Lifestyle

There’s gold in them hills…

~ somethinginthewayshemoves

I’m having a rough time. Everything is a bit of a struggle at the moment, so I’m going to do a wanky, hippie dippy post. Feel free to clock out because I’m about to deep dive into gratitude.

All the Basics

I have a safe, stable home. Food in the cupboards. Running water, central heating. Access to healthcare. A comfortable bed & wardrobe full of clothes. My basic necessities are taken care of and that’s more than a lot of people can say.

FaceTime

And WhatsApp, messenger, zoom & all the other clever doo dahs that allow me to keep in touch with folk. A friendly face or some carry on helps brighten my day.

Pillow Slides

Bought on a whim. Incredibly ugly, but oh so kind to my joints.

Aloe Vera

Aloe Vera is a genius plant. First & foremost it’s hard to kill. If you don’t have plant mum skills aloe is for you. It looks good, it adds oxygen to your room & it’s even easy to grow more from cuttings etc. Added bonus, our bodies love aloe. Need a moisturise, got sunburn, heat rash, a blister? Cut open a leaf and whap it straight on. Upset tummy, mouth ulcers, bad breath, ibs? Add a teaspoon to a glass of water. Wonder plant*

Temporary Solutions

I have a lot of issues with no permanent cure. Hence I have grown to appreciate a temporary solution. Diazepam is certainly not for long term use, but it bloody works for a day or two when your brain thinks the world is attacking you. Jane Austen will not fix my life, but she will soothe things for an hour or two. Whilst mint tea can’t cure my stomach disease, it can soothe the spasms attempting to eat lunch caused. They will return, but the minty goodness will buy me enough time to get home. Temporary solutions are various & abundant. Hugs, hot baths, sex, lidocaine patches, a big glass of wine… Moments of respite are better than none at all.

The Sea

Everything about the sea is soothing. The never ending expanse of it, the smell, the sound of the waves lapping. I always feel calmer by the shore. I can breathe deeper and see more clearly. Pretty lucky that I live on an island. The dazzling deep blue is never too far away.

My Cats

Bronan

My lovely big loyal boy. He was always gentle. My own living hot water bottle. An adorable wee tyrant who had me wrapped around his paw. He always knew when I was really struggling and did his best to offer comfort. I still miss him every day.

Bru

I cannot believe how suited we are. Bronan left a huge hole in my heart. Who knew this perfect little man would come along & slot right into my life. Another sweet cuddly boy. He reminds me of a Bronan in lots of ways, but still has own unique personality. I’m the luckiest cat mum.

Vincent D’Onofrio

I like how brooding he is and that head moving to maintain eye contact thing he does on Law & Order. He seems like he’d be clumsily kind if you were feeling bad. He’s always despicable when he plays a baddy, which I like, no half measures. I get completely absorbed in the character when I watch him. I always believe it. Also, good name.

Summer Rain Showers

I like the ones that come on heavy, but run out of juice quickly. Summer rain smells good, it freshens everything up and gives me a good excuse not to hang the washing out.

Diet Coke

It is really bad for me, but it tastes soooo good. Big icy cold gulps. I don’t know how to quit you, Diet Coke.

Specs Appeal

Statement specs bring me joy. If I have to wear glasses every day they are going to be splendiferous. Big, colourful, can’t be missed face furniture is the only kind I will consider.

Ian Hislop

It’s very sexy when a person is that good at anything. He exudes the confidence of knowing he’s top of his game. He can slag off the bad guys with impunity because he leads a pretty decent life. He is cute and funny and incredibly smart. I’ve always been fairly sure that he has a huge, beautiful dick too.

Love

This might be where my sincerity gets too much for you. I care not. Life really wouldn’t be worth much without love. Giving or receiving, it’s wonderful. All those little thoughtful things a person does because they love you. Tiny gifts, texts, snapping a pic of something you’ll like. It all feels good. The warmth of knowing I’ve made someone smile or that they wanted to make me smile. Being able to comfort with your words or a cuddle. Sharing milestones & cups of tea. Love is the point, right? How can we not feel grateful if we have it.

Choice

I’m so happy to live in a time (& place) of choice. So many aspects of my life offers abundant options. I can access almost any song in the world from my phone. Look up current affairs, trivia, what time the chemist closes by pressing a few buttons. I have films, shows, games, podcasts, strangers & friends at my finger tips. Whatever food I fancy can be delivered to my door. In theory I can pursue any career I’d like. I can vote how I choose. Do as I please with my body. Get married or not. Sleep with who I want. Wear what I like & go wherever I want. Choice is not to be sniffed at.

Gardeners

Hallelujah for folk who will sort the garden in exchange for money. I am physically & constitutionally unsuited to maintaining outside spaces. I do however enjoy utilising them. I also like not stressing about ever encroaching weeds. I will never underestimate the peace securing a good gardener brings.

Little People

I have eight perfect niblings. My oldest niece is the smartest, coolest, kindest 16yr old you will ever meet. She will always be my little muffin, but she has grown into a person who makes me so proud. Then there are my brother’s boys who are his complete mini mes. His oldest is so patient & protective with his little brother. It is gorgeous to watch. My sister’s biggest boy is half intrepid knowledge gatherer and half total love bug. He is a joy to be with. He is the proudest big brother to his rascally sibling. Our newest edition is the happiest baby boy. Sharp as a tack and the cutest agent of chaos My bestie’s big girl is so cute & sassy. She goes her own way and I love that. ‘Girlie’ things hope no sway with her. She is a bundle of fun. Then there are her 4yr old brother and sister. Never were a pair of twins more different. A chill, affectionate little man who cracks me up with his silliness. His little sister may be the youngest, but she’s a girl who knows what she wants. She loves a pretty dress, ballet class and being a little monkey. I am so lucky to be part of their lives. Helping them become the people they want to be is an honour.

Disabled Ammenities

Parking spaces, toilets, seats right by the door on trains. I love them all. Anything that takes into account that every step hurts is a life saver. Extra space, bars to hold onto, not having to wait, all make my life immeasurably easier. Disability can rob you of dignity in so many ways. Things that allow me to navigate public spaces without being humbled are magnificent.

Sister Tik Toks

I love it when my sister and I send each other tik toks. I feel very seen when she sends me clips that make me laugh out loud or that relate to some shared experience. Having a sister is a lovely thing. Having a sister who gets you is even better.

Life has turned out to be harder than I had imagined. Amongst the struggle it helps me to acknowledge all the little & enormous things that make it worthwhile. I know it’s cheesy, but give it a whirl.

*Not a cure or medicine. Speak to your dr about any health concerns.

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How about no?

~ somethinginthewayshemoves

Every now & again I realise that I kind of hate all the latest ‘must haves’. Summer 21 is definitely one of those moments. Thus, I invite you to join me as I trash all the things I really don’t want.

Big Collars

Everywhere I look folk are adding massive collars to everything they own. I can’t stand it. It’s twee in the worst possible way. They’re the ugly offspring of 80’s maternity & flower girl fashion. I feel especially nauseous when I see someone sporting a large doily style collar on a pastel knit. It has to stop. Please.

Pale blue cardigan with white lace colour
Nope

Pampas Grass

Is that even the correct name? It’s that awful fluffy stuff that keeps turning up in floral arrangements. Usually accompanied by weird dusky pink dried flowers. It’s another 80’s revival that we should have left to rot. The fluff gets everywhere, they always flop & there’s that urban legend about swinging. I’ll stick to fresh blooms, thanks.

pampas grass & dried flower arrangement
Nope

Hankie Tops

I’m usually all for a 90’s throwback. It was a bloody good decade with some excellent fashion. Hankie tops, however, were awful then & even worse now. I still have nightmares about the lemon yellow gingham hankie top I struggled to keep my boobs in on a second date in 1998. I can’t forgive the pitiable piece of fabric masquerading as a garment.

Candlelit Concert

In theory, I actually love this idea. The first candlelit concert I saw advertised was Vivaldi’s Four Seasons in a beautiful theatre. I could see the appeal. It must have been a success because now there is a candle lit EVERYTHING. Abba, Disney, Daft Punk, ballet (is that safe?), songs of Barry Manilo! I’m out.

Bare Midriff Belt

I couldn’t tolerate Carrie Bradshaw belting her belly button. So, I’m definitely not going to find it charming this time around. Can’t we ever learn from our mistakes?

Carrie Bradshaw wearing Gucci belt on bare midriff . ASOS model wearing jeans & belt in bare midriff
Nope & Nope

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Another little bit gets lost…

~ somethinginthewayshemoves

I am not ok. I’m never really ok, but right now, I am especially not. Long covid is ravaging my life. Six months since testing positive & no improvement in the ‘left over’ symptoms. I’m really scared that I am going to be stuck like this indefinitely.

The breathlessness & tachycardia are relentless. The slightest exertion leaves my heart racing. I can’t stand long enough to brush my teeth. Moving from room to room requires a sit down recovery period. My pain & gastric symptoms have all been intensified. They show no signs of easing. Fatigue is overwhelming. My brain often feels like mush. I lose track of what I am saying mid sentence, I need lists & alarms to remember anything. I cannot get anything done.

Pulse oximeter with heart rate at 180 & oxygen 95

Keeping up with normal life admin is a constant struggle. Cooking, cleaning, laundry, washing my damn hair have gone from difficult to near impossible tasks. Getting dressed is a mission. Trying to work is a lottery. Maybe today will be the wonderful day my brain & body both allow productivity. More likely, I will spend a week doing ten minute spurts of writing. What used to take a morning now feels like completing my magnum opus. I rarely have the energy to leave the house. A trip to the drs or an afternoon in company takes days to get over. Everything hurts massively all the time. I’m exhausted all the time. My heart pounds & my breath escapes me. Eating more often than it results vomiting. My life is getting smaller & smaller. I’m frightened.

There are no good days. Never an opportunity to catch up. I’m in a continual state of anxiety over all the things that never get taken care of. I feel useless. Stuck. I wasn’t in great shape to begin with. There were always limitations, but now they are endless. I can’t see any solution; there is no one else to do what I can’t. Even if there were, it would decimate my mental health to be that reliant.

Doctors don’t have the answers. Nor do they have the resources for many of the treatments they’d like to offer. Every referral is waiting list. My existing conditions are running riot & symptom flares do not respond to previously effective interventions. It is exceptionally hard not to feel hopeless.

Ly is wearing sunglasses, face mask & hospital gown and standing in front of x ray sign

I’ve been here before. Each time I’ve reached a new spoonie milestone it has been hard.Realising the pain would never entirely go away, each new diagnosis, having to use a walking stick. They all took time to accept. More time to learn how to manage. Every time I add something to the list of things I simply can’t do anymore it hurts. I’ve grieved so many versions of myself. I have long let go of the idea of a normal life. This feels different. It’s not an adjustment, it is shifting most of my life into the can’t do column. No one can tell me if this will ever get better. Or worse.

It’s testing me on every level. Keeping my mental health afloat is getting harder. I have no control over this. If I push myself I feel worse for longer. I am helpless and useless. My head has no off switch. I fret about the mounting piles of unattended business. My life feels simultaneously hectic and ground to an absolute stop. The stress is too much. The pain is too much. The fatigue is too much. Every inch of living feels too hard.

All the while, life goes on. Bills need to be paid, grass cut, deadlines met. I have responsibilities & commitments. Covid isn’t anyone’s fault. I am acutely aware of how many have lost more. As guilty as I feel, that doesn’t make this any easier. I think maybe I needed to say it out loud. I am no ok. Not even close.

The words I’m not ok on black background

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Oxygen for India…

~ somethinginthewayshemoves

Covid 19 has been hell. We’ve made sacrifices. We got ill, lost people, missed people, missed life. We have suffered, but we have almost made it through. Even in our worst times we have privilege. So much privilege.

Throughout this nightmare we have had access to excellent medical care & now vaccines. Many of us have had safe houses to lockdown in. Food, clean water, the ability to stay in touch with our loved ones. It doesn’t negate the bad, but it does make us incredibly lucky.

Now that we are close to escaping this pandemic we cannot abandon those still being ravaged. We have to help. India is in dire straits. We, in the west are good at taking what we want from other cultures without asking & without giving anything in return. It is past time for us all to do what we can to fight Covid in India. Please give whatever you can.

Oxfam India Covid Appeal

British Red Cross

Action Aid

Oxygen for India

Kicking out the Kardashians…

~ somethinginthewayshemoves

I’m calling it. It is time to be done with the Kardashians. I’ve never liked them, but come on, they must be at peak toxicity now. It’s time to deflate that bubble.

Everytime one of their clan is thrust into my sphere they have done something gross. Asking fans to donate to a medical gofund me they could cover for less than they spend on a handbag. Private island birthday parties during a pandemic. Having a month long pity party because folk saw your actual body AND trying to pretend your woe was about female empowerment. It’s all sickening. According to Kim & co we eat too much, our waists are too big, our skin is too flawed, our stomachs too wobbly & our hair too fine. Don’t worry though, they have products to sell you that will fix the lot. The only thing greater than their wealth is their boak level.

Various adverts for weight loss products featuring Kardashians

Khloe’s latest has of course pushed all my buttons, but first, let’s talk about the Kardashian record. They have wielded their power almost exclusively to feed their own consumption. Despite having more money than anyone could ever need the continue to sink low for the dollar. Wether it’s selling dodgy diet shakes and waist trainers to impressionable fans. Stealing designs from all & sundry (including independent black owned businesses), trashing women they feel threatened by or the constant cultural appropriation, they collectively refuse to take responsibility for harm caused. Anything goes for these sisters as long as the price is right.

Which brings me back to Khloe’s latest tantrum. Don’t get me wrong, the crap she gets from the media about her appearance is horrendous. It’s hard to feel overly sorry for her when she has devoted so much time to upholding the insane beauty standards she’s crying about. Khloe has form. She fronted an entire tv show devoted to body shaming. Convincing people who have been bullied and dumped to shrink their bodies is not empowerment. Neither is insisting your body is the product of diet & exercise when it is completely unattainable without surgical intervention. Strangely enough painting yourself as a martyr because people saw your actual body is also not lifting anyone up. Following those hysterics with highly edited images you claim are untouched is straight up gaslighting.

They’re a group of women with a global platform; they could boosted amazing things. Instead they’ve chosen bolster the patriarchy & line their pockets. They’re billionaires making money promoting disordered eating to teenagers. That’s repugnant. Trotting out some vaguely feminist language every time your own monster bites is not solidarity.

Except when they have something to sell you.

The show was always shit. The opinions vapid. No one needs another example of clawing greed. We know better. We deserve better. Let’s chuck the whole gaggle in the bin.

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Watching through my fingers…

~ somethinginthewayshemoves

I’ve been fairly quiet on the blog front. Clearly we’re all under some pressure, but I’ve also been dealing with some bonus pain. I’ve had episodes of awful symptoms which signal that my pancreas may be acting up again. It’s been a while since I’ve had to deal with pancreatitis and I am scared of a comeback.

The pain triggered some really desperate memories. It also gave me lots of time to ruminate on how PTSD never stops giving me unpleasant surprises. The nature, frequency & severity of my reaction to trauma stimuli is forever changing. In my (also unending) quest to de stigmatise mental illness I thought some recent triggers might be worth sharing.

Waking up in the middle of the night to pee is not a thing that I do except during pregnancy. I’m a hold ‘til morning girl. The frustrating sensation of leaving a comfy bed & stumbling to the toilet in the dark is one I associate with pregnancy. Sitting on the toilet half awake looking at my painted toes I had the trauma version of de javu. My body remembers this. The exact emotion. The precise thoughts. I’m ok, but I know I won’t be getting anymore sleep. I’ll be distracting my head from going back there. Lying still in the dark would be asking to feel things I don’t want to feel.

Sometimes to occupy my mind through those sleepless hours I watch crap tv. Ideally something I don’t have to concentrate on. Mildly entertaining 90’s sitcoms work a treat. That is until the wife in King of Queens is unexpectedly pregnant & then just as they’re getting happy about it, not pregnant anymore. Numb viewing to uncontrollable sobbing in 20mins or less.

A fun park adventure with the rascal is momentarily derailed when someone calls me his Mummy. I smile, correct them & return to my role of bad octopus pirate. I feel the impact, but I look steady. Until much later when the memory of all the babies who’ll never call me Mummy knocks me flat.

I wake up bloody because my period has started in the night. I’m not inconvenienced I’m terrified. Those cramps ripping through my pelvic region signal disaster. It takes a bit of time to centre myself in the now. Repeat, ‘I’m ok’ over and over as I drag myself through a shower. Tampon, comfy clothes, paracetamol. I’m almost calm by the time I return to tackle the bedding. I’m genuinely shocked when the sight of blood on sheets sets me trembling. I was devoting all my attention to not getting sucked into one trauma hole that I forgot about another. I have to sit on the floor but I’m still watching an old iteration of myself. Younger, sicker me is ripping bloody sheets from an entirely different bed. More than the sheets are stained. My body is raw & dripping. I feel as exhausted now, in my healed, safe body as I did then in that recklessly butchered one.

My stupid period tracker with its stupid unwanted alerts. High chance of pregnancy. Such a simple sentence triggers such complex crazy. The stress and hope of trying. The heartbreak of failing. The unwanted reminder of how few of these high chance days may be left. Fleeting recollections of disappointing perfunctory sex and an even more disappointing man. Wearily buying tests. Angrily buying tampons. Wanting the monthly reminder to be over and fearing that end. Wrap it all up in a hollow ache in my middle that never leaves, but echoes as I read those words and you have my condition.

My ridiculous cat managed to injure his paw and now I must try to keep dressings on until it is healed. If you know anything about cats, you’ll know what a challenge this is. I have experimented with various ideas none of which preserved his dressings for long. I started thinking he needs a sock & then remembered I had some baby socks. They must have belonged to one of my nieces or nephews. Baby bits and pieces will end up in your hand bag/pocket after a day of auntying. I seized upon the long lost sock as the solution. I didn’t feel sad or even link the tiny item to anything painful until I started trying to put it on my cat. Then from nowhere I was flooded with too many feelings. I love my boy, he’s wonderful. Still, I couldn’t avoid the fact that he’s the sole recipient of my mothering.

A character in the book I’m reading is trying, with difficulty, to explain why she feels guilty for various past events. I feel as though I have taken a deep breath & inhaled fictional strife. My own twisted guilt is equally hard to comprehend. For me, self reproach is as essential as oxygen. The chord of perplexing guilt could catapult me into a multitude of memories. This time I land flailing in the aftermath of standing up for myself. I can feel the certainty that so recently fizzed go flat. That overwhelming sense of this must somehow be my fault returns. I feel angry about all the shit I put up with, but I still can’t fully convince myself I’m not to blame. Now I’m full of guilt for events long passed. Today is ruined as I attempt to untangle things that never made sense to begin with.

Triggers lurk. Sometimes entirely unexpected things stir up pain. It can be fleeting or set off a chain reaction. I have adapted to a life with booby traps. I often appear untouched, but only because I work so incredibly hard at hiding the mess.

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The tiniest lifeboat…

~ somethinginthewayshemoves

My mood has been struggling to stay a float of late. I’m trying hard not to wallow, so I’m going back to basics & celebrating my lifeboat moments.

The sun came out. A few bright, fresh days have made me a little perkier. Shaking off a few layers & enjoy the outdoors. I even shaved my legs for the first time in forever. Mr sun better not disappear.

Pale white legs with green words tattooed on calf

Receiving surprise Easter treats. My clever little nephew found my favourite choccies (I think his Mummy helped). I am excited to get stuck into my delicious minty egg & luxurious floral fondants. All vegan & completely yummers.

Hotel Chocolate Mint Easter Egg & Violet Creams

Having a swing park adventure. The stay at home order has prevented me seeing my little ones as much as I like. That of course makes every adventure extra special. This week I got to play pirates in the swing park with the boy. He made some new friends to enlist into his band of pirates. He is always the Captain, Auntie ly gets to be the bad octopus pirate & much hilarity ensues.

ly is laughing in a swing park with her nephew behind her

A mini makeover will go along way when total transformation isn’t possible. I’ve been hating my ugly brown sofas for ages, but have failed to find a replacement I love. Not being able to physically shop hasn’t helped. Who wants to buy a sofa without ever plonking their bum on it? After much deliberation I seized upon a colourful temporary solution. I’m super pleased with the results.

Before
After

Stay at home order lifted. I am beyond excited that we’re actually on the road out of lockdown. The weather is coming up, infection rates coming down; if this keeps up we could be in for a bloody good summer.

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Sisters in arms…

~ somethinginthewayshemoves

I’m tired. To the bone exhausted. It’s been a relentless year, like everyone else I’ve just kept trudging along. This weekend I hit a wall. I doubt I’m alone.

The convergence of Mother’s Day, police violence against women & the flood of abuse/harassment stories that women have been sharing was overwhelming. Especially when I realised how many similar cases of missing or dead WOC I had never even heard of. Women the mainstream media had little interest in. Women who in some cases haven’t even had their death investigated. I’m not shocked by any of this. I know this is the world we live in. The abstract knowledge doesn’t make each individual case less painful. When you combine one’s own pain with the agony of the collective it’s crushing. It never stops. It never changes.

I’m aware that I’m feeling all this from a position of privilege. I have more space & safety to process. The police would likely pay attention to my family if I disappeared. I know my exhaustion is relative, but god, it’s heavy. I wish it were possible to ease the heavier weight I know many are carrying.

I don’t have any new answers. I’ll keep writing to MP’s, protesting, amplifying marginalised voices, putting my money where my mouth is. It’s a struggle to feel hopeful at the moment. So, I’m going add to taking care of myself to that list. I don’t know what that care looks like yet, but I’m working on it. I urge you to take whatever time you can & give yourself a little TLC too.

Illustration of horse, boy,Fox & mole from Charlie Mackesy
Charlie Mackesy

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