; it lowers my self esteem, leads to second guessing & most dangerously makes me feel like I should punish my incompetence.

Lately, I have noticed a lot of public discussion on this topic. It has become clear that women in particular fall prey to negative self talk. We undermine ourselves. We judge ourselves not good enough. I’m wondering why.

Is it a side effect of our culture? There’s a constant onslaught of just keep grinding messages. Everyone has a side gig. Many women are trying to juggle careers & motherhood. We’re all trying to fulfil multiple roles. All the while being bombarded by media images of perfection. Is this why we fall short in our own estimations?

I’m not superwoman. None of us are. I have learned to cope with lots of aspects of mental & physical illness. This one I cannot seem to conquer. My first thought in the face of almost every problem is ‘this is my fault’. Although not in such polite terms. I can take a part the situation logically and prove that I am not always to blame. Intellectually I can believe that I’m not the cause of every misfortune, but I can’t feel it.

As I’ve said I have received significant psychological intervention. I know all theory behind the skills that are supposed to combat these thoughts. Somehow, I remain immune to the entirety of it. So, I ask you, what do you do when that horrid internal voice pipes up? I’m really asking & I am absolutely open to suggestions.

If you like what I do you can support me here or on Patreon.

The dog days are done…

~ somethinginthewayshemoves ~ 1 Comment

It’s been a rough couple of weeks. Extra illness, extra stress & very little sleep have taken a toll. My mood has taken a nose dive. I’m battling a fairly substantial wave of anxiety & the urge to just hole up at home.

I am fighting, though. One of the things keeping me going is how far I’ve come. These lows will probably always hit, but it helps to know things are not as bad as they once were. On days like this reading my own dark words shine a tiny light through today’s depressive fog.

The blood jet is poetry, ly h Kerr

I’m hoping some sleep & resolving some of the stress inducers will alleviate this bout of blue. In the mean time I’ll be digging deep in my chest of resources to keep myself focused on the light.

Bronan Kerr

Rest assured this boy is always looking after me.

Dear Baby…

~ somethinginthewayshemoves ~ 1 Comment

Dear Baby,

You’re not a baby anymore. Or you wouldn’t be. Today would have been your 18th birthday. I’ve been thinking a lot about all the things you could have been. I’ll never know what your talents are. What you loved & hated will always be a mystery. Our life together will forever be unknown. I’ve watched so many others mark the milestones in their children’s lives & my thoughts invariably turn to you. I’m not sure I’ll ever get over the blanks.

I have dreamt of every minute of your life. Waking from those beautiful fantasies feels like a stab in the heart. Every single time. I hope those dreams are snippets of how our life would have been. I don’t want to think of us as anything other than happy.

So, today you’d be a man. I’m sure you would be wonderful. The kind of person I’d be proud to have raised. I’ll always be proud regardless. Proud that my blood ran in your veins, thankful that your heart beat in me & grateful that we had any time at all.

Big love,

Always,

Mum.

Xx

Most of the time…

~ somethinginthewayshemoves ~ 4 Comments

I haven’t cut myself in a very long time. Realistically speaking, I cannot ever cut myself again. They call this recovery. Apparently, I’m recovered. I just don’t always feel it.

Tonight I looked through my old self harm pictures. Yes, I have pictures. When I was in the thick of it I always took photographs. Firstly because I felt compelled to, it was part of my ritual. Also, because I couldn’t trust myself to judge the severity of my wounds. Those pictures gave me the tiny bit of distance required to see what level of medical intervention I could get away with. Now, they’re a stop gap.

They’re the thing I do when I want to cut so badly it hurts not to. I look at those images of gore & miss it.

I miss the blood. The hot, flowing, staining everything I own blood.

I miss the smell & that crackling sound my skin makes when I slice into scar tissue.

I want the pain. I want the deep, sharp trauma my blade inflicts & the hot throb of infected tissue. I long for the ache of putting a butchered arm into a sleeve.

I know that doesn’t make any sense. I know it’s sick & crazy. It is still true. There’s a reason I yearn for the carnage; it works. Only briefly and, sure, it also fucks up your life, but those moments of respite are everything. Physical pain is nothing compared to the relentless agony that can exist in my head. Most of the time it’s manageable. Most of the time I can make it sleep. Most of the time I’m in control. Control isn’t easy. It is work. Exhausting, consuming labour.

The blade is easier. In the short term it’s beautiful relief. All those horrific feelings pour out with the blood. I can slash through my anguish just as easy I hack through my flesh. That’s why we do it. In case you were wondering. The reason some us do insane things to ourselves is because it’s effective. We hurt ourselves to heal ourselves.

The calm just doesn’t last very long. The sickness comes back. It returns stronger every time. The crazy grows. You need bigger, deeper, scarier cuts to keep it quiet. Then the self harm becomes a crazy of its own. You need it. You find yourself listening to drs who say you’re going to die. And even though you really don’t want to die. It’s hard to care. Now the crazy is trying to destroy you & the cutting is competing to do you in first.

So, I don’t cut anymore. I can’t cut anymore because I cannot control it.

If I want to be in charge,

If I want a chance at living a life I love,

If I don’t want to not hurt everyone who cares about me,

I can’t cut.

Sometimes, though, I desperately want to. The easy way out looks good. The horror movie in my head wants to come to life, but I can’t let it. I don’t cut.

I just look at old pictures

And

Write all the things I can’t bring myself to say out loud.

I don’t cut anymore & most of the time I’m glad.

If you like what I do you can support me on Patreon.

Trigger bang bang…

~ somethinginthewayshemoves ~ 3 Comments

Anyone who spends any time on social media will have become familiar with the term triggered. Over the last few years it has entered the public lexicon. Unfortunately, it’s meaning has been incorrectly implanted in the public consciousness.

Triggered is actually a psychological term usually related to PTSD. A trigger is an external stimuli that produces a very uncomfortable emotional response; most often panic attacks or flashbacks. However, varied symptoms can result from the triggering of a traumatic memory. It absolutely does not mean offended or hurt. I’m sure most people will have come across the correct explanation of the term. I have certainly witnessed many try to explain why using the term as an insult or a vehicle for mockery is not ok. Yet, the misuse continues. It occurred to me that perhaps what is needed is an accurate representation of what happens when a person with PTSD is triggered. Maybe if people understood the reality they wouldn’t throw the word around so carelessly. So, I thought I would share what triggered means to me.

Whenever I have been pregnant I have been unable to wear my regular perfume. I wear the same scent everyday in life, but some weird olfactory sensitivity means during pregnancy it makes me nauseous. Thus, I change it & the scent I wore I during my first pregnancy is a major trigger for me. Triggers can be anything & no one has any control over what might become one. I experienced a million sights, sounds & sensations during that time, most of them hold little power over me. That scent, though, is potent.

Snow patrol, blue sky

Formidable enough to render me a sobbing wreck. Being taken off guard by that scent whilst shopping forced me to run shaking from a book shop to vomit in the street. All the while struggling to breath & bring myself to the present. A nurse who had too liberally applied the fragrance sent me shuddering back 15 years. Leaving me so panicked I crawled behind a chair & hid. I stayed crouched on the floor desperately trying to claw my way out of the worst day of my life. Completely trapped in my own personal horror film until some kind soul got me some diazepam & did me the kindness of handing it over without questions. That heady aroma has caused nightmares so vivid that I’ve woken myself with my own screams. Dreams so painfully real that I’ve had to keep myself awake for days. Sitting in the company of someone wearing that perfume once contaminated me. On returning home I could not rid myself of the smell. Real or imaginary it lingered until I smashed my hand with a marble pestle. So tortured was I by the memories the scent brought to life that I ploughed that pestle into my hand until I broke two fingers. The cracking of bones a welcome jolt back to the here now.

Diazepam 10mg

Triggers are uncontrollable. It is not within the power of a traumatised person to select what reactivates their trauma. Nor can they choose not respond. Our minds shelter dark territories & they’re all one way roads. Once you’ve slipped in, you have to press on through. Being triggered isn’t a foolish over reaction. Nor is it the hurt feelings of the overly sensitive. It is the raw & brutal reality of those who have dealt with the unimaginable. It’s a battle scar on the brain.

I can’t stop anyone from misappropriating a word. Ignorance abounds. The only tool I have to fight with is honesty. The truth is that trivialising a serious symptom of illness hurts. It stifles the conversation & prevents people seeking help. It makes vulnerable people feel weak & ashamed & stupid.

So, no, I’m not triggered by your cheap dig. I’m just tired of the stigma. Very, very tired.

You’re clouding my mind…

~ somethinginthewayshemoves ~ 3 Comments

Nothing bad happened this week. No extra stressful event. No triggering sights or scents. In fact, it was quite nice. Easy weekend with my man. Luxuriously relaxing day with my sister. Words were flowing. I had nothing more taxing than baby shopping & light housework scheduled. All should have been well, but no one told my brain.

At some point on Monday night my head switched from calm to high alert. Try as I might I can not decipher why. I was one minute thinking about what colours to paint my nails & the next desperately trying to pinpoint my panic. It happens that fast. Like a storm cloud darkening the sky, my mood stiffens. Suddenly my only thought is why do I feel like something very, very bad is about to happen? All I can do is run through every aspect of my life & weigh up how likely disaster is. It doesn’t matter that my checks come up empty. That only makes the anxiety worse. Even If I can’t locate a likely impending crisis, I still feel on the verge of one. The disparity between my thought & feeling drives me crazy.

My body betrays me. It takes its queues from my beleaguered brain. Thus every gust of wind or car in the street sends my heart racing. I can’t relax. I can’t sit still. I can’t get anything done either. My head is too busy with the millions of terrible possibilities it has to discount. I can’t concentrate properly, so every task takes twice as long as it should. Or just doesn’t get done at all because you know, the post man came & I had to hide in my bedroom. What I was hiding from, I don’t know. I can’t think of a single scenario in which someone knocking on my door could realistically lead to a catastrophe. Nevertheless, I cower.

It’s exhausting and it is maddening. Free floating anxiety. I’m basically just fighting with my own stupid head. There is nothing to fear except fear itself. I think that phrase is supposed to comforting; not for me. Illogical, inexplicable fear itself is a formidable opponent. I’ll be ok. Can someone just please tell my brain.

You can’t change the way she feels, but you could put your arms around her…

~ somethinginthewayshemoves ~ 4 Comments

I dreamt about an old friend last night. A friend who is no longer living. It was a lovely dream that I was sad to wake from. As I tried to commit the dream to memory I realised that whilst I thought of her often, I hadn’t spoken out loud about my dear friend in a long time. Too long a time, which is something I need to rectify. I need to talk about her. Tell her story. Share how she changed me. And that is exactly what I am going to do.

Let’s start by saying I met J because we were both ill. I was in my early twenties & struggling to deal with undiagnosed PTSD. I was trying to hold together a life that was increasingly unsatisfying with a self harm habit that was spiralling out control. J was dealing with similarly unhappy circumstances and a self harm problem that becoming, frankly terrifying. We both found some comfort in a community of sick people who didn’t know where else to turn. We were people who couldn’t ask for help or had asked without receiving the sort of assistance the we needed. No one talked about self harm then. Except maybe in the odd film where it was usually portrayed as something a trouble teen might do or a suicide attempt. Even the mental health professionals treated us like shit (sadly, some still so). If our attempts to hide the problem had failed, our families & friends were frightened ( & in some cases cruel). We were dealing with real problems; rape, abusive relationships, miscarriage, escaping from cults, drug dealing parents & a multitude of other big, scary problems. We were of course also living with mental illness. Some of us had a laundry list of labels and others had not a single clue what the fuck was wrong. But there was absolutely something going very wrong for all of us. This is where I met J. Amongst this this group of desperate people I also found a salvation of sorts. These broken people offered each other a kind of support that we couldn’t find anywhere else. We dragged each other through the kind of darkness that most will never understand. And J was kind of our leader.
J was living with pain beyond what would be considered durable. Her mental anguish was compounded by the physical horror she was compelled to inflict upon herself. J was not ok. Every solitary moment of life was a battle hard fought. And, yet, she always had time for us. She had love and support and encouragement for her damaged flock. J lived in a different time zone, but she still called day & night to remind me to keep breathing. She wrote letters and sent care parcels. She compiled lists of all the things that just might offer one us a couple minutes respite from our own fucked up heads. She replied to every ‘ I can’t do this anymore’ with such kind & convincing entreaties to keep trying, that we did. Her words worked because we knew, that she knew. We were all able to help each other because we shared a world that most people didn’t know existed. For me, j was the ultimate inspiration. If she could do this with such grace, I owed it to her and all the others who loved me to at least not give up.

Kelvingrove park

It’s such a cliché, but this goodness expanded beyond our group. She was studying to be a nurse because she wanted to help people. Everyone in her life adored her. J was that person who offered succour, but she wasn’t a martyr or a goody goody. She was fun. Her sense of humour could be wicked. Most of all she was strong. J fought to live. She engaged with mental health services that let her down over and over and over. She was still working and studying at the peak of her illness. She endured the brutality of her self harm and the callousness of those supposed to treat them. She did it all with dignity. Life beat J black and blue. This world committed an almost constant vicious assault on her. She fought back hard. She battled with and blood and heart and care and tears and wonder. She did not win.
J succeeded in taking her own life in a sad and awful way that left no doubt that she meant it. I wish with everything in my being that I could have changed how her story ended. Both the circumstances & the prematurity of her passing, but I don’t blame her. I understand that life was no longer a viable prospect for J. I hate that, but I do not begrudge her some peace. I am still angry at the professionals who failed her and the people who’s actions caused her so much pain. I will never be angry at J. She gave life her very best shot. Her suicide was neither selfish nor weak. It was just the only option she had left. It kills me that someone so beautiful was left with a choice so ugly. I understand it, though. Whilst I know it may be an unpopular opinion I can accept it. I can respect that it was her decision to make.


So, why I am writing this? What am I left with? Actually what remains is so much more positive than I could have ever imagined. Losing J was soul destroying, but life does go on. I go on and so do those other sad people that she cared for. I don’t want to disrespect those wonderful people by not acknowledging that they too saved me. We all helped save each other. In hundreds of big and small ways. After J’s death we continued to care for each other. We laughed and cried and screamed and swore together. We stayed up nights and called ambulances. We sent Xmas cards and made hospital visits.
From that group I maintain friendships with some incredible people. Some of us are entirely recovered, some still walk the tight rope; we are all still alive. We have partners, careers, babies, hobbies & passions. We all do our bit for mental health awareness. Whether that’s through writing, organising, working in the field, donating to MH charities or just supporting loved ones with their difficulties. I will spend the rest of my life doing everything I can to prevent others falling through the cracks. I will fight for everyone to have more choices than J. I know I am not alone. That is her legacy. She lives on through the people she touched. We endured. We succeeded. We survived.
WE LIVE

1 in 4 adult in UK will experience mental illness at some point in their lives. It is incredibly likely that you or someone you love will have to fight this battle. You can help improve the lives of suffering in a number of ways. Please do what you can to make sure more people survive.

Add mental health education to the national curriculum

Donate to Samaritans

Donate to SAMH

You an also make a massive difference by writing to your elected representatives an telling them mental health is major issue for you. Let them know that how they vote on mental health related issues matters to you. You can find your representatives here.
Find my MP
Find my MSP

 

But I ask where is the poetry…

~ somethinginthewayshemoves ~ 4 Comments

I’ve had a rough couple weeks. Ill health (myself & others), unavoidable obligations & insomnia rearing  it’s ugly head have led to an incredibly stressed out ly. Alas, the blog has suffered. Normal service will be resumed soon. In the meantime I offer a small poetic interlude. 

I find poetry incredible cathartic. I often attempt to write away my troubles. You’d be surprised how often it helps. 

A day in the life…

~ somethinginthewayshemoves ~ 3 Comments

This morning I was rudely awakened at about 3am. The ill mannered culprit was pain. This time it was intense & centred in my stomach. So, i got up, took my stomach meds, some painkillers & hoped for relief.

Relief was not to come. I lay in the dark for half an hour waiting for the medication to work it’s magic. My body was having none of it, a wave of nausea washed over me & I knew I was going to be sick. I ‘rushed’ to the bathroom where I proceeded to vomit repeatedly. Each violent wretch sent pain shooting down my back. An hour later I’m sweating, dizzy, sore & unable to get off the bathroom floor.

All the throwing up had triggered some hefty heartburn & reflux, but meds weren’t  an option for fear of kicking off more vomiting. I slowly picked myself off the floor & retreated to the living room. Once situated on the sofa, I turned out the lights & put Joni Mitchell on low.  Over the next several hours,

I tried breathing exercises,

put on my tens, 

paced, 

drank mint tea,

curled into ball,

took more medication, 

vommed more medication 

watched the sun come up

& resigned myself to having a rough day. 

That’s exactly what happened. Today was a riot of pain. My stomach continued to be a nightmare. My back ache progressed into agony. I was intermittently sick throughout the day. Thus I had to cancel appointments. Most of the writing scheduled for today wasn’t even attempted. More housework piled up as I struggled to control my pain & rising panic. An acute flare like is this stressful because I never have any idea how long it might last. I could be in better shape tomorrow or I could be in hospital. I live alone & I work freelance; if I don’t do it, it doesn’t get done. I worry. A lot. I grow concerned about 

staying solvent, 

my professional reputation,

keeping my home presentable,

keeping myself presentable,

how I will keep important appointments,

letting my loved ones down, 

losing control of my mental health, 

Basically, I worry about everything, from the state of my kitchen floor to the state of my relationship. Of course all this stress is detrimental to my health. Especially with regards my to stomach problems, stress is the enemy. Likewise, stress is an anathema to sleep. Lack of sleep makes illness more difficult to cope with, but of course pain & illness also make it harder to sleep. If I can’t manage my anxiety it will spiral into panic attacks & depression. Any decline in my mental health reduces my productivity, my ability to leave the house & my chances at engaging with the world positively. Around & around I go. Symptoms exacerbate symptoms all adding up to an almost permanantly exhausted, scared, sick & sore me. 

And this is my life. This level of illness is not rare. My good days are not pain free. I don’t know when the bad times will hit. I wake up every morning with no idea if I’ll be able to get out of bed. Chronic illness is fucking nightmare. It forces you let people down, to miss huge chunks of your own life & to live that life always walking on broken glass.  

Try to comprehend that which you’ll never comprehend…

~ somethinginthewayshemoves ~ 4 Comments

In the midst of a wonderful weekend at the Edinburgh Fringe I had two really inspiring experiences. Both of which fuelled in me a desire to share some writing that hasn’t seen the light in quite some time. On Sunday I saw Neil Holborn perform his stunning poetry. He is very open about his struggles with mental illness & includes his own experiences in much of his work. The power of his honesty & the emotional response he received to some of his pieces really struck me. He reminded me of the power of sharing the dark reality of mental illness. Later that day I was introduced to a friend of my boyfriend who also talked openly about his past mental health struggles. This led to a discussion of how helpful it is to talk about these issues; how more often than not other people will then share their own experiences of mental illness. We talked a little about how that realisation that mental illness is actually really common relieved so much shame. It reminded me how important it is to talk frankly about my experiences, so that those in the depths of illness can see that they are not alone. Equally important is to reach those who have never been touched by mental health problems. Letting people see that this can happen to anyone, that the pain is intense, debilitating & uncontrollable lifts stigma. I really believe that the way to fight ignorance is information. Not just statistics, but brutal insights into conditions often misunderstood. It is so much harder to dismiss mental illness when you have been confronted with it’s reality. 

With this in mind I decided to review work I produced in my darker days. For those unaware I have battled with PTSD, depression & self harm for most of my adult life. Although my mental health is much improved from the time of this piece, it remains a daily struggle. One is never cured. The best I can do is learn to live with what I cannot change & fight for what makes my life beautiful. I am profoundly grateful to no longer be actively self harming. I am also aware that urges still exist. It takes work to maintain my current life. I make a daily decision to keep fighting & I am far from alone. 

I know these words may be disturbing to some, but I ask you to read them anyway. I share this because I passionately believe that a deeper understanding defeats stigma & grows compassion. 

i had another little crisis

despite a transfusion in late december,

my haemoglobin had again dropped to 6.6

causing doctor’s to get jumpy

&

prompting talk of another transfusion.

this fuelled  a panic in me

i do not like having blood transfusions

i feel incredible guilt.

other people are more deserving of this blood

someone selflessly gave of themselves.

i will waste it

i know it will feel horrendous inside me

i do not want it.

i don’t really have the option of

saying

no

they will call in a psych consult

which could lead down a road

i can’t

even

think about

my first stupid reaction

is

i must cut

whilst the dr’s decide

i will blood let

i know it doesn’t make sense

to most

but

there is method in the madness

my hb is already low

i may as well be hung for sheep as a lamb

i will hate myself less for shedding my own blood

if i lose enough blood

do enough damage

i may feel sated for a while

with this in mind i set to work

after two disappointing nights

of

slicing

&

producing inadequate wounds

i got angry.

on the third day,

the gp called to say they had decided to go with an iron infusion the following week.

i considered myself free

to

paint the town RED

i felt it couldn’t be that bad

if i didn’t need a transfusion

i had still better fit in as much damage

before treatment

&

truthfully

after two pitiful nights

i needed it

so,

feeling enraged with myself

i set to work

i chose a spot on my slightly less scarred right forearm

i cut vertically

downwards

towards my wrist

everytime i reached a depth i could live with

i elongated the cut

&

started to work down into it again

i got into the most dangerous mindset

where

i just can’t resist

a little

bit

more

i ploughed through the layers of my flesh

fascinated

with what lay beneath

i watched three distinct fountains of blood

flow into one

sticky

hot

pool

i pulled the wound apart to make the blood spurt higher

i sawed through

some

tough,unknown inner material

and

thrilled

as the spray soared out

and hit my face

when i was finished

i watched

for

i don’t know how long

long enough to become dazed

i had created a gaping trench

the entire length of my foream

that continuosly filled with blood

and

spilled over, flooding the floor.

i could not stop the blood

nor, could i think straight

i wrapped a towel around my arm

put a huge jumper on top

and

took the bus.

yes,

the bus

to a&e

i trailed blood into reception

& collapsed in the triage room

i was so ashamed

dreaded trying to explain myself

lay in a cubicle

crying

i had done this many times before

but somehow

i couldn’t control my fear or self loathing.

i received 21 stitches

a transfusion

and

was hospitlised again for three days the following week with chest pains & breathing difficulty 

requiring

another

two units

&

suffering from severe pain

i spent those 3 days in & out of a morphine

induced altered reality

Junior dr’s were too scared to take blood from my arms

apparently experience is required

to find a vein in this network of scar tissue

the consultant was overly kind

fellow patients

stared & whispered

i lay there in

shame

pain

fear

all of which added up to

another attempt

to stop.

11 days

and counting……

20/03/2012