If I had a little a money…

In recent weeks the cost of disability debate seems to be all over the place again. Mainly able bodied folk rudely telling disabled folk what we do & do not need. It is of course offensive and exceptionally annoying to be on the receiving end of this. Debating your reality us never fun. Hence, I thought I’d do a little run down of the day to day expenses that my disabilities incur. I am far from the worst case scenario, so bare that in mind when you’re processing this.

It feels important to make it clear that sick & disabled people are rarely just given the things they require. There is a myth that equipment, money, human support & treatments are just handed out to anyone asking. They absolutely are not. Any help we do receive is procured through humiliating assessments, long waiting lists & much general fuckwittery. At the end of which our requests are often denied. It’s a special kind of torture to lay yourself bare to unfeeling beaurocrats only to be gaslit & told you’re fine. Or, sometimes even more frustrating, It’s accepted that you need help & such help exists, but it is not available to you for ‘reasons’. We are screwed over time & again, left with the option of paying for the thing ourselves or never getting it. When the thing that must be paid for is essential, that’s not really a choice.

So, bearing in mind that many disabled people’s ability to work full time (or at it all) is impacted by their conditions, how do you think your pocket would deal with this.

Travel

I can’t get around much on my own as I can’t walk very far. During Covid public transport has been even less of an option for me. I have to take taxis everywhere. Using last week as an example, this costs:

  • Hospital App – £11.80
  • Visit Bestie – £11.30
  • Vet – £8.60
  • Pick up Bronan’s Prescription- £8.80
  • Post Office – £8.60
  • Work Meeting – £22
  • Weekly Total – £71.10

Pain Relief

Lots of really effective pain relief options are simply not available via the NHS. These are pain management related items I have had to buy.

  • Heat Pads – £5 per 3 pack.
  • Tens Machine – £65
  • Tens Pads – £5 per 10.
  • Long Hot Water Bottle – £20
  • Microwaveable Heat Pouch – £15
  • Dragon Balm – £2.50 a jar.
  • Lidocaine Patches – £60 per 10 pack.
  • Vape – £35
  • Cbd Oil – £15 per 50ml.
  • Freeze Spray – £1
  • Paracetamol – 56p per 12
  • Massage – £70 per 60 mins.
  • Kinesiology Tape – £5.50
  • Yoga Mat – £20
  • Foam Roller – £12

Disability Aids

I believe some local councils will fit disability aids in social housing or if people meet certain criteria. Unfortunately I do not live in social housing nor meet those criteria. Thus, I had had to purchase any device I require.

  • Walking Stick Ferrule – £5
  • Easi Reach – £10.99
  • Easy Open Food Containers – £25
  • Jar Opener – £5.50
  • Easy Veg Chopper – £20
  • Multi Bottle Opener – £5
  • Auto Can Opener – £15
  • Lotion Aplicator – £8
  • Walking Stick Seat – £25
  • Sock/Tights Aid – £8
  • Bra Angel – £17
  • Hook/Zipper Assist – £6
  • Suction Grab Handles – £28
  • Shower Seat – £35
  • Wearable Tens Holder – £20
  • Press on Lights – £10 per 3 pack.

Services

There are jobs that must be done regularly that I am incapable of doing. There is no support for such things, so I must pay people to do them.

  • Grass Cutting – £45
  • Hedge Cutting – £60
  • Weeding & Garden Tidying – £100
  • Wheelie Bin Cleaning – £8
  • Window Cleanimg – £8
  • Bathroom & Kitchen Deep Clean – £175

On top of the costs outlined most disabled people also report spending more on bills. My gas bill tends to be high as I have a greater need & more difficulty keeping warm. My electricity bill soars with the need to charge various essential aids & technology. My food shopping is increased by the need to purchase lots of pre prepared fruit & veg, free from items to accommodate my dodgy stomach, plus the cost of food waste when I am unable to cook/eat. Having everything delivered incurs a cost as does working from home, which both add to my outgoings. In fact, Scope reports that on average disabled people face extra costs of £583 per month. That’s only accounting for necessary day to day living.

Should a disabled person attempt to do anything beyond the basic there will of course also be additional costs. Try going on holiday, trying a new hobby, undertaking to study a new discipline and you will find that there are always extras/different apparatus to enable a disabled person to take part. Almost every aspect life presents a bigger bill.

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Oh I do like to be beside the seaside…

Oh my god, it’s happening. Lockdown is easing & I went somewhere nice. I put in some mascara. I picked a pretty outfit. Stage 1 of project live again is go!

We’re still quite restricted in Scotland (better safe than sorry), but things are moving. We can now travel out with our local area for non essential travel and see up to 6 adults outdoors. That may not seem like the most exciting development, but it is making me woohoo. We took advantage of the sunshine yesterday and embarked on a mini road trip. My sister, Mum, the boy & I hit the beach. We really do like I be beside the seaside.

The little man is a total beach baby. He literally rolls around in the sand & loves it. We made pirate islands, volcanos & buried everyone’s feet. Needless to say we brought half the beach home with us.

Toddler burying feet and lying in sand

I also found a minute to watch the soothing waves and snap some outfit pics. Here’s to a long hot summer with loved ones!

ly is standing by wall with beach in background. She is leaning on acealking stick wearing cat print swing skirt, sheer t shirt &  sunglasses
Skirt – Lindy Bop
T-Shirt – Pretty Little Thing
Kimono – Boohoo
Sliders – Pillow Slides
Sunglasses – Wherelight
Calm blue sea & sandy beach
Red glitter text necklace  spelling ‘fuck Boris’
Necklace – Topple and Burn

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You wear it well…

We have a new strain and new lockdown. Infection rates are rising. As are long covid cases. I can attest that the long term symptoms are a struggle. Now is not the time to get lax. Please stay home as much as you can. Wash those hands every opportunity you get and wear a damn mask.

With a mask you can show that you care about the welfare of others and make a statement. Facemasks don’t have be boring, go for it!

I have a Sara Conde and I love it. Handmade, three layer with a nose wire. It’s super comfy & she has the cutest prints. Who wouldn’t want all these beautiful boobs on their face?

I’m a loud & proud feminist, so this amazing design from KultKutie Handmade rings my bell. If you want to support the sisterhood & public health, this is the way to go.

The advent of masks has scuppered our lipstick game. If you’re missing a big bold lip, KhaatiMeethiLondon has got you.

Fuck the Tories can do no wrong in my eyes. This lyrical beauty gets your point across with a little humour. Three layer with a filter. You’ll feel safe & sassy.

If like me you are prone to losing things DearSoho have the cutest fix. Chains that will up your cool factor and ensure your face mask is always at hand.

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We can be richer than industry…

When I first heard about second hand September it seemed like an excellent idea. However after listening to some small businesses I have realised it’s not so simple. With the covid pandemic already putting a massive strain on independent makers a whole month of reduced sales could be the final straw for many.

Obviously reducing waste & our reliance on fast fashion is an excellent goal. Buying second hand is not the only way to go about reaching it. By shopping with small businesses we can minimise support for damaging practices whilst boosting ethical traders. If you’re looking for some excellent places to spend your money I have some suggestions for you.

Grlclb create clothing & accessories with a radical message. They’re size inclusive and offer a pay it forward scheme to help folks with less spending power. Stock is handmade to order meaning no waste. I’ve been after some of their gear for ages, but could never decide which design to opt for. I finally took the plunge and am eagerly awaiting my purchase.

Three models wearing grlclb tees

Fuck the Tories are an old fav of my mine. Their name sums up the company’s mission. The jewellery they create is beautiful & makes one hell of a statement. These guys support lots of charities. They even offer freebies to customers short on funds who need a lift. Isn’t that the kind of business you want to give your money to?

Fuck the Tories hoop earrings and fuck the daily mail necklace

Rosana Exposito designs gorgeous and extremely wearable clothing. All handmade in limited numbers from natural fibres and deadstock. These pieces are timeless. Rosana is another supporter of good causes including donating profits from her face masks to Glasgow Night Shelter. From stunning silks to quirky metal accessories every piece is a dream.

Orange linen trs,  linen face masks  grey & black skirt all by rosana exposito

Lucky Sew and Sew are a mother & daughter team crafting stunning lingerie. They are completely body positive, with each piece bring custom made. These beautiful pieces are created from surplus stock & fast fashion left overs. I am desperate for a set of earth friendly undies. These are next on my buy list.

Leopard print and galaxy print bras by lucky sew and sew

There are so many fabulous independent makers pursuing ethical production. You will be thrilled to discover what treasure you can find whilst also supporting amazing people.

We’d all love to see the plan…

Watching the seriousness of the corona virus sink into the general conscious has been a very strange experience. For the first time I am seeing healthy people get an insight into my life; en masse. It’s not pretty for anyone.

I want to preface this by saying this absolutely not an ‘I told you so’ (unless you’re a Tory, in which case, we did tell you so. Please do better). I really don’t want to see anyone suffering. I take no pleasure in the fact that a whole lot of people are about to share in the injustice & indignities that disabled people have grown accustomed to. It saddens me, but I suspect an awful lot of people are going to discover what we meant when we said this could happen to anyone. No matter how fit or successful, most of us are much closer to needing a safety net than we ever imagined before the fall.

Grlclb tories kill t shirt

*

Anyone who’s ever had long term health issues already knows that most employers do not give a shit about their well being. The chronically ill are fully aware that our government couldn’t care less if we die. I know it is hard for able bodied, healthy people to grasp, but the powers that be are not concerned with making sure you can survive. It matters not that statutory sick pay isn’t enough to live on or that some won’t even qualify for it. Big business will prioritise their profit before your health. They’ll fire as many as needs be to plug a cash leaking hole. There will be backlogs because so many desperate people require help. The DWP & all the other faceless government machines will treat you like a subspecies. Boris & his buffoons don’t care if you can’t pay rent or feed your family. The underfunded NHS will buckle under the increased strain. They’re already telling us to prepare for our loved ones to die. Let’s be honest, most of the cabinet would be quietly delighted if the vulnerable are wiped out.

As always, those with the least will suffer the most. The rich will access tests & treatment that most of us cannot. They can afford to hole up in safety & comfort. They will profit from this global crisis. Private hospitals renting beds to the NHS, politicians insider trading, corporate bail outs for tax evading entities. It has to stop.

Reina sultan tweet

It’s already evident that the every day working people are relying on each other. The community spirit is admirable. I am so glad that people are looking after each other. However, it’s time we gathered that solidarity for change. Huge, impactful societal change. We must organise. In times of crisis it becomes clear that it’s the bottom of power tree that actually make the foliage bloom. Please let this radicalise you. Find the grassroots social movements in your area and get involved. Write to your representatives. Join rent strikes, sign petitions, vote when the times comes. Remember who stood with you during this pandemic. Let’s start elevating and rewarding the people we can trust to strengthen our safety nets.

Protest sign with capitalism kills more than corona virus

* you can buy this amazing t shirt here. (Not an ad)

I wanna hold your hand…

Valentine’s Day is rolling up this week. I know it’s a marmite type celebration, but I’ve always liked it. I think it’s nice to devote a day to being a little soppy or sexy or both. Obviously don’t save it all for that one day, but a bit of extra lurve in the depths of winter is no bad thing.

That said I know that not everyone is feeling romantic. Some folk are lonely, some revel in their Singleton status, some eschew the expectation of performing on a certain day. All are absolutely right to feel what they feel. So, I thought I’d offer a range of valentine’s gifts to suit all. Buy them for a lover, a friend, yourself or just because they’re cool.

She’s Angry is one of my favourite insta accounts. I pretty much love everything they create. Their Self healing piece proudly hangs on my bedroom wall. This is another triumph.

She’s angry print. A woman wearing white pants with the words I said what I said across her collar bones

She’s Angry

These stunning creations are high on my wish list. They are the perfect gift for yourself & any gorgeous chick in your life. What could be better than having your self love emblazoned on your arse?

Plus size model wearing lingerie with self brings beauty embroidered on

Felicity Haywood Playful Promises

If you’ve had it with the romance & just want to get physical, make yourself clear with this pendant. I love a bit of crude humour. When juxtaposed with the traditional/delicate I love it even more.

Good love heart pendant with the inscription, less talk more cock

Nouvelle Nouvelle

On a sweeter note there is this cute lamp. If your house is full of love or you’re trying to will it so, this cute neon is a perfect addition.

Desk last lamp with red neon ‘love’ inside large exposed bulb

Not on the High Street

Now back to the bawdy. If you want to add a bit of kink to your life; Spunk Rock is the place for. Whether it’s sexy prints, drag queen portraits or one of a kind commissions, art doesn’t get hotter. I own a few of their pieces & I cannot wait to purchase more.

Spunk Rock

Do you have someone special, but are still feeling a tad pissed off at the world? Why not combine the romantic with the radical. Any politically informed hottie would be delighted to sport this ring.

Gold & silver band rings engraved with fuck the Tories

Fuck the Tories

I shall end on a frothy note. This cute print takes references from The Beatles & Friends. It’s gentle, pretty & the right kind of soppy.

Print of a lobster with the words, I wanna hold your hand

Blank Inside Design

Power to the people…

I’m utterly disgusted at the election results. Beyond that I am saddened & scared. English & Welsh working class voters supporting Tories is incomprehensible. To sell out hungry children, homeless & disabled people for Brexit is vile. The future looks terrifyingly bleak. Our NHS is in real danger & the most vulnerable people in our society are likely to persecuted further. I am grateful for the limited protection being in Scotland offers me. It has never been more clear that we need to be free of this rotten union. My heart goes out to all those who fear what the future brings under another Conservative government. More than ever we have to do what we can for those who will be left in need.

Blue skinned beast…

I’ve never been a shrinking violet. If I feel strongly about something, you’ll know it. I’m not scared of being noticed or to look different. All of which makes Fuck the Tories one my favourite brands.

Jewellery box with glittery fuck the tories business card

If you haven’t checked them out yet, hop to it. Not only do they make fabulous radical accessories, they also support great causes. It feels like we are living in some kind of alternate political reality at the moment. I rush from disbelief, to rage, to despair on a daily basis. The ascendence of Boris to PM has only made matters worse. So, the new range of Fuck Boris necklaces are a very glittery outlet for my frustrations.

Red glittery fuck Boris necklace in jewellery box

I know wearing a necklace won’t change anything by itself. It does make me feel a little better to express my disgust and connect with like minded people. I will continue to do everything else in my power to affect change. I hope you will too. Protest, contact your MP, sign the petitions, vote! In the mean time you can enjoy the satisfaction of supporting an amazing small business & voicing your opinionated loud and clear.

Drink to that…

On Saturday I hit the Eaglesham Beer Festival with the Toyboy. The weather forecast was hot with thunder storms in the late afternoon. Not exactly the easiest weather to dress for, but I pulled it off.

Once the temperature rises above 18 degrees I start melting, so I needed something that I wouldn’t expire in. Luckily for me I stumbled upon this cotton beauty on Friday. If you feel like you’ve seen it before, you have. I already fell in love with it’s red counterpart; it looked so cute in stripes that I couldn’t resist it. They have a few other colour ways, so don’t be surprised if it pops up again.

ly h Kerr

Dress – Primark

Kimono – Asos Curve

Jellies – Forever21

Anyway, it was perfect. Breathable, comfortable & adorable. That still left those pesky rain storms to cater for. Again I had just the thing, my hot pink super Mac. This was a rush, panic buy for my weekend away, but turns out I love it. In the end it only rained half heartedly for 10mins. I was more than prepared.

ly h Kerr

Rain Mac – Asos

I completed my outfit with jellies (the perfect wipe clean shoe) & my brand new necklace. I’m not even going to bother saying a single about it because it speak loudly for itself.

ly h Kerr

Necklace – Fuck the Tories

So, the sun shone & the Toyboy enjoyed his beer. I mostly lounged on bales of hay enjoying the music. Thumbs up to Street Food Putter Club for the tasty falafel burger & Let’s Get Eclectic for the tunes.