You know you want it…

I really want to write about the whole Kavanaugh debacle, but I find myself too filled with rage to be coherent. He is the perfect example of how deep misogyny runs. From the tired old ‘why did she wait so long’ & ‘boys will be boys’. To his openly disrespectful treatment of female senators and the hypocrisy surrounding how male displays of belligerence & tears are strong and riveting, whilst a women doing the same would be hysterical and unfit for the public office. It’s the patriarchal home run. The really horrifying thing is I’m not convinced any of it will stop his confirmation. We keep thinking we’ve made progress, but it’s lip service. Crumbs.

I am disgusted. And exhausted.

Someone else summed it better. I’m just going to leave this here.

For the avoidance of doubt, I Believe Her. Dr Blasey Ford is a hero.

All things must pass….

Last week I finally got an appointment with the pain specialist I have been waiting see. I had pinned my hopes on this Dr having some answers for me. He did. Unfortunately it wasn’t a diagnosis I wanted. 

My new consultant is convinced that I have Fibromyalgia.  As you may know I have been living with chronic illness for some time. I have a number of debilitating digestive tract issues. I also have problems maintaining a healthy haemoglobin level, which causes a raft of symptoms ranging from fatigue to angina attacks. Along with these known conditions I have increasingly had mystery symptoms. Pains with no definable cause, intensification of pain resulting from my health issues, continual sleep disturbance despite taking really quite strong sleeping pills, confusion , memory loss & needing to pee constantly. Add that to my existing physical symptoms & PTSD and you begin to get picture of what I’m dealing with. 

Pain in particular has been taking over my life. It limits almost everything. I can’t make plans, my social life has contracted & working outside the home is impossible. Even keeping up with housework is a mammoth task. I needed help. I was clinging to the idea that someone would find a problem that could be fixed. That I’d be offered surgery or medication of some crazy treatment, at the end of which I would reclaim some of my life. I knew that my diagnosed problems wouldn’t go away, but I held out hope that these newer cryptic concerns would be cured. Sadly, that is not to be. 

There is some relief in having someone say this is what’s wrong with you. I am glad not to have been patronised or had my mental health blamed again. I just wish the outlook was a bit sunnier. Since Thursday I have been adjusting to the fact that my pain is never going away. My current condition is likely to be my continuous one. I’ve had to read up on fibromyalgia & prepare myself for all it may mean. I have also been confronted with the new knowledge that pregnancy, which was never going to be straightforward is hugely impacted by fibro. This has been a big blow. I’ve wanted to be pregnant for a very long time. Knowing that I will most likely struggle to enjoy the experience is a punch in the gut. 

So, accepting this new diagnosis is a process. However, I am by no means defeated. I will start a new medication tomorrow. It’s likely to be a rough ride as it is harsh on the stomach, but the pain relief it can offer is worth trying for. I’ve already been referred to various groups & medical professionals. I’m doing my own research; I am open to anything. Expect to join me on a journey of experimentation with pain management techniques. 

I refuse to be beaten by this. Which is not to say I won’t bitch or wallow sometimes. I’m not superwoman. I accept my body will always place limitations on me. I also acknowledge that I am nowhere near to being at peace with that. I’m angry and sad, but not defeated. I have a very clear picture of the things I need to be happy. It’s just a case of working out how to achieve them within the confines of my illness. Let’s face it, I’ve been playing with a bad hand for a while, but I can bluff my way to a win. 

  

Swallow it down….

I’m struggling to believe that Jagged Little Pill is twenty years old this month. How can two decades possibly have passed since Alanis first got angry? More importantly how the hell did I get so old?

  

Jagged little pill has always been special for me. From teenage not quite angst to bonified adult pain, Alanis has had my back. So, I thought I’d pay tribute to an epic album & the journey we’ve been on together. 

Let me take you back to the start.  I’m 14yrs old & life is good. I have lovely friends, great home life, I do well at school. There is no teenage misery for me. There is however, frustration; a sense of being on the brink of life. I’m beginning to build a picture of what I want from life. I’m challenging some the things I’ve been taught & I don’t feel like my life view is taken seriously. In amongst all the vexation is an excitement. Possibilities are starting to fizz, I am aware of the power of youth & I can’t wait to weild it. I see right through you encapsulated all that I was feeling & I took every opportunity to sing it at the top of my lungs. 

Fast forward a few years and I’ve finally extricated myself from an unhealthy relationship. I’m heartbroken & angry. Angry that someone has been so cruel & furious with myself for allowing it. It’s Alanis to the rescue, I am certain I’m not the only woman who played You oughta know at full blast, cried her eyes out & felt a little better. 

I had some dark days in my twenties. Dealing with the trauma of miscarriage & resultant depression whilst trying to hold my life together took it’s toll. I became really ill & eventually had to ask for help. The lyrics to Mary Jane really touched a nerve back then. The realisation that I had to admit I wasn’t ok was a hard one, but there was some relief in listening to words I could relate to. It’s amazing how powerful just not feeling alone in your predictament can be. 

Anyone who has experienced difficult periods will tell you that it makes you really appreciate good times. When you’re fighting through bleak lows of severe depression the first glimpses of being ok are beautiful. The relief of finding that right now in this minute you are content makes you want to sing & dance. Hand in my pocket is the perfect tune to accompany this feeling. It’s not about joy or any of the big feelings. It just perfectly sums up the sensation of knowing you can make it. It feels good to believe that  ‘everything’s gonna be fine fine fine’.

A big part of maintaining happiness is knowing when to put yourself first. I have not always been great at this. Knowing when to say no was a hard lesson to learn, but such a valuable one. Walking away from toxic, all take & no give relationships was like shedding dead weight. Suddenly Not the Dr made so much sense. Reaching the conclusion that I was not responsible for other people’s happiness freed me to enjoy the peope who mattered. Sometimes you have to let go. 

You learn is bitter sweet. It signifies getting to a place in my life where I  I’d learned from all my trials. It’s nice to feel in control. In an unfortunate twist of fate mastering one set of problems coincided with the onset of others. This song also represents my chronic illness. The notion of a jagged little pill brings to mind both the handfuls of meds I must take & the metaphorical swallowing of hard to digest facts. 

After all that serious stuff this post needs a little love. Head over feet celebrates that moment when you know for sure that you’ve picked a good one. There is something wonderful about the kind of love that comes without a fuss. Head over feet is all about the bliss that comes with being with someone who treats you right. 

There you have it. Jagged little pill has been my musical friend for many years. There aren’t many thing in life that you love as much at 34 as you did at 13 & this is one. Every time I hear this album I still get all the feels & for me that’s the mark of a classic.