Something to talk about…

Time to talk day has just be crept across my timeline. I’m hoping it’s a testament to how attitudes have changed towards what is needed in the mental health sphere that I’m only being alerted to it at 9.30pm. Despite my cynicism I clicked and perused the website.

Sadly, it’s the same old story. Like most other mainstream advocacy for mental illness, Time to talk fails in tackling the real barriers people with mental illness face. Of course it is important to dispel stigma around mental health problems. It is also great to encourage people to support friends, colleagues etc. The tips on how to approach such conversations are fairly helpful. My issue with this model is that I don’t believe it acknowledges the depth & breath of the problem. In fact, I would go further in saying that the offering a listening ear platitudes can even diminish the experience of many with mental illness.

I’m 43yrs old and I have managed various levels of mental Illness almost entire and life. In all of that time the NHS has been under resourced in the mental health sector. As the years have gone by funding has been slashed and the problem has grown. We have been at crisis status for a very long time. There has been an uptake in mental health awareness. Campaign after campaign successfully identified warning signs and urged us to seek help. Unfortunately, the help requested is most often not forthcoming.

At the moment just getting a Gp appointment can be an enormous struggle. From there referral to primary mental health services always results in landing in a very long waiting list. If you can survive that wait, the treatment available can be limited. The first line is usually a limited course of CBT (cognitive behavioural therapy). CBT can of course be effective for some issues. It is not an answer for more complex mental illness. Alongside CBT there are a variety of helplines and websites, which can offer valuable information, but do not constitute treatment. There are of course psychiatric medications. These can be life saving and do improve the lives of millions. However, they are not magic, most often they must be used in conjunction with other therapies.

A referral beyond the intial interventions already mentioned is difficult to obtain. Infuriatingly, not everyone merits a place on their waiting lists. Those who do make it are in for another privilege wait. The quality, duration & efficacy of what is available at the end of that line is unknown. There are excellent professionals, treatments & resources, but they are stretched beyond thin. There simply aren’t beds, funding or staffing to provide the appropriate treatment & support for everyone who needs it. The result is, most people are shirt changed. Problems that could be caught early are allowed to progress. Serious problems become emergencies. In short, our population suffers more mental illness and become trapped in illness for longer. Some, forever.

Beyond the personal tragedy, the social and economic toll this takes is clear. People become unable to work, care for their families, participate in their communities, they then are laden with whole new set of problems. This of course negatively impacts their mental health and round they go. More people end up in crisis with no where to turn but emergency services, which are not equipped to render proper treatment. Again worsening the situation of the individual and eroding resources available overall. Apply this cycle across the board and it becomes obvious how vicious it is. It is an enormous widespread problem that can not be solved without massive funding, recruitment and a re evaluation of government policy.

Atop those failings is the fundamental shortcomings of the message itself. Breaking down stigma is vital. However, I think the focus of these campaigns, asking how people are feeling, actually is listening to the answer and so on, don’t go nearly far enough. It gives the impression that all mental illness can be easily solved. The adverts and literature are always about depression or anxiety. They show the palatable side of these conditions; someone who has a difficult period and with a little help from their friends gets better. Images of people crying or holding their head in their hands distort the reality of living with such conditions. When someone can’t get out of bed or in the shower for days on end, when they can’t function or find relief despite those caring chats it’s a shock. A check in with the Gp & some anti depressants won’t cure everything. Mental illness encompasses a myriad of conditions. Symptoms can be extraordinarily distressing and debilitating. Some are enduring illnesses that require complex and specialised treatment. Conditions like schizophrenia, Ptsd or Bpd are rarely discussed. Instead they’re sensationalised & misrepresented in the media. Perpetuating dangerous ideas about those living with certain conditions. The fear and shame have not been dispelled. We’ve merely carved out a tiny category of ‘acceptable’ mental illness.

The recovery narrative presented in mainstream mental health advocacy is too simple. Not everyone gets better. Lots of people instead learn to manage their mental illness. Others have recurring episodes. They are still smart, loving, valuable human beings. When all society is presented with is neat stories of struggle, seek help, return to health forever expectations are unrealistic . Those who don’t follow that template become doubted. Compassion turns to thinking they’re not trying hard enough or maybe they’re exaggerating. Stigma persists. We need an informed public. Not only on the broader experience of mental illness, but on ways to bring about change. People should know why our services are failing. The power of our voices and votes must be understood. We also need education around navigating the systems that exist. Everyone should be aware of how best to advocate for themselves and loved ones. We do need to talk, it’s just a much bigger conversation.

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Humanitarian Crisis

January’s charity contribution was sadly a very obvious choice. The assault on the Palestinian people has continued despite even the intervention of the ICJ. The resulting humanitarian crisis is overwhelming.

Health care & residential infrastructure have been decimated. Most of the population are starving. Malnourished mothers are giving birth to babies who can survive only a few days. The scale of suffering is hard to comprehend. If you can please consider donating to one of these amazing organisations.

Unicef provide essential aid to combat disease, malnutrition & injury. They are focused on caring for the millions of children impacted in Gaza.

Medical Aid Palestine works for the health & dignity of Palestinians living under occupation. They desperately need help in providing urgent medical care and developing local capacity to ensure long term medical services.

Hakini is working to set up an emergency hotline for people in psychological distress. They provide specialised training for volunteers to support civilians & aid workers.

Stormy weather…

I’ve never feared storms. On the contrary, I mostly find them comforting. Thunder, gales, torrential downpour all increase my sense of safety as long as I experience their strength from behind four walls. Nothing feels quite as cosy as listening to wild weather batter around one’s secure domicile. The sounds are soothing. The gratitude of having a comfortable place to take shelter brings a warm contentment. Similarly, I enjoy rough seas. I’ve always preferred a desolate winter beach to one that is sundrenched. I find a listing vessel thrilling. I hope for a crossing choppy enough to produce that I don’t know where my foot will land when I take a step sensation. Crashing waves, howling winds, angry skies; tick, tick, tick.

There is only one niggle. If Mother Nature is unsettled in conjunction with my mind things can get rocky. Only a very particular mood presents a problem. Clear cut emotions pose no threat. If I’m sad the rain feels appropriate. Angry and my dirt is matched.However, if a storm hits when my mind is in conflict with itself, batten down the hatches. Sometimes what I want to feel clashes up against what I actually do feel. Other times I can’t decipher exactly what I think or feel. Then there are the overlapping, opposing emotions running around up there. All of which are heightened by a natural uproar. Somehow nature’s dramatics heighten my confusion. I can’t straighten out my insides & the untamed outdoors gives the mess a false significance. Querulous suppositions that might otherwise pass are given weight. Being aware of this does nothing to lessen the frustration. One can’t logic their way out of a metaphorical brick in the stomach. 

Thus tonight I am in flux. Craziness swirls beyond my bedroom window & behind my eyes. I can’t unpick the tangle. Perhaps I’ll know what I feel tomorrow

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Ins & Outs…

I haven’t made New Year’s resolutions since I was a child. At first glance I thought the In & Out trend was just a rebranding. However, on further investigation I have decided that I like this less momentous approach. Instead of massive declarations, we’re just reassessing what everyday things serve us well. Less changing who you are & more smoothing life’s aggravating edges. I’m willing to give it a go.

In

Swimming

More of it. I love swimming. I feel less pain in the water. I can whizz up and down in a manner I haven’t done on land in years. I enjoy it. I don’t know why I so frequently let life get in the way, no more. I’m carving out time every week to indulge in a dip.

Do it for fun.

I am pretty useless at crafty things. I do however enjoy the process. I like pottery and painting and making my own flowery bits. I’m often put off by the fact that the finished product is not grade A. Bugger that, why relinquish pleasure because I’m not good at it? No one is good at everything. Just for the fun it is good enough reason.

Currently reading

I like seeing what others are reading & enjoying. I’m often asked which books are on my shelves. Unfortunately I forget to share as I’m reading. Then when I remember, I have dozens of books I haven’t talked about. This year I will endeavour to share my books as I devour them.

Have a little faith

In my own talent. I know I can write. People pay for my words, lots of folk read this blog, my work has been praised and published for years. I know I can write. Yet, the imposter syndrome is real. Doubt is always creeping in, I drag my feet on some opportunities because I’m not convinced I’m good enough. It has to stop. I’m 43yrs old, I can do this.

Out

Matching Socks

I have various singleton socks. Perfectly nice, soft & cosy socks. Bugger it, I’m pairing up the odd ones and wearing them. No one with any sense cares a jot.

Guilt

I have a long established guilt issue. I can & will feel guilty about almost anything. Given that I have plenty of real things to feel horribly guilty about, I am going to try my hardest to let the insignificant things slide. There are only so many hours in the day, it does no one any good for me to spend most of them worrying about what is my fault.

Explaining

It’s exhausting and most the time it’s no one’s business. I’m no longer explaining why I need to know if there are seats or stairs. Folk can just answer the question. I ask politely, it’s straightforward information, just say yes or no. Randoms don’t need to know what pill I’m taking, why I’m vegan, why I fainted or any number of other things. Curiosity killed the cat and constant explaining knackered his Mother.

Making exceptions

This is the big one. There are one or two people in my life from whom I accept less. I love them, I know them inside out & I want them in my life. As a result I tolerate certain things from them that I wouldn’t from anyone else. Mostly this is absolutely fine. I’m not talking about horrid or cruel behaviour. Just the odd less than ideal lapse. Here’s the rub, sometimes those lapses hurt. I’ve decided it’s time I shift things away from swallowing that hurt. Everyone deserves to their have effort & care reciprocated. I must stop making exceptions. When annoying becomes hurtful, it is time to speak up.

If you like what I do you can support me here or on Patreon.

Blue Christmas…

I love Christmas. The focus on giving and spending time with loved ones is special. I like the way it makes strangers wish each other merry. It warms my heart to see little ones really believing in the magic of Santa Claus. Tis the season, right?

Well, yes and also a little bit no. The last few weeks have been a whirl of wrapping gifts, singing carols with excited little people, twinkly lights & festive fun. I have adored every minute of it. However, now that all the presents are delivered and prep is completed I feel a tad blue. This always happens. I needed a rest day before the main event, but as soon as I slow down it hits.

My siblings and friends are having cosy days at home with their families. My Christmas nest is empty. I can’t help but think of what could have been. All traditions I wanted to pass on; opening just one present on Xmas eve, fuzzy red stockings with their names in gold, snuggling with Santa hyped darlings as we read a new festive bed time story. Then the frantic readying of gifts whilst my babies sleep. Santa presents wouldn’t be wrapped in my house; just lain out beautifully in the living room. Ready to be enjoyed the second they wake. There wouldn’t be any Christmas morning rules. Rising before dawn, chocolate for breakfast, all out Christmas chaos would be just fine. There’s an unsung seasonal opera in my head.

I know I’m very lucky. Tomorrow I will be with family. Exchanging gifts and clinking glasses. I’ll watch my nephew tear open his gifts and be loaded with big loving squeezes. I’m safe, warm & loved. That is a lot to be grateful for. There’s still hint of sorrow for the dreams that didn’t come to pass.

I know I’m not alone in being touched by sadness at this time of year. If you’re struggling this year, I’m sending love. If joy is out reach I hope you can find some peace.

How I’m feeling now…

I have been somewhat absent here. Anxiety has engulfed me. There is a very specific reason for the anxiety, unfortunately it is not a thing that I control or fix.

Theoretically being able to pinpoint the trigger means it I should have a definite end point. However, since resolution is not within power the uncertainty persists. I can’t even begin to address the issue until next week, which leaves me endlessly playing out scenarios in my head. It is sickeningly stressful. The fear that has been sitting on my chest for a week feels like it’s attempting to climb up & grab for my throat.

I’ve tried every calming weapon in my arsenal to little effect. When I managed to leave the house every sensation was painfully amplified. I was both submerged in sound & every noise was taking place inside my body. Likewise, every living being in my approximate vicinity seemed claustrophobically close. I felt dangerously on display & incapable of making a quick retreat. Sitting still was impossible, but moving left me gasping for breath. I couldn’t decipher if it was Pots or anxiety related. The more I worried about it, the less able I was to catch my breath.

Outside was brutal. Inside is merely a more measured torment. The slow drip of water torture rather than the ripping out of finger nails. I remain on high alert. For what I don’t know; there is no physical threat. My mind stubbornly refuses to divert course. If I pull it astray thoughts quickly revert to dissecting worse case situations. This is very much a wait and see kind of issue. Strategising & replaying every possible outcome cannot help me.

Still, I lie awake at night with my heart pounding. When I finally dip into sleep my subconscious conjures catastrophes that aren’t even feasible. I awake in a panic that fades to dread. An awful gnawing fear the dark summons in the certain absence of slumber. I never feel more inclined to screaming than when imprisoned in insomnia. 3am worries are no one’s friend.

Of course I reassure myself that I can survive subpar outcomes. I do know that this extreme horror level of anxiety will not last forever. I’ve coped with worse & there will be much better days. My mind simply doesn’t care. We’re hyped up to life or death threat defence and it has no intention backing down. If I had a bunker, I would be in it.

If you like what a do you can support me here or on Patreon.

At least I’m trying…

In the latest of my body’s ridiculous tricks, I have shingles. When I’m run down I often succumb to random bonus infections. Shingles is also brought on my stress, which makes sense because January was a shit show.

I think I’ve had some lucky for once as I don’t seem to have a really severe case. The rash is painful (although not as bad as I’ve heard others describe it), but all the cold/fluey symptoms were short lived. It feels like a burn and if anything even slightly touches my skin the sensation is akin to a shock. My GP has added some pain killers to my usual lot, which are making it all manageable. They’re also making me super tired and a little spacey, which is having an effect on my creative output. I hope you’ll bear with me as I try to get back to match fitness.

ly is wearing heart shaped glasses and looking a little dazed.

In the name of the Father, the Skeptic & Son…

I was raised Roman Catholic. I went to mass every Sunday, made confessions, took communion. I attended catholic schools. My primary school was flanked by a chapel, a missionary monastery & a convent. By virtue of attending those schools most of my friends were also catholic. We all prayed before lunchtime, sang hymns in assembly and had regular R.E. Classes. What I mean is I understand how organised religion works. I was immersed in dogma throughout my childhood.

That’s not to say I always liked it. Even early on I remember having the distinct feeling that some it was icky. I didn’t like the bullying ways of my school chaplains. Some of the things my teachers hammered home did not fit with the whole peace & love vibe. Mass was never anything other than a thing to be endured. Catholicism always felt too rigid.

It wasn’t until I hit secondary school that I really started to call bullshit. I didn’t believe much of what I was being taught. More importantly I hated the intolerance. Catholic views on sex, sexuality, gender roles, abortion and so much more simply did not align with my own. Neither did they fit with what I had learned at home. I couldn’t bite my tongue in the face of bigotry dressed up as god’s word. Nor could I bring myself to do the cherry picking that many religious folks do. The catholic faith felt like a straight jacket & I would not be restrained.

Thus, I drifted away. I stopped going to mass. I let myself question everything I had absorbed. I dug into the history of the church and its current practices. The more informed I became the less respect I had for any of it. It’s all steeped in atrocities & injustice. Organised religion it seemed was just a way to control the masses. What better way to impose your will than to tell people it was in fact, god’s will. By the time I finished school I no longer considered or described myself catholic at all. I had & have no use for any organised religion. I believe there is a higher power of some description, but not some patriarchal judge in the sky.

Most of my family still belong to the church. I have friends of various faiths & none. I’m very much a live & let live type of person. As long as no one is trying to impose their beliefs upon me or actively do harm in the name of religion; I don’t consider it my business. I do however retain a distrust & distaste for the institutions. I want no part of it.

I tell you all this in order for you to understand how I felt when I received this comment on something I wrote on the anniversary of my baby’s due date.

Anger was my main reaction. I removed the comment & blocked the (blank) account. I hated the thought of someone more vulnerable than myself receiving such a comment. I felt angry that this so called church elder was trawling for people they thought they could manipulate. However, I didn’t want to give it anymore time or energy. They were blocked; end of story.

Unfortunately not. A couple of weeks later, on my birthday, I received an email. This time from a church elder named Liam McIntosh. It was more of the same. Insulting & ignorant comments about my life, offers of ‘support’ and that suspicious claim of referral from a concerned friend. There is not a single person in my life who if concerned would ask the Church of Jesus Christ of Latter Day Saints to help me. This contact enraged me. I have an excellent support system, a sense of purpose and lots of joy in my life. However, I am aware that many people do not. I remember how little it took to overwhelm me when I was in the depths of mental illness & grief. I am also cognisant of how easily some people who feel desperate may be manipulated. Both messages utilised abuse tactics; belittle, claim to be doing so for the victim’s benefit and then purport to have all the answers. A church setting out to prey on vulnerable people in this manner sickens me.

This kind of behaviour is exactly why I do not like organised religion. It is predatory. This organisation is clearly seeking out people they believe to be vulnerable in order to manipulate them. I am not that person. I share my experiences in order to dispel stigma. I find the ‘concerned friend’ tactic particularly disturbing as it purposely exploits the guilt & shame that many people in difficult circumstances already feel.

After receiving that email I felt sufficiently angry & concerned to act. I tried to track down both men who contacted me. I could find no trace of either on official church websites etc nor could I find any record of professional training that would qualify them to offer such advice. The only COFLDS that I could find in Hamilton has disbanded. I called Edinburgh & Glasgow branches, but neither wanted to comment. Nor would they provide details of anyone in a senior role to discuss these communications. Some elders though are obviously reading this blog, perhaps they would like explain themselves?

I’m not finished with this. I am worried about the harm these unethical strategies could cause. As a result I am working on a more in depth piece for publication. If you or someone you know has been contacted in this way, I would like to hear from you.

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Come away with me…

Several weeks ago I came across a word I’d never previously encountered. I haven’t been able to stop thinking about. It encapsulates a feeling that lives with me, but has eluded succinct definition. The word is Hiraeth.

It’s Welsh and doesn’t directly translate to English, but it means a homesicknesses for a home to which you cannot return or perhaps never was. It was in an article and I didn’t understand. I had to look it up. When I read that definition it felt like I breathed it in and it found a spot inside me where it fitted perfectly. It explained something I already knew.

It is exactly what I feel in those moments that I’m not sure what I am doing or who I am. The thing caught in my throat when I hear children shout for their Mummy. It’s the longing for a world that only ever comes to life in my head. Except I can feel it. I know the intricacies. I have plans for every eventuality (& even strategies for the inevitable unknowables). Pet names, values & handed down treasures thump in my chest. The sensation of heavy sleeping breath and hot ‘it’s not fair’ tears. The music I play, the books I read them. Dancing in the living room for no reason just like I did with my Mum. I close my eyes and conjure how crushing the responsibility can be. Losing my patience, the swamp of guilt that follows. The days I am certain I said absolutely the right thing. The pain of knowing I missed the mark. I’m not imagining it; I can recall the emotions. They’re fizzing under my skin. The flick of hair from a face or a tut of exasperation are as decernable as memories. I long to go home.

Homesick for the home I couldn’t build. That’s the feeling that perpetually lurks. Now I know it’s name.

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