Mental health

Blackbirds singing in the dead of night…

~ somethinginthewayshemoves ~ 2 Comments

It’s 5.07am. There are some very loud birds outside & the light is creeping around the edges of my blackout blind. I haven’t slept, but I do finally feel a little bit sleepy. Do I sleep? If so I might sacrifice the day. After no more than a couple of hours for the last few nights I might conk out big style. I wanted to do something today. Something nice enough to make me feel like I’m participating in normal life whilst still being easy. Sleeping all day does not fit the bill. Although, perhaps I’ll wake up feeling rested & be productive. If I could complete one of the many, many things on my to do list it might relieve a little anxiety. For now I’m stuck in the vicious crazy circle. No motivation + no energy = accomplishing nothing. As the things I have not done pile up so does my anxiety. Until the undone things & the anxiety are so huge that I’m paralysed by their weight. I’m just stuck underneath, stressing & not sleeping & feeling increasingly worthless. So, maybe I should sleep. I’m exhausted. I’m always exhausted because I never get enough sleep. There is always something keeping me awake. Be it pain or fear or coughing or nightmares or vomiting or the terrifying vagueness of insomnia. Right now I feel that illusive part of tiredness that usually escapes me. The fuzzy comforting drowsiness that signals actual sleep is a possibility.

But

If I sleep now, chances of sleeping tonight are slim. I could miss the chance to do a thing that could make me feel something other than grey or jittery. If I close my eyes now I’m risking the dreams. Flashing scenes dripping with all the things I cannot bear to look at again. Flickering images soaked in feelings too potent for consciousness. Then I’ll wake in a mess. Heart pounding, breath hiding & I’ll have to talk myself down. Fool myself into a calmness that’s counterfeit. Either way the day is scuppered. All those hopes for lightness dashed. 

So, I stay awake. I’ll just wait in this cool dark room for the day to really get started. Force myself into the shower. Try to make a plan that doesn’t feel overwhelming. Push down the fatigue & the jangling of every nerve for the possible reward of OK. Reassure myself that this isn’t forever. Repeat that I am not back in the hole. It has been a difficult month. I am allowed to feel bad. Tomorrow or the next day or the day after that will be an easy one. Just keep going. Swing from one pleasant moment to the next & hold my breath through all the rest. 

This will pass

I will write the things that are over due

I will do some god damn washing 

I’ll cook a proper meal 

&

Wash my hair

Peace will be restored 

Life will go on

&

I will live it. 
If only I could get some sleep…

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Mental Health Platitude Week…

~ somethinginthewayshemoves ~ 4 Comments

It’s National Mental Health Awareness Week again. Regular readers will probably have spotted how I feel about this sham, but for the avoidance of doubt I’m going to go at it once more. I ask you to forgive my lack of finesse. I’m riddled with infections, haven’t slept & more than a little frustrated with the subject matter.

Some of you may be thinking, wait, raising awareness about mental health is great. You are of course correct, but this week (& most mainstream MH campaigns) is just lip service. At best it’s platitudes & at worst it’s dangerous. If you check the hashtag on social media you’re going to see a lot of posts extolling the virtue of talking about your troubles. Talk will apparently cure all that ailes you. Ask for help & you shall receive. Pro Tip, It won’t & you won’t. 

On the help front you’ll be up against the limitations of the NHS. Cuts to mental health services have been particularly brutal. Even if you have the good luck to access a Gp who takes you seriously & correctly refers you in a prompt manner, your wait will be long. What’s worse is that the correct help is unlikely to be at the end of your wait. A shocking lack in resources of every kind results in most people being offered short courses of cheap therapies like CBT. It will come as no surprise that with mental illness one size does not fit all.

 Even in acute circumstances there are no psychiatric beds available. Many people have to travel long distances to access inpatient psychiatric care. Meaning they are far from family, friends & comforts in their darkest moments. If you’re a child or adolescent those resources only get scarcer. So, that’s frightened children waiting in misery to access services that may be of no use to them anyway. All of which is a far cry from just talk & salvation awaits. 

As depressing as all that is I haven’t even broached the fact some people never get as far as a waiting list. For many there is no sympathetic ear. Their gigantic leap of faith is met with ignorance. Employers do still discriminate against the disabled. There are still Dr’s who will tell a person to pull themselves together. The worst stigma I ever faced was from medical professionals. All of which means awareness is great, but money is better. Proper funding is the answer to our mental health crisis & it is that is what we should be talking about. 


The money problem doesn’t end with NHS funding. Our government is trying to eradicate disability benefits for mental illness entirely. The process of applying for PIP or ESA is exhaustive. The categories for qualifying are constantly shrinking. Our benefits system currently subjects vulnerable & very sick individuals to the most humiliating process in order to survive. That mental illnesses are purposely targeted for exclusion is government sanctioned stigma. Ah, I hear you cry, we do need awareness.  Well here’s the thing, we don’t need the bullshit being touted by the mainstream orgs. All those articles about exercise & healthy eating & a hot baths & nice cups of tea are just shoring up that stigma. The idea that mental illness can be cured by any of those things minimises it’s very nature. It encourages the notion that people with long term mental health problems just aren’t trying hard enough. That in turn legitimises the governments disgusting witch hunt. 

And we’re right back to my original point. Awareness is fine, but real change is the key. If you truly want to make a difference you need to tell your elected representatives that mental illness is a key issue for you. Sign petitions, attend marches, get informed. Read the difficult articles. By all means challenge stigma when it crosses your path & listen to anyone who chooses you as a confident. Do all of those of things, but I want to be clear, there is one crucial thing that will hand more impact than anything else, DO NOT VOTE TORY. 

Woman of the Week…

~ somethinginthewayshemoves ~ 2 Comments

This week’s marvellous female specimen is Ruby Tandoh. I actually came pretty late to Ruby party, but I intend to make up for lost time. Ruby is the no bullshit baker we all need in our lives. 


Ms Tandoh obviously came to public attention on The Great British Bake Off. She didn’t win the show, but she was excellent in every way. Every single one of her 5 million facial expressions were endearing & I totally related to her stressing. It goes without saying that she made some tasty shit, but the best was still to come. 

It wasn’t until I found her on twitter that her true glory was revealed. Ruby is a kick arse intersectional feminist. She tweets about important matters from LGBTQ issues, fat phobia & ableism to popular culture & politics with the kind of blunt clarity I admire. She calls out the sell out tactics of other chefs who jump on the healthy eating bandwagon. All the while writing joyfully about food (& various other things) in her Guardian column & books.

Ruby had no fear in taking on the big names. She has been savage in her take down of Jamie Oliver & clean eating quacks Ella Mills & The Hemsleys. She skillyfully disects the dangers of healthy eating fads whilst highlighting why they are so problematic. 


Her recent contribution to Do what you want, a zine about mental well being has pushed her even further in my estimations. The zine includes a variety of pieces on all aspects of mental health. It covers perhaps less talked about issues like accessing treatment as non binary person & mental well being from a refugee stand point. This all round excellent publication also donates all of profits to mental health charities. I believe it is now sold out, but check the website for details. 

Ruby Tandoh seems to be that rare thing of a ‘celeb’ who puts her money where her mouth is. Her feminism is inclusive of the groups so often exclude from mainstream white feminism; sex workers, non binary people, POC, fat women, the disabled & so on. Her life seems to genuinely reflect her spunky public persona. This is a woman worthy of our respect. 

If all that wasn’t enough she is hilarious. We’re talking about the chick who refused to work with Piers Morgan by calling him ‘sentient ham’. Oh & she wasn’t fucking sorry about it. 


Can we have a standing ovation for Ruby?

A week (ish) in pictures…

~ somethinginthewayshemoves ~ 4 Comments

It’s been more like 3 weeks & they haven’t been the most productive. I finally painted my nails today & I have some appointments set up this week for oPeration BoPo. Life goes on & so do I. So, there will be more exciting & uplifting posts coming soon. For now, here’s a wee photographic glimpse at my quiet days. 


Bright days, escapist movies & lunches with my sis have been soothing.


Spring flowers & spring cleaning (it still counts if you pay someone to do it, right?) have helped with that starting over feeling. Pretty skys, my pretty cat & effective drugs have also done their thing.


Easter treats, thrifting, lazy days & random sights have helped to ward away the deep blues. My puss cat in both snuggle & grump mode is a tonic. Oh & look at my nephew’s face; it doesn’t get more life affirming than that. 




Rest, dancing light in my home & the beauty of my own fat arse have given me a boost this weekend.  I’m hoping it will carry me through the week.

After all, as Scarlett O’Hara would say, tomorrow is another day. 

Pause to breathe…

~ somethinginthewayshemoves

I had to go into hospital for a little bit for some treatment to complete things. I also have a kidney infection, my body likes to do fun things like this. Anyway, I am physically & emotionally exhausted. So, I’m just going to rest for a while & will be posting things that were completed before this happened. 

I’ve got tears that are scared of the facts…

~ somethinginthewayshemoves ~ 10 Comments

My baby was the size of a large olive. Almost all of her vital organs were formed. She had tiny finger nail buds & her body was covered in fine hair. And now she’s gone. 

So, I’m writing my emotions because I can’t bring myself to verbalise them & they have to escape somehow. 

With my health & my history this wasn’t unexpected, but that didn’t make it any less shocking. Being pregnant again was scary. It felt unreal to begin with, but I had started to believe that this was my time. The fear never left me, but the hope grew. 

I felt very pregnant. I still do, which seems particularly unfair. Sickness & nausea & cramps & sore nipples & peeing or crying every two minutes. Strong smells became my nemesis. I haven’t even been able to wear my own perfume. Pregnancy ruled out almost all of my normal meds. I’ve basically felt horrendous but been delighted to suffer. All the pain & discomfort meant my body was doing the very thing I didn’t think it could do. I worried about every twinge, but I also relished them. 

I felt like we were having a girl. He never said so, but I think maybe the toy boy did too. We talked about girl’s names so much more than boy’s. I talked & thought too much about too many things. 

Names & maternity clothes. 

The best way to tell my neice & when to tell the rest of the world. 

Which stories to read at bedtime & what songs might lull my baby to sleep. 

Painting tropical leaves in the nursery & learning all that baby wearing stuff. 

I really thought this was it. All the stars looked aligned. I got caught up in believing that I could have this & amongst the heartbreak I feel furious. I’m so angry with myself for not protecting the most vulnerable part of me. I’m angry that my body won’t do what comes naturally to so many. I’m angry that I have failed again. I’m angry that the world keeps doing this to me. 

Behind the anger is real fear. I am so scared that I can’t get through this again & even more frightened that this will be my only experience of pregnancy. The idea that carrying a life will always end in loss is overwhelming. I’ve worked so hard not to be overwhelmed by what life has forced upon me. I’m terrified of losing myself in madness once more. 

I’m still very much in the process of losing this baby. I know she’s gone, but my body doesn’t seem aware of it. I still feel pregnant. I don’t feel able to take any of the meds that I know will make this easier because I haven’t detached from the need to protect this little life. I have avoided speaking to even those closest to me because I’m just not ready to completely let go of my beautiful dream.  I’ve been able to do this partly due to the support of my lovely toy boy. To be taken care of without having to ask is a powerful thing. Having a companion in this is a new experience & a huge blessing (a word that will have him shaking his head), but it’s true. 

I feel much less alone. This child feels acknowledged & important. That’s a both a comfort and fuel for my guilt. I am aware that I am culpable for creating the situations that led to my boy not mattering to others in the same way. I’m also clear that it is my body that failed them. It’s acutely painful to live with that knowledge; no matter how unwilling the neglect. 

Isolation isn’t the answer. I know that, but I need some time. I have to let my body & my heart get used to the idea that I won’t be nurturing this child into life. I appreciate everyone’s patience. 

Let’s talk it over…

~ somethinginthewayshemoves ~ 3 Comments

Chronic illness is a bitch. The pain, the uncertainty & incapacitating symptoms are all a daily battle. Oh, but there is so much more. More that isn’t really talked about outside of spoonie circles & I thought it was about time that changed.

Obviously chronic illness covers a huge range of conditions & everyone’s experience is different. Thus I talk from my own personal view point with some input from fellow spoonies. Here are some of tricky issues that we’re quietly dealing with.

Travel

I mean any & all travel. From trying to get a bus to a hospital appointment to trying to cross the globe. The world is not spoonie friendly. 


Have you ever sat in those seats at the front of the bus that are meant to be reserved for ‘elderly & infirm’. I’m sure you tell yourself it’s fine because you’ll move if someone needs them, right? Well, you can’t always tell by looking that someone needs that seat. Having to explain yourself & ask a stranger to move is not easy. Thus I have collapsed on buses, cried from pain & just had to get off because I couldn’t stand any longer or make it to a seat further back. Which is a pretty good good analogy for trying to get about with disabilities. It can be hard as fuck without anyone noticing. 

Being chronically ill means planing every single outing in detail. Working out if you can manage to get to a bus stop or from a station to the place you’re actually going. Thinking ahead about stairs & where toilets are. Planning when you’ll need to eat, if you’ll be able to eat & how meds will work around that. Worrying about queues & how slow you move & often you’re going to have to sit down. 

I can’t tell you how many times I’ve not participated in something I wanted to because the logistics were just beyond me. 

Relationships

Whatever your illness there will always have to be that early days conversation about what exactly is wrong with you. In my case I have scars to explain & a whole bunch of fairly scary details to talk about. In the beginning I thought that would be the hardest bit, but it so isn’t.
The worst part is all the normal things that are so much more complicated for me. I am completely aware that sometimes I’m no fun. I say no more often than most people. I have many (too many?) limitations. I’ve adapted to that, but I never know if others will. 

It’s scary & stressful to try someone new. They might well get fed up accommodating me. Every time I say I can’t make a social event or have to admit that I don’t fell well, I worry. Maybe this is the point they’ll decide a spoonie girl friend is just not worth it. The truth is, I wouldn’t actually blame someone for having those thoughts. After all, life is for living .

That’s the real kicker, it’s not a problem that can be resolved. Wanting to live a life that I’m not fit enough for doesn’t make anyone a bad person. It’s just another thing I (we) get to think about when I can’t sleep. 

Side Effects

Sometimes the treatments are worse than the illness. Almost every medication I take produces a side effect that impacts on my life. In fact I take medications to help with the side effects of my medications. I’ve taken drugs that have made me vomit, itch, gain weight, lose weight, have double vision, dizzy spells, palpitations, acne, the list goes on. 


Every treatment one is offered comes with a list of possible side effects. Chronic illness is a constant balancing act. How much relief will I get from my symptoms & will it be worth the new problems it will cause? 

I often illustrate this problem like this.

Severe anaemia can cause itchy skin & angina. 

A blood transfusion & opioids can treat these complaints.

Guess what a major side effect of both transfusion & opiates is, yup, really itchy skin. 

Welcome to the conundrum of chronic illness. What cures me might well kill me to. Fun!

Money

Hardly anyone likes to talk publicly about their finances. It’s awkward & it’s private. I hate talking about money, but honestly with regards to disabilities, someone has to. Having any kind of disability almost always screws you financially. What work you can do is limited. Employers will silently discriminate against you & the current  government will loudly throw you to the sharks. All the while ones disabilities will incur extra costs at every turn. In terms of cold hard cash, illness will cost you. Lots. 


The Embarrasment Factor

Never underestimate the power of embarrassment. All of the things I’ve discussed here can make a person feel really small. Be it feeling red faced about a misbehaving stomach or the facing soul destroying humiliation of having to justify your right to be alive at an ATOS assessment. Humility is a lesson spoonies learn over & over. 


Imagine how you felt the last time you farted somewhere you wish you hadn’t & the feeling of falling over on a crowded street & having to talk to a dr about a really cringey complaint & admitting you’ve failed at something important & having to tell the world that you need help with things everyone else can do. Now imagine coping with some combination of all the above every day. Welcome to my world. 

Transforming mental health through research…

~ somethinginthewayshemoves ~ 1 Comment

I have struggled with mental illness for most of my adult life. I have written here before about the difficulties I have faced & the massive impact my illness has had on my life. As painful as my issues have been I have always been incredibly grateful that I faced them as an adult. The growing crisis in children & adolescents mental health care demonstrates that not everyone is so fortunate.

Currently 3 children in class have a diagnosable mental health issue. Despite early intervention being a key factor managing mental illness, children often do not have access to specialised services. Many young people are trying to deal alone with problems of a magnitude that defeat adults.

MQ Mental Health Infographic[754]1.png 

There has been much talk of mental illness reaching parity with physical in terms of funding & priority. However, there is still a vast shortfall in mental funding. It is clear that the descripency in care for young people facing mental illness has long term impact on not only individuals, but also society at whole.
The only way to defeat the stigma attached to mental illness is to treat psychiatric & medical problems equally. We must make it easier for children to not only talk about mental illness, but to actually access the treatment they need.

MQ Mental Health Infographic[754]2.png

As I said there have been moves towards redressing this shortfall in mental health funding & research, but it has to be solidified. In order to guarantee this sustained political will has to be garnered.

If you feel, as I do, that this is a critical public health issue please get involved at http://www.mqmentalhealth.org

Love your curves & all your edges…

~ somethinginthewayshemoves ~ 6 Comments

January has been a bit of a fail on the outfit post front. I wasn’t out all that much & I had no photographer when I was. I aim to do better this month. Starting right now.

I wore this outfit to lunch with my bestie a couple of weeks ago, but didn’t get any good pics. I really did like it & recycled the look for a film with my Sis. 


This swing skirt is too big now as the combination of going vegan & taking metaformin has caused me to inadvertently lose some weight. It still looks cute if I pin it a little & I think I’ll try getting it taken in. Anyway, the print is fresh & with a simple vest it shows of my ins & outs nicely. 


Skirt – Lindy Bop

Cardi – Primark

Brooch – Posie Grenadine (Etsy)

I stuck my favourite brooch on for a touch of sass & was good to go. We had a quick, but yummers lunch at Tortilla. Great option for vegans, big thumbs up. 

We saw Split, which could have been a fairly entertaining thriller had it not gone down the tired ‘crazy’ route. The vicious killer has dissociative identity disorder & of course has alters who want to abuse people. This is basically the only way DID is represented by popular culture & is so stigmatising. It’s a shitty trope that needs to stop. In short, I’d suggest giving it a miss. 


Amusing outtake. 

Power to the people…

~ somethinginthewayshemoves ~ 4 Comments

If like me, you are firmly planted on the left of politics, you are probably despairing at the moment. Trump has been in power for 13 days & he’s already making terrifying changes. It’s easy to feel far away & powerless, especially when you have a disability. However, the truth is there is lots we can all do & it’s essential that everyone does what they can. 


The most obvious sign of dissent are protests. Taking to the streets & making your opposition clear can be very powerful. I know this can be difficult & sometimes down right impossible for those with disabilities. The most important thing is not to feel guilty about missing protests. You have to put your health first. You can still engage with the movement by sharing details and pictures of marches on social media. If you can manage for 10 or 20 mins, go for that time only. Every little bit counts. 


Another great way to combat Trump’s facist agenda when differently abled is to make strategic charitable donations. 

Southern Poverty Law Centre is an organisation that fights intolerance. The monitor & inform the public of hate groups, help the most vulnerable seek justice, educate communities to reduce prejudice & much more. Racists & extremists are emboldened in the current climate, funding a group like this pushes back. 

American Civil Liberties Union defends freedom of expression & equal rights for all. The first weeks of this new administration have already shown signs of hostility towards free press. Rumoured changes to laws protecting the LBGTQ community are very worrying. Now more than ever a group that can fight injustice through the courts is required. 
Planned Parenthood Aims to provide affordable health & reproductive care to all women (& others who need their services). Along with vital access to contraceptives and abortion PP also offer sex education, sti testing,smear tests & breast exams. With a president on record as believing that people who have an abortion should be punished, this safe access must be preserved. The entirety of PP’s services save & improve incalculable lives. It is an essential organisation.

There are of course many other charities worthy of your support. From refugee orgs to LBGTQ rights groups, there are no shortage of worthy non profits. Anything you can give will help. If eveyone gave even 50p it would make a massive difference. Having said that, I know not eveyone has any money to spare. Again, you can help by sharing groups on social media & getting their message to a wider audience. 

Try to engage with bigotry in your own friendship/family groups. Trust me I know how infuriating this can be. It hurts so much more to discover someone you care about holds these vile beliefs , but some folk can be saved from the dark side. Know your history & use it. There are so many similarities to be drawn between the period between the world wars & the period after the financial crisis. For example the conditions in Germany during the Weimer Republic helped to create an environment for Hitler to flourish in. Compare Trump’s strategies to that of Hitler’s, the parallels are frightening. Learn about American history, having an understanding of it’s story helps to illustrate what is so wrong about modern racism, xenophobia misogyny. Do remember it is also ok to withdraw. If someone stubbornly sticks with toxic views, you are entirely with your rights to ditch them

Share your message in as many forums as possible. Share articles & graphics on social media. Join local political groups, help distribute leaflets or raise funds if your health allows. Talk about your opinions on the ‘alt right’ on your blog or in your art. Make your voice heard in any way you can. Their is value in solidarity, it is massively comforting to know one is not alone. 

Last, but absolutely not least, do not forget about what’s happening at home. Post brexit Britain is no picnic; hate crimes have seen a 40% increase since the referendum. Our government is purposely defunding the NHS & cuts in benefits for the most vulnerable members of society are ongoing. There is work to be done  here too. Write  to your Mp about important votes & any issues you feel are critical. Apply all of the suggestions above when fighting on the home front. 

Finally, support local charities too. This month I’m turning my charitable attentions to Refuweegee. They are committed to ensuring refugees arriving in Glasgow receive a warm Glaswegian welcome. You can donate money or goods & even write a nice letter for our new arrivals. 

Go forth & fight the good, inclusive fight!