We go together…

I received an early Xmas present today. If I get a present early, I open it because delayed gratification is not my jam. However, I had permission to get into this one. In any case, I am utterly in love with it & the person who gave it.

That affection got me thinking about something I saw discussed on Twitter. The old ‘internet friends aren’t real friends’ debate. Obviously I don’t agree. This thoughtful, beautiful gift from a dear friend who I originally met online drove me to elaborate on that. I definitely think it is possible to be catfished (deliberately or not) into friendship online. You can ‘meet’ people with whom you have one thing in common & so can maintain an online relationship with, but it likely wouldn’t sustain an actual in person friendship. You can find people who purposely deceive or folk who are just able to portray a persona online that they can’t quite manage in life. Of course there are dodgy folk, lonely folk & even dangerous people who can use the internet to their advantage (& your disadvantage). I accept that’s all true. However, the flip side is all the wonderful people you might not ever have the chance to meet. This is were I come in.

Due to mental illness, chronic illness and working from home I have been perhaps more online than most folk. Or at least I’ve been more online for longer than a lot of people. As a result of that I have made genuinely good friends via the internet. I found understanding & acceptance from strangers on my computer when no one in real life really got my self harm. I’ve connected with a fat community that I would never have had access to outside of the web. Both of those groups changed my life. Networking with other freelancers has led to friendships along with work opportunities. I have been able to work with editors, organisations and publications via social media connections that have progressed my career. Beyond that I have met & built real relationships with people I have met through appreciating their art, respecting their activism or just firing them amusing online.

Those connection points have grown into really meaningful friendships. People I have gone on to meet and cherish. I have friends I consider an integral part of my life who started out as anonymous screen names. I think social media and the internet in general can generate valuable relationships. I also believe that the notion that those friendships aren’t real is inherently ableist and othering. Disabled and chronically ill people often rely on the internet for many things that others can access by leaving their home. In addition people who for whatever reason find themselves outside the norm can find like minded communities much easier online. The ability to do that is crucial.

All of which brings me back to that gift. My super talented friend Sarah created this wonderful digital portrait. It’s taken from my sister’s wedding and I feel so lucky to have it. I would never have met Sarah in real life. She lived far far away when we met (& even further now). Nevertheless, we have a shared history and understand of each other that is very special. So, thank you internet for bringing this woman into my life. And, thank you Sarah for this gift.

Digital portrait of Ly wearing green swing dress. Standing with her hands on her hips

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The hurting time…

Chronic illness becomes a way of life. You don’t stop feeling bad, but you do get used to it. Humans adapt. Pain becomes the new normal.

Most days spoonies deal with symptoms that would send healthy folk to the Dr. On bad days many would be considering 999. Chronic peeps, however, muddle through. Sometimes flare ups floor me. There are days when brushing my teeth is an epic feat. Others I function to varying degrees. I work & play & everything in between. Always, though, I hurt.

I pay the price if I over do it. I carefully plan routes & venues around how many steps will be required, if there is seating, stairs & so on. I pre check menus for items that won’t make me sick. Plan meals around when meds need to be taken. I do everything tired. It’s so hard to sleep & even when I do crash I wake feeling little difference.

Selfie of women’s sad face.

I found a way to work around my illness. Squeeze pleasure out of any socialising I can manage. I have become accustomed to cancelling things I really wanted to do. The list of things my body is no longer capable of grows. It’s ridiculous how sad felt upon realising I won’t jump on trampoline or turn a cartwheel again. Especially when I don’t even have much desire to do either. It’s just another limit. Another no.

I persevere. I follow Drs orders. I try all manner of suggested remedies. Acupuncture, cbd, floatation tanks, tens, yoga, the works. Some treatments help. There are medications that work wonders. Others that I need, but that cause problems. I take drugs to counteract the side effects of other drugs. It’s exhausting, but it’s my life.

Hand holding 5 pills of various shapes & colours

It is not all bad. I have privileges that many do not. My home is warm & safe. I have access to excellent care. I am gifted with skills & talents that allow me to pursue work I love. I have safety nets. I had years of being fit & well. I went to uni, got stuck into the partying & had the chance to travel a little. I’m loved. Pleasures great & small find me. My cat is the cutest. Life could be worse. I can handle this.

Cute black and white lying on back fluffy belly exposed

Except when I really, really can’t. There are days when chronic life overwhelms me. Days like today, when every inch of me is sore. Keeping a brave face when you’re throwing up for fifth time in as many hours is a challenge. Every day my first sensation is agony. Aching joints. Throbbing head. Burning skin. Churning stomach. Each little movement hurts. Remaining sedentary isn’t an option either. My arthritic parts seize up. Leading to, yup, more pain.

Food refuses to stay in my stomach. Don’t eat & the acid bubbles up my throat. Attempt to line my raw stomach and the vomiting makes everything worse. I can’t concentrate enough to distract myself. Sleep is illusive. There’s no escape.

Burdening others with my misery triggers my guilt. Keeping it all in is horribly lonely. Pain relief doesn’t work. Positive thinking is way out of reach. Some days are hard. It is too hard be grateful. Impossible to hang onto hope of easier times. Today I’m just thoroughly sick & tired of always being sick & tired.

Plus size women in green leopard print maxi dress  with walking stick

Sister of mine…

For this year’s International Women’s Day I thought I’d stay close to home. There are of course many, many wonderful women doing important things across the globe. However, sometimes you have to recognise the people on your doorstep. Thus, I give you a special women I’m lucky to share DNA with.

When my mum was pregnant with my sister I was determined that she would be a girl. People kept telling me that I might get another brother, but I would have none of it. A sister is what I wanted and a sister is what I got. Thank god! I have loved just about every minute of being a big sister. From her cute toddler babbling, playing (& fighting) in our shared bedroom, taking her out to clubs she wasn’t allowed to be in and so much more. She has been a blessing.

  • These days I sometimes have to take a minute to remember this powerful women is that same chubby cheeked wee girl. My sister astounds me. Her determination knows no bounds. She cannot be stopped. Lauren combines running her own law firm with being a literal supermummy. She does exceptional work in an often taxing field. The impact of practising criminal and family law is frequently overlooked. Solicitors really take a bullet for the rest of us. By dealing with issues many of us do not want to think about too deeply they ensure our justice system continues to function. A service we should all be grateful for.
  • When she’s not bossing it in court my sister is a fantastic Mummy. My nephew wants for nothing. He is showered with love and attention. No bedtime story is skipped, homemade food, home made costumes, even elaborate home baked birthday cakes; my sis is not sleeping on any detail. It shows, her boy is smart & funny & a total love bug.

    If balancing career & motherhood wasn’t enough my extraordinary sibling also finds time for friends and family. Oh and she looks bloody beautiful whilst doing it all. Seriously, even her lazy days are chic. My darling sister has spent too many hours by my side in a&e. She’s ferried me about and offered very wise counsel. We have also spent countless hours gabbing & dancing & laughing. I know she offers the same support & good times to many others. Quite simply, my baby sister is a phenomenal woman.

    Inspirational women aren’t all winning Nobel prizes or running for high offices. They’re all around us. So, this Women’s day give the fabulous females in your life the credit they deserve.

    The year of the cat…

    All the Christmas falderal is over. Presents are opened and food is munched. It’s the last week of the year and no one wants to do much of anything.

    I get it. I’m spending most of my time in my Jim jams and pretending the real world no longer exists. It’s a massive luxury to be able to do so. Which is why I’m taking a minute to consider the plight of less fortunate creatures. Plus plug a little seasonal giving one last time. My last act of Xmas giving is aimed at puss cats. I know lots of folk object to animal charities and think people should come first, but I see no reason not to help both. I’ve always been an animal lover. Cats have always been my chosen companion. Thus, I’m encouraging you to support the lovely people at Glasgow Cats Protection. They do amazing work of rehoming and caring for thousands of cats. Each unwanted cat brought to them is vet checked, neutered, vaccinated & treated for fleas etc. They provide a safe loving environment for cats who would otherwise be uncared for. The weather is rough at this time year. I hate to think of strays trying to fend for themselves on our cold climate. You can help in a number of ways. I decided to buy some items from their Amazon Wish List. If you can spare a few pounds the felines would be very grateful.

    Cats Protection

    As Hogmanay approaches this is also the last of my festive nail art. This week a very nose centric Rudolph and some candy canes featured.

    ly h Kerr Xmas nail artly h Kerr Xmas nail art

    Month by month…

    There is a particular torture in waiting for your period to arrive when you wish it wouldn’t. Analysing every sensation in the run up to your due date. Trying to decide if your sore back is a period sore back. Being almost certain you kind of smell a menstrual type aroma, but also thinking maybe last week’s nausea was morning sickness. Counting the days. Marking the calendar. Trying not to hope & trying not to lose hope.

    Each month is just a microcosm of life. Watching, waiting & knowing time isn’t on your side. Doing your very best not let this desire take over. Working hard to ensure not realising the dream won’t break you. Constantly weighing up how much more you can take.

    I’m lying here kidding myself that the hot ache in my thighs doesn’t mean the blood is on its way. I’m reminding myself of all the wonderful things I have. Attempting to hang onto how grateful I am. I know how much worse life can be. You can be happy with the consolation prize. Almost is better than nothing. We don’t always get everything we want, right?