loss

Cold water surrounds me now…

~ somethinginthewayshemoves ~ 4 Comments

I’m having one of those days when my emotions feel like they might sink me. It’s like all the feelings I usually keep in check have escaped & flooded the room. It’s hard to breathe or concentrate on anything other than keeping my head above water.

Luckily, I’m a strong swimmer. I know the worst thing one can do when in rough waters is panic. I need to take deep breaths whenever possible & focus on getting to dry land. All of which means sunday hit me a little harder than I expected. Mother’s Day always gives me pause, but this time last year I was pregnant. Now, here I am, still childless. Still trying not to lose hope. It does feel hopeless at times. When all the hurt & negativity bubbles up it is hard to see a point. What am I doing? Where is life taking me?

That is when I have to reach for reason. I must force myself to get sickeningly, happy clappy. In short, I count blessings. There are many & if it doesn’t make you cringe too much, I’m going to share a few.

Love. I have love in my life.

I have many beautiful little people.

Potatoes. Boiled, roasted, chipped, baked, in scones! A world with potatoes can not be all bad.

I have a very big & very comfortable bed.

And someone I like rolling around in it with.

I’m smart. I’m funny. I’m pretty fucking tough.

I was lucky enough to be born in a place that offers me safety.

I adopted the very best puss cat.

I have access to quality healthcare.

I got to be young in the 90’s.

I’ve seen the sunset on a beach in Corfu, cuddled a koala in Brisbane, watched fireworks from castle ramparts in St Malo, walked in The Beatles footsteps in Hamburg, ice skated in a snowing Central Park, got so wasted I lost one shoe in Amsterdam & so much more.

I have sung beloved babies to sleep.

Watched them take first steps & their personalities unfold.

I have a roof over my head.

Food in my belly.

Some really cool shoes.

And plenty to look forward to.

I don’t have everything, but what I do have adds up to enough. Life goes on. Life is good.

You can’t change the way she feels, but you could put your arms around her…

~ somethinginthewayshemoves ~ 4 Comments

I dreamt about an old friend last night. A friend who is no longer living. It was a lovely dream that I was sad to wake from. As I tried to commit the dream to memory I realised that whilst I thought of her often, I hadn’t spoken out loud about my dear friend in a long time. Too long a time, which is something I need to rectify. I need to talk about her. Tell her story. Share how she changed me. And that is exactly what I am going to do.

Let’s start by saying I met J because we were both ill. I was in my early twenties & struggling to deal with undiagnosed PTSD. I was trying to hold together a life that was increasingly unsatisfying with a self harm habit that was spiralling out control. J was dealing with similarly unhappy circumstances and a self harm problem that becoming, frankly terrifying. We both found some comfort in a community of sick people who didn’t know where else to turn. We were people who couldn’t ask for help or had asked without receiving the sort of assistance the we needed. No one talked about self harm then. Except maybe in the odd film where it was usually portrayed as something a trouble teen might do or a suicide attempt. Even the mental health professionals treated us like shit (sadly, some still so). If our attempts to hide the problem had failed, our families & friends were frightened ( & in some cases cruel). We were dealing with real problems; rape, abusive relationships, miscarriage, escaping from cults, drug dealing parents & a multitude of other big, scary problems. We were of course also living with mental illness. Some of us had a laundry list of labels and others had not a single clue what the fuck was wrong. But there was absolutely something going very wrong for all of us. This is where I met J. Amongst this this group of desperate people I also found a salvation of sorts. These broken people offered each other a kind of support that we couldn’t find anywhere else. We dragged each other through the kind of darkness that most will never understand. And J was kind of our leader.
J was living with pain beyond what would be considered durable. Her mental anguish was compounded by the physical horror she was compelled to inflict upon herself. J was not ok. Every solitary moment of life was a battle hard fought. And, yet, she always had time for us. She had love and support and encouragement for her damaged flock. J lived in a different time zone, but she still called day & night to remind me to keep breathing. She wrote letters and sent care parcels. She compiled lists of all the things that just might offer one us a couple minutes respite from our own fucked up heads. She replied to every ‘ I can’t do this anymore’ with such kind & convincing entreaties to keep trying, that we did. Her words worked because we knew, that she knew. We were all able to help each other because we shared a world that most people didn’t know existed. For me, j was the ultimate inspiration. If she could do this with such grace, I owed it to her and all the others who loved me to at least not give up.

Kelvingrove park

It’s such a cliché, but this goodness expanded beyond our group. She was studying to be a nurse because she wanted to help people. Everyone in her life adored her. J was that person who offered succour, but she wasn’t a martyr or a goody goody. She was fun. Her sense of humour could be wicked. Most of all she was strong. J fought to live. She engaged with mental health services that let her down over and over and over. She was still working and studying at the peak of her illness. She endured the brutality of her self harm and the callousness of those supposed to treat them. She did it all with dignity. Life beat J black and blue. This world committed an almost constant vicious assault on her. She fought back hard. She battled with and blood and heart and care and tears and wonder. She did not win.
J succeeded in taking her own life in a sad and awful way that left no doubt that she meant it. I wish with everything in my being that I could have changed how her story ended. Both the circumstances & the prematurity of her passing, but I don’t blame her. I understand that life was no longer a viable prospect for J. I hate that, but I do not begrudge her some peace. I am still angry at the professionals who failed her and the people who’s actions caused her so much pain. I will never be angry at J. She gave life her very best shot. Her suicide was neither selfish nor weak. It was just the only option she had left. It kills me that someone so beautiful was left with a choice so ugly. I understand it, though. Whilst I know it may be an unpopular opinion I can accept it. I can respect that it was her decision to make.


So, why I am writing this? What am I left with? Actually what remains is so much more positive than I could have ever imagined. Losing J was soul destroying, but life does go on. I go on and so do those other sad people that she cared for. I don’t want to disrespect those wonderful people by not acknowledging that they too saved me. We all helped save each other. In hundreds of big and small ways. After J’s death we continued to care for each other. We laughed and cried and screamed and swore together. We stayed up nights and called ambulances. We sent Xmas cards and made hospital visits.
From that group I maintain friendships with some incredible people. Some of us are entirely recovered, some still walk the tight rope; we are all still alive. We have partners, careers, babies, hobbies & passions. We all do our bit for mental health awareness. Whether that’s through writing, organising, working in the field, donating to MH charities or just supporting loved ones with their difficulties. I will spend the rest of my life doing everything I can to prevent others falling through the cracks. I will fight for everyone to have more choices than J. I know I am not alone. That is her legacy. She lives on through the people she touched. We endured. We succeeded. We survived.
WE LIVE

1 in 4 adult in UK will experience mental illness at some point in their lives. It is incredibly likely that you or someone you love will have to fight this battle. You can help improve the lives of suffering in a number of ways. Please do what you can to make sure more people survive.

Add mental health education to the national curriculum

Donate to Samaritans

Donate to SAMH

You an also make a massive difference by writing to your elected representatives an telling them mental health is major issue for you. Let them know that how they vote on mental health related issues matters to you. You can find your representatives here.
Find my MP
Find my MSP

 

But I ask where is the poetry…

~ somethinginthewayshemoves ~ 4 Comments

I’ve had a rough couple weeks. Ill health (myself & others), unavoidable obligations & insomnia rearing  it’s ugly head have led to an incredibly stressed out ly. Alas, the blog has suffered. Normal service will be resumed soon. In the meantime I offer a small poetic interlude. 

I find poetry incredible cathartic. I often attempt to write away my troubles. You’d be surprised how often it helps. 

Go gentle…

~ somethinginthewayshemoves ~ 8 Comments

This year World Mental Health Day has intersected with Baby Loss Awareness week resulting in lots of media/online talk about both subjects. Obviously, this presses pretty much all of my buttons as my mental health has historically (& currently) been so interconnected with my losses.

I believe society’s discomfort of miscarriage increases the distress experienced by those who live it. Feeling that I could not talk about my loss certainly compounded the trauma of my first miscarriage. There is a massive crossover between mental illness & baby loss, I believe part of that is how we treat people who have to deal with either issue. I also believe that making really simple changes in attitudes would allieviate so much pain. Miscarriage & infant loss will always be horrific, but if we allow people to openly explore & process those losses long term mental illness can be avoided. Or at the very least recognised & treated. 


Miscarriage  & other types of baby loss affect many people. We can all help make their lives easier by following these straight forward suggestions.

1. Acknowledge the loss.

Many people feel so uncomfortable about this kind of loss that they simply don’t acknowledge it. I know that this often comes from a good place, one might fear upsetting a grieving parent or intruding on their privacy.  I get that, but trust me, the silence is worse. If you know that someone has miscarried a simple ‘I am sorry for your loss’ goes a long way. Having people recognise that you have suffered a loss is massive. Too often those of us who have experienced miscarriage are  left feeling that our child only existed for us. Having people in your life affirm that the life you carried was real & had worth is extremely valuable. 

2. Really listen. 

Asking someone how they are, sending love etc is a good gesture, but if you really want help, listen to their response. When I lost my first baby what I really needed was to talk about it. I desperately needed to express how I felt & what I was struggling with, but never felt it was ok to do so. Burying those emotions compounded my trauma & led to a complete breakdown. If someone needs to talk about their experiences, please let them. 

3. Respect the grief.

When you have a miscarriage you grieve. Your grief is not only for the baby you have lost, but also for the life you have been planning. Grief is a very personal thing, everyone does it in their own way & on their own timetable. Wether that involves a memorial service, commemorating an anniversary, a tattoo or even never speaking of it again, please respect that. Don’t judge or rush.  Be supportive of whatever your grieving friend needs . There are no right or wrong ways to heal, even if you feel uncomfortable with someone’s chosen expression of grief. Just be kind & remember it is not your journey.


4. Don’t hide baby news.

I understand the urge to shield loved ones from pain. Certainly be sensitive, but share & celebrate your baby news. I can guarantee that although it may sometimes be painful I never want to dampen anyone’s joy. Losing a baby is hard, but it does not prevent me from being thrilled for other people. Any tears I have to shed will be done in private & are only my concern. I want all good things for everyone that I love. I absolutely adore the beautiful little people my siblings & have friends have been blessed with. I have never met a person who had suffered a loss who felt any differently. 

There you have it. Four straightforward pieces of advice that may lighten the load of someone who is suffering. All you have to do is swallow your discomfort, listen & be respectful. Surely, that’s not too much to ask? 

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I am ready now to fall…

~ somethinginthewayshemoves ~ 3 Comments

Dear Baby,

I still write baby even though you’d be almost grown now. You’d be pretty much a man, which is very scary. I bet you’d be amazing, though. I picture you as tall & sensitive & just a tiny bit reckless. I know we’d have butted heads, but I’d love your fire. 

 I’m feeling pretty raw this year. You have another sibling who didn’t make it to life. I have another reason to cry. I have reasons to smile too. I’m doing ok. 

I’d be better if I was buying cake & wrapping presents, but life had other plans for us. I had to learn to be strong & you were destined for somewhere more beautiful than this world. 

I’m ready now. Love, loss, life, I can take it all in my stride. I am ready to to mother a child I can hold in my arms as well as my heart. I have wonderful new little people to cherish, I have hope & I will always carry you with me. That’s enough for now.

Love always,

Mum.

Xxx

No compassion…

~ somethinginthewayshemoves ~ 4 Comments

I’m 36yrs old, chronically ill and a size 22, I am no stranger to a bit medical fat shaming. Sadly, I have had to develop a thick skin when it comes to interacting with the medical profession. Drs & nurses will say things to me that no one else would dare to. I have had to learn to advocate for myself when necessary & brush off a whole bunch of bullshit along the way. To be honest I thought I was fairly untouchable. I am entirely comfortable with my size & though often tiring to hear the same fat phobic lectures, it doesn’t hurt me. Infuriate, yes, but I never felt unable to deal with it. Until recently. 

Earlier this year I had a miscarriage. It was not my first loss. My previous experiences of pregnancy & miscarriage were hugely traumatic and in fact played a major part in my mental health struggles. Losing another baby was horrendous. I had some complications and ended up having to spend a little time in hospital. The one small blessing was the support system I have in place and the kindness I was treated with whilst inpatient. Once home & physically recovered I visited my GP to discuss my general health & how to proceed fertility wise. That she wanted to talk about weight loss was not entirely unexpected. I know standard advice for anyone overweight talking about having a baby is lose weight. I know drs still hold rigidly to the BMI scale & that there is an upper limit for fertility treatment. I know fat women often have their pregnancies labelled high risk. What I wasn’t prepared for was this gp’s insinuation that my weight caused my miscarriage. So, unprepared was I that I convinced myself that I had misunderstood. I pushed it out of my mind & continued trying to process my grief. However, when I returned a week later and she still only wanted to talk about diet plans, what I ate, what I weighed now & how often she could weight me,I was more explicit. I explained my history of borderline eating disorders, of starvation diets & losing vast amounts of weight only to regain it. I told her I did not and would engage with rigid diets or weight loss programmes. Her response was given my multiple miscarriages, I might want to re think that. I enquired If she was saying I miscarried because I was fat & she confirmed that she thought it likely.

 

I walked out feeling a rage that quickly melted away to sadness. I was left wanting to crawl into bed and never get out again. I have struggled with PTSD for many years; my original trauma was an emotionally abusive relationship & my the circumstances surrounding my first miscarriage. It has taken me literally my entire adult life to get control of my shame and guilt. Years of self harm, debilitating depression, panic attacks, flash backs and nightmares all centred around how the loss of my child and subsequent illness was all my fault. One thoughtless dr had thrust back into that damaging thought cycle. On top of that I have fought to reclaim my body as acceptable. I have had to work to enjoy my life in this fat scarred body. My history is well documented in my medical records and I have personally discussed it with the dr. That truth is she wants me to be thin more than she wants to me be happy & healthy. Her complete disregard for my mental health was cruel. That she hadn’t even bothered to investigate my history before speaking is unacceptable. A cursory glance at my notes would have revealed that I was not over weight at the time of my other pregnancy losses. She would also have seen that I am currently taking a medication for PCOS that causes weight loss. The drug is harsh on my already inflamed digestive system meaning that I throw up daily. In addition one of it’s major side effects is appetite reduction. Hence, I have been slowly shedding pounds since I commenced this treatment. I also have diagnosed gynaecological issues, which are much more likely to play a part in my inability to carry to term. The conversation she forced upon me was not only insensitive, but entirely irrelevant. That said, it is never ok to blame a vulnerable women for the loss of her child.

I have chosen not to see that GP again. I attend a fairly large practise and as a freelancer have the freedom to wait for appointments with another dr. I have yet to confront the issue as it still feels so raw. However I feel a strange sense of duty; I feel I must tackle this to prevent it happening to someone else. I recognise that there were times in my past when this dr’s assertions would have entirely destroyed me. I hate that the responsibility to educate & challenge falls to people like me. I cannot understand why a profession who swear to ‘do no harm’ are so married to fat phobia. Why is care and compassion is so often disregarded purely because a patient is fat?


 

 

And so it is the colder water…

~ somethinginthewayshemoves ~ 6 Comments

It’s been around 8 weeks since I miscarried. I think all things considered, I am doing ok. I mean, I’ve not completely fallen apart. I haven’t turned to scalpels for comfort or absented myself from the world. I’m getting up & painting my face & taking part in life. I wish I could say it was easy, but on days like today, it feels like drowning. 

I am attending the recurrent miscarriage clinic to see if there are any issues I am not already aware of & the midwife I see has been wonderful. She had given me info on a ‘support group’, which I’m considering. I’m on some new meds to help with PCOS & tracking my periods etc to keep on eye on things from that side. I’m socialising & blogging & getting more politically active. I’m doing everything i can think of to keep moving forward. So why do I feel like I’m wedged in wet sand?

I think about what might have been every day. Not all day long, but it’s never far away. There are so many reminders. So many painful things that can’t be avoided. From appointments at the maternity hospital & other people’s babies to just the scent of something that made me nauseous when I was pregnant & doesn’t anymore. I don’t want the world to stop. I don’t want to rob anyone of their joyous moments; it’s just so hard. The happiness I feel for others comes with a stab of sorrow. It’s been this way for so long, but my recent loss has given that sadness renewed potency. I let all my hopes out of a place I kept tied up tight. Blueprints for a life that I hadn’t dared to examine sprang to life & folding up those plans is proving difficult. 
I have my period again & I know that impacts on my mood. All of the sensations of menstruating mirror miscarriage symptoms. The cramps & sensitive nipples are reminders I don’t want. The blood remains wrapped up in my trauma. Forever a trigger. And yet, I’m glad to have the period. Not so long ago I had practically none. It’s a relief to have this increasingly reliable sign that my ovaries are doing something. Like so many other things the positive is marred.


I think from the outside I probably look fine. I want to look well. No, I want to BE well. I’m really fighting not to let my life slide. The truth is I’m struggling. My creative output is vastly decreased. I lack the motivation & clarity to write. Not writing is not good for me. I process my experiences through words on the paper. The less I write the more anxious I become. Of course the more I stress about it, the less I am able to curate my thoughts. It’s a predictable cycle. There are obviously more practical concerns; my words keep a roof over my head. 


My physical health hasn’t been good. My sleep is appalling. I know that takes it’s toll. I attempt to rationalise myself out of days like this. My exhausted, pained, grieving & traumatised self will obviously have lows. I know this is to be expected. That knowledge doesn’t change the dread. It does nothing to chase away the fear when I awake to a complete inability to function. When nothing shifts the weight crushing me or the desire to disappear. 24 hours isn’t a long time except when your swamped in depression. I can get through the bad days. I’m just terrified of the days multiplying. 
That’s the crux of it. Mental illness feels a bit like being an alcoholic. I will never completely recover. The lows will always come. Life will always have ways to trip me up. The fear of everything unravelling sits quietly on my shoulder. It’s a bad day. I’m still grieving. I hope for better. 

A week (ish) in pictures…

~ somethinginthewayshemoves ~ 4 Comments

It’s been more like 3 weeks & they haven’t been the most productive. I finally painted my nails today & I have some appointments set up this week for oPeration BoPo. Life goes on & so do I. So, there will be more exciting & uplifting posts coming soon. For now, here’s a wee photographic glimpse at my quiet days. 


Bright days, escapist movies & lunches with my sis have been soothing.


Spring flowers & spring cleaning (it still counts if you pay someone to do it, right?) have helped with that starting over feeling. Pretty skys, my pretty cat & effective drugs have also done their thing.


Easter treats, thrifting, lazy days & random sights have helped to ward away the deep blues. My puss cat in both snuggle & grump mode is a tonic. Oh & look at my nephew’s face; it doesn’t get more life affirming than that. 




Rest, dancing light in my home & the beauty of my own fat arse have given me a boost this weekend.  I’m hoping it will carry me through the week.

After all, as Scarlett O’Hara would say, tomorrow is another day. 

Keep on keeping on…

~ somethinginthewayshemoves ~ 1 Comment

It doesn’t make any sense, but I think before I went into hospital I had fragments of hope. Delusions might be a better word. I knew the pregnancy was over, but a part of me hadn’t accepted it. I couldn’t bring myself to take any pain relief, sleeping pills etc because I felt that I’d be betraying my child. Even as I write these words they aren’t comprehensible. My thinking just seems crazy. 

Now, I feel certain it’s over. That’s awful, but necessary. Accepting that intervention was essential has given me a sense of finality that I needed.

The flip side of that is the very things that brought about that clarity will be with me forever. I’ve already had some nightmares consisting of images that also intrude on my waking hours. 

Delicate grey tissue & stained blue gloves.

Bright red urine samples & bloodied speculums.

Flashes of gore have imprinted themselves on my already traumatised brain. I don’t know how to wipe it clean.

I think I am ok & then I’m just not. I feel fragile & sad.

But

Also so angry.

There’s nowhere to put this fury. I was doing alright. Life was a manageable feat with some unexpectedly sweet incentives. Now it’s tip toeing & coaxing myself into normal. Often, it’s trying not to want that baby more than I want to breathe.

Ultimately, it’s all very simple. I just keep going. One day at a time, right? Weird that the biggest, emptiest seeming cliches are what get you through. 

Pause to breathe…

~ somethinginthewayshemoves

I had to go into hospital for a little bit for some treatment to complete things. I also have a kidney infection, my body likes to do fun things like this. Anyway, I am physically & emotionally exhausted. So, I’m just going to rest for a while & will be posting things that were completed before this happened.