Time to say goodbye…

This week I said goodbye to my Uncle Gerry. He died before his time, but faced death with courage & humour. He lived his life with warmth & generosity; never forgetting a birthday & always offering whatever he could of himself to his loved ones & community. The packed chapel at his funeral reflected how much he was appreciated.

In his honour I wanted to pause to share the beauty I am still lucky enough experience. So often I (we) get bogged down by the stresses & strains of daily life that I forget how lovely the world can be. Sometimes it takes a loss to remind us what we still have.

Fireworks, swans, GlasgowSunset paws

Blue sky, Glasgow, lilies

In the spirit of his giving nature I also wanted to share some organisations doing incredible work. I hope you will support them if you can.

Crookston Community Group aims to develop a sense of community whilst helping those in need. The fund a number of services ranging from a food bank to children’s activities and community cohesion workshops.

Street League works with unemployed youth using sport as means to provide training & gain skills needed to find employment. They have fabulous success rates in getting young people into work. They focus on areas of high youth unemployment.

Peek want to increase the opportunities for children to reach their potential. They offer free play and creative learning services that allow children to thrive. They remove barriers by offering support & education for both parents & children.

Chin Chin, Uncle Gerry. You will be greatly missed.

Don’t worry, my arse…

I worry. Quite a lot actually. I stress over things great, small & possibly non existent. I probably worry much more than is either necessary or prudent. That’s the nature of worrying, though.

So, I while I confess to sometimes wishing I could turn off the worrying I find it incredibly frustrating when people suggest that is possible. There are of course strategies to deal with disquieting situations, merely deciding not to worry about it is not one of them.

I keep seeing this sort of thing offered as some kind of wisdom. This isn’t wise, it isn’t even sensible. It just displays an inability to understand what worry is. If it were possible for a person to decide no to worry, worry wouldn’t be a thing.

Obviously this is abelist. Anxiety is not always rational. Many people struggling with mental illness have spiralling worries. Ranging from the practical (money, employment, relationships) to the irrational & far reaching concerns that mental illness can bring. When you tell someone they can choose to stop, you’re kind of saying their anguish is their own fault. Advising a person to just stop worrying is as pointless as telling them to just not be ill.

Setting aside the ableism it’s still infuriatingly useless advice. Let me break it down,

Do you have a problem?

If I didn’t consider the issue a problem, I wouldn’t be concerned about it. So, yes, regardless of what an outsider might think, I clearly think it’s a problem.

Can you do something about it?

If I can, the solution must still be troubling or uncertain otherwise I wouldn’t be worrying.

If there is nothing I can do ignoring or pretending the issue doesn’t exist will not help me. Plus, lets me face it, if you are facing a problem that you cannot solve it’s unlikely that you can just magically forget it.

Saying this to someone in distress is unkind. It basically translates to I don’t care. Telling someone not to worry is not a suggestion of self care. It’s dismissive. Instead, perhaps try listening. Sometimes just saying it out loud can be helpful. If you can offer practical help, do. If you don’t know what someone needs, ask. A simple ‘what can I do’ can be so valuable. A little bit of time goes a long way.

Cold water surrounds me now…

I’m having one of those days when my emotions feel like they might sink me. It’s like all the feelings I usually keep in check have escaped & flooded the room. It’s hard to breathe or concentrate on anything other than keeping my head above water.

Luckily, I’m a strong swimmer. I know the worst thing one can do when in rough waters is panic. I need to take deep breaths whenever possible & focus on getting to dry land. All of which means sunday hit me a little harder than I expected. Mother’s Day always gives me pause, but this time last year I was pregnant. Now, here I am, still childless. Still trying not to lose hope. It does feel hopeless at times. When all the hurt & negativity bubbles up it is hard to see a point. What am I doing? Where is life taking me?

That is when I have to reach for reason. I must force myself to get sickeningly, happy clappy. In short, I count blessings. There are many & if it doesn’t make you cringe too much, I’m going to share a few.

Love. I have love in my life.

I have many beautiful little people.

Potatoes. Boiled, roasted, chipped, baked, in scones! A world with potatoes can not be all bad.

I have a very big & very comfortable bed.

And someone I like rolling around in it with.

I’m smart. I’m funny. I’m pretty fucking tough.

I was lucky enough to be born in a place that offers me safety.

I adopted the very best puss cat.

I have access to quality healthcare.

I got to be young in the 90’s.

I’ve seen the sunset on a beach in Corfu, cuddled a koala in Brisbane, watched fireworks from castle ramparts in St Malo, walked in The Beatles footsteps in Hamburg, ice skated in a snowing Central Park, got so wasted I lost one shoe in Amsterdam & so much more.

I have sung beloved babies to sleep.

Watched them take first steps & their personalities unfold.

I have a roof over my head.

Food in my belly.

Some really cool shoes.

And plenty to look forward to.

I don’t have everything, but what I do have adds up to enough. Life goes on. Life is good.

You can’t change the way she feels, but you could put your arms around her…

I dreamt about an old friend last night. A friend who is no longer living. It was a lovely dream that I was sad to wake from. As I tried to commit the dream to memory I realised that whilst I thought of her often, I hadn’t spoken out loud about my dear friend in a long time. Too long a time, which is something I need to rectify. I need to talk about her. Tell her story. Share how she changed me. And that is exactly what I am going to do.

Let’s start by saying I met J because we were both ill. I was in my early twenties & struggling to deal with undiagnosed PTSD. I was trying to hold together a life that was increasingly unsatisfying with a self harm habit that was spiralling out control. J was dealing with similarly unhappy circumstances and a self harm problem that becoming, frankly terrifying. We both found some comfort in a community of sick people who didn’t know where else to turn. We were people who couldn’t ask for help or had asked without receiving the sort of assistance the we needed. No one talked about self harm then. Except maybe in the odd film where it was usually portrayed as something a trouble teen might do or a suicide attempt. Even the mental health professionals treated us like shit (sadly, some still so). If our attempts to hide the problem had failed, our families & friends were frightened ( & in some cases cruel). We were dealing with real problems; rape, abusive relationships, miscarriage, escaping from cults, drug dealing parents & a multitude of other big, scary problems. We were of course also living with mental illness. Some of us had a laundry list of labels and others had not a single clue what the fuck was wrong. But there was absolutely something going very wrong for all of us. This is where I met J. Amongst this this group of desperate people I also found a salvation of sorts. These broken people offered each other a kind of support that we couldn’t find anywhere else. We dragged each other through the kind of darkness that most will never understand. And J was kind of our leader.
J was living with pain beyond what would be considered durable. Her mental anguish was compounded by the physical horror she was compelled to inflict upon herself. J was not ok. Every solitary moment of life was a battle hard fought. And, yet, she always had time for us. She had love and support and encouragement for her damaged flock. J lived in a different time zone, but she still called day & night to remind me to keep breathing. She wrote letters and sent care parcels. She compiled lists of all the things that just might offer one us a couple minutes respite from our own fucked up heads. She replied to every ‘ I can’t do this anymore’ with such kind & convincing entreaties to keep trying, that we did. Her words worked because we knew, that she knew. We were all able to help each other because we shared a world that most people didn’t know existed. For me, j was the ultimate inspiration. If she could do this with such grace, I owed it to her and all the others who loved me to at least not give up.

Kelvingrove park

It’s such a cliché, but this goodness expanded beyond our group. She was studying to be a nurse because she wanted to help people. Everyone in her life adored her. J was that person who offered succour, but she wasn’t a martyr or a goody goody. She was fun. Her sense of humour could be wicked. Most of all she was strong. J fought to live. She engaged with mental health services that let her down over and over and over. She was still working and studying at the peak of her illness. She endured the brutality of her self harm and the callousness of those supposed to treat them. She did it all with dignity. Life beat J black and blue. This world committed an almost constant vicious assault on her. She fought back hard. She battled with and blood and heart and care and tears and wonder. She did not win.
J succeeded in taking her own life in a sad and awful way that left no doubt that she meant it. I wish with everything in my being that I could have changed how her story ended. Both the circumstances & the prematurity of her passing, but I don’t blame her. I understand that life was no longer a viable prospect for J. I hate that, but I do not begrudge her some peace. I am still angry at the professionals who failed her and the people who’s actions caused her so much pain. I will never be angry at J. She gave life her very best shot. Her suicide was neither selfish nor weak. It was just the only option she had left. It kills me that someone so beautiful was left with a choice so ugly. I understand it, though. Whilst I know it may be an unpopular opinion I can accept it. I can respect that it was her decision to make.


So, why I am writing this? What am I left with? Actually what remains is so much more positive than I could have ever imagined. Losing J was soul destroying, but life does go on. I go on and so do those other sad people that she cared for. I don’t want to disrespect those wonderful people by not acknowledging that they too saved me. We all helped save each other. In hundreds of big and small ways. After J’s death we continued to care for each other. We laughed and cried and screamed and swore together. We stayed up nights and called ambulances. We sent Xmas cards and made hospital visits.
From that group I maintain friendships with some incredible people. Some of us are entirely recovered, some still walk the tight rope; we are all still alive. We have partners, careers, babies, hobbies & passions. We all do our bit for mental health awareness. Whether that’s through writing, organising, working in the field, donating to MH charities or just supporting loved ones with their difficulties. I will spend the rest of my life doing everything I can to prevent others falling through the cracks. I will fight for everyone to have more choices than J. I know I am not alone. That is her legacy. She lives on through the people she touched. We endured. We succeeded. We survived.
WE LIVE

1 in 4 adult in UK will experience mental illness at some point in their lives. It is incredibly likely that you or someone you love will have to fight this battle. You can help improve the lives of suffering in a number of ways. Please do what you can to make sure more people survive.

Add mental health education to the national curriculum

Donate to Samaritans

Donate to SAMH

You an also make a massive difference by writing to your elected representatives an telling them mental health is major issue for you. Let them know that how they vote on mental health related issues matters to you. You can find your representatives here.
Find my MP
Find my MSP

 

I am ready now to fall…

Dear Baby,

I still write baby even though you’d be almost grown now. You’d be pretty much a man, which is very scary. I bet you’d be amazing, though. I picture you as tall & sensitive & just a tiny bit reckless. I know we’d have butted heads, but I’d love your fire. 

 I’m feeling pretty raw this year. You have another sibling who didn’t make it to life. I have another reason to cry. I have reasons to smile too. I’m doing ok. 

I’d be better if I was buying cake & wrapping presents, but life had other plans for us. I had to learn to be strong & you were destined for somewhere more beautiful than this world. 

I’m ready now. Love, loss, life, I can take it all in my stride. I am ready to to mother a child I can hold in my arms as well as my heart. I have wonderful new little people to cherish, I have hope & I will always carry you with me. That’s enough for now.

Love always,

Mum.

Xxx

Blackbirds singing in the dead of night…

It’s 5.07am. There are some very loud birds outside & the light is creeping around the edges of my blackout blind. I haven’t slept, but I do finally feel a little bit sleepy. Do I sleep? If so I might sacrifice the day. After no more than a couple of hours for the last few nights I might conk out big style. I wanted to do something today. Something nice enough to make me feel like I’m participating in normal life whilst still being easy. Sleeping all day does not fit the bill. Although, perhaps I’ll wake up feeling rested & be productive. If I could complete one of the many, many things on my to do list it might relieve a little anxiety. For now I’m stuck in the vicious crazy circle. No motivation + no energy = accomplishing nothing. As the things I have not done pile up so does my anxiety. Until the undone things & the anxiety are so huge that I’m paralysed by their weight. I’m just stuck underneath, stressing & not sleeping & feeling increasingly worthless. So, maybe I should sleep. I’m exhausted. I’m always exhausted because I never get enough sleep. There is always something keeping me awake. Be it pain or fear or coughing or nightmares or vomiting or the terrifying vagueness of insomnia. Right now I feel that illusive part of tiredness that usually escapes me. The fuzzy comforting drowsiness that signals actual sleep is a possibility.

But

If I sleep now, chances of sleeping tonight are slim. I could miss the chance to do a thing that could make me feel something other than grey or jittery. If I close my eyes now I’m risking the dreams. Flashing scenes dripping with all the things I cannot bear to look at again. Flickering images soaked in feelings too potent for consciousness. Then I’ll wake in a mess. Heart pounding, breath hiding & I’ll have to talk myself down. Fool myself into a calmness that’s counterfeit. Either way the day is scuppered. All those hopes for lightness dashed. 

So, I stay awake. I’ll just wait in this cool dark room for the day to really get started. Force myself into the shower. Try to make a plan that doesn’t feel overwhelming. Push down the fatigue & the jangling of every nerve for the possible reward of OK. Reassure myself that this isn’t forever. Repeat that I am not back in the hole. It has been a difficult month. I am allowed to feel bad. Tomorrow or the next day or the day after that will be an easy one. Just keep going. Swing from one pleasant moment to the next & hold my breath through all the rest. 

This will pass

I will write the things that are over due

I will do some god damn washing 

I’ll cook a proper meal 

&

Wash my hair

Peace will be restored 

Life will go on

&

I will live it. 
If only I could get some sleep…

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I’ve got tears that are scared of the facts…

My baby was the size of a large olive. Almost all of her vital organs were formed. She had tiny finger nail buds & her body was covered in fine hair. And now she’s gone. 

So, I’m writing my emotions because I can’t bring myself to verbalise them & they have to escape somehow. 

With my health & my history this wasn’t unexpected, but that didn’t make it any less shocking. Being pregnant again was scary. It felt unreal to begin with, but I had started to believe that this was my time. The fear never left me, but the hope grew. 

I felt very pregnant. I still do, which seems particularly unfair. Sickness & nausea & cramps & sore nipples & peeing or crying every two minutes. Strong smells became my nemesis. I haven’t even been able to wear my own perfume. Pregnancy ruled out almost all of my normal meds. I’ve basically felt horrendous but been delighted to suffer. All the pain & discomfort meant my body was doing the very thing I didn’t think it could do. I worried about every twinge, but I also relished them. 

I felt like we were having a girl. He never said so, but I think maybe the toy boy did too. We talked about girl’s names so much more than boy’s. I talked & thought too much about too many things. 

Names & maternity clothes. 

The best way to tell my neice & when to tell the rest of the world. 

Which stories to read at bedtime & what songs might lull my baby to sleep. 

Painting tropical leaves in the nursery & learning all that baby wearing stuff. 

I really thought this was it. All the stars looked aligned. I got caught up in believing that I could have this & amongst the heartbreak I feel furious. I’m so angry with myself for not protecting the most vulnerable part of me. I’m angry that my body won’t do what comes naturally to so many. I’m angry that I have failed again. I’m angry that the world keeps doing this to me. 

Behind the anger is real fear. I am so scared that I can’t get through this again & even more frightened that this will be my only experience of pregnancy. The idea that carrying a life will always end in loss is overwhelming. I’ve worked so hard not to be overwhelmed by what life has forced upon me. I’m terrified of losing myself in madness once more. 

I’m still very much in the process of losing this baby. I know she’s gone, but my body doesn’t seem aware of it. I still feel pregnant. I don’t feel able to take any of the meds that I know will make this easier because I haven’t detached from the need to protect this little life. I have avoided speaking to even those closest to me because I’m just not ready to completely let go of my beautiful dream.  I’ve been able to do this partly due to the support of my lovely toy boy. To be taken care of without having to ask is a powerful thing. Having a companion in this is a new experience & a huge blessing (a word that will have him shaking his head), but it’s true. 

I feel much less alone. This child feels acknowledged & important. That’s a both a comfort and fuel for my guilt. I am aware that I am culpable for creating the situations that led to my boy not mattering to others in the same way. I’m also clear that it is my body that failed them. It’s acutely painful to live with that knowledge; no matter how unwilling the neglect. 

Isolation isn’t the answer. I know that, but I need some time. I have to let my body & my heart get used to the idea that I won’t be nurturing this child into life. I appreciate everyone’s patience. 

All I can say is I’m breathing…

PTSD is a persistent foe. You can make progress & start to think maybe, just maybe you can actually defeat this bastard, but it knows you think that. 

It’s waiting for you to relax your hyper vigilence. The moment you begin to let go of the breath you’ve been holding for 17yrs it will suck it in & grow.

Folks in your life see you gaining strength & think you’re better. There is no ‘better’.  There is managing ,

coping,

trying to live,

daring to live?

The good days can start to stack up. You can feel a safe distance from the horror, but you can never be sure. 

You can never be certain that a flashback won’t stun you like lightening. 

And stuck in that hot, white memory you could loosen your grip on the here & now.

The relative calm & safety could be shattered. Perhaps only for that instant. You could be lucky, those smells & fears could melt away. Current achievements or delights may well wash over you. It’s possible. That happens. 

You’ll make plans & take steps. But you’ll always be looking over your shoulder. The knowledge of the cruelty of your own mind will keep you rigid.

Because lightening does strike twice & thrice & ever & on.

With every thump of your heart you know you’re only one more squeeze from disaster. Where little sleep becomes none. The crazy creeps out from behind all those positive walls, it brings terror & tsunamis of grief. 

And the pills don’t work

Or Dr’s 

Or the life jacket you had to make with your bare hands. 

There is only one way to row to shore & it’s brutal. It’s hot blood dripping from your fingers; slippy yellow fat & an uncontrollable urge to cut a little deeper. 

Bleed a little more 

Wrapping up the unthinkable pain in the easy hurt of butchering yourself. 

This illness is being  awake in the night & writing so you won’t do. It’s ignoring the destructive comfort because you so desperately want this new, real life. 

And, yes, all those yous should be I’s. 

It’s my past, my pain, my ongoing battle for a future. 


Listen, I’m a really perfect song.

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You’ll be on my mind forever…

Today always creeps up on me. One minute it’s months away & then it’s here. I dread it’s arrival because I know it will unleash emotions that I try to keep chained up. September 12th would have been my child’s birthday. 

Today should be all presents & cake & surprises. Instead it’s a wound that never entirely heals. Of course life goes on. I live & there is joy, pride, love, but there is always a tinge of sadness. It hurts to miss the milestones & the everyday moments. The pain can catch me unaware & take my breath away. There are times when every aspect of my life feels wrong because this is not how I’d be living with my precious little one. 

  
It’s such an incredible feeling to know there is life inside you. I can’t speak for anyone else, but I knew immediately that I was pregnant. I knew before my period was late & before I took a test. I felt it. It was scary, unplanned, badly timed, but still so right. I became a mother in an instant & that feeling has never left me.

Yes, it’s painful to remember; it also helps. It’s easier for me to acknowledge today. It’s good to talk out loud about the person who changed my life without having a chance to live his. 

If love could have saved you darling, you’d have lived forever.