And a happy new year…

I think it’s fair to say that 2019 has been a shit show. A political nightmare on a global scale. Environmentally disastrous & frankly a genuinely worrying time to be alive. My faith in humanity has taken a battering this year.

It won’t be like this all the time stencilled onto a pavement

It hasn’t been an especially uplifting 12 months on the personal front either. There’s been loss, illness & a struggle for meaning. It has all felt a little pointless at various stages, but I made it. Here I am living & learning. Carrying on.

Woman in bed with teary eyes

The year got off to a heartbreaking start, but there have been ups. I cemented a crucial relationship & extricated myself from one, which in hindsight, I hadn’t wanted to be in for quite a while. My people have proven once again how marvellous they are. Circling around when needed & letting me be when required.

Txt conversation

There have been a few professional triumphs. I returned to public speaking (terrifying), embarked on a little social media consultation & posed for some excellent photographers. I produced writing I am proud of and my expanded audience significantly.

I applied myself to the task of enjoying life. It’s not always easy when dealing with chronic & mental illness; I’m pleased with my progress. My little ones continue to be of endless interest. I have immersed myself in the joy they bring as often as possible. I’ve allowed myself to enjoy time with someone lovely & undemanding. I even had some successful surgery.

Selection of pictures of children

Most importantly (I think), I have released myself from the need to know where I’m going. I always thought my biggest purpose was motherhood & letting go of that dream has been challenging. I felt bereft of meaning. It has taken time & wise counsel to discover that perhaps I don’t need all the answers right now. It’s ok to take some time to breathe & live. Hopefully other options will present themselves. In the meantime I can work on career goals and hopefully continue to squeeze maximum happiness out of life.

Path continued painted cement ground with foot & walking stick

So, it’s true. Life goes on. I suppose that’s as true on a larger scale as it is personally. We can still strive to be the change. Sadly, it looks like there will be lots of opportunities to test the courage of our convictions. I hope we prove ourselves brave.

Mirror image of fat women smiling

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* Photography Credit – Megi Aben

May all your troubles soon be gone…

All the last minute tidying is complete. The presents are wrapped, the festive bedsheets are on & the fridge is stocked. My final festive manicure is complete & my outfit is all picked out. All that remains to be done is put my feet up for the evening before the madness begins.

Xmas tree with presents

I’m getting very excited about the big day. I’ll be at my sister’s & her little man is so into Xmas this year. I can FaceTime my other wee ones to see them open their pressies. Plus I’m a big kid and I love getting gifts too!

Xmas nail art. Candy cane stripe & holly

As happy as I am to have friends & family to share the season with, there’s always a hole in my Xmas. Being reminded of all the family fun I’ll never have with my own children is hard. Lots of people who have experienced loss struggle over Christmas. That’s why organisations like Sands & Miscarriage Association are so crucial. Sands work towards reducing still birth and neonatal death. They also provide support for those have lost babies. The Miscarriage Association aim to support those who have suffered miscarriage. They also strive to end the taboo nature of baby loss. Both do essential work with vulnerable people. If you can spare a little, a donation will allow them to continue their essential mission.

Xmas tree, heart decoration with text no foot is too small to leave van imprint in this world

However you spend Christmas I hope it will be safe, warm & filled with as much joy as you can muster. If you are missing someone this year I send you love.

Follow that star…

Can you believe Christmas Day is next week? I can’t. It seems to have come round really quickly this year. Luckily I’m all set. Presents are bought & wrapped, cards are sent & fridge is stocked. All that’s left is to show you some more pretty nails!

Kicking off with some divinely glittery baubles. These ones were a nice easy manicure for a busy week.

Xmas nail art. Glitter baubles on green base

Followed by a more complex, but no less festive Xmas light design. Loving my wee snowy tree on the accent nail.

Xmas nail art. String lights on blue & white background

Finally, my current look. Holographic glitter stars. These ones look simple, not they took forever. Those stars are made up of lots of tiny little pieces of glitter. I started with blue & white, but wasn’t happy. So, I striped them off and tried again with the holographic glitter🍗Worth the effort, when they catch the light they look awesome. Xmas nail art. White & blue glitter stars on red base Xmas nail art. Holographic glitter stars on green sparkly base

Now I just need to decide if I’m keeping this for the big day or squeezing in one more design.

Power to the people…

I’m utterly disgusted at the election results. Beyond that I am saddened & scared. English & Welsh working class voters supporting Tories is incomprehensible. To sell out hungry children, homeless & disabled people for Brexit is vile. The future looks terrifyingly bleak. Our NHS is in real danger & the most vulnerable people in our society are likely to persecuted further. I am grateful for the limited protection being in Scotland offers me. It has never been more clear that we need to be free of this rotten union. My heart goes out to all those who fear what the future brings under another Conservative government. More than ever we have to do what we can for those who will be left in need.

Baby, it’s cold outside…

Whilst I wait very nervously for the exit polls I think it can be time for more giving. My second festive charity of the month is Sleep Pod.

Sleep pod tent

They aim to provide sleep pod tents to homeless people across the UK & Europe. Since 2010 homelessness in the UK has risen 169%. People are literally dying on our streets. One of the biggest causes of death is exposure. These tents can help people make it through the winter.

Sleep pod tents

This isn’t a long term solution (please get out & vote), but it will keep people alive. If you can afford to do so, please make a donation. I am so grateful to have roof over my head especially in these cold, wet winter months. Providing even temporary shelter is a step to combat this crisis.

Twinkly lights with text please give generously

Easy ways to support your spoonie friend at Christmas…

I often share tips to help chronically ill people manage different aspects of their lives. However, sometimes the trickiest part of the spoonie life is dealing with how those around us react to our illness. This time I thought I’d give some hints to those who know & love a spoonie.

Please don’t give us a hard time when we cancel

This applies all the time, but especially during the festive season when there are so many events & parties. We know we disappoint you when we cancel. We aren’t sick on purpose. We can’t control our flares. Trust me, we really want to be there. We are sorry we’re missing your thing, particularly if it’s really important to you. It’s fine to say you’ll miss us or you’d have loved us to be there, but please don’t get angry. Try to consider all the times we do show up for you despite being in pain or dealing with other symptoms. We already feel more guilty that you can imagine & we are incredibly grateful that you stick with us.

White txt on pink background, my brains says let’s do something exciting today. My body says don’t listen to that fool.

Take our restrictions/limitations into account when planning activities

Disabled & chronically ill people can have a whole range of needs. We really don’t have a problem answering questions when they are considerate & relevant. If you take into account accessibility needs (disabled toilets, stairs, seats, dietary restrictions, crowds etc) it is much more likely that your spoonie friends can attend. More than that they’ll actually be able to stay for the whole shebang & enjoy themselves. It is actually much easier that you think these days. Many venues are happy to help you make accommodations or already have them in place. All varieties of specialised food are commonly available. Plus I for one am often happy just to know there will definitely be a seat so I can retreat if I need to.

Take no for an answer

If we say we are too ill, we mean it. It’s not an excuse nor the start of a debate. We’ve always thought out every possible variation before deciding we can’t make it. It doesn’t help when you say we’ll feel better once we’re out. We’ll feel much worse if we push ourselves too far. We know our limits & all our responsibilities; we are the best judge of what we can handle.

No comparisons

Please, I beg you, don’t do comparisons. Getting upset because we went to so & so’s birthday, but can’t come to yours is pointless. It won’t make us any more able to attend & will just make everyone feel worse. Chronic illness is a crap shoot. We never know how we will feel on any given day. We might have been the life & soul at dinner last week, had a ball with the wee ones on Tuesday & unable to move without crying on Thursday. There is no predicting how chronic illness will behave. The things we don’t attend is not linked to how much we wanted to be there.

Siamese cat on blue background with txt, no pain no gain. Chronic illness is not a competitive sport.

Bonus Tip

Don’t tell us we can do anything we put our minds to. We absolutely can’t & this is a shitty reminder. It’s not inspiring, it’s dismissive.

Your spoonie friend loves you. They are delighted that you are on their life and they are doing everything they can to be reliable & fun & supportive. Please cut us a little slack.

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My week (ish) in pictures…

It’s been a bit up and down of late. Thankfully the highs are good enough to get me through the dips. Plus Xmas is close & I’m definitely beginning to feel merrier. So, let’s have a we round up of goings on before I get swept up in all the festivities.

Last week I had some Xmassy cocktails with my favourite man. I took a trip to the very rainy seaside to do some giggling with my lovely Lisa & her equally lovely boy. I checked Edinburgh’s pretty lights on the way home. Of course I spread a little #projectpostit wisdom as I went.

I did a whole bunch of rascalling with my middle nephew; including cinema trips & fun in GoMA studio. Hung out with all three boys together & did some excellent FaceTiming with my big muffin. We got started on all things Santa & I even wrapped the first of the presents.

This week involved another Edinburgh visit for an exciting meeting. Followed by a lost bank card, lots of stress & some big glasses of wine with my favourite man to save the day. It was a perfect winter day; freezing cold, but crisp & dry. The light was dreamy.

Back home I lost a battle with some frost & my driveway. Snuggled with my puss cat & put the tree up.

I had a little sister time. Got seasonal with my nail art & snapped all sorts of things that took my fancy.

Oh Christmas tree…

We’ve hit December and it’s officially Christmas season. It is time to get festive. Most of us are lucky enough to have people to share food & love & gifts with. It’s incumbent upon us to think of those less fortunate whilst we enjoy our jollies.

With that in mind I’m going to suggest more than one charity this month. Pick your favourite, donate to all or just do whatever you can. First up, Giving Tree. It’s organised by Kids Out, a charity who aim to give disadvantaged children (many in refuge to escape domestic violence) positive experiences. At Xmas they do giving tree to give children who may not otherwise receive presents a gift that they would like. I saw this one at Braehead in Glasgow, but there are tonnes of similar schemes all over. You take a tag from the tree & buy the requested present.

Christmas tree with gift tags

Instructions for giving tree

I absolutely love this idea, but reading the tags broke my heart. All of the requests are so modest. I couldn’t help but think of how often I buy my little ones treats for no reason special reason at all. Every child child should be showered with love & blanketed in safety. Beyond that they shouldn’t ever have to wake up to disappoint on Christmas morning. Nor should any parent have to face the task of explaining why Santa isn’t coming.

Gift tags with present requests

I couldn’t resist picking up two tags. The thought of this baby still waiting for their first book was too sad. There are still lots of gift tags awaiting a kind soul. It’s so easy to make life a little brighter for these wee ones. Please help Santa reach them if you can.

Giving tree gift tag

Please let me get what I want this time…

I know lots of you have election fatigue. Our political landscape seems desolate. Truth & right & consequences appear to have become blurred. I understand if you are sick of it. I get it if you feel like you can’t make a difference. However, this election is literally life or death for many people. Your vote matters. Please use it.

I’m making a genuine plea for myself and for societal good. I beg you, don’t vote Tory. Brexit is and can only ever be a disaster. The NHS is on its knees, food bank usage has soared, homeless people are dying on our streets, child poverty continues to rise. The most vulnerable members of our society are being crushed by the conservative government. The savaging of our welfare system is purposeful & ideological. It is not possible to opt out of sickness, unemployment or ageing. Even if you vote purely for your own well being, the Tories are not in your corner. You never know when you may need the services & rights they are systematically destroying.

Please don’t vote Tory in white letters in green background

You have to look beyond the headlines & media smears. Corbyn is not an extreme left maniac. He has a fully costed manifesto of common sense labour policies. He wants to create a fairer society for all. He’s fighting for wages you can live on, a roof over everyone’s head & food in our bellies. He wants the incredibly wealthy to pay their share (at a rate that will not make any significant difference to their lives). The labour manifesto will secure our health service. Corbyn is not perfect. Frankly, I have major issues with his views on Scotland, but he is our best bet. He is principled man who has been consistently on the right side of the fight. He is trying to improve life for everyone.

I ask you to approach this election like a bus journey. If there isn’t a direct bus to your exact destination you find the next best option. You get the bus that takes you as close as you can get. A vote for the conservatives will only drive us into a ditch. Liberal Democrats have already shown us what they do with power. We have to be tactical. Vote for Labour or whoever can beat the Tories in your constituency. Only opt for other parties in areas where it can not benefit the conservatives.

We have a chance for real change. Please don’t let it slip away.

Give the day a chance to start…

It’s been a fairly standard day. I got some writing finished, sorted a little admin & did a food shop. No exciting hijinks. Nothing horrible either. Why then do I find myself feeling so overwhelmingly sad?

An hour ago I was just getting on with the daily grind. I wasn’t jumping for joy, but I was fine. From one moment to the next my equilibrium vanished. For no discernible reason I am flooded with melancholy. It is one of most baffling aspects of my mental illness. It extends beyond feeling miserable. My inability to comprehend what is happening leaves me powerless to combat it.

Control is a big thing for me. I think, because there have been major parts of my life in which I lacked significant sway. That leaves me uneasy with the uncertain components of my mental health. It is very frightening to know that my mood may descend at any moment. It’s even more alarming when I don’t know why. I can’t tackle a problem when I cannot identify the cause.

Moon in cloudy sky

All that’s left is trying to ride out the low. With no clue as how long the trip may last, it is hard not to lose hope. It’s hard to compute how much of a hold these periods take on me. This isn’t deepest, darkest despair. It’s what I think of as everyday depression. More grey than black. A persistent ache rather than unbearable pain. Yet its unpredictability looms large.

So, how do I combat the urge to believe there isn’t any point fighting a battle when I know I’ll lose the war? This is good a starting point. I write about my crazy head in an effort to exert dominion over it. I try to talk about it or at least just label it out loud. Not having to pretend that everything is a ok can help. I remind myself that I can and have exited these dips. There is colour in my life waiting to reappear. Of course I take my meds and then I just hold tight.

Long term mental illness is a slog. It leaves you no option other than to dig in & get dirty. My heart goes out to anyone else who is stuck in the trenches.

Autumn leaves in street lamp

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