Booster adventures…

My health has been yuck for the last few weeks and have been stuck at home. It’s been all jammies & running life from my phone for me. My biggest adventure has been finally getting my booster jab this week.

After a really rough weekend with a stomach flare it felt really good to keep down some toast & mint tea. That little boost encouraged me to put some mascara on & get my Xmas t shirt out. I was only going to get my Covid booster, but it did feel nice to get a little fresh air and see the outside world. Of course I also felt relieved to be fully vaxxed again!

ly is standing in front of Xmas tree wearing leopard print trousers,  black t shirt & purple cardigan
Trousers – ASOS Curve
Cardigan – Handmade by my Mum
Tits the Season T-Shirt – Paper Press Ireland

My Xmas parcel from my dear friend Jenna arrived early from philly, of course I opened it. One of the lovely gifts she sent was this bangle, which I wore immediately. She knows me so well.

Pale wrist with gold bangle inscribed with  societal norms can suck dick
Bangle – Metal Marvels

I got my vaccine at Glasgow Central Mosque. The building is really pretty so I could not resist snapping a photo. Along with a few other random ‘I’m outside’ pictures.

Central Mosque
In the queue to get boosted.
Glasses – Where Light
Pretty lights on the way home.

Please do get your booster. We do not want to be messing around with new variants. I felt a little rough yesterday, mostly a bad headache. Much improved today and delighted for the reassurance of extra protection. Take care out there.

If I had a little a money…

In recent weeks the cost of disability debate seems to be all over the place again. Mainly able bodied folk rudely telling disabled folk what we do & do not need. It is of course offensive and exceptionally annoying to be on the receiving end of this. Debating your reality us never fun. Hence, I thought I’d do a little run down of the day to day expenses that my disabilities incur. I am far from the worst case scenario, so bare that in mind when you’re processing this.

It feels important to make it clear that sick & disabled people are rarely just given the things they require. There is a myth that equipment, money, human support & treatments are just handed out to anyone asking. They absolutely are not. Any help we do receive is procured through humiliating assessments, long waiting lists & much general fuckwittery. At the end of which our requests are often denied. It’s a special kind of torture to lay yourself bare to unfeeling beaurocrats only to be gaslit & told you’re fine. Or, sometimes even more frustrating, It’s accepted that you need help & such help exists, but it is not available to you for ‘reasons’. We are screwed over time & again, left with the option of paying for the thing ourselves or never getting it. When the thing that must be paid for is essential, that’s not really a choice.

So, bearing in mind that many disabled people’s ability to work full time (or at it all) is impacted by their conditions, how do you think your pocket would deal with this.

Travel

I can’t get around much on my own as I can’t walk very far. During Covid public transport has been even less of an option for me. I have to take taxis everywhere. Using last week as an example, this costs:

  • Hospital App – £11.80
  • Visit Bestie – £11.30
  • Vet – £8.60
  • Pick up Bronan’s Prescription- £8.80
  • Post Office – £8.60
  • Work Meeting – £22
  • Weekly Total – £71.10

Pain Relief

Lots of really effective pain relief options are simply not available via the NHS. These are pain management related items I have had to buy.

  • Heat Pads – £5 per 3 pack.
  • Tens Machine – £65
  • Tens Pads – £5 per 10.
  • Long Hot Water Bottle – £20
  • Microwaveable Heat Pouch – £15
  • Dragon Balm – £2.50 a jar.
  • Lidocaine Patches – £60 per 10 pack.
  • Vape – £35
  • Cbd Oil – £15 per 50ml.
  • Freeze Spray – £1
  • Paracetamol – 56p per 12
  • Massage – £70 per 60 mins.
  • Kinesiology Tape – £5.50
  • Yoga Mat – £20
  • Foam Roller – £12

Disability Aids

I believe some local councils will fit disability aids in social housing or if people meet certain criteria. Unfortunately I do not live in social housing nor meet those criteria. Thus, I had had to purchase any device I require.

  • Walking Stick Ferrule – £5
  • Easi Reach – £10.99
  • Easy Open Food Containers – £25
  • Jar Opener – £5.50
  • Easy Veg Chopper – £20
  • Multi Bottle Opener – £5
  • Auto Can Opener – £15
  • Lotion Aplicator – £8
  • Walking Stick Seat – £25
  • Sock/Tights Aid – £8
  • Bra Angel – £17
  • Hook/Zipper Assist – £6
  • Suction Grab Handles – £28
  • Shower Seat – £35
  • Wearable Tens Holder – £20
  • Press on Lights – £10 per 3 pack.

Services

There are jobs that must be done regularly that I am incapable of doing. There is no support for such things, so I must pay people to do them.

  • Grass Cutting – £45
  • Hedge Cutting – £60
  • Weeding & Garden Tidying – £100
  • Wheelie Bin Cleaning – £8
  • Window Cleanimg – £8
  • Bathroom & Kitchen Deep Clean – £175

On top of the costs outlined most disabled people also report spending more on bills. My gas bill tends to be high as I have a greater need & more difficulty keeping warm. My electricity bill soars with the need to charge various essential aids & technology. My food shopping is increased by the need to purchase lots of pre prepared fruit & veg, free from items to accommodate my dodgy stomach, plus the cost of food waste when I am unable to cook/eat. Having everything delivered incurs a cost as does working from home, which both add to my outgoings. In fact, Scope reports that on average disabled people face extra costs of £583 per month. That’s only accounting for necessary day to day living.

Should a disabled person attempt to do anything beyond the basic there will of course also be additional costs. Try going on holiday, trying a new hobby, undertaking to study a new discipline and you will find that there are always extras/different apparatus to enable a disabled person to take part. Almost every aspect life presents a bigger bill.

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Be running up that hill…

Chronic illness is great at kicking you when you’re down. Lamentably, it also likes to give you a dunt when you’re flying too. It would be taxing to say which is worst, but falling from a height certainly hurts.

That was me last week. I was on a lovely break in the cutest cottage by sea. Soaking up the calming sea side views and thoroughly enjoying time with my nephew. The sun was out, we headed to an incredibly beautiful beach. I watched the boy run around having the time of his life. I paddled in the refreshingly cold sea. Took deep breaths, listened to the lapping waves & felt happy.

Tide coming in on st Cyrus beach

As it edged towards late afternoon people started to leave. I began to worry about the hill I’d have to climb to leave the beach. As we packed up I saw people stroll up. I knew it was going to be a problem.

And I was correct. That little sand dune fucked me up. I started trying to ascend it alone, but quickly realised that wasn’t going to happen. It’s hard to get your footing on slopping sand. Even harder to get purchase in moving ground with a walking stick. With every step the sand slid down the hill pushing me back. It was all working against me.

Foot with black painted tie nails on the sand with wave approaching

My sister saved the day. She let me lean on her, literally & half dragged me up that hill. Every step was excruciating. My knees felt like the where going to explode. My back, wrists, elbows & shoulders were all screaming. I couldn’t catch a breath, my lungs felt as though they were filling with the sand I was slipping on.

That little sand dune appeared to go on forever. The bench at top a promised land I’d never reach. Listen, the pain was bad, it wasn’t the culprit of tears at the summit. As my sister helped me struggle I saw my 3yr old nephew gamble up the slope. An old couple comfortably passed us. A nice man with a very concerned look stopped to ask if he could help. I focused on breathing whilst my little sister pepped talked me up that hill. I repeated ‘you’re nearly there’ in my head and tried my upmost to hold back the tears.

When I finally had my bum on that bench my nephew ran to give me a cuddle. The tears started streaming. I looked at the beautiful view as I silently cried. I didn’t want to make eye contact with my loved ones. I didn’t want my little rascal to see me in this state. I recognised the concern in my sister’s voice & the love in the silent shoulder my Mum offered to hold me upright. As much as I loved them for it, I hated that I have to be this way.

View from hill over a beach.grass & wildflowers with sand past leading down to the blue sea

It was another one of those ‘how did I get here’ moments that chronic illness brings. I never imagined it’d take a support team to get me up a hill at 40 years old. I’m not a person who likes to be publicly vulnerable, yet here I am. Regularly fragile & exposed as I try to scratch out something close to a normal life. I felt guilty and embarrassed and pathetic and grateful and burdensome and scared and loved. All crashing over me with more force than the waves below could ever muster.

I concentrated on the nature around me as fought to compose myself. I attempted to ignore the curious looks from strangers & the pain coursing through my body. I listened to the the waves and birds. I let the blue horizon pull me through all the heavy implications placed on the people I love. I dried my eyes. I got back on my feet.

The day continued. Me, making my way slowly behind the others. Stopping to rest. Taking pain relief. Zoning out when we got back in the car. It was all so much bigger than that stupid hill. I was hoping I hadn’t distressed the others. Dreading the pain that I knew was still to come. Feeling sad at the thought that I probably wouldn’t ever return to that blissful beach.

It is painful to accept one’s limitations. I find it incredibly hard to let more & more go. I hate that I’m always the one who has a problem with the plans. I despise that my difficulties are so visible. Gasping for air at checkouts that take a fraction too long. Sitting on floors when there’s no seats available. Calling in advance to check if my malfunctioning body can be accommodated. I don’t like being on display, don’t want to answer questions about my stick, shake off the exasperated sighs or smile at pitying strangers. No matter how kindly meant, I’d rather be suffering in private. I’m exhausted by the knowledge that I’ll pay for every slice of fun. Even more so by the battle with myself to keep reaching for those good times anyway. Most of all I’ll forever regret how much this impacts all the wonderful people in my life. I wish I could stop being a hindrance. I never want them to have to worry. I appreciate every tiny thing they do for me, but I still wish they didn’t have to.

This is chronic life. It’s not just the pain & illness. It is all encompassing. Lots of the time the only way to deal with that is to push it to the very back of your mind. These moments of brutal clarity never stop taking me by surprise.

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Oh I do like to be beside the seaside…

Oh my god, it’s happening. Lockdown is easing & I went somewhere nice. I put in some mascara. I picked a pretty outfit. Stage 1 of project live again is go!

We’re still quite restricted in Scotland (better safe than sorry), but things are moving. We can now travel out with our local area for non essential travel and see up to 6 adults outdoors. That may not seem like the most exciting development, but it is making me woohoo. We took advantage of the sunshine yesterday and embarked on a mini road trip. My sister, Mum, the boy & I hit the beach. We really do like I be beside the seaside.

The little man is a total beach baby. He literally rolls around in the sand & loves it. We made pirate islands, volcanos & buried everyone’s feet. Needless to say we brought half the beach home with us.

Toddler burying feet and lying in sand

I also found a minute to watch the soothing waves and snap some outfit pics. Here’s to a long hot summer with loved ones!

ly is standing by wall with beach in background. She is leaning on acealking stick wearing cat print swing skirt, sheer t shirt &  sunglasses
Skirt – Lindy Bop
T-Shirt – Pretty Little Thing
Kimono – Boohoo
Sliders – Pillow Slides
Sunglasses – Wherelight
Calm blue sea & sandy beach
Red glitter text necklace  spelling ‘fuck Boris’
Necklace – Topple and Burn

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Not your pin up girl…

I recently received delightfully BoPo gifts that instantly inspired an idea. Since the presents in question are a hat & socks, they seemed perfect for a cute top to tail photo.

As I put my vision into action I became frustrated. My attempts to capture a simple, joyful picture of my fat body were complicated by the reaction I knew it would receive. No matter how carefully one covers provocative areas or unseductive the pose female presenting bodies are sexualised. Marginalised bodies receive even more pressure to up the sexy in order to be perceived as worthy of viewing.

Nudity isn’t inherently sexual on green and purple swirly background

As a fat woman I know from experience that any picture I put in the public domain will be insulted & ogled. No matter the context or reason for my showing the world the image I can predict a portion of the responses. Some creepy men will always make creepy remarks and fat phobic comments will appear. It can feel like I am being asked to either apologise for or eroticise my form to make it acceptable.

I’ll never apologise. I won’t forever play the sexy fatty either. My body is just as worthy as any other. I am attractive, I can be alluring. I’m also just a person. I like myself in jammies & unwashed bun. I like myself with hairy legs and tired eyes. I’m worthy when I’m limping along with my walking stick. I can find pleasure in my body just as it is.

Plus sizesd naked women sitting on floor one arm across her breasts and one leg crossed to cover pubic area.Wearing a hat & socks
Riots not Diets Beanie – The Spark Company
Socks – Crudely Drawn
Glasses – Where.light

Naked doesn’t equal sexual. All bodies are glorious and remarkable. I Iove the idea of embracing the normal. I want to celebrate all the different incarnations of me. I want others to see that they are enough.

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Tuesday’s child…

Routine is hard to establish routine during a pandemic, but the last few weeks Tuesday adventures have returned. I am delighted.

For this week’s adventure I even managed to put together a cute ootd. I’m doubly impressed with myself as I uncovered a forgotten wardrobe gem. I have no idea when I bought this dress. I’m not sure if I’ve ever worn it before, but I bloody love it. I couldn’t find my footless tights, so I just cut the feet off these lovelies. Worked a treat.

ly stands on pier in brightly coloured dress.  Loch Lomond is behind her and she has a walking stick

Dress – Primark
Kimono – Boohoo
Tights – Asos Curve
Glasses – Where Light
Jelly Shoes – Primark

As usual I went for all the colour because why not? I added my very favourite brooch for added fat posi vibes and my look was complete. My sister’s take was ‘it’s very you’, which means I hit the mark.

Pink felt brooch with ‘thunder thighs are go’ embroidered
Brooch – Poise Grenadine

My sis only had a little work to do. After, which, we all headed to the Bonnie banks. Luss is one of my very favourite places. My thoughtful wee sis had noticed I’d talked about being sad at not visiting this year and suggested we take a trip. The boy loved it as much as we do. With ducks, a chance to build sandcastles & a a sneaky ice cream before home he was a satisfied rascal.

Two adult sizes feet & two toddler feet in water on pebble beach.
Views of Loch Lomond & Luss village
Ly sitting on rocks laughing with a toddler on her knee

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Down by the sea…

Friday has taken over from Tuesday as my adventure day. This week was a really good one. We took a wee trip to Culzean Country Park & had all the fun.

Culzean castle, formal garden with  large decorative water fountain on lawn

I started the outing by throwing up in a car park, so I was really hoping the day picked up. It totally did. We had a picnic lunch (I stuck to water )in a gorgeous courtyard & then headed down to the sea. The boy has been asking to go to the beach for ages & Auntie ly has been yearning for the calming waves, excitement ensued. There’s no guarantee of a sunny July in Scotland, but grey clouds didn’t impede our jubilation. The beach was almost entirely empty, it had a conveniently large log for sitting & sand castle supplies were abundant. We all bloody loved it.

Once we shook the sand from our crevices it was time to capture the castle. Atop the ramparts awaited a serene view & rest for the older members of our party. Meanwhile our ickle companion exuberantly explored the castle grounds.

I always find being close to the sea very calming. It did me good to combine a spot of serenity with a big scoop of rascalling. The further reduction of lockdown that comes into force this week will allow me to restart my life somewhat. I’m both excited & nervous about tackling things like trains in the time of covid. Thus, it was extra nice to dip my toes in the water & recharge before facing the world.

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Darling, hold my hand…

Friday seems to have become my social hub. I’m still mostly pottering away at home. Shops & indoor pursuits still don’t feel safe, but I am down for a wee afternoon in the park.

Since the little ones no longer need to social distance my bestie & niece joined us for an adventure. We went to one of my favourite places & had a ball. It drizzled a little, but with highland cows, dinosaurs & fairies to find the rain did not dampen our spirits.

I paired up some striped staples with my new kimono and felt cute. The rain might not have spoilt our fun, but it did ruin my hair. Oh well, no one’s locks look tip top during a pandemic.

Skirt – Asos Curve
Vest – Primark
Kimono – Boohoo
Sandals – Next (kids)
Glasses – where.light
Both in need of trim.

Despite now being predictably sore all over, I regret nothing. These little rascals are irresistible & their Mummies aren’t bad either.

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The sky is more blue…

I left the house yesterday. It was the first I’d been out in months. Since the First Minister gave the nod to relax lockdown I was allowed to spend time with people in real life. It was a glorious day for sitting in the park. It felt delicious to have the sun on my skin & sublime to see this boy.

We found a lovely spot that offered shade for me & sun for my sister. There we had a natter whilst the boy ran around. He picked some buttercups, blew some wishes and made his auntie so happy.

For my temporary return to the world I had a brand new outfit. I bought this Boohoo co-ord a while ago, but hadn’t bothered trying it on as I had no where to go. It’s in the sale now, if you like it snap it up fast. I sized up because their tops are always small (especially cropped). The 24 skirt is on the big side, but a smaller top would never have accommodated my boobs.

Plus size women wearing paisley print skirt  &  crop top in a park
Skirt & Top – Boohoo

I think this might become a fav if we have another hot summer. I am useless in the heat. This light floaty number will be great for long sunny days. Perhaps by the end of the season I may be able to see more of my people.

Trees and grass in sunny park

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And a happy new year…

I think it’s fair to say that 2019 has been a shit show. A political nightmare on a global scale. Environmentally disastrous & frankly a genuinely worrying time to be alive. My faith in humanity has taken a battering this year.

It won’t be like this all the time stencilled onto a pavement

It hasn’t been an especially uplifting 12 months on the personal front either. There’s been loss, illness & a struggle for meaning. It has all felt a little pointless at various stages, but I made it. Here I am living & learning. Carrying on.

Woman in bed with teary eyes

The year got off to a heartbreaking start, but there have been ups. I cemented a crucial relationship & extricated myself from one, which in hindsight, I hadn’t wanted to be in for quite a while. My people have proven once again how marvellous they are. Circling around when needed & letting me be when required.

Txt conversation

There have been a few professional triumphs. I returned to public speaking (terrifying), embarked on a little social media consultation & posed for some excellent photographers. I produced writing I am proud of and my expanded audience significantly.

I applied myself to the task of enjoying life. It’s not always easy when dealing with chronic & mental illness; I’m pleased with my progress. My little ones continue to be of endless interest. I have immersed myself in the joy they bring as often as possible. I’ve allowed myself to enjoy time with someone lovely & undemanding. I even had some successful surgery.

Selection of pictures of children

Most importantly (I think), I have released myself from the need to know where I’m going. I always thought my biggest purpose was motherhood & letting go of that dream has been challenging. I felt bereft of meaning. It has taken time & wise counsel to discover that perhaps I don’t need all the answers right now. It’s ok to take some time to breathe & live. Hopefully other options will present themselves. In the meantime I can work on career goals and hopefully continue to squeeze maximum happiness out of life.

Path continued painted cement ground with foot & walking stick

So, it’s true. Life goes on. I suppose that’s as true on a larger scale as it is personally. We can still strive to be the change. Sadly, it looks like there will be lots of opportunities to test the courage of our convictions. I hope we prove ourselves brave.

Mirror image of fat women smiling

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* Photography Credit – Megi Aben