Don’t speak…

I’ve talked about the misguided things that people say in the wake of a miscarriage. Although these things can hurt, I understand that no harm is intended. I’ve been hesitant to tackle the other side, the people who say things they know will cause pain. Try as I might I cannot understand what they gain from this. Bear with me, I’m going to do a little blog therapy.

I can’t believe this has to be said, but here goes. A person’s stance on abortion is not relevant if the have a miscarriage. After my most recent loss it was suggested that my pro choice beliefs made my devastation over the miscarriage incongruous. Actually I think they were insinuating that it was hypocritical of me to grieve the loss of a foetus when I support the right of someone else to terminate one. Let me be clear, I support each individual’s right to choose. My experiences of pregnancy and miscarriage have only strengthened my pro choice convictions. Carrying a pregnancy and giving birth is an undertaking of such enormous magnitude that it should only ever be done willingly. My desire to have a child is not in conflict with my refusal to deny others bodily autonomy. I don’t want or need an abortion, but I will fight for those who do. Using that against me at my most vulnerable moment is cruel. Choice is the operative word. I had no choice in losing my wanted pregnancies. My dead babies are not a debating point. Attempting to litigate how upset a person is permitted to be is disgusting.

Choice clouds

Equally repugnant and heartbreaking was the proffering of surprise that I would be hit so hard by a fourth miscarriage. The reasoning being that I should have expected it may happen (I did of course) and that I should have become hardened to it by now. I can’t comprehend the lack of empathy it would take to think such a thing let alone say it loud. I don’t understand how one comes to the conclusion that reliving the worst time of your life over and over would make it easier. I can’t understand how anyone would imagine that having a worst fear realised is any less awful because you knew it could happen. Forcing someone to defend their distress is cruel in a way that must be deliberate.

I also wanted to touch on a group of platitudes that are offered frequently. Variations of ‘everything happens for a reason’, ‘god moves in mysterious ways’ or ‘it’s a blessing in disguise’ are never ok. I have been repeatedly assured that good intentions lie behind these phrases and I’m calling bullshit on that. They’re just lazy and ignorant remarks. Even a moments thought would uncover how inappropriate it is force your religiosity on someone. If you somehow take comfort in believing that ‘god’ purposefully snuffs out specific unborn that’s bizarre, but your business. To impose those ideas on fragile people in the midst of trauma is wilful ignorance. It is choosing to prioritise your own comfort above that of someone who is suffering.

Blurred light

I’m incredulous that I have to say any of this. It hurts to be forced into these unnecessary conversations. These aren’t blunders, they are examples of selfish agenda pushing. There is no kind reason to pursue these topics. It’s callous & inexcusable. Don’t do it.

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Hit the spot…

February has been a fairly insular month. It’s very cold outside & I’m not much in the mood for socialising. I’ve hit the Netflix & actually chill a little harder than usual. It’s been the month for distractions & these have been the most effective.

I’ll just dive right in with the Netflix shows that have definitely been diverting if not entirely relaxing. Abducted in Plain Sight is insane. It’s documentary covering the abduction of a girl by a family friend. The behaviour of almost every adult in the entire tale is beyond explanation. If the story was fiction it would be dismissed as ridiculous. Also horrific, but in a completely different way is The Bleeding Edge. Another documentary, this one about medical devices & implants that highlights a terrifyingly lax regulation process. Watching this doc probably did not help my insomnia, but it may save me some future medical catastrophe. Last of my Netflix trilogy is also billed is scary. Since I’d never trust a man I’d only known 6 weeks never mind marry one, this one isn’t keeping me up nights. Dirty John is based on the true story of a lying, cheating nutcase. Whilst it’s doing nothing to raise my opinion of the menfolk it is worth a watch. I have been watching one series that does make me feel warm towards humanity, Catastrophe. Everything about it is exceptional; hilarious, real, romantic, tawdry & I liked. The final episode had me in bits, in a good way.

Netflix viewing

An insomniacs best friend is a good book and I’ve been rattling through them in the last few weeks. I opened the month with The Tattooist of Auschwitz which manages to do the almost impossible by making a story about a death camp hopeful. Having said that it’s not very well written & really doesn’t live up to the hype. Giving a book about the holocaust a tepid review feels harsh, but there are better books on this topic. Oyinkan Braithwaite’s take on the serial killer genre was a better choice. My Sister, the Serial Killer is creepy and yet almost playful. You know exactly where the story is headed, but you still want to get there. I’m currently digging back into the Patrick Melrose novels. I re read the first two in the series last year and then got sidetracked. Some Hope is probably my favourite of the five. If you haven’t read these St Aubyn classics, you should.

Patrick Melrose novels & the tattooist if auschwitz

My cute little record player was an excellent purchase. It offers distraction on two fronts, great sounding bath soundtracks & an excuse to go rooting in second hand shops for cool records. The latest of which is The Jesus and Mary Chain. Psycho Candy gets me with it’s relaxed trippiness. It is extra beloved for being on the Lost in Translation soundtrack & just thinking about that last kiss in the street makes me smile.

Books & records

Bronan really likes it too. Every time I put a record on he sits right beside it & purrs like mad.

Cat listening to record playing

Back on the digital side I have had one song in particular on repeat. No Pressure by Mahalia just speaks to me. It’s one of those songs that I just adore the cadence of. I was alerted to it’s greatness via Meghan Tonjes’ insta stories. Meghan herself has also been featuring on my Spotify most played list. Her collaboration with Daren on Count Me Out is a sentiment I can get behind.

Mahalia, no pressure

When I have ventured out it has been to see my glorious little people (& their creators) all of whom breathe colour into my life. My littlest monkey had his first birthday this month. My big nephew is going through an adorable dinosaur phase. Madison’s curls just keep getting cuter & my not so little goddess is texting now. She just loves to send her old auntie freaky gifs.

Not sleeping also gives me endless hours to paint my nails. I hate to have bare nails. These have been my February favs.

ly h Kerr Nail Art

Mixed media & preening aside it’s been an equal split between baths and sunsets. Both bring me comfort and earn a 5 star rating.

Sunsets and thigh tattoo in the bath

Look back in anger…

I’m angry. So angry that it’s hard to contain. The problem is there’s no specific target for my rage. It’s a generalised, tear everything down kind of fury. There’s no release. I can’t spew my anger over unsuspecting bystanders. Keeping it in doesn’t feel like a viable solution either. Where does one put all the free floating resentment that no one is actually to blame for?

Life isn’t fair. I came to terms with that fact a long time ago. I’ve accepted a lot of bullshit. Fought crazy & illness & disability & mistreatment & loss to build some sort of something. I’ve struggled, but I’ve rolled with the punches as best I could. There’s only ever been one thing that I’ve felt I couldn’t do without. One single imperative. When you’re willing to get by without so many things, it feels so desperately unfair to be denied the thing that would make it all ok.

I watch everyone around me do the thing I cannot. Some with such ease it leaves me breathless. For others it’s a harder journey, but they reach their destination. I love those people and I love their babies, but it’s so hard to be the only one stranded.

I’m angry that I have to do this again. I’ve been tricked into hoping. Now I have to deal with the fall out. I am mad at myself for being stupid enough to believe. I resent having to submit to medical interventions. I didn’t ever want to hear someone say they can’t find a heartbeat again or look at another bloody speculum. I’m furious that I’m still bleeding and that I have to cope with all that triggers. It’s agony to be constantly reminded that my body has failed again. It’s exhausting to face the nightmares and flashbacks of all other blood. I don’t want to relive each of the worst moments of my life whilst trying to get through this one. I’m sick of blood tests and transfusions and putting on a brave face. I hate that I don’t get to opt out. I’m not strong, I just don’t have option of walking away because it’s too hard.

I don’t understand why it has to be me. Why my babies keep dying when I want them so much. Why does the universe give life to those who can’t or won’t love their children? Every time I read a horror story of abuse it feels like a personal attack. I think of all those terrified pregnant teens, the adult women who can’t feed another mouth or just never wanted to parent and I wonder why it couldn’t be me instead. I’m not angry at the individuals; everyone should have the right to choose. I’m furious at whoever or whatever makes decisions. What could I possibly have done that disqualifies me?

I see people smoking as they hold their child and I have to restrain my scream. Each impatient, inappropriate or lazy exchange between a parent & child kills me. Even the standard complaints about bring tired and tantrums make me feel like punching someone. I know I’m not being fair, but it’s like bitching about your diet to the starving. Don’t they know what a miracle they’ve created? How can they forget how much that little person needs them to do the right thing. I know it isn’t easy. Kids are exhausting and all consuming, but they’re worth it. The joy outweighs the sacrifice.

I’ve had enough therapy to know that burying your feelings is never helpful. I know I can’t dig a deep enough hole for this much emotion, but I have no idea where else to put it. I can’t lose it with every person who is rude or mildly inconveniences me. I have no desire or intention of venting on the people I love. I used to work this shit out with a scalpel. That’s no longer an option. What do I do?

Make it easy on yourself…

2019 has barely gotten going & it’s been rough already. In a matter of weeks I have lost my baby & my boyfriend, which is less than an auspicious beginning. If I sound flippant, I’m not, I’m just trying very hard to put one foot in front of the other.

The demise of my pregnancy is devastating. My relationship’s end is sad, but the right decision and that’s about all I have to say on the topic. I find myself approaching the year (and my life) alone again. Being single hasn’t ever worried me all that much. I’m definitely not scared to be that kind of alone. Childlessness on the other hand, terrifies me. What do you when you’re facing your biggest fear? I haven’t a fucking a clue.

#projectpostit

For the time being I have taken the clichéd approach of one day at a time. I’m trying not to spend every day at home in my jammies (there is however a lot of crying on the sofa). Functioning is a struggle for a multitude of reasons. Primarily, I am exhausted. I’m always tired. Add even less sleep, the effort it takes to contain my anger at life itself, the fact that I will not stop bleeding, so despite the blood transfusion my haemoglobin level continues to flag and you get extreme fatigue. Having a different emotion every 5 seconds is tiring. Battling (& often failing) to contain the tears is wearing. Breathing & washing & conversing & not screaming is all taking gargantuan effort. The truth is I’m not managing very much. I’m practising being ok with that.

Blood transfusion, Rose wine, snuggling cat, reading baby

I recommend spending time with people who don’t expect too much of you. I’m giving priority to anything that give me comfort; my little people & potatoes pretty much have that covered. Hot baths have featured heavily as has ‘fake it ’til you make it’ make up. There was one afternoon of day drinking with a lovely friend that actually helped a lot, but not something it would be wise to make a habit of. My purring cat is a godsend. I’m reading, sleeping whenever I can and endeavouring to be gentle with myself.

ly h Kerr

I have no clue how to tackle the overwhelming sense of guilt. Chipping away at how ‘not fair’ this is may well take the rest of my life. I’m focusing on the small stuff. Giving myself a pass on the growing mountain of washing, the ideas that go unpitched and being awfully rude to the person who called about my non-existent road traffic accident. I find it harder than you’d imagine to let that stuff go. Being hard on myself comes easy. i have learned that when life gets you on the ground it’s worth tackling the instinct to kick oneself whilst already down.

Sunset

Month by month…

There is a particular torture in waiting for your period to arrive when you wish it wouldn’t. Analysing every sensation in the run up to your due date. Trying to decide if your sore back is a period sore back. Being almost certain you kind of smell a menstrual type aroma, but also thinking maybe last week’s nausea was morning sickness. Counting the days. Marking the calendar. Trying not to hope & trying not to lose hope.

Each month is just a microcosm of life. Watching, waiting & knowing time isn’t on your side. Doing your very best not let this desire take over. Working hard to ensure not realising the dream won’t break you. Constantly weighing up how much more you can take.

I’m lying here kidding myself that the hot ache in my thighs doesn’t mean the blood is on its way. I’m reminding myself of all the wonderful things I have. Attempting to hang onto how grateful I am. I know how much worse life can be. You can be happy with the consolation prize. Almost is better than nothing. We don’t always get everything we want, right?

Things I can’t believe I have to say again… Part 2

I’m not sure if everyone got the same extensive instruction on manners, but my parents, grandparents etc were very clear that being polite was important. School further instilled in me the concept that there are things that are rude to comment or enquire upon. I feel like even if no one took the time to teach you social etiquette (for want of a better phrase) as a child, there are more than enough opportunities to pick up the basics as you go through life. It seems as though this is in fact an incorrect assumption on my part because tonnes of folk still have zero clue about what is appropriate.

So, let’s try & clear up another area of life on which you really should not broach. Babies. Specifically, when, if, how someone may have them. Unless someone opens this conversation with you, zip it. Wether or not someone wants to procreate is a private matter. When they might do so is none of your business. Why they haven’t already done so is not a topic that’s up for public consumption. Seriously, don’t ask.

Mainly don’t ask because that is private information & prying into other people’s lives is rude. I’ll say that one more time for anyone in doubt,

IT IS RUDE TO ASK ANYONE INTRUSIVE QUESTIONS.

Further to that don’t ask because this a sensitive subject. Regardless of a person’s circumstances there isn’t really a way to reply that isn’t awkward. People (especially women) who do not want children are sick of being judged & interrogated on that decision. If people do want children & don’t have them, there’s a reason. Trust me, they don’t want to discuss whatever that reason is with a random person. For someone people the topic of having children is so emotionally charged that talking about it can be distressing. It’s not ok to hijack a person’s privacy.

I want to have children. I love little ones, but I don’t want to explain that I’ve had multiple miscarriages. Thus far haven’t been able to get pregnant & stay that way. Hence, I don’t feel able to simply say yes I plan to have kids. Part of me dreads occasions centred around children because as much as I love celebrating little people & the wonderful people who made them, I know someone will ask that question. I’m sure I’m not the only person who feels this way. No matter how inconspicuously I shrug off the question, inside, I want to cry. Do you hear that? Your nosey questions are spoiling otherwise joyous occasions for people. I (we) don’t want your pity, we want you to exercise good manners.

Next time you consider asking someone if they’re broody or winking and saying you’re next.

STOP

No one likes that rude bitch who makes things awkward. Please try not be that person.

Trigger bang bang…

Anyone who spends any time on social media will have become familiar with the term triggered. Over the last few years it has entered the public lexicon. Unfortunately, it’s meaning has been incorrectly implanted in the public consciousness.

Triggered is actually a psychological term usually related to PTSD. A trigger is an external stimuli that produces a very uncomfortable emotional response; most often panic attacks or flashbacks. However, varied symptoms can result from the triggering of a traumatic memory. It absolutely does not mean offended or hurt. I’m sure most people will have come across the correct explanation of the term. I have certainly witnessed many try to explain why using the term as an insult or a vehicle for mockery is not ok. Yet, the misuse continues. It occurred to me that perhaps what is needed is an accurate representation of what happens when a person with PTSD is triggered. Maybe if people understood the reality they wouldn’t throw the word around so carelessly. So, I thought I would share what triggered means to me.

Whenever I have been pregnant I have been unable to wear my regular perfume. I wear the same scent everyday in life, but some weird olfactory sensitivity means during pregnancy it makes me nauseous. Thus, I change it & the scent I wore I during my first pregnancy is a major trigger for me. Triggers can be anything & no one has any control over what might become one. I experienced a million sights, sounds & sensations during that time, most of them hold little power over me. That scent, though, is potent.

Snow patrol, blue sky

Formidable enough to render me a sobbing wreck. Being taken off guard by that scent whilst shopping forced me to run shaking from a book shop to vomit in the street. All the while struggling to breath & bring myself to the present. A nurse who had too liberally applied the fragrance sent me shuddering back 15 years. Leaving me so panicked I crawled behind a chair & hid. I stayed crouched on the floor desperately trying to claw my way out of the worst day of my life. Completely trapped in my own personal horror film until some kind soul got me some diazepam & did me the kindness of handing it over without questions. That heady aroma has caused nightmares so vivid that I’ve woken myself with my own screams. Dreams so painfully real that I’ve had to keep myself awake for days. Sitting in the company of someone wearing that perfume once contaminated me. On returning home I could not rid myself of the smell. Real or imaginary it lingered until I smashed my hand with a marble pestle. So tortured was I by the memories the scent brought to life that I ploughed that pestle into my hand until I broke two fingers. The cracking of bones a welcome jolt back to the here now.

Diazepam 10mg

Triggers are uncontrollable. It is not within the power of a traumatised person to select what reactivates their trauma. Nor can they choose not respond. Our minds shelter dark territories & they’re all one way roads. Once you’ve slipped in, you have to press on through. Being triggered isn’t a foolish over reaction. Nor is it the hurt feelings of the overly sensitive. It is the raw & brutal reality of those who have dealt with the unimaginable. It’s a battle scar on the brain.

I can’t stop anyone from misappropriating a word. Ignorance abounds. The only tool I have to fight with is honesty. The truth is that trivialising a serious symptom of illness hurts. It stifles the conversation & prevents people seeking help. It makes vulnerable people feel weak & ashamed & stupid.

So, no, I’m not triggered by your cheap dig. I’m just tired of the stigma. Very, very tired.