No compassion…

I’m 36yrs old, chronically ill and a size 22, I am no stranger to a bit medical fat shaming. Sadly, I have had to develop a thick skin when it comes to interacting with the medical profession. Drs & nurses will say things to me that no one else would dare to. I have had to learn to advocate for myself when necessary & brush off a whole bunch of bullshit along the way. To be honest I thought I was fairly untouchable. I am entirely comfortable with my size & though often tiring to hear the same fat phobic lectures, it doesn’t hurt me. Infuriate, yes, but I never felt unable to deal with it. Until recently. 

Earlier this year I had a miscarriage. It was not my first loss. My previous experiences of pregnancy & miscarriage were hugely traumatic and in fact played a major part in my mental health struggles. Losing another baby was horrendous. I had some complications and ended up having to spend a little time in hospital. The one small blessing was the support system I have in place and the kindness I was treated with whilst inpatient. Once home & physically recovered I visited my GP to discuss my general health & how to proceed fertility wise. That she wanted to talk about weight loss was not entirely unexpected. I know standard advice for anyone overweight talking about having a baby is lose weight. I know drs still hold rigidly to the BMI scale & that there is an upper limit for fertility treatment. I know fat women often have their pregnancies labelled high risk. What I wasn’t prepared for was this gp’s insinuation that my weight caused my miscarriage. So, unprepared was I that I convinced myself that I had misunderstood. I pushed it out of my mind & continued trying to process my grief. However, when I returned a week later and she still only wanted to talk about diet plans, what I ate, what I weighed now & how often she could weight me,I was more explicit. I explained my history of borderline eating disorders, of starvation diets & losing vast amounts of weight only to regain it. I told her I did not and would engage with rigid diets or weight loss programmes. Her response was given my multiple miscarriages, I might want to re think that. I enquired If she was saying I miscarried because I was fat & she confirmed that she thought it likely.

 

I walked out feeling a rage that quickly melted away to sadness. I was left wanting to crawl into bed and never get out again. I have struggled with PTSD for many years; my original trauma was an emotionally abusive relationship & my the circumstances surrounding my first miscarriage. It has taken me literally my entire adult life to get control of my shame and guilt. Years of self harm, debilitating depression, panic attacks, flash backs and nightmares all centred around how the loss of my child and subsequent illness was all my fault. One thoughtless dr had thrust back into that damaging thought cycle. On top of that I have fought to reclaim my body as acceptable. I have had to work to enjoy my life in this fat scarred body. My history is well documented in my medical records and I have personally discussed it with the dr. That truth is she wants me to be thin more than she wants to me be happy & healthy. Her complete disregard for my mental health was cruel. That she hadn’t even bothered to investigate my history before speaking is unacceptable. A cursory glance at my notes would have revealed that I was not over weight at the time of my other pregnancy losses. She would also have seen that I am currently taking a medication for PCOS that causes weight loss. The drug is harsh on my already inflamed digestive system meaning that I throw up daily. In addition one of it’s major side effects is appetite reduction. Hence, I have been slowly shedding pounds since I commenced this treatment. I also have diagnosed gynaecological issues, which are much more likely to play a part in my inability to carry to term. The conversation she forced upon me was not only insensitive, but entirely irrelevant. That said, it is never ok to blame a vulnerable women for the loss of her child.

I have chosen not to see that GP again. I attend a fairly large practise and as a freelancer have the freedom to wait for appointments with another dr. I have yet to confront the issue as it still feels so raw. However I feel a strange sense of duty; I feel I must tackle this to prevent it happening to someone else. I recognise that there were times in my past when this dr’s assertions would have entirely destroyed me. I hate that the responsibility to educate & challenge falls to people like me. I cannot understand why a profession who swear to ‘do no harm’ are so married to fat phobia. Why is care and compassion is so often disregarded purely because a patient is fat?


 

 

These songs of freedom…

Wow, it’s hot. This little heatwave we’ve been having is just what I needed. Sunshine puts a little spring in everyone’s step & it’s certainly lifted my mood. Part of the fun of summer is shedding some clothes & indulging in some flirty fashion. In years gone by I’ve missed this pleasure due to ALL the things I felt I had to hide. So, once again I want to celebrate the beautiful freedom the body positive community has brought to my life.


For so many years I believed that my body was ugly. I had completely internalised the fat phobia that society is drenched in. I felt ashamed of my scars & my flab & my uber pale skin & often unshaven parts. I’ve always had a healthy disregard for other people’s judgements, but aspects of my physicality were weak spots. I did what many women do; hid the shameful bits. I protected myself with loose fitting clothing, long sleeves & maxi hemlines. Additionally I built a wall of false, self depreciating confidence. I was always the first person to make a fat joke at my expense because it hurt so much less if I got in there first. 


I often doubted why romantic partners would want me. I felt huge & unattractive when socialising with slimmer friends. Shopping was a battleground of anxieties. So many special occasions were ruined because I never felt comfortable or even worthy. I missed events because I couldn’t find anything cool to wear that covered all the things I was scared to show. Countless opportunities to capture significant moments were lost because I hated how fat I looked in photographs. Most of all, I felt trapped.  I was caged by the standards society told me I had meet. 


Then came bopo. This idea that I was enough swept into my life & blew away a lifetime of bullshit. Immersing myself in a community who told me I was enough changed me. Actually seeing other fat bodies portrayed in a positive light was magnificent. I realised that when I looked at these women wearing amazing clothes, doing exciting things & generally rocking their lives, I saw beauty. 

From there is has been a gradual acceptance of myself. A growing appreciation of how my body looks. These last few days of scorching heat have made me realise that I might have reached peak self love. Not once have I worried about flashing my flesh. In fact, I have loved selecting outfits & enjoyed wearing them even more. Stares don’t phase me because I feel fantastic. I am sexy & cool & deserving of respect. Anyone who feels differently can kiss my fat arse. 


I find myself truly taking pleasure in my body. Be it snapping pics because my butt looks cute, being unabashedly naked with my boyfriend or feeling the fresh breeze on my scarred arms; I feel free. And it is joyous. 

I’ve got tears that are scared of the facts…

My baby was the size of a large olive. Almost all of her vital organs were formed. She had tiny finger nail buds & her body was covered in fine hair. And now she’s gone. 

So, I’m writing my emotions because I can’t bring myself to verbalise them & they have to escape somehow. 

With my health & my history this wasn’t unexpected, but that didn’t make it any less shocking. Being pregnant again was scary. It felt unreal to begin with, but I had started to believe that this was my time. The fear never left me, but the hope grew. 

I felt very pregnant. I still do, which seems particularly unfair. Sickness & nausea & cramps & sore nipples & peeing or crying every two minutes. Strong smells became my nemesis. I haven’t even been able to wear my own perfume. Pregnancy ruled out almost all of my normal meds. I’ve basically felt horrendous but been delighted to suffer. All the pain & discomfort meant my body was doing the very thing I didn’t think it could do. I worried about every twinge, but I also relished them. 

I felt like we were having a girl. He never said so, but I think maybe the toy boy did too. We talked about girl’s names so much more than boy’s. I talked & thought too much about too many things. 

Names & maternity clothes. 

The best way to tell my neice & when to tell the rest of the world. 

Which stories to read at bedtime & what songs might lull my baby to sleep. 

Painting tropical leaves in the nursery & learning all that baby wearing stuff. 

I really thought this was it. All the stars looked aligned. I got caught up in believing that I could have this & amongst the heartbreak I feel furious. I’m so angry with myself for not protecting the most vulnerable part of me. I’m angry that my body won’t do what comes naturally to so many. I’m angry that I have failed again. I’m angry that the world keeps doing this to me. 

Behind the anger is real fear. I am so scared that I can’t get through this again & even more frightened that this will be my only experience of pregnancy. The idea that carrying a life will always end in loss is overwhelming. I’ve worked so hard not to be overwhelmed by what life has forced upon me. I’m terrified of losing myself in madness once more. 

I’m still very much in the process of losing this baby. I know she’s gone, but my body doesn’t seem aware of it. I still feel pregnant. I don’t feel able to take any of the meds that I know will make this easier because I haven’t detached from the need to protect this little life. I have avoided speaking to even those closest to me because I’m just not ready to completely let go of my beautiful dream.  I’ve been able to do this partly due to the support of my lovely toy boy. To be taken care of without having to ask is a powerful thing. Having a companion in this is a new experience & a huge blessing (a word that will have him shaking his head), but it’s true. 

I feel much less alone. This child feels acknowledged & important. That’s a both a comfort and fuel for my guilt. I am aware that I am culpable for creating the situations that led to my boy not mattering to others in the same way. I’m also clear that it is my body that failed them. It’s acutely painful to live with that knowledge; no matter how unwilling the neglect. 

Isolation isn’t the answer. I know that, but I need some time. I have to let my body & my heart get used to the idea that I won’t be nurturing this child into life. I appreciate everyone’s patience. 

Let’s talk it over…

Chronic illness is a bitch. The pain, the uncertainty & incapacitating symptoms are all a daily battle. Oh, but there is so much more. More that isn’t really talked about outside of spoonie circles & I thought it was about time that changed.

Obviously chronic illness covers a huge range of conditions & everyone’s experience is different. Thus I talk from my own personal view point with some input from fellow spoonies. Here are some of tricky issues that we’re quietly dealing with.

Travel

I mean any & all travel. From trying to get a bus to a hospital appointment to trying to cross the globe. The world is not spoonie friendly. 


Have you ever sat in those seats at the front of the bus that are meant to be reserved for ‘elderly & infirm’. I’m sure you tell yourself it’s fine because you’ll move if someone needs them, right? Well, you can’t always tell by looking that someone needs that seat. Having to explain yourself & ask a stranger to move is not easy. Thus I have collapsed on buses, cried from pain & just had to get off because I couldn’t stand any longer or make it to a seat further back. Which is a pretty good good analogy for trying to get about with disabilities. It can be hard as fuck without anyone noticing. 

Being chronically ill means planing every single outing in detail. Working out if you can manage to get to a bus stop or from a station to the place you’re actually going. Thinking ahead about stairs & where toilets are. Planning when you’ll need to eat, if you’ll be able to eat & how meds will work around that. Worrying about queues & how slow you move & often you’re going to have to sit down. 

I can’t tell you how many times I’ve not participated in something I wanted to because the logistics were just beyond me. 

Relationships

Whatever your illness there will always have to be that early days conversation about what exactly is wrong with you. In my case I have scars to explain & a whole bunch of fairly scary details to talk about. In the beginning I thought that would be the hardest bit, but it so isn’t.
The worst part is all the normal things that are so much more complicated for me. I am completely aware that sometimes I’m no fun. I say no more often than most people. I have many (too many?) limitations. I’ve adapted to that, but I never know if others will. 

It’s scary & stressful to try someone new. They might well get fed up accommodating me. Every time I say I can’t make a social event or have to admit that I don’t fell well, I worry. Maybe this is the point they’ll decide a spoonie girl friend is just not worth it. The truth is, I wouldn’t actually blame someone for having those thoughts. After all, life is for living .

That’s the real kicker, it’s not a problem that can be resolved. Wanting to live a life that I’m not fit enough for doesn’t make anyone a bad person. It’s just another thing I (we) get to think about when I can’t sleep. 

Side Effects

Sometimes the treatments are worse than the illness. Almost every medication I take produces a side effect that impacts on my life. In fact I take medications to help with the side effects of my medications. I’ve taken drugs that have made me vomit, itch, gain weight, lose weight, have double vision, dizzy spells, palpitations, acne, the list goes on. 


Every treatment one is offered comes with a list of possible side effects. Chronic illness is a constant balancing act. How much relief will I get from my symptoms & will it be worth the new problems it will cause? 

I often illustrate this problem like this.

Severe anaemia can cause itchy skin & angina. 

A blood transfusion & opioids can treat these complaints.

Guess what a major side effect of both transfusion & opiates is, yup, really itchy skin. 

Welcome to the conundrum of chronic illness. What cures me might well kill me to. Fun!

Money

Hardly anyone likes to talk publicly about their finances. It’s awkward & it’s private. I hate talking about money, but honestly with regards to disabilities, someone has to. Having any kind of disability almost always screws you financially. What work you can do is limited. Employers will silently discriminate against you & the current  government will loudly throw you to the sharks. All the while ones disabilities will incur extra costs at every turn. In terms of cold hard cash, illness will cost you. Lots. 


The Embarrasment Factor

Never underestimate the power of embarrassment. All of the things I’ve discussed here can make a person feel really small. Be it feeling red faced about a misbehaving stomach or the facing soul destroying humiliation of having to justify your right to be alive at an ATOS assessment. Humility is a lesson spoonies learn over & over. 


Imagine how you felt the last time you farted somewhere you wish you hadn’t & the feeling of falling over on a crowded street & having to talk to a dr about a really cringey complaint & admitting you’ve failed at something important & having to tell the world that you need help with things everyone else can do. Now imagine coping with some combination of all the above every day. Welcome to my world. 

There’s nobody else here, no one like me…

I’m about to get a bit happy clappy, so if that gets your goat (I hear you), skip this one.

I know it’s been disaster movie of a year. There are truly despicable things happening all over the globe. So, I feel quite guilty about this, but 2016 has been my personal best for a very long time. Selfish or not I want to acknowledge my successes. Queue the happy bit. 

This year I have been comparatively sane. I’m not cured and of course there are bad times, but I have felt psychologically healthier & happier than I’ve been in several years. I’m pretty confident that I’m finally taking the right medication. Meds aren’t magic beans, but the right combination has given me much more solid ground to build on. I’ve been able to push myself, expanding  my social & professional lives in the process. 

Now, here comes the big one, I have not purposely hurt myself in well over a year. Again, I’m not recovered, I suspect the urge will always be with me. The difference for me has been releasing there are things I want more than blood. I’m not going to bullshit anyone, it’s a grind; it’s a battle I decide to fight every day. This is a war that’s been raging for 17 years, but I’m stating to believe I will emerge the conquerer. 

Next up; gettting all proud of myself & shamelessly blowing my own trumpet. 2016 has been a professional triumph. My writing has featured in publications I have long admired. My blog hits have soared & more importantly I produced more work of value than ever before. I am proud to be writing about issues that need to be talked about & creating work that readers really connect with. 

This year I also took a leap of faith & extended my wee empire to include oPeration BoPo. I wanted a thing that didn’t exist locally & so, I just went ahead & made it happen. My first event was an amazing success. I believe there is a need for accessible body positive projects & I am determined to meet it. I have some exciting things in the work for 2017. Get ready to join the self love revolution. 

This year I have gained a confidence that I feared was gone for good. I took charge. I had some big scale health issues & disappointing discoveries, but I kept rolling. I let go of yearning to be the girl I was before life got fucked & embraced the woman I am because & inspite of it all. 

This has been a year of seizing what control I can & trying to accept that it will never be the unbridled authority I desire. My body & mind will continue to usurp me. I’ll just have to wrestle them into the best submission I can manage. 

I’ll be honest my life can be brutal. You know what? I can be too. I’m heading into the new year with a 5 year plan, a growing business, my first nude photo shoot under my belt, ovaries that are really trying & the very best people supporting me. 2017, I’m ready for you. 


I hope there were some bright spots for all of you too & that next year brings you all you’re hoping for. 

All I can say is I’m breathing…

PTSD is a persistent foe. You can make progress & start to think maybe, just maybe you can actually defeat this bastard, but it knows you think that. 

It’s waiting for you to relax your hyper vigilence. The moment you begin to let go of the breath you’ve been holding for 17yrs it will suck it in & grow.

Folks in your life see you gaining strength & think you’re better. There is no ‘better’.  There is managing ,

coping,

trying to live,

daring to live?

The good days can start to stack up. You can feel a safe distance from the horror, but you can never be sure. 

You can never be certain that a flashback won’t stun you like lightening. 

And stuck in that hot, white memory you could loosen your grip on the here & now.

The relative calm & safety could be shattered. Perhaps only for that instant. You could be lucky, those smells & fears could melt away. Current achievements or delights may well wash over you. It’s possible. That happens. 

You’ll make plans & take steps. But you’ll always be looking over your shoulder. The knowledge of the cruelty of your own mind will keep you rigid.

Because lightening does strike twice & thrice & ever & on.

With every thump of your heart you know you’re only one more squeeze from disaster. Where little sleep becomes none. The crazy creeps out from behind all those positive walls, it brings terror & tsunamis of grief. 

And the pills don’t work

Or Dr’s 

Or the life jacket you had to make with your bare hands. 

There is only one way to row to shore & it’s brutal. It’s hot blood dripping from your fingers; slippy yellow fat & an uncontrollable urge to cut a little deeper. 

Bleed a little more 

Wrapping up the unthinkable pain in the easy hurt of butchering yourself. 

This illness is being  awake in the night & writing so you won’t do. It’s ignoring the destructive comfort because you so desperately want this new, real life. 

And, yes, all those yous should be I’s. 

It’s my past, my pain, my ongoing battle for a future. 


Listen, I’m a really perfect song.

If you like what I do you can support me here or on Patreon.

Now you’re in New York…

A large package arrived by special delivery today. As I wasn’t expecting anything I signed quickly; eager to rip it open. One tear of the packaging revealed a thing of beauty. 


Someone utterly wonderful got their hands on my absolute favourite thing. A rare pair of Irregular Choice. I have wanted these particular shoes for years, but have never been able to get my hands on a pair. Behold, the wonder shoes.



They are perfect. Their perfection is only slightly marred by me pushing my swollen feet into them. When my tootsies & ankles return to their regular size I’ll give them a proper debut. In the mean time I’ll just keep peering into the box to admire my NYC babies. 

Daddy Cool….

It’s Father’s Day & what better way to celebrate my lovely Dad than to take a trip down memory lane. 

My dad worked shifts when I was a kid. He’d do a twelve hour night shift & arrive home just as we (I have three siblings) were getting up for school. Instead of retiring directly to his bed he would make us breakfast. Cereal with bananas hidden in it. Mountains of toast or boiled eggs made three different ways to suit out picky tastes. The really special thing about it was he always did it with pleasure. He didn’t rush us or shirk our requests. He kept making that toast until we were satisfied & he made sure every banana slice was hidden in those rice crispies. Making your kids breakfast is a simple everyday  occurance, but when I look back at my childhood these small acts of love really matter. 

  

My sister & I sometimes call our father Daddy Cool. I think it started on a holiday in Mallorca & it stuck. It sums up so many aspects of him. From his little air guitar dance when he hears a tune he likes (which are often by edgy new bands) to his random fancies for designer clothing. The now famous ‘ porno’ moustache he sported my entire childhood also played into the nickname. Wether he’s sporting some Armani or hitting some cool new restuarant he is totally our Daddy Cool. 

  

My childhood is bursting with good memories of Dad. He used to pick us up from primary school & let us walk home through the park. While we galloped along he would be cheerfully carrying all our super girly school bags & paraphanelia. He frequently took us walks in pollok country park, allowing us to carry on & explore. He introduced me to The Burrel Collection  & highland cattle, both life long loves. Dad always had time for us to check out the Rangers station, or the ancient tree or a million other things. 

  

In Glasgow there’s an old tradition of people singing at parties. Right into my teenage years I remember family & friends always calling for dad to sing. I loved it when he did, he usually choose rather meloncholy songs. He sang them so clearly & with real feeling. I fell in love with John Lennon & Janis Joplin after hearing dad’s renditions of Jealous Guy & Bobby McGhee. 

My dad did all the things that storybook father’s are supposed to do. He taught me to ride a bike & to swim. He checked my homework, helped me fill out UCAS forms & grounded me when a boy gave me a nookie. Besides those things he has given me so much more. He gifted me the wonders of 60’s & 70’s music. Whilst my classmates were loving techno I was discovering Joni & Bob. Dad also played a big part in developing my political views. From asking him questions about the night’s news to talking over what I’d been learning in history. I’ve always respected his socialist values. Dad has been unceasingly present throughout my life; encouraging & advising. He has also been tolerant if bemused by some of things I’ve gotten up to. 

  
  

Now that I’m grown & some of my siblings have had children I have the joy of watching my fantastic dad become a wonderful Granda. He will hide under tables, bite balloons & get down on his knees to become a horse who gives rides. He’s exactly the kind of Granda every child wants. 

  
   

  

In conclusion, I love you dad. Thanks for raising me right. 
Happy Father’s Day. 

Homeward Bound….

I have a recurring dream.

A dream of such contentment that whilst asleep I am cradled in bliss. 

It’s a simple dream,

I am home, in bed.

The room is dark, but lit with a blue glow,

I feel a gentle breeze

& the happy purr of my cat vibrates beside me. 

My hand rests on my firm, round belly,

caressing the life that resides within.

In the distance I hear Simon & Garfunkel singing about where love lies waiting.

I am blanketed in happiness.

As the music grows closer,

I approach reality.

I bask in the feeling for a few magical seconds before sadness drowns me.

I realise as I rise to start my day where home is for me

And how much I long to be,

Homeward bound. 

This is for lovers…

St Valentine’s Day is almost upon us again; love it or loathe it is time to get smoochy. Personally, I fall into the adore it camp. What’s  not to like about a day dedicated to love? oh, I know, some folk think it’s too commercialised and others hate it when they’re single. To those folk I say, relax & feel the love. Be it a celebration of a lover or a friend, Valentine’s is the perfect opportunity to tell someone special how much they mean to you.

There’s no better way to spoil the object of your affections than finding their perfect gift. I like presents to be a bit different, but still sufficiently lovey dovey. With that in mind I have compiled a wee wish list to suit my needs.

  Nipple Tassels – Bluebella, Scratch the World – Not on the High Street, Aftershave – Gant, Feminist Sweets – Feminist Apparel.

  
 Chocolate grenade – Etsy (chocsforchaps), Body bow – Asos, Smartphone Projector – I want one of those, Mini Message in a Bottle – Etsy (cocospots).