I Do This All The Time…

It’s been a very hard month(?). Hard to be sure how long because my brain is utterly scrambled. In any case, there has been a lot of medical bullshit and I have not been taking care of business. I have been indulging in therapeutical level loud music, these are the songs that have been on repeat.

I Do This All The Time

Since seeing Self Esteem at Trnsmt. I have been a tiny bit obsessed with this song. Self Esteem is awesome in general, but this song really hit home. Its a cool uplifting anthem, with a ‘you got this’ message. This song has summer has hit written all over it. I suspect its success might be in part because of how well Self Esteem understands her audience. The lyrics really get into the thoughts and concerns of so many women. Our tendency to believe we’re not making the right choices, picking the right people or being good enough at all. Some of these lyrics felt like they were written just for me, especially the ‘you’re a stocky girl’ & ‘it was really rather miserable trying to love you’ lines. It is reassuring to hear someone get that and dispel it all in one upbeat banger. You didn’t think you’d live this long sun happily will get me every time.

Prioritise Pleasure Album Cover.  As slim white woman with blonde hair wearing black bodysuit , black hat and black knee high boots. She is posing with her arms in the air

I Am Not Ready

I discovered Olivia Broadfield via The Split. This soundtrack made the series even more heartbreaking. She is a lyrical genius. I feel these words in my bones. I am a sucker for a sad song and this entire album is perfect. I Am Not Ready works for either grieving someone who has died or lost relationship sense. Oh man, if you’ve experienced either, this one cuts deep. Broadfield’s beautiful voice begging to know if it ever gets easier is a killer. Let’s face it, we’re never ready to say goodbye to the people we want to keep.

The Split Soundtrack Cover. Four white women of various ages looking sternly at the camera

Cloud 9

I can’t even remember where I heard this song. I don’t know anything about Beach Bunny nor have I checked out their other music yet. I just find joy in this song. It’s a dreamy, lovey dovey, summer tune. It makes me smile when I’m stuck in a stifling waiting room. That’s good enough for me.

Cartoon of a women in shirts and t shirts. Lying in the ground with her legs in the air, holding a bunny in her chest

Worry Bout You

I found Kendra Celise on Tik Tik. She is a singer/songwriter with a kick arse country vibe. She was inspired to write this song after a phone call from her ex husband’s new girlfriend. I have to say I think this is the coolest way to deal with some daft bitch bothering you. Her lyrics are clever and this song is so good when it’s blasting all through the house.

White women with blonde hair sitting on the back of a pick up truck holding a guitar

Bronan isn’t always as delighted with my loud choices, but he does always forgive me.

Slightly grumpy black and white cat.  He is lying on a purple sofa with his paw on a pale arm

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Over the faultline…

In a previous post I discussed some developments with my long covid debacle. I had to wait a while to see a specialist and have some tests done, but I am now closer to a diagnosis. I will speak on that later as I have two more tests to under go before that is finalised.

I am feeling deflated. My appointment this week didn’t hold any surprises, but there weren’t answers either. The consultant couldn’t give me any opinion on whether my current symptoms would improve or resolve. She also didn’t have any suggestions to improve symptoms that I am not already doing. Drs still have a lot of ‘don’t knows’ when it comes to long covid. That’s not anyone’s fault, but it is incredibly difficult to deal with. As I have said before, the thought of being stuck in my current condition is terrifying.

Large modern glass and steel hospital building

I am trapped within by body’s limitations. I feel useless and unreliable. In the last two weeks I have had to miss a funeral, reschedule medical appointments & cancel just hanging out at my friend’s house because I was too ill to get out of the house. I can’t keep up with housework or actual work. I am almost always saying no. When I see my niblings I can’t play the way I want to. I can’t help out my Mum friends/family the way I want to and used to. I can’t visit friends I haven’t seen since pre pandemic because the night before I am due to go I end up in hospital. Any outing I can make I constantly interrupt with my need to rest. People always have to ask if I am ok, if I can manage and so on. I hate it. I don’t want the people I love to be worried about me all the time. I make everything harder for everyone.

Women’s legs on a bench with handbag and walking stick

For me this is failing on all fronts. I’m not doing anything well. Doing everything that has been suggested to help and having no improvement is so dispiriting. Gentle exercise might help, but too much will exacerbate symptoms. I struggle to do 5 mins of gentle yoga stretches without getting so dizzy I pass out. Swimming is great, but I’ve been advised not to go alone. I’ve doubled my fluid intake. I’m resting and doing all the recommended exercises when I am sat down. I stand up slowly, clench muscles and don’t stay in the same position too long. I’ve gone for every test and treatment. I’m utilising every trick in my pain relief deck. I’ve cut back, more rest days, meditate, take deep breaths. Nothing works. My pain levels have not reduced. Dizziness & fainting will not abate. My heart continues to race and I can never get a breath. The brain fog is the worst I have ever experienced. No one has any other help to offer me.

California fault line

I don’t know how to adapt to this. It is very hard to see how I live a fulfilling life in this state. I know I have felt this way before and found a way, but my horizons keep shrinking. Hopefully it will get better or I will rise to the challenge. Right at this moment I don’t know how to do that. I am more stuck than I have ever been.

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