Talk is cheap…

It’s Mental Health Awareness Week, which is, in theory, a good thing. Since all it seems to involve is people on social media saying ‘talk about it’ it is not actually all that helpful.

We absolutely should talk about mental illness more. We should educate our kids about symptoms & how normal it is to experience them. We should put better training in place for teachers, emergency services & NHS staff. We should all try harder not to judge or shirk away from people who are struggling. Employers should be flexible with staff dealing with mental illness. There should be more information, more understanding, more honesty. Yes, we should talk about it. Asking for help it definitely a good idea. All of these things are important & valid, but there’s still something missing from the conversation.

What happens when you do speak openly & no one listens (or seems to care). Can we talk about all the people who gathered all their courage &!swallowed their pride to ask for help and didn’t get any? Can we address the fact that as hard as is it to say ‘I’m not ok’, it’s a million times harder to hear ‘tough luck’ in response.

We do need to talk about mental illness, but we also need to listen and act. Funding is of course part of the problem. The NHS is chronically underfunded & mental health is the poor cousin. For all the political talk of parity between physical & mental illness, there has been little change to waiting times or scarcity of vital mental health services. Very often waiting to even be assessed by a mental health team is a long process. In my area the wait for psychologist input is 4months (that’s relatively short), in practise you’ll be waiting longer because you will first have to be referred & assessed before anyone even adds you to that list. During all this waiting time people can have no professional support.

Then there are the multitude who are deemed ‘not sick enough’. To be fair this has always been an issue due to stigma & ignorance. Lack of funding exacerbates the problem. When services are so stretched, access to those resources become limited. Lots of people who seek help for mental health problems are basically told to manage it themselves. Get some exercise, reduce your stress, get out more. When you summon your strength to talk about things that frighten you and are told it’s no big deal, it’s hard not to feel even more pathetic. It is difficult not to feel shutdown. Repeat that scenario more than once & people give up. Likewise for those who are informed that they’re not quite ill enough to warrant intervention. All that talk of early warning signs & speaking up doesn’t translate into much action. Having a professional ask you to wait & see if your health declines before they will help you is a kick in the gut. When you know that getting worse means your entire life falling apart, it’s not unreasonable to prefer to be proactive. When you don’t know what’s happening to you all, it is terrifying. So, yes, we do need to talk about it. I will always encourage people to ask for help. I will always strive to remove the shame of admitting you need assistance. I’ll also continue to demand that we talk about what happens after you take that step. We cannot ignore the fact that asking for help does not guarantee receiving it. We must acknowledge all the people for whom no treatment has been forthcoming & stop pretending that the problem isn’t much, much bigger.

People die because they did talk about it & nothing changed. Can we start talking about that?

You can’t change the way she feels, but you could put your arms around her…

I dreamt about an old friend last night. A friend who is no longer living. It was a lovely dream that I was sad to wake from. As I tried to commit the dream to memory I realised that whilst I thought of her often, I hadn’t spoken out loud about my dear friend in a long time. Too long a time, which is something I need to rectify. I need to talk about her. Tell her story. Share how she changed me. And that is exactly what I am going to do.

Let’s start by saying I met J because we were both ill. I was in my early twenties & struggling to deal with undiagnosed PTSD. I was trying to hold together a life that was increasingly unsatisfying with a self harm habit that was spiralling out control. J was dealing with similarly unhappy circumstances and a self harm problem that becoming, frankly terrifying. We both found some comfort in a community of sick people who didn’t know where else to turn. We were people who couldn’t ask for help or had asked without receiving the sort of assistance the we needed. No one talked about self harm then. Except maybe in the odd film where it was usually portrayed as something a trouble teen might do or a suicide attempt. Even the mental health professionals treated us like shit (sadly, some still so). If our attempts to hide the problem had failed, our families & friends were frightened ( & in some cases cruel). We were dealing with real problems; rape, abusive relationships, miscarriage, escaping from cults, drug dealing parents & a multitude of other big, scary problems. We were of course also living with mental illness. Some of us had a laundry list of labels and others had not a single clue what the fuck was wrong. But there was absolutely something going very wrong for all of us. This is where I met J. Amongst this this group of desperate people I also found a salvation of sorts. These broken people offered each other a kind of support that we couldn’t find anywhere else. We dragged each other through the kind of darkness that most will never understand. And J was kind of our leader.
J was living with pain beyond what would be considered durable. Her mental anguish was compounded by the physical horror she was compelled to inflict upon herself. J was not ok. Every solitary moment of life was a battle hard fought. And, yet, she always had time for us. She had love and support and encouragement for her damaged flock. J lived in a different time zone, but she still called day & night to remind me to keep breathing. She wrote letters and sent care parcels. She compiled lists of all the things that just might offer one us a couple minutes respite from our own fucked up heads. She replied to every ‘ I can’t do this anymore’ with such kind & convincing entreaties to keep trying, that we did. Her words worked because we knew, that she knew. We were all able to help each other because we shared a world that most people didn’t know existed. For me, j was the ultimate inspiration. If she could do this with such grace, I owed it to her and all the others who loved me to at least not give up.

Kelvingrove park

It’s such a cliché, but this goodness expanded beyond our group. She was studying to be a nurse because she wanted to help people. Everyone in her life adored her. J was that person who offered succour, but she wasn’t a martyr or a goody goody. She was fun. Her sense of humour could be wicked. Most of all she was strong. J fought to live. She engaged with mental health services that let her down over and over and over. She was still working and studying at the peak of her illness. She endured the brutality of her self harm and the callousness of those supposed to treat them. She did it all with dignity. Life beat J black and blue. This world committed an almost constant vicious assault on her. She fought back hard. She battled with and blood and heart and care and tears and wonder. She did not win.
J succeeded in taking her own life in a sad and awful way that left no doubt that she meant it. I wish with everything in my being that I could have changed how her story ended. Both the circumstances & the prematurity of her passing, but I don’t blame her. I understand that life was no longer a viable prospect for J. I hate that, but I do not begrudge her some peace. I am still angry at the professionals who failed her and the people who’s actions caused her so much pain. I will never be angry at J. She gave life her very best shot. Her suicide was neither selfish nor weak. It was just the only option she had left. It kills me that someone so beautiful was left with a choice so ugly. I understand it, though. Whilst I know it may be an unpopular opinion I can accept it. I can respect that it was her decision to make.


So, why I am writing this? What am I left with? Actually what remains is so much more positive than I could have ever imagined. Losing J was soul destroying, but life does go on. I go on and so do those other sad people that she cared for. I don’t want to disrespect those wonderful people by not acknowledging that they too saved me. We all helped save each other. In hundreds of big and small ways. After J’s death we continued to care for each other. We laughed and cried and screamed and swore together. We stayed up nights and called ambulances. We sent Xmas cards and made hospital visits.
From that group I maintain friendships with some incredible people. Some of us are entirely recovered, some still walk the tight rope; we are all still alive. We have partners, careers, babies, hobbies & passions. We all do our bit for mental health awareness. Whether that’s through writing, organising, working in the field, donating to MH charities or just supporting loved ones with their difficulties. I will spend the rest of my life doing everything I can to prevent others falling through the cracks. I will fight for everyone to have more choices than J. I know I am not alone. That is her legacy. She lives on through the people she touched. We endured. We succeeded. We survived.
WE LIVE

1 in 4 adult in UK will experience mental illness at some point in their lives. It is incredibly likely that you or someone you love will have to fight this battle. You can help improve the lives of suffering in a number of ways. Please do what you can to make sure more people survive.

Add mental health education to the national curriculum

Donate to Samaritans

Donate to SAMH

You an also make a massive difference by writing to your elected representatives an telling them mental health is major issue for you. Let them know that how they vote on mental health related issues matters to you. You can find your representatives here.
Find my MP
Find my MSP

 

Words are flowing…

Words have always been my religion. Wether my love of the beauty you can create with words made me a writer or what I could say when I wrote made me love words is my own personal chicken & egg. Regardless, the fact remains, I worship words. In that adoration lies a certain obsession; from worrying over a sentence for an hour to finding affinity in a someone  else’s perfect phrase. Which, is exactly what I want to tell you about. 

In the past week I’ve come across two such phrases that at different points in my life seemed made for me. Across the Universe is one of The Beatles songs I immersed myself in as a teen. I still love it, but the words have become so familiar that they often just wash over me. Well, on bus last week for some reason I was really listening. When I reached the chorus, one line flooded me with feeelings from times gone:

‘Nothing’s gonna change my world’ 

I vividly recalled being 15 & completely believing that nothing could shake me. I had at that point lived a charmed life. A life of love & safety & competence that had formed a girl confident she could take on the world. And win. 

I look back on that version of me with such mixed feelings. I’m proud of her; she was the weird girl that managed to be popular. The smart girl that partied. Even at 15 she knew her convictions mattered & those who felt threatened by that could fuck off. It takes a specfic kind of teenage courage to own that you are different & to celebrate it. Oh, the plans she had. It never once occurred to her that anything could knock her down. 

I’m welling up writing this because I know what happened next. It took years of therapy, but I can finally feel compassion for that cocksure girl that fucked it all up. Now, after years blame, I want to protect her. A story of my history & evolution in 5 words. 

A few days later, in a fit of insomnia, I was flicking through tv channels & found Girl Interrupted. The first time I saw this the description of suicidal thoughts clicked. 

‘Once you’ve posed that question, it won’t go away’

I hadn’t heard anyone else voice this cold fact before, but it was true. Once I had seriously considered suicide, it never really went away. Killing myself became the solution to every problem. So many of Susanna Kaysen’s words rang true. Hearing my terrifying feelings expresssed out loud somehow justified my pain. 

All I ever heard about suicide or self harm was don’t do it. People often talk in well meaning platitudes. They’ll tell you that suicide is a permanent solution to a temporary problem. Life will get better, they insist. It’s all meaningless. When you are in that hole, getting out doesn’t seem possible. More over, even if you believe that someday, you might be happier, it does nothing to assuage your current pain. Severe depression is torturous. There is a comfort in knowing an escape hatch exists. For a long time the knowledge that if I couldn’t take anymore of life I didn’t have to was the one thing that kept me alive. 

Watching that film again brought back those dark times. More than that, Kaysen’s words brought a sense of peace. In my suicidal days, having my daily struggle with those thoughts acknowledged was powerful. Now, realising that suicide is no longer my default trouble shooter is compelling. 

Sometimes it takes a glance at the past to see how far I’ve come. I know those feelings can return. Which is why these words still resonate. Another example of a handful of words spelling out the story of life.