All things must pass….

Last week I finally got an appointment with the pain specialist I have been waiting see. I had pinned my hopes on this Dr having some answers for me. He did. Unfortunately it wasn’t a diagnosis I wanted. 

My new consultant is convinced that I have Fibromyalgia.  As you may know I have been living with chronic illness for some time. I have a number of debilitating digestive tract issues. I also have problems maintaining a healthy haemoglobin level, which causes a raft of symptoms ranging from fatigue to angina attacks. Along with these known conditions I have increasingly had mystery symptoms. Pains with no definable cause, intensification of pain resulting from my health issues, continual sleep disturbance despite taking really quite strong sleeping pills, confusion , memory loss & needing to pee constantly. Add that to my existing physical symptoms & PTSD and you begin to get picture of what I’m dealing with. 

Pain in particular has been taking over my life. It limits almost everything. I can’t make plans, my social life has contracted & working outside the home is impossible. Even keeping up with housework is a mammoth task. I needed help. I was clinging to the idea that someone would find a problem that could be fixed. That I’d be offered surgery or medication of some crazy treatment, at the end of which I would reclaim some of my life. I knew that my diagnosed problems wouldn’t go away, but I held out hope that these newer cryptic concerns would be cured. Sadly, that is not to be. 

There is some relief in having someone say this is what’s wrong with you. I am glad not to have been patronised or had my mental health blamed again. I just wish the outlook was a bit sunnier. Since Thursday I have been adjusting to the fact that my pain is never going away. My current condition is likely to be my continuous one. I’ve had to read up on fibromyalgia & prepare myself for all it may mean. I have also been confronted with the new knowledge that pregnancy, which was never going to be straightforward is hugely impacted by fibro. This has been a big blow. I’ve wanted to be pregnant for a very long time. Knowing that I will most likely struggle to enjoy the experience is a punch in the gut. 

So, accepting this new diagnosis is a process. However, I am by no means defeated. I will start a new medication tomorrow. It’s likely to be a rough ride as it is harsh on the stomach, but the pain relief it can offer is worth trying for. I’ve already been referred to various groups & medical professionals. I’m doing my own research; I am open to anything. Expect to join me on a journey of experimentation with pain management techniques. 

I refuse to be beaten by this. Which is not to say I won’t bitch or wallow sometimes. I’m not superwoman. I accept my body will always place limitations on me. I also acknowledge that I am nowhere near to being at peace with that. I’m angry and sad, but not defeated. I have a very clear picture of the things I need to be happy. It’s just a case of working out how to achieve them within the confines of my illness. Let’s face it, I’ve been playing with a bad hand for a while, but I can bluff my way to a win. 

  

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13 thoughts on “All things must pass….

  1. ❤ ❤ ❤ you have the best outlook i could imagine at this point. i'm so sorry this is happening to you. there is surely a roller coaster ahead. sending you a ton of love and prayers from me and olive! ❤ ❤ ❤

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      1. so weird! i wrote this: you have the best outlook i could imagine at this point. i’m so sorry this is happening to you. there is surely a roller coaster ahead. sending you a ton of love and prayers from me and olive! (with hearts around it. maybe adding the emojis messed it up? i can see it)

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  2. I don’t really know what to say, because sometimes there just aren’t any right things to say. I just wanted to comment because these are the things I’m going through right now, my doctor is convinced I too have Fibro and between waiting for specialist appointments, MRIs, and the dream that someday their might be a cure for this horrendous pain. So I just wanted to say I wish you all the best, I hope you find relief whenever possible.

    Aj xx

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  3. Has anyone tested you for celiacs disease every symptom matches it especially the pain. Mines went undiagnosed for years got told a lot of different things including the it’s all in your head. But celiacs diet has fixed 90% of my issues x

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