Yesterday was one of those ugh days. I had a couple of medical appointments and a few errands to run. I was tired and sore, but it was a sunny day, so off I set.
My mood took the first knock when my taxi driver has a rant about how short my journey was. Granted I wasn’t going far, but I can’t get about on foot. If I want to go somewhere, I need a taxi. Next up was a rude & unhelpful woman in the chemist. She made it very clear that finding my prescription was an inconvenience. Much huffing, puffing and snarky comments ensued, which drew stares from other customers. The final nail in the coffin of my day was the hospital receptionist who would not source a chair for me, but also got angry when I sat on the floor. Sitting on the floor is hazard, but passing out because I cannot stand apparently is not.
Rubbish day, but not the end of the world, right? If these were isolated incidents I would probably just brush them off. The problem is, it happens all the time. Being a disabled person out in the world can be a challenge. Accessibility is a problem, but even requests for basic accommodations can be met with irritation. On some level, I understand that. Work can be exhausting, maybe you’re having a bad day and being asked for something extra could just tip you over. However, most of my life is exhausting. I don’t make these requests to be awkward, I need them.
The result is I get apologetic. I begin my request with ‘I’m sorry, but’ or ‘I don’t want to be pest, but’. I feel like an inconvenience for asking. I anticipate that my accessibility request may not be well received. Listen, inside I often feel like getting arsey. My natural demeanour is not push over. I just know it won’t help. I also rarely have the energy for the fight. Thus, I find myself simultaneously pissed off at being made to feel bothersome & apologising for the perceived trouble.
I don’t need any help on the guilt front. I already feel like a burden to people that matter. Is it too much to ask that strangers don’t make me feel like shit? My needs are very straightforward; a seat mainly. I dread to think how anyone with a more complex requirement fares. All I’d ask is that before you roll your eyes or have a moan consider that this a moment of inconvenience for you is a lifetime of fuckery for us. Maybe you could just zip your lips and grab a chair after all?
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I’ve had a pretty blue day. There’s proper storm blowing around outside & I am incredibly tired, which definitely hasn’t helped. Mostly though, I feel shit because too many people have been horrible to me this week.
I had a very small day surgery on Monday, which went smoothly & really wasn’t a huge deal. It was on my dodgy leg & in a spot when stitches are very easy to burst, so I was told to be careful. With that in mind I got a taxi to the train station early on Tuesday morning (I watch my nephew on Tuesdays). The station has a little car park at one side, but that is not the platform I get the train from, so I need the taxi to stop on the main road. I say need because I mean need. If I get out in the car park I have to go out up a big flight of stairs to street level over the tracks & then down a smaller staircase to the platform. Getting out on the street means navigating one smaller set of stairs (which is hard & sore & slow enough). The taxi driver of course did not want to stop on the main road. He was annoyed that he’d have to go a little further down the road to turn at a roundabout & he didn’t want to pull over on a busy road. He argued that it made no sense when the station had a car park. Now, maybe I’m a bitch, but in my mind part of the convenience of paying a taxi to take me somewhere is that I don’t have to explain myself & I get to go where I want to go. I don’t relish having to explain my disabilities & why I can’t do certain things. Especially when I walk with a stick & it’s bloody obvious that stairs are not my friend. I did however tell the driver why I wanted to be dropped in that specific spot, but he still wanted to argue. Thus I had to say either drop me where I say or take me home and don’t get paid. With much muttering under his breath he did as I asked, which probably took less than 5 minutes more & was basically zero hassle to him. This, my day is off to a crap start & I’m already tired of just trying to move around in the world.
I struggle down the steps just in time to heave myself on to a packed train. The train is headed into town & it’s 7.45am, of course there are no seats left. I make my way to the seats that are reserved for the disabled, elderly etc and everyone sitting there avoids eye contact. I don’t know why people do this because not looking at me does nothing to reduce my need to sit down. All it achieves is putting me in the horrible position of having to ask for seat. This, I duly do. I politely ask the women in the closet seat if I can have her seat if she is able to stand. I am met with huffing & puffing as puts her jacket back on and a glare as she vacates the seat. I thank her anyway because I have some bloody manners & sit whilst others who previously avoided looking in my direction now recover their ability to see me. They now make full use of this rediscovered function to gawk at me for most of the journey. I’m sore & tired & anxious & very conspicuous. It isn’t even 8am. I arrive at central station & have to buy a ticket. There was no ticket inspector on the first train & I have to get a second to complete my journey. The ticket office on the platform has the barriers set up to control the queue. I have to walk around it to get into the queuing area & follow the barriers to actually reach the end of the line. I’m slow, i’m conscious of not messing with the wound on my dodgy leg & I am worried about this queue because I’m really not sure I can stand that long. Roll on more rude people. As I follow the path made by the barriers people just barge right past me. One women even does a little run just as I near the end of queue so she can get in front of me. What kind of dickhead rushes to skip a disabled person who is clearly having difficulty? I don’t know, but I can tell you there are too many of them & I don’t always have it in me to let them know that they’re a knob.
Anyway, I get my ticket. I locate the platform of my next train. I find a seat because I can’t go any further until I’ve had a rest. I eat a lovely banana, check my messages & listen to some tunes whilst I gather myself. When it’s time to to head to the train I have recovered some equilibrium. I’m thinking today can be saved. One train journey & I can cuddle my gorgeous wee monkey. This is what I’m thinking as make my way along the platform & a large man barges right into me. He took me completely by surprise, I had nothing to steady myself on & went flying. Mr ‘catching my train is life’ didn’t even stop. No apology, no let me help you up. Kept marching right on & boarded his train. Incidentally his train was my train & it wasn’t leaving for 9 minutes. Whilst he presumably found a good seat I was lying on the platform bleeding. A nice ticket guy helped me up & onto the train. He even radioed someone the description of the guy who knocked me over, but to what end I have no idea. I’m not sure what anyone could really do other than tell him he was a prick. That surgical wound I was being oh so careful with is now bleeding furiously. I didn’t want to remove the dressing on the train, but I’m sure the stitches have burst (they had). So, I’m applying pressure & being watched by other travellers (again) as I try to put myself back together. I was pissed off, but focusing on gathering myself & getting where I needed to go.
Mr nephew was, as always, a delightful little bundle & I got through the day. I arrived home last night utterly exhausted & dropped into bed almost immediately. After a fitful night of sleep I awoke feeling just as tired. My leg is swollen & the wound can’t be restitched (it’s been open over night & restitching would be an infection risk). It will heal, but slower & messier. I had things to do today, but I didn’t do them. Partly because I was in a fair bit of pain and exhausted. Mostly, though, because there was a strong wind & yesterday shook my confidence. The accumulation of the rudeness, arguing, staring & knocking me to the ground was that today I was acutely aware of my disabilities. I didn’t feel up to dealing with the world & perhaps ending up worse for wear again. That realisation made me feel like shit.
Cheeky monkey trying to steal my stick.
I don’t like to think of myself as fragile or incapable. I know my limitations & I try really hard to work around them. I have to think ahead. I do things a bit at a time & I sometimes have tackle things in ways that might not make sense to others. I know I can be awkward. I know that the accommodations I need can be a pest to others. All disabled people know this. We aren’t asking for seats or giving specific instructions for a laugh; it’s the only way we can live in the world. I already feel stressed & anxious about needing these things. I am certain I’m not alone in it that. So, when you force me(us) to explain ourselves it’s horrible. When you make a fuss about being stuck behind me as I move at glacial pace, you are making my life a nightmare. Your stares & sighs can ruin my day. Limping along with a stick at 37 is not my ideal life situation. Fainting on public transport is not a thing I relish. I did not choose to hurt all the live long day. I do not want to have to ask you for anything, but I can assure if I was in your shoes I’d offer my seat with good grace.
I’ll heal. I’ll give myself a shake & force myself back out the door again. I will hold my tongue (most of the time) as you push past me & roll your eyes. I shouldn’t have to, though. Living with my disabilities is hard enough. I don’t want to manage your arsehole tendencies too.
I had an interesting twitter conversation this week. Some people wanted to know how I deal with strangers asking questions about my scars. Unfortunately this is a thing that happens & one of the reasons many people feel they must conceal their scars. Fortunately it is not an everyday occurrence & you can learn to handle it. I wanted to quickly share some tips that I hope will help you do just that.
First of all I feel it’s essential that you realise that no one has the right to ask you these questions. It is rude & intrusive. You do not owe these people answers, you don’t even owe them a polite response.
I totally understand that depending on a variety of factors unexpected questions about your scars can strike different chords. Sometimes I feel enraged, other days I panic & sometimes I’m just over it. Thus, my responses can differ. That’s ok. You are entitled to feel however you feel. You are not obligated to be nice or to hide those emotions from ill mannered strangers.
I tend to have ready made responses for the most common comments. They range from just shutting someone down to embarrassing them the way they tried to embarrass me. (Note : most people who ask already know what your scars are. They know their questions are akward & unkind).
Let’s get to it. I’m going to give my to go to answer to my most often asked questions.
Q/ What happened to your arms/legs/body part?
A/ What happened to your manners?
A/ Shark attack.
A/ Me.
A/ Exactly what you think.
Q/ Why did you do that?
A/ Why do you think it’s your business?
A/ Why are you a nosey bitch?
Q/ Why don’t you cover those up?
A/ Why don’t you mind your own business?
A/ Why don’t you cover up your horrible personality?
A/ Why don’t you fuck off?
All of these responses are blunt & let nosey people know you are not all impressed with their questions. I refuse to pander to other people’s rudeness, but I know there are times when you don’t feel confident or just want to avoid a possible confrontation. I find the perfect answer in those instances is ‘it’s a longstory’. It’s vague, but it is also obvious that you have no interest in pursuing the topic.
Whatever you say the important thing to remember is that you don’t need to reveal details to anyone unless you want to. It’s not your responsibility to make strangers feel comfortable. It’s certainly not your job to safeguard the feelings of people who don’t care about hurting yours. Shut them down & live your life.
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I’m not sure if everyone got the same extensive instruction on manners, but my parents, grandparents etc were very clear that being polite was important. School further instilled in me the concept that there are things that are rude to comment or enquire upon. I feel like even if no one took the time to teach you social etiquette (for want of a better phrase) as a child, there are more than enough opportunities to pick up the basics as you go through life. It seems as though this is in fact an incorrect assumption on my part because tonnes of folk still have zero clue about what is appropriate.
So, let’s try & clear up another area of life on which you really should not broach. Babies. Specifically, when, if, how someone may have them. Unless someone opens this conversation with you, zip it. Wether or not someone wants to procreate is a private matter. When they might do so is none of your business. Why they haven’t already done so is not a topic that’s up for public consumption. Seriously, don’t ask.
Mainly don’t ask because that is private information & prying into other people’s lives is rude. I’ll say that one more time for anyone in doubt,
IT IS RUDE TO ASK ANYONE INTRUSIVE QUESTIONS.
Further to that don’t ask because this a sensitive subject. Regardless of a person’s circumstances there isn’t really a way to reply that isn’t awkward. People (especially women) who do not want children are sick of being judged & interrogated on that decision. If people do want children & don’t have them, there’s a reason. Trust me, they don’t want to discuss whatever that reason is with a random person. For someone people the topic of having children is so emotionally charged that talking about it can be distressing. It’s not ok to hijack a person’s privacy.
I want to have children. I love little ones, but I don’t want to explain that I’ve had multiple miscarriages. Thus far haven’t been able to get pregnant & stay that way. Hence, I don’t feel able to simply say yes I plan to have kids. Part of me dreads occasions centred around children because as much as I love celebrating little people & the wonderful people who made them, I know someone will ask that question. I’m sure I’m not the only person who feels this way. No matter how inconspicuously I shrug off the question, inside, I want to cry. Do you hear that? Your nosey questions are spoiling otherwise joyous occasions for people. I (we) don’t want your pity, we want you to exercise good manners.
Next time you consider asking someone if they’re broody or winking and saying you’re next.
STOP
No one likes that rude bitch who makes things awkward. Please try not be that person.
It may be a little over optimistic to say that summer is in the way, but I think I can at least say that winter is over. Whilst I can’t wait to enjoy more lazy days in the sun, hot days always give me a moments pause.
The reason for my second guessing is our old friend shame. As much as strive I to love my body there are still so many people who’d rather I didn’t. My body does not fit societal standards of beauty. Scrap that, I don’t even fit societal standards of normal. The fact that I refuse to hide my fat, scarred flesh rocks the normality boat even more vigorously.
It has taken me years to be able to celebrate my form. My ability to wear whatever I please & shed layers in the heat is a hard won victory. I won’t lie I often still have to steel myself to step outside in a vest. Not because I feel ashamed of my a scars or my past or flab or peely wally complexion, but because there are tonnes of folk who really, really want me to.
Staring is a given. Staring combined with nudging a mate & directing them to also have a gawk is also fairly frequent. Less common, but still occuring more than you would think is the person who thinks they should actually comment on my body. Oh & I give them so much to work with. Strangers just love to get angry, sad, concerned and curious about my body. Sometimes I can just shrug that off. Often I will snark back & think these strangers pathetic. However, there are times when for whatever reason, I’m just not up for the judgement of unknown members of the general public. Their stares, nudges & comments ruin my day. I do momentarily feel ashamed and scared and like I should never leave the house again. And this, my friends, is not ok.
So, here’s a little advice.
OTHER PEOPLE’S BODIES ARE NOT YOUR BUSINESS.
Your thoughts on other people’s appearance are not important. Strangers do not want to hear them. Your moral judgements are your problem, don’t make them anyone else’s. Likewise your hang ups.
STARING IS RUDE.
Always. There are no excuses. If you find yourself accidentally staring, stop. If you see someone you think looks weird, bad, crazy just remember plenty of people find your visuals unappetising too. Oh & don’t oggle them.
In short, don’t be that person. Don’t be the one who spoils someone’s lovely summer day. You do you & let the rest of world do them.
If you like what I do you can support me here or on Patreon.
Something in the way she moves... 
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