Like the moon needs poetry…

I didn’t have time to mark World Poetry Day through the week, but it would make me sad to ignore it all together. I’ve been smitten with the art form for as long as I can remember. It has basically provided me with a literary landscape to wander around with my feelings. Thus, I must pay homage to some poetic masters & share a few lines of my own.

What better place to start than with Plath. I suspect Sylvia Plath is probably a favourite of every girl who’s had a brush with crazy. I actually read her prose before her poetry, but obviously fell hard immediately upon discovering her poetic genius. This is one of my favourites because it mixes prime fucked up Sylvia with some classic romantic imagery.

Melissa Lozada-Oliva is new discovery, but I can’t get enough of her. Her work covers feminism & race & more. She gets right to the nitty gritty of the female of colour experience with both clarity & humour. I love the structure of her poems & the words she chooses to place her emphasis on.

If I Got Paid For All My Emotional Labour.

Maya Angelou is another writer whose poetry came second to me. I read her autobiographies first & once I had begun reading her words I never wanted to stop. Every single line she ever put to paper is so utterly & completely Maya. A women who knows who she is & embodies herself in everything she does is the ultimate inspiration. Her poetry gives me life, which I believe is exactly what she intended it do.

Which just leaves me. I wrote a lot more poetry in my darker days. It seems my mind reaches peak poetic prowess when in despair. So, this one’s an oldie.

Don’t tell me what to do…

In this world of self care & mindfulness it seems like everyone thinks they’re a therapist. Don’t get me wrong, sharing what works for you & talking about our mental health is great. It’s just that, to put it bluntly, some people talk crap. Others just regurgitate tired old advice that ain’t helping anyone. Man alive, I’m sick of it.

I want to talk specifically about the useless chatter surrounding self harm. I’ve been hearing & seeing the same patronising advice for YEARS. The most frustrating part is it often comes from people who really should know better. So, allow me to take you through why so much of the standard advice is just plain bad.

1/ Draw on your skin instead of cutting/burning etc.

This one usually takes two forms. The first opines that whatever relief/release a person may find in hurting themselves they can also attain by simply drawing on their skin. Now, let me ask you this, if drawing lines on yourself would make you feel better would you be causing physical trauma in the first place? The answer is of course, no. The components of self harm that serve a purpose vary, it may be pain, blood, disfiguring the skin or even a need to punish oneself. None of which needs are met by drawing.

The second part of the draw on your skin nonsense is the idea that you draw something pretty (often a butterfly) where you would normally self harm. The desire to preserve the ‘body art’ is then supposed to dissuade a person from ‘spoiling’ their skin. The stupidity of this idea is obvious. If actually scarring oneself will not prevent a person from harming themselves it seems very unlikely that spoiling a temporary drawing will. Even if by some miracle a biro butterfly were enough to assuage overwhelming distress, the body has a lot of flesh. Are people to cover every inch of themselves in rainbows & roses?

Butterfly drawn on skin

2/ Have a hot bath, cup of tea, blah, blah, blah…

Imagine the kind of agony you would have to be in to take a scalpel to yourself & cut for hours. Do you think a nice bath would magic that away? The answer is no. A bath helps you feel better at the end of tiring day. It does not release you from excruciating emotional pain.

3/ Distract yourself.

The need to self harm is powerful & persistent. For some reason lots of people (both professional & laymen) believe the urge is fleeting. I often see those struggling told to distract themselves until the urge passes. This advice betrays an ignorance regarding the workings of self harm. The need to hurt oneself does not easily wane. In fact, the longer a person self harms the stronger the compulsion becomes. Often it is impossible to focus on anything else. No sleeping or eating or thinking until the hunger to hurt is sated. It isn’t possible to distract oneself from that level of intrusion. When you cannot function on the most basic of levels watching a film or phoning friend are not options.

4/ Throw away your self harm tools.

The rationale here being that if one does not have the apparatus used to self harm, then self harm is impossible. WRONG.

As already discussed the compulsion to injure oneself is incredibly strong. Desperate people become ingenious. Trust me, when you really need to, you can hurt yourself with anything. Believe me again when I say those fraught & frenzied moments are when people make mistakes. As incomprehensible as it sounds self harm can be the very thing keeping someone alive. Asking or obligating an ill person to give up their lifeline is dangerous. It is also cruel.

5/ Ping your wrist with an elastic band/hols an ice cube in your hand etc.

My objections to this one are again two fold. To begin with it’s just ineffective. Self harm is both a habit firming & escalating problem. A person almost always experiences a need to increase the severity of their injurious behaviour. This takes us right back to the start. If the nip of an elastic band were sufficient, no one would be putting themselves in hospital via self harm.

A more serious objection, though, is the message this sends. Telling a vulnerable person that hurting themselves is ok, is a head fuck of massive proportions. Self harm is never the real problem, it is a symptom. In order to tackle self harm one must deal with the underlying issues. That is hard work, time consuming work. It’s much easier just to counsel harm minimisation. In doing so, you validate a sick person’s maladaptive thought process. That mental health professionals routinely tell patients that hurting themselves is ok is a disgrace. The basic premise of the hold an ice cube/ping an elastic band technique is that hurting yourself is a reasonable response to emotional turmoil. Just don’t do it badly enough to bother other people. By suggesting someone harm themselves in a small way you have shifted the conversation from, ‘let’s help you not hurt yourself’ to ‘hurt yourself in ways that do not draw attention to the act’. It is ignoring the root of the problem & allowing a person to believe that they are deserving of pain. It’s lazy, it counter productive & it is bullshit.

Hand holding ice

If you are struggling with self harm or you know someone who is, don’t feel helpless. When you are searching for help & find only these sort of suggestions it can feel like there are no answers. Whilst there are no quick fixes, there is hope.

See your Gp. If they don’t listen or offer help, see another Gp. I know this is exhausting at a time when you can least afford a fight, but please, don’t give up. If you have a friend or family member who can be your advocate, take them with you. You deserve treatment. You deserve care.

If you have badly injured yourself please seek medical advice. Again, if you have a friend or family member who can support you, take them along. If you do not & are worried about how you will be treated taking a copy of NHS NICE GUIDELINES can be helpful. You are entitled to be treated with the same compassion & respect as any other patient. Most emergency personnel will do this, but a few may need reminding of their duty. Being able to quote these guidelines helps in such situations. As scary as this may sound, do not put yourself at risk by avoiding treatment. You are worthy of diligent medical care.

If you are not yet ready or able to see a Dr, you can contact The Samaritans 24/7.

Call – 116 123 (uk)

Email – jo@samaritans.org

You can’t change the way she feels, but you could put your arms around her…

I dreamt about an old friend last night. A friend who is no longer living. It was a lovely dream that I was sad to wake from. As I tried to commit the dream to memory I realised that whilst I thought of her often, I hadn’t spoken out loud about my dear friend in a long time. Too long a time, which is something I need to rectify. I need to talk about her. Tell her story. Share how she changed me. And that is exactly what I am going to do.

Let’s start by saying I met J because we were both ill. I was in my early twenties & struggling to deal with undiagnosed PTSD. I was trying to hold together a life that was increasingly unsatisfying with a self harm habit that was spiralling out control. J was dealing with similarly unhappy circumstances and a self harm problem that becoming, frankly terrifying. We both found some comfort in a community of sick people who didn’t know where else to turn. We were people who couldn’t ask for help or had asked without receiving the sort of assistance the we needed. No one talked about self harm then. Except maybe in the odd film where it was usually portrayed as something a trouble teen might do or a suicide attempt. Even the mental health professionals treated us like shit (sadly, some still so). If our attempts to hide the problem had failed, our families & friends were frightened ( & in some cases cruel). We were dealing with real problems; rape, abusive relationships, miscarriage, escaping from cults, drug dealing parents & a multitude of other big, scary problems. We were of course also living with mental illness. Some of us had a laundry list of labels and others had not a single clue what the fuck was wrong. But there was absolutely something going very wrong for all of us. This is where I met J. Amongst this this group of desperate people I also found a salvation of sorts. These broken people offered each other a kind of support that we couldn’t find anywhere else. We dragged each other through the kind of darkness that most will never understand. And J was kind of our leader.
J was living with pain beyond what would be considered durable. Her mental anguish was compounded by the physical horror she was compelled to inflict upon herself. J was not ok. Every solitary moment of life was a battle hard fought. And, yet, she always had time for us. She had love and support and encouragement for her damaged flock. J lived in a different time zone, but she still called day & night to remind me to keep breathing. She wrote letters and sent care parcels. She compiled lists of all the things that just might offer one us a couple minutes respite from our own fucked up heads. She replied to every ‘ I can’t do this anymore’ with such kind & convincing entreaties to keep trying, that we did. Her words worked because we knew, that she knew. We were all able to help each other because we shared a world that most people didn’t know existed. For me, j was the ultimate inspiration. If she could do this with such grace, I owed it to her and all the others who loved me to at least not give up.

Kelvingrove park

It’s such a cliché, but this goodness expanded beyond our group. She was studying to be a nurse because she wanted to help people. Everyone in her life adored her. J was that person who offered succour, but she wasn’t a martyr or a goody goody. She was fun. Her sense of humour could be wicked. Most of all she was strong. J fought to live. She engaged with mental health services that let her down over and over and over. She was still working and studying at the peak of her illness. She endured the brutality of her self harm and the callousness of those supposed to treat them. She did it all with dignity. Life beat J black and blue. This world committed an almost constant vicious assault on her. She fought back hard. She battled with and blood and heart and care and tears and wonder. She did not win.
J succeeded in taking her own life in a sad and awful way that left no doubt that she meant it. I wish with everything in my being that I could have changed how her story ended. Both the circumstances & the prematurity of her passing, but I don’t blame her. I understand that life was no longer a viable prospect for J. I hate that, but I do not begrudge her some peace. I am still angry at the professionals who failed her and the people who’s actions caused her so much pain. I will never be angry at J. She gave life her very best shot. Her suicide was neither selfish nor weak. It was just the only option she had left. It kills me that someone so beautiful was left with a choice so ugly. I understand it, though. Whilst I know it may be an unpopular opinion I can accept it. I can respect that it was her decision to make.


So, why I am writing this? What am I left with? Actually what remains is so much more positive than I could have ever imagined. Losing J was soul destroying, but life does go on. I go on and so do those other sad people that she cared for. I don’t want to disrespect those wonderful people by not acknowledging that they too saved me. We all helped save each other. In hundreds of big and small ways. After J’s death we continued to care for each other. We laughed and cried and screamed and swore together. We stayed up nights and called ambulances. We sent Xmas cards and made hospital visits.
From that group I maintain friendships with some incredible people. Some of us are entirely recovered, some still walk the tight rope; we are all still alive. We have partners, careers, babies, hobbies & passions. We all do our bit for mental health awareness. Whether that’s through writing, organising, working in the field, donating to MH charities or just supporting loved ones with their difficulties. I will spend the rest of my life doing everything I can to prevent others falling through the cracks. I will fight for everyone to have more choices than J. I know I am not alone. That is her legacy. She lives on through the people she touched. We endured. We succeeded. We survived.
WE LIVE

1 in 4 adult in UK will experience mental illness at some point in their lives. It is incredibly likely that you or someone you love will have to fight this battle. You can help improve the lives of suffering in a number of ways. Please do what you can to make sure more people survive.

Add mental health education to the national curriculum

Donate to Samaritans

Donate to SAMH

You an also make a massive difference by writing to your elected representatives an telling them mental health is major issue for you. Let them know that how they vote on mental health related issues matters to you. You can find your representatives here.
Find my MP
Find my MSP

 

Try to comprehend that which you’ll never comprehend…

In the midst of a wonderful weekend at the Edinburgh Fringe I had two really inspiring experiences. Both of which fuelled in me a desire to share some writing that hasn’t seen the light in quite some time. On Sunday I saw Neil Holborn perform his stunning poetry. He is very open about his struggles with mental illness & includes his own experiences in much of his work. The power of his honesty & the emotional response he received to some of his pieces really struck me. He reminded me of the power of sharing the dark reality of mental illness. Later that day I was introduced to a friend of my boyfriend who also talked openly about his past mental health struggles. This led to a discussion of how helpful it is to talk about these issues; how more often than not other people will then share their own experiences of mental illness. We talked a little about how that realisation that mental illness is actually really common relieved so much shame. It reminded me how important it is to talk frankly about my experiences, so that those in the depths of illness can see that they are not alone. Equally important is to reach those who have never been touched by mental health problems. Letting people see that this can happen to anyone, that the pain is intense, debilitating & uncontrollable lifts stigma. I really believe that the way to fight ignorance is information. Not just statistics, but brutal insights into conditions often misunderstood. It is so much harder to dismiss mental illness when you have been confronted with it’s reality. 

With this in mind I decided to review work I produced in my darker days. For those unaware I have battled with PTSD, depression & self harm for most of my adult life. Although my mental health is much improved from the time of this piece, it remains a daily struggle. One is never cured. The best I can do is learn to live with what I cannot change & fight for what makes my life beautiful. I am profoundly grateful to no longer be actively self harming. I am also aware that urges still exist. It takes work to maintain my current life. I make a daily decision to keep fighting & I am far from alone. 

I know these words may be disturbing to some, but I ask you to read them anyway. I share this because I passionately believe that a deeper understanding defeats stigma & grows compassion. 

i had another little crisis

despite a transfusion in late december,

my haemoglobin had again dropped to 6.6

causing doctor’s to get jumpy

&

prompting talk of another transfusion.

this fuelled  a panic in me

i do not like having blood transfusions

i feel incredible guilt.

other people are more deserving of this blood

someone selflessly gave of themselves.

i will waste it

i know it will feel horrendous inside me

i do not want it.

i don’t really have the option of

saying

no

they will call in a psych consult

which could lead down a road

i can’t

even

think about

my first stupid reaction

is

i must cut

whilst the dr’s decide

i will blood let

i know it doesn’t make sense

to most

but

there is method in the madness

my hb is already low

i may as well be hung for sheep as a lamb

i will hate myself less for shedding my own blood

if i lose enough blood

do enough damage

i may feel sated for a while

with this in mind i set to work

after two disappointing nights

of

slicing

&

producing inadequate wounds

i got angry.

on the third day,

the gp called to say they had decided to go with an iron infusion the following week.

i considered myself free

to

paint the town RED

i felt it couldn’t be that bad

if i didn’t need a transfusion

i had still better fit in as much damage

before treatment

&

truthfully

after two pitiful nights

i needed it

so,

feeling enraged with myself

i set to work

i chose a spot on my slightly less scarred right forearm

i cut vertically

downwards

towards my wrist

everytime i reached a depth i could live with

i elongated the cut

&

started to work down into it again

i got into the most dangerous mindset

where

i just can’t resist

a little

bit

more

i ploughed through the layers of my flesh

fascinated

with what lay beneath

i watched three distinct fountains of blood

flow into one

sticky

hot

pool

i pulled the wound apart to make the blood spurt higher

i sawed through

some

tough,unknown inner material

and

thrilled

as the spray soared out

and hit my face

when i was finished

i watched

for

i don’t know how long

long enough to become dazed

i had created a gaping trench

the entire length of my foream

that continuosly filled with blood

and

spilled over, flooding the floor.

i could not stop the blood

nor, could i think straight

i wrapped a towel around my arm

put a huge jumper on top

and

took the bus.

yes,

the bus

to a&e

i trailed blood into reception

& collapsed in the triage room

i was so ashamed

dreaded trying to explain myself

lay in a cubicle

crying

i had done this many times before

but somehow

i couldn’t control my fear or self loathing.

i received 21 stitches

a transfusion

and

was hospitlised again for three days the following week with chest pains & breathing difficulty 

requiring

another

two units

&

suffering from severe pain

i spent those 3 days in & out of a morphine

induced altered reality

Junior dr’s were too scared to take blood from my arms

apparently experience is required

to find a vein in this network of scar tissue

the consultant was overly kind

fellow patients

stared & whispered

i lay there in

shame

pain

fear

all of which added up to

another attempt

to stop.

11 days

and counting……

20/03/2012

Words are flowing…

Words have always been my religion. Whether the beauty you can create with words or what I could say when I wrote made me a writer is my own personal chicken & egg. Regardless, the fact remains, I worship words. In that adoration lies a certain obsession; from worrying over a sentence for an hour to finding affinity in someone else’s perfect phrase. Which, is exactly what I want to tell you about. 

In the past week I’ve come across two such phrases that at different points in my life seemed made for me. Across the Universe is one of The Beatles songs I immersed myself in as a teen. I still love it, but the words have become so familiar that they often just wash over me. Well, on bus last week for some reason I was really listening. When I reached the chorus, one line flooded me with feeelings from times gone:

‘Nothing’s gonna change my world’ 

I vividly recalled being 15 & completely believing that nothing could shake me. I had at that point lived a charmed life. A life of love & safety & competence that had formed a girl confident she could take on the world. And win. 

I look back on that version of me with such mixed feelings. I’m proud of her; she was the weird girl that managed to be popular. The smart girl that partied. Even at 15 she knew her convictions mattered & those who felt threatened by that could fuck off. It takes a specfic kind of teenage courage to own that you are different & to celebrate it. Oh, the plans she had. It never once occurred to her that anything could knock her down. 

I’m welling up writing this because I know what happened next. It took years of therapy, but I can finally feel compassion for that cocksure girl that fucked it all up. Now, after years of blame, I want to protect her. A story of my history & evolution in 5 words. 

A few days later, in a fit of insomnia, I was flicking through tv channels & found Girl Interrupted. The first time I read this the description of suicidal thoughts clicked. 

‘Once you’ve posed that question, it won’t go away’

I hadn’t heard anyone else voice this cold fact before, but it was true. Once I had seriously considered suicide, it never really went away. Killing myself became the solution to every problem. So many of Susanna Kaysen’s words rang true. Hearing my terrifying feelings expresssed out loud somehow justified my pain. 

All I ever heard about suicide or self harm was don’t do it. People often talk in well meaning platitudes. They’ll tell you that suicide is a permanent solution to a temporary problem. Life will get better, they insist. It’s all meaningless. When you are in that hole, getting out doesn’t seem possible. More over, even if you believe that someday, you might be happier, it does nothing to assuage your current pain. Severe depression is torturous. There is a comfort in knowing an escape hatch exists. For a long time the knowledge that if I couldn’t take anymore of life I didn’t have to was the one thing that kept me alive. 

Watching that film again brought back those dark times. More than that, Kaysen’s words brought a sense of peace. In my suicidal days, having my daily struggle with those thoughts acknowledged was powerful. Now, realising that suicide is no longer my default trouble shooter is compelling. 

Sometimes it takes a glance at the past to see how far I’ve come. I know those feelings can return. Which is why these words still resonate. Another example of a handful of words spelling out the story of life. 

If you like what I do you can support me here or on Patreon.

And so it is the colder water…

It’s been around 8 weeks since I miscarried. I think all things considered, I am doing ok. I mean, I’ve not completely fallen apart. I haven’t turned to scalpels for comfort or absented myself from the world. I’m getting up & painting my face & taking part in life. I wish I could say it was easy, but on days like today, it feels like drowning. 

I am attending the recurrent miscarriage clinic to see if there are any issues I am not already aware of & the midwife I see has been wonderful. She had given me info on a ‘support group’, which I’m considering. I’m on some new meds to help with PCOS & tracking my periods etc to keep on eye on things from that side. I’m socialising & blogging & getting more politically active. I’m doing everything i can think of to keep moving forward. So why do I feel like I’m wedged in wet sand?

I think about what might have been every day. Not all day long, but it’s never far away. There are so many reminders. So many painful things that can’t be avoided. From appointments at the maternity hospital & other people’s babies to just the scent of something that made me nauseous when I was pregnant & doesn’t anymore. I don’t want the world to stop. I don’t want to rob anyone of their joyous moments; it’s just so hard. The happiness I feel for others comes with a stab of sorrow. It’s been this way for so long, but my recent loss has given that sadness renewed potency. I let all my hopes out of a place I kept tied up tight. Blueprints for a life that I hadn’t dared to examine sprang to life & folding up those plans is proving difficult. 
I have my period again & I know that impacts on my mood. All of the sensations of menstruating mirror miscarriage symptoms. The cramps & sensitive nipples are reminders I don’t want. The blood remains wrapped up in my trauma. Forever a trigger. And yet, I’m glad to have the period. Not so long ago I had practically none. It’s a relief to have this increasingly reliable sign that my ovaries are doing something. Like so many other things the positive is marred.


I think from the outside I probably look fine. I want to look well. No, I want to BE well. I’m really fighting not to let my life slide. The truth is I’m struggling. My creative output is vastly decreased. I lack the motivation & clarity to write. Not writing is not good for me. I process my experiences through words on the paper. The less I write the more anxious I become. Of course the more I stress about it, the less I am able to curate my thoughts. It’s a predictable cycle. There are obviously more practical concerns; my words keep a roof over my head. 


My physical health hasn’t been good. My sleep is appalling. I know that takes it’s toll. I attempt to rationalise myself out of days like this. My exhausted, pained, grieving & traumatised self will obviously have lows. I know this is to be expected. That knowledge doesn’t change the dread. It does nothing to chase away the fear when I awake to a complete inability to function. When nothing shifts the weight crushing me or the desire to disappear. 24 hours isn’t a long time except when your swamped in depression. I can get through the bad days. I’m just terrified of the days multiplying. 
That’s the crux of it. Mental illness feels a bit like being an alcoholic. I will never completely recover. The lows will always come. Life will always have ways to trip me up. The fear of everything unravelling sits quietly on my shoulder. It’s a bad day. I’m still grieving. I hope for better. 

There’s nobody else here, no one like me…

I’m about to get a bit happy clappy, so if that gets your goat (I hear you), skip this one.

I know it’s been disaster movie of a year. There are truly despicable things happening all over the globe. So, I feel quite guilty about this, but 2016 has been my personal best for a very long time. Selfish or not I want to acknowledge my successes. Queue the happy bit. 

This year I have been comparatively sane. I’m not cured and of course there are bad times, but I have felt psychologically healthier & happier than I’ve been in several years. I’m pretty confident that I’m finally taking the right medication. Meds aren’t magic beans, but the right combination has given me much more solid ground to build on. I’ve been able to push myself, expanding  my social & professional lives in the process. 

Now, here comes the big one, I have not purposely hurt myself in well over a year. Again, I’m not recovered, I suspect the urge will always be with me. The difference for me has been releasing there are things I want more than blood. I’m not going to bullshit anyone, it’s a grind; it’s a battle I decide to fight every day. This is a war that’s been raging for 17 years, but I’m stating to believe I will emerge the conquerer. 

Next up; gettting all proud of myself & shamelessly blowing my own trumpet. 2016 has been a professional triumph. My writing has featured in publications I have long admired. My blog hits have soared & more importantly I produced more work of value than ever before. I am proud to be writing about issues that need to be talked about & creating work that readers really connect with. 

This year I also took a leap of faith & extended my wee empire to include oPeration BoPo. I wanted a thing that didn’t exist locally & so, I just went ahead & made it happen. My first event was an amazing success. I believe there is a need for accessible body positive projects & I am determined to meet it. I have some exciting things in the work for 2017. Get ready to join the self love revolution. 

This year I have gained a confidence that I feared was gone for good. I took charge. I had some big scale health issues & disappointing discoveries, but I kept rolling. I let go of yearning to be the girl I was before life got fucked & embraced the woman I am because & inspite of it all. 

This has been a year of seizing what control I can & trying to accept that it will never be the unbridled authority I desire. My body & mind will continue to usurp me. I’ll just have to wrestle them into the best submission I can manage. 

I’ll be honest my life can be brutal. You know what? I can be too. I’m heading into the new year with a 5 year plan, a growing business, my first nude photo shoot under my belt, ovaries that are really trying & the very best people supporting me. 2017, I’m ready for you. 


I hope there were some bright spots for all of you too & that next year brings you all you’re hoping for. 

All I can say is I’m breathing…

PTSD is a persistent foe. You can make progress & start to think maybe, just maybe you can actually defeat this bastard, but it knows you think that. 

It’s waiting for you to relax your hyper vigilence. The moment you begin to let go of the breath you’ve been holding for 17yrs it will suck it in & grow.

Folks in your life see you gaining strength & think you’re better. There is no ‘better’.  There is managing ,

coping,

trying to live,

daring to live?

The good days can start to stack up. You can feel a safe distance from the horror, but you can never be sure. 

You can never be certain that a flashback won’t stun you like lightening. 

And stuck in that hot, white memory you could loosen your grip on the here & now.

The relative calm & safety could be shattered. Perhaps only for that instant. You could be lucky, those smells & fears could melt away. Current achievements or delights may well wash over you. It’s possible. That happens. 

You’ll make plans & take steps. But you’ll always be looking over your shoulder. The knowledge of the cruelty of your own mind will keep you rigid.

Because lightening does strike twice & thrice & ever & on.

With every thump of your heart you know you’re only one more squeeze from disaster. Where little sleep becomes none. The crazy creeps out from behind all those positive walls, it brings terror & tsunamis of grief. 

And the pills don’t work

Or Dr’s 

Or the life jacket you had to make with your bare hands. 

There is only one way to row to shore & it’s brutal. It’s hot blood dripping from your fingers; slippy yellow fat & an uncontrollable urge to cut a little deeper. 

Bleed a little more 

Wrapping up the unthinkable pain in the easy hurt of butchering yourself. 

This illness is being  awake in the night & writing so you won’t do. It’s ignoring the destructive comfort because you so desperately want this new, real life. 

And, yes, all those yous should be I’s. 

It’s my past, my pain, my ongoing battle for a future. 


Listen, I’m a really perfect song.

If you like what I do you can support me here or on Patreon.

The mirror has two faces…

Yesterday I performed a fairly miraculous transformation. I was so impressed with myself that I felt the need to share my handy work. 

I posted the above on Facebook with the caption, left to right & out the door in 40 mins. All of which is true, but there’s so much more I didn’t say. 

What I didn’t mention was how I felt. My head was wobbly yesterday. I am titrating Pregabalin slowly up to recommended dose. This is an issue because every time I up the doseage the side effects come back. Hence, my brain was not that sharp. Along with that my anxiety was troubling me. The thought of going out alone was frightening. I was of course sore; my back & feet are a constant source of pain at the moment. So, basically what I’m saying is the first picture is an accurate representation of how I felt as well as how I looked. 

I worried and procastinated for so long that I only had 40 mins to get ready. I forced myself out the door with the aid of diazepam, earphones & big sunglasses. I still felt exposed. I dreaded anyone talking to me or even getting standing too close. I got lucky with an almost entirely empty bus, but my heart was still pounding as loud as the music in my ears for the entire journey. At every stop I had to force myself not to get off & go home. Every bump in road sent a shudder of pain up my back. I persisted because I’d really like to have a real life. 


I met a dear friend who I feel completely safe with. We had a drinks & I managed to relax to level where I could enjoy myself. The weather was lovely, the company excellent & I passed for an attractive human being. 

I’m smiling in this picture because I was having a lovely time. I was still in pain. I’m always in pain. I say that not for pity, but as a fact. For my one evening’s entertainment I’ll probably require two days of rest. Today I am suffering. 


My point is that invisible illnesses are often attacked as not genuine & the weapon used can be anything sufferers manage to do. 

You can’t be that ill if you can work.

You can’t be so ill if you can go out.

You can’t be in pain if you excerise.

You can’t be depressed if you can put make up on.

And on & on & on.

I’m offering myself as an example. Some days are good, but I never feel ‘normal’. There is always pain & anxiety. There are nightmares & flashbacks & urges to butcher my flesh. There are days when I can’t get out of bed & nights of no sleep at all. It’s shit to have to push & push to accomplish everything. We (spoonies) have no alternative, if we want to build a fulfilling life, we have to fight. Wether we’re fighting to wash some dishes or to have some fun with friends we don’t need judgmental bullshit to add to our burden. 
Your reward for reading me venting my frustrations is the cutest cat in the world.

You should see my scars… 

Today is self injury awareness day. I’ll be honest I’m fairly jaded about awareness days. Especially those of the mental health variety. Too often they seem to me to be highlighting the wrong things. Today hasn’t broken the mold. Almost everything I have read in relation to self injury awareness day (SIAD) has focused on the usual stereotypes. Some have just missed the point entirely. So, I have decided to share a little of what goes on in the head of a person who is hurting themselves Specifically, this person. 

I don’t fit the stereotypes. I didn’t hurt myself as a teen. I wasn’t bullied & had a picture perfect childhood. I was never desirous of attention or seeking care in the form of dressings & kind medical professionals (ha!). I’m not stupid or dangerous or crazy. I have fought this battle as an articulate, independent adult. I’ve hidden wounds & scars through university & work alike. I kept a secret shrouded in stigma. Constantly confronted with the idea that my problem was one that should only face little girls. Shamed by the opinion that I am an incompetent drama queen. 

I am none of the above. Rather, I am woman who suffered trauma that altered my life. In the depths of anguish I stumbled upon a solution; a maladaptive survival technique. An act sought out to gain control when I felt powerless. Lamentably, my source of control rapidly overtook me & established dominion. Self harm is so complicated. It’s scope is different for each individual. For me, it become all encompassing. My daily thoughts circled around if/when I would cut. Being proficient was paramount. Every cut had to be ‘better’ than the last; I sought deeper wounds, more blood, more damage, more more. Self harm entangled itself into my identity. 

Admitting that & asking for help felt like relinquishing part of my self. Not only was I facing the loss of self harm, but also the strong, capable parts of myself that made me feel worthy. Admitting that I could no longer cope was the most vulnerable I have ever been. Believe me when I say that to face stigma & prejudice in that state is crushing. To gather all your courage to tell a therapist the ugly truth & be faced with a ‘just stop’ attitude is soul destroying. Equally dragging your blood soaked self to a&e only to be treated with disgust can break a person. That the is the problem I & many others most need addressed. 

I believe SIAD should be about acknowledging the complexity of the issue. We should be focusing on changing the attitudes within the medical profession. Yes, let’s educate our communities about mental illness, but let’s also change the entrenched attitudes within the institutions that have the power to destroy lives. The worst stigma I have faced has been from dr’s & nurses who ought to have known better. Stigma is never positive, but I’ll take a hundred ignorant strangers over one cruel dr. Being unable to safely access treatment can kill. We need to take the fight to that front line. 

  

If you like what I do you can support me here or on Patreon.