I planned a really lovely weekend. I was going to visit a friend I haven’t seen since pre pandemic. She lives by sea and always makes me giggle like a maniac. I was so looking forward to it, but my body had other ideas.
On Friday evening my chest pain got really bad. Then I had a fainting spell. As soon as I managed to get on my feet I would faint again. Sitting on my hall floor with my head spinning and heart pounding I felt scared.
I wasn’t scared of one particular thing; the fear was in the uncertainty. Not knowing how bad this is. Not even knowing what exactly this is or if it will ever go away. I have felt so fragile and vulnerable in these last few months. I haven’t been able to trust my body at all.
I have gotten used to my body failing me, but this has been on a whole new level. Every time I stand up my head spins and my whole body tingles. I can’t catch my breath, I don’t know if I will be able to stay on my feet. I have always prized my self sufficiency and it feels as though it has been slipping away.
My weekend in hospital hasn’t changed anything. Drs gathered some more information, but they couldn’t solve the problem. I await appointments with specialist consultants. Hopefully they can get to root of my long covid complications. The truth is I don’t even want to consider living like this permanently. It’s just too terrifying to think about.
For the moment I am happy to be home with my furry little nurse. I’m trying to rest and not stress about all the things that I am not getting done.
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It’s been a while since I did a week in pictures. Mainly because I have not been doing anything all that exciting. I have had a few family dos of late, so I’m doing a share.
First up was my youngest nibling’s first birthday party. The first year of these baba’s life has gone at lightening speed. They have been an absolute delight from day one and continue to be wee darlings. They are now very much on the move, starting to find words and full of fun. Their party was lovely. The babies enjoyed their new toys, grown ups enjoyed a cuddle and bigger kids loved running riot.
Following on the family fun theme I had a gorgeous Easter lunch with my Mum, Sister & her boys. My sis made a superhero afternoon tea with plenty of vegan friendly options for me. The boy opened some Easter gifts and then we set off to his swing park for a bit of carry on.
After all that activity, I required a wee bit of rest. I had a quiet few days at home. Wore my comfies, tried to finish some work and painted my nails. I also had some yummy comfort food & bought Bronan some new catnip, which went down well. Strangely it also increased his paper fascination.
Thursday brought some Auntie time. My sister needed me to watch the boy for a few hours in the morning. This worked out perfectly as it gave him an opportunity to try out the blocks that Geomag* kindly sent me. I had intended to get a few of my littles to try them out, but this boy fell in love with them. He played all morning, took them home to play all afternoon too. The Magicubes are magnetic blocks that connect and hold on all six sides, meaning kids can build anything with them. I’ll definitely be buying more for the rest of my nibling gang.
I finished off the week with blood boost. A transfusion can be a nuisance, but necessary. Ultimately I am very grateful to have access to the medical care I need. Plus it gives you a good excuse to stay still and listen to a podcast all afternoon. I came home to huffy cat (annoyed that his dinner was late) & a lovely sunset. Not the wildest Friday night, but I’ll take it.
Of late I have been bothered by much of the therapy speak I see cropping up everywhere. I’ve always been slightly irritated by the therapy buzz words, but it used be reserved to certain arenas. Now it feels impossible to get away from it. Some are impenetrable, some misapplied and some a little stupid. So, come with me in a little therapy rant.
Sit with it.
The ‘it’ being emotions. I doubt there is anyone who has ever sought mental health treatment who is unfamiliar with this phrase. I have been advised to ‘sit with’ all manner of feelings. I’ve never been entirely sure what this means. Nor has any explanation ever satisfied me. Let yourself feel it makes sense if you are actively avoiding emotions. I used self harm, disordered eating and occasionally alcohol to block emotions that I wasn’t able to deal with. However, when I moved past avoidance it was still the guidance I was given. When I was ready to acknowledge and tackle those feelings I needed more. ‘Let yourself feel it’ is redundant. I am feeling it; that is the problem.
Once you are sitting in all that emotion you will often be advised ‘not to judge it’. Just feel it, they’ll say. Well, I’m sorry, that’s impossible. I have already judged it. Judging is a prerequisite for finding something problematic. The judgement is automatic. More than that, it’s involuntary. The minute I find the emotion unpalatable it has been judged. I came to the (sometimes correct) conclusion that perhaps what these therapist meant was don’t judge yourself for having that emotion. That makes sense, I can work on not attaching negative connotation to what I feel or how uncomfortable that makes me. I can even get on board with attempting not to label specific emotions intrinsically negative. I’m not convinced, but I do see how in some cases that could be fruitful. However, removing the intuitive I DO NOT LIKE THIS just doesn’t strike me as a realistic goal. If I were able to control my brain in that way, I wouldn’t have a problem.
Let it go.
Feel it and then let it go is definitely the aim. I’m not sure it actually counts as advice though. I know that getting stuck in difficult emotions is not good for me. What I need is help learning the way out if that. Restating what I should do is not helpful. I know the problem, I am here because I am looking for answers.
Many years ago when I first experienced therapy the inner child thing was kind of a joke. It never came up. Of course therapists talked about childhood experiences & being compassionate to past versions of yourself. However, a psychologist would never say the words ‘inner child’. Now it is everywhere; from woo woo spiritual healers to actual trained therapists. I’m sure it applies to some people, but it’s just not relevant to me. My inner child is a ok. I had a remarkably lovely childhood. I was loved, appreciated, supported, safe and very well taken care of. My ‘inner child’ is probably the healthiest part of me. I’m not carrying any painful scars from childhood. So, I have found it incredibly frustrating that everyone and their granny wants me to get in touch with my inner child and heal her. Even when I proffer my history and explain that my upbringing is not a problem area, I am still pressed to explore it. I don’t know how or why this happened, but I really don’t love it.
This is another one that totally has merit in the right situation. There have been times when I have been scared of touching memories and emotions that made me feel vulnerable. I did need to work through that. Being vulnerable can be frightening, but it is also necessary. I would argue that engaging in therapy is already submitting to vulnerability in many ways. The showing up is a great first step. However, the canonisation of vulnerability has gone too far. There is definitely a time and a place for vulnerability. We can’t and shouldn’t always expose weak spots. We live in a fairly brutal capitalist society and being completely honest about your vulnerabilities will not serve you in many situations. People will take advantage, they will bypass you based on their perception of that vulnerability and many folk will judge you. Still I hear professionals who really should know better urge everyone to embrace their vulnerability throughout their life. It drives me crazy; we need to protect ourselves. Let yourself be vulnerable in safe spaces only.
Am I just jaded? Or do you feel frustrated by these therapy catchphrases? Maybe you have your own therapy pet hates. I would love to know your takes.
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As I said in my previous post, I have been on the struggle bus recently. My stupid body has been making it difficult for me to get a whole bunch of things done. This has left me clinging even tighter to the things that I can master. Since one of things also offers an opportunity to sprinkle a lot festive spirit, I have been diving right into it. Thus, I give you even more xmassy nails.
I did this manicure at around 3am because pain woke me up & couldn’t get to sleep. I was exhausted and so the design is fairly random. Still pretty jolly!
Next up was was an icy blue set. I’ve been trying to get snow flakes right for the last two christmases. I think this year I finally nailed it. Do you agree?
I’m currently sporting this lovely glittery design. Another mix & match inspired by various festive bits. I like them, but have managed to break one nail & chip another already. The brushes will be coming out again tomorrow.
Bronan remains entirely struggle free. Oh to be a cat.
I’m having a rough time. Everything is a bit of a struggle at the moment, so I’m going to do a wanky, hippie dippy post. Feel free to clock out because I’m about to deep dive into gratitude.
All the Basics
I have a safe, stable home. Food in the cupboards. Running water, central heating. Access to healthcare. A comfortable bed & wardrobe full of clothes. My basic necessities are taken care of and that’s more than a lot of people can say.
And WhatsApp, messenger, zoom & all the other clever doo dahs that allow me to keep in touch with folk. A friendly face or some carry on helps brighten my day.
Bought on a whim. Incredibly ugly, but oh so kind to my joints.
Aloe Vera is a genius plant. First & foremost it’s hard to kill. If you don’t have plant mum skills aloe is for you. It looks good, it adds oxygen to your room & it’s even easy to grow more from cuttings etc. Added bonus, our bodies love aloe. Need a moisturise, got sunburn, heat rash, a blister? Cut open a leaf and whap it straight on. Upset tummy, mouth ulcers, bad breath, ibs? Add a teaspoon to a glass of water. Wonder plant*
I have a lot of issues with no permanent cure. Hence I have grown to appreciate a temporary solution. Diazepam is certainly not for long term use, but it bloody works for a day or two when your brain thinks the world is attacking you. Jane Austen will not fix my life, but she will soothe things for an hour or two. Whilst mint tea can’t cure my stomach disease, it can soothe the spasms attempting to eat lunch caused. They will return, but the minty goodness will buy me enough time to get home. Temporary solutions are various & abundant. Hugs, hot baths, sex, lidocaine patches, a big glass of wine… Moments of respite are better than none at all.
Everything about the sea is soothing. The never ending expanse of it, the smell, the sound of the waves lapping. I always feel calmer by the shore. I can breathe deeper and see more clearly. Pretty lucky that I live on an island. The dazzling deep blue is never too far away.
My lovely big loyal boy. Always gentle. My own living hot water bottle. An adorable wee tyrant who has me wrapped around his paw. Who doesn’t want to be awoken by a meowing creature in their face at the crack of dawn every morning?
I like how brooding he is and that head moving to maintain eye contact thing he does on Law & Order. He seems like he’d be clumsily kind if you were feeling bad. He’s always despicable when he plays a baddy, which I like, no half measures. I get completely absorbed in the character when I watch him. I always believe it. Also, good name.
Summer Rain Showers
I like the ones that come on heavy, but run out of juice quickly. Summer rain smells good, it freshens everything up and gives me a good excuse not to hang the washing out.
It is really bad for me, but it tastes soooo good. Big icy cold gulps. I don’t know how to quit you, Diet Coke.
Statement specs bring me joy. If I have to wear glasses every day they are going to be splendiferous. Big, colourful, can’t be missed face furniture is the only kind I will consider.
It’s very sexy when a person is that good at anything. He exudes the confidence of knowing he’s top of his game. He can slag off the bad guys with impunity because he leads a pretty decent life. He is cute and funny and incredibly smart. I’ve always been fairly sure that he has a huge, beautiful dick too.
This might be where my sincerity gets too much for you. I care not. Life really wouldn’t be worth much without love. Giving or receiving, it’s wonderful. All those little thoughtful things a person does because they love you. Tiny gifts, texts, snapping a pic of something you’ll like. It all feels good. The warmth of knowing I’ve made someone smile or that they wanted to make me smile. Being able to comfort with your words or a cuddle. Sharing milestones & cups of tea. Love is the point, right? How can we not feel grateful if we have it.
A new thing for me and I like them. Wearing a pair to bed is so much better than using a tampon & worrying you might sleep too long. Likewise, so much better for those last days when you’re not quite sure if your period is actually finished or not. I can’t stand the feel of sanitary towels. Nor do I relish the sensation (or risk) of pulling dry cotton from my body. Period pants are a comfy godsend.
I’m so happy to live in a time (& place) of choice. So many aspects of my life offers abundant options. I can access almost any song in the world from my phone. Look up current affairs, trivia, what time the chemist closes by pressing a few buttons. I have films, shows, games, podcasts, strangers & friends at my finger tips. Whatever food I fancy can be delivered to my door. In theory I can pursue any career I’d like. I can vote how I choose. Do as I please with my body. Get married or not. Sleep with who I want. Wear what I like & go wherever I want (pandemic aside). Choice is not to be sniffed at.
Hallelujah for folk who will sort the garden in exchange for money. I am physically & constitutionally unsuited to maintaining outside spaces. I do however enjoy utilising them. I also like not stressing about ever encroaching weeds. I will never underestimate the peace securing a good gardener brings.
I have seven perfect niblings. My oldest niece is the smartest, coolest, kindest 11yr old you will ever meet. She will always be my little muffin, but she has grown into a person who makes me so proud. Then there are my brother’s boys who are his complete mini mes. His oldest is so patient & protective with his little brother. It is gorgeous to watch. My sister’s boy is half rascal pirate, half total love bug. He is a joy to be with. My bestie’s big girl is so cute & sassy. She may only be three, but that girl knows what she wants. Then there are her brand new little brother & sister. Newborn twins are a hand full but man alive are they adorable. I am so lucky to be part of their lives. Helping them become the people they want to be is an honour.
Parking spaces, toilets, seats right by the door on trains. I love them all. Anything that takes into account that every step hurts is a life saver. Extra space, bars to hold onto, not having to wait, all make my life immeasurably easier. Disability can rob you of dignity in so many ways. Things that allow me to navigate public spaces without being humbled are magnificent.
Sister Tik Toks
I love it when my sister and I send each other tik toks. I feel very seen when she sends me clips that make me laugh out loud or that relate to some shared experience. Having a sister is a lovely thing. Having a sister who gets you is even better.
Life has turned out to be harder than I had imagined. Amongst the struggle it helps me to acknowledge all the little & enormous things that make it worthwhile. I know it’s cheesy, but give it a whirl.
*Not a cure or medicine. Speak to your dr about any health concerns.
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It’s been another weird lockdown month & i’m only just catching up with myself. I’m getting round to my charity of the month at the last minute (again).
For March I have chosen to support the PDSA. As animal lover I’ve always thought the PDSA do excellent work, but recent months have shown me just how essential they can be. Bronan, my cat, was diagnosed with Diabetes about 8wks ago & man alive are those vet bills adding up.
I’m lucky to have pet insurance, even with what I thought was a comprehensive policy, there is so much that isn’t covered. It’s really highlighted just how much an ill pet can cost. With insulin, needles, sharps disposal, regular blood tests & examinations I can easily see how it could quickly become unaffordable. I am so glad the PDSA are able to step in for those in financial need. I can’t imagine being forced to make treatment decisions for a much loved pet based purely on finances. Given covid & all its implications so many more people are likely to be in this position. Hence, the PDSA are feeling the strain. Please give whatever you can spare.
Since we’re talking about my beautiful boy I’m want to share the symptoms that first raised the alarm. The problems he had were fairly minor & I would never in a million years of thought they indicated such a serious issue. The first thing I noticed was him limping on his back right leg. Next he began to go outside much less & was just not quite himself. My first though was that he had injured himself. When he didn’t improve after a couple of days I thought perhaps it was wear & tear on his joints. I consulted my vet mainly thinking he needed some pain relief. I am so glad I acted quickly. The longer it takes to diagnose diabetes the more damage can be done. So, here are some signs to look out for.
Limping, unsteadiness particularly in hind legs.
Increased appetite & thirst.
Issues passes urine/ unusual toilet behaviours.
Sleeping more often than usual.
Take care of your four legged friends & if you can make a donation to help the PDSA look after lots more.
The world is in an extra big mess this Christmas. Corona have wreaked havoc and not many of us are feeling financially or emotionally buoyant. With that in mind I thought a little giving might do us all good.
A little can make a huge difference to the life of a person dealing with homelessness. Social Bite can provide a Xmas dinner or emergency winter food pack for just £5.
Kids out work with children living in refuge. At this time of year the ask for donations of Xmas gifts for little ones who may not otherwise receive any. They simple requests are so humbling. They are hoping for so little. You can select a gift that suits your budget & but it online here.
Centre Point so amazing work with homeless youth. Christmas dinner can be a really important symbol, especially for young people who cannot be with family. Ten pounds can cheer up a lonely Christmas with a delicious xmas dinner.
Cats Protection can feed a cat in their care for 50 days with a £10 donation. I’d adopt them all if I could, but helping others take excellent care of them is the next best thing.
If you have no cash to spare, but still would like it help keep someone warm this winter, The Big Issue can direct you to a drop off point near you. As temperatures drop coats are desperately needed. If you have an unwanted winter warmer in your wardrobe please pass it on!
It’s been ‘ugh’ for a while now and I’m in danger of wallowing in a big puddle of woe is me. I’m making efforts to feel better. I started by tackling my inbox and then tried to clear some light housework. Ticks on my to do list helped me feel less useless. Now seems a good time to build on that by counting my blessings.
So, today I am grateful for,
My big comfy bed (& no one snoring, farting or otherwise bothering me in it).
My fridge holds soups & fruit juice galore. My stomach only wants these & the occasional bread product.
My demanding little purr ball.
Excellent new Jim jams. They have pockets and are so soft I keep stroking myself.
Hot running water.
The sick & ridiculous humour of the Small Town Murder podcast.
A plethora of supportive & loving people.
All the perfect little ones said people have made.
The writings of Sara Pascoe & Barbara Trapido
Free and accessible healthcare. Big love, NHS.
The freedom to drift in and out of sleep as needed.
The phone steriliser relieving covid related iPhone anxiety.
Messages of love from my big muffin.
Lemon & lavender scented heat pads.
A room festooned with beautiful blooms.
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